My son is in the hospital. I don't recall what number that puts us/him at for hospitalizations...
Do you ever wonder what it is that causes us to do something even though we think it is pointless?
I do. Is it some mystical part of the universe. A gut instinct. Hope...
I picked up the phone this morning to call my son's worker even as I asked myself why I was doing it because I wasn't expecting to get through to anyone or accomplish anything. I had previously called and left two messages and wasn't getting a call back as my son had denied me access.
I had called the hospital this morning and talked to my son and he of course stated that he didn't want to give me access as he wanted to keep everything between him and his workers. No surprise there. They have put him on Ativan/Lorazepam so I'm pretty sure he is happily stoned on it and certainly doesn't want me interfering.
I know that he is on Ativan as his grandmother has been calling me, sometimes just because she needs someone to talk to, to feel better. Not sure how I'm feeling about this new turn as I'm caught between my own natural instinct to want to be supportive and a need to keep some emotional distance between us.
Anyways his worker answered my phone call. I started the conversation with: I know you can't give me any information however I know you can listen. He did. I hung up, thankful that I had picked up the phone despite thinking it was pointless. I had been trying to fax over my notes, since my son's diagnoses and I had been having no luck. Turns out I had been faxing the wrong number. Oops. After confirming the right number I was able to fax so hopefully he has it now.
As it turns out, he had not followed up with my son's treatment team out here because he had no idea who/what they were. All he had was a note that had been sent out with my son stating what his prescribed medications were for. So for the past couple of months no one has had any information on my son's time with me in Ontario or his treatment. Mind boggling...
I also called PACT here and left a message for his (old) nurse or case worker stating why they hadn't heard from British Columbia with his current workers name and number.
I just got off the phone with a worker from the hospital that called me looking for background information. Of course she couldn't give me any information... I guess they are trying to put together a treatment and discharge plan. I almost freaked when I heard the word discharge. They want to know what my son's capabilities are. If he can live alone. Me the broken record: No he cannot live alone. He has zero living/coping skills. That is why I was trying to get him into a group home. No matter how stable he is, if left to his own devices he will become unstable within a short period of time. Alcohol/drugs then missed medications and ensuing psychosis will be the result. He can't manage his own money. He can't even take care of his basic hygiene without support and prompting.
I had some good intentions of getting some house cleaning done today... Instead I have spent most of it talking to people about my son and what I think he needs or doesn't need. I did manage to put in my two-cents-worth on him being on Ativan.
I also made some cookies for hubby!
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
The 4 C's: I didn't Cause it, I can't Control it and I can't Cure it but I can learn to Cope... Eleanor Longden on voices: “a sane reaction to insane circumstance.” My son was diagnosed in 2011 with paranoid schizophrenia. My observations as a caregiver without the pretty bows!
Showing posts with label PACT. Show all posts
Showing posts with label PACT. Show all posts
Wednesday, December 23, 2015
Thursday, October 22, 2015
What Does Society Teach? A Budget and Peppermint Oil.
The last couple of days I have been literally aching from head to toe as I have been hit with a cold. I haven't been working either as I have been doing my best to keep any talking to a bare minimum. Talking equals coughing. I have however discovered a wonderful cure to sinus congestion in peppermint oil. Knock on wood :). For the first time in my life-time of colds I have not had to deal with a runny nose or sinus congestion for longer then 5-10 minutes. As soon as it starts I put a dab on my finger and rub it in all around my nose and sinuses.
Dealing with my sore throat has not been so easy however I have been trying to be as pro-active as I can be. Lots of tea with honey, lemon and turmeric. Advil for my low grade fever and body aches. I was hoping to get back to work today however I'm having my doubts that will happen.
I may have to make a decision soon about work. I haven't been paid in over a month. Hubby and I were discussing a budget the other day so I took the time to write out how much we owe and how much our minimum monthly expenses are. We owe $43000. Our monthly expenses run around $5000. Add in extras like car maintenance, chiro or even us going out for dinner...
I don't even mind so much that I haven't been paid in a bit as I knew going in that this could happen. Still I can't let my boss get too far in dept with me either. It's dealing with some of the frustrations that make it not worth it. I'm trying to weigh the pros and cons of what I'm getting to what I could be getting. Yes I'm working from home and it's pretty cool to be doing that. I wanted to be able to continue to provide a certain level of care to my home and husband. Most importantly making good healthy dinners and spending our evenings together.
The last schedule change that my boss wanted... He wants me to work somewhere in the neighborhood of 9 am - 10:30 am, 11:30 am - 2 pm then 4 pm - 7:30 pm Mon-Thurs. Umm not! Plus it's a 6 days a week job. For the most part I don't mind as my husband usually works 6 days a week. Still I have dedicated most of my live to a job before and I'm not doing it again.
The pros... I get to work from home. What I've started to call my morning shift ;) I sometimes do in my PJ's. I can bake bread in between making calls. No one is micromanaging me.
The cons... I can work outside the home for less days with a more secure payment schedule.
I'm refusing to work past 6:30 pm. The other day I logged in and booked an appointment that had been confirmed through email. Through a pounding headache, tear filled stinging eyes with my body aching; I was trying to be responsible and keep an eye on my email... I booked an appointment without cc'ing someone that needs to be cc'd. Will I made a critical error... Why yes I did. I worked when I shouldn't have been working. I haven't logged in since. Things like this may be easier to take when your actually getting paid and not having to deal with the BS of someone not giving you the tools or knowledge to do your job properly.
Yes I know: The grass isn't greener on the other side... I think I take back most of the bitching I did about my old job. Every company has it's BS.
My son:
I found out on Friday that he was taking a bus to British Columbia on Sunday. Ontario to British Columbia is a 3 day bus ride.
2 weeks ago I had attended a group through the Schizophrenia Society and spoke to some of the others about how to go about getting my son admitted to hospital through court order. As usual it was a frustrating experience as everyone kept telling me that the hospital etc should have been telling me what to do. Well they weren't even with me asking for guidance. That included the PACT team. So even though I figured I had a bit of a fight ahead of me I still wanted to look into it.
I had been under the impression that my son was taking some medications as his nurse had told me that according to a worker at the shelter he was taking some. I knew that he wasn't taking care of his personal hygiene as I was helping with that when I saw him. I would get him to change his cloths and I would use wipes to clean his pits and face. Once I even took in Q-tips and had him clean his ears. Of course I had to do all this in the car since "Clients were not allowed to receive visitors".
Friday my son says to me: By the way I need to come and get my stuff because I'm going to Nanna's tomorrow. Both my husband and myself worked Friday and Saturday. Saturday I packed up what stuff he had here and took it to him. He asked if he could come home for the night and I agreed. I went into the shelter to collect his stuff and he had taken most of his cloths and electronics with him. There was nothing to collect and he was even wearing someone else's cloths and shoes.
I had thought that maybe my son and I could spend the evening together watching TV. It was after 9 by the time we got home. The first thing I had him do was put on some of his own cloths to find out that the shower he was supposed to have taken several days before wasn't obviously a good shower. He still smelled really bad. His hair and nails had been cut by his nurse from PACT. How he missed how bad my son smelled, I don't know.
I knew that my son's addiction had progressed from alcohol and marijuana to possibly cocaine and morphine. At one point I had brought one of his leather jackets home to try and clean and deodorize it but I had to throw it out. In the lining I found a baggy of white stuff. He thought he was buying cocaine. I think he got aspirin and bath salts. He did on one occasion tell me of a really nice guy that introduced him to morphine, he even had clean needles.
So many times I have fought the urge to bring him home. Canadian Thanksgiving I almost did. That morning I was going to... Then I thought it all through. To what end? I have no control over his money and therefor his ability to drink and use. When he drinks he becomes completely unmanageable in the home and puts everyone at physical risk. It would be 2 weeks of withdrawal, attitude and hopefully him just starting to get even on medications again before he got in another $600 from disability. And around it goes again. That's providing I could even keep him in the home that long.
Within 15 minutes of me bringing him home on Saturday he had spilled milk and juice all of the floor. By 10 he was outside in the back yard punching the walls. According to him he was doing art. I'm not sure either one of my neighbors that have young children were appreciating his form of art.
The fun part was when I decided to go through his backpack. The smell alone was enough to make me want to be sick. A couple of bottles of alcohol. One was almost full. My son not drink his alcohol! He was out of it to not remember that he had it. In the end I ended up tossing it and my husband went and got him a new one the next morning.
What else did I find? Lots of new needles in sterilized packaging along with Stericups... Sterilized cups for cooking your drugs in. Now don't get me wrong. I'm all for teaching addicts to be mindful of the transmission of diseases while they are shooting up. But seriously! Here's a new needle and cooking pot, don't forget to use an alcohol wipe first before you shot up with hands that are brown from nicotine and a months worth of build up body odor surrounding you. Come on! Really! I think they need to expand on these items to include a self-care manual with a toothbrush, toothpaste and at least some hand sanitizer and body wipes.
I didn't get to spend the evening with my son watching TV. I did get to spend until about 3 am with his voices. I have never seen them so bad. It was a constant dialogue between him and them. All you could hear was him whispering/talking to them under his breathe along with sporadic outbursts of laughter. Once I walked into the kitchen to him cocking and shooting a pretend gun.
He did take his medications when I gave them to him and finally they shut his voices up at around 3. Oh yes the medications I had been told he was taking. I picked up a months worth of unopened medications packages dating back to Sept 15.
I had been complacent again. After the last time his grandmother had said she wasn't taking him I thought I had some breathing room. I figured it was just a matter of time before he was admitted to hospital again. With that admission I was going to push for a reevaluation of his diagnoses since the PACT team was refusing my request. I would have also tried pushing for some sort of temporary decision making capabilities until I could further figure out how to get power of attorney through the mental health courts.
Sometimes I shake my head at myself because I really should know better. Everything was just too quiet. Whenever I asked my son if he was talking to his grandmother he would say not a lot. The PACT team stopped calling me. My son stopped asking to come home... Really that should have been enough for me to know. Hindsight is 20/20.
What bothers me the most is that I wasn't deemed worthy enough of so much as a phone call to say: Hey, I'm making arrangements for your son... I don't care what one wants to think of me personally. You can think I'm scum of the earth if you want to however the fact remains that I'm the one that carried him for 9 months and gave birth to him. The alone deserves a minimum amount of respect and consideration.
I wasn't deemed worthy enough of a phone call to say he made it there either. He did by the way.
I'm not sure how I feel about him being there. As I have been going through my own journey of letting go of things that I can't change, I know that I can't change or fix his addiction and therefor his mental health. I wasn't willing any longer to turn my home and world into circus to accommodate him. His grandmother is. Would I rather him be with her then where he was? Yes.
I don't think that it's going to have a good ending however I accept that this is what they both want.
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Dealing with my sore throat has not been so easy however I have been trying to be as pro-active as I can be. Lots of tea with honey, lemon and turmeric. Advil for my low grade fever and body aches. I was hoping to get back to work today however I'm having my doubts that will happen.
I may have to make a decision soon about work. I haven't been paid in over a month. Hubby and I were discussing a budget the other day so I took the time to write out how much we owe and how much our minimum monthly expenses are. We owe $43000. Our monthly expenses run around $5000. Add in extras like car maintenance, chiro or even us going out for dinner...
I don't even mind so much that I haven't been paid in a bit as I knew going in that this could happen. Still I can't let my boss get too far in dept with me either. It's dealing with some of the frustrations that make it not worth it. I'm trying to weigh the pros and cons of what I'm getting to what I could be getting. Yes I'm working from home and it's pretty cool to be doing that. I wanted to be able to continue to provide a certain level of care to my home and husband. Most importantly making good healthy dinners and spending our evenings together.
The last schedule change that my boss wanted... He wants me to work somewhere in the neighborhood of 9 am - 10:30 am, 11:30 am - 2 pm then 4 pm - 7:30 pm Mon-Thurs. Umm not! Plus it's a 6 days a week job. For the most part I don't mind as my husband usually works 6 days a week. Still I have dedicated most of my live to a job before and I'm not doing it again.
The pros... I get to work from home. What I've started to call my morning shift ;) I sometimes do in my PJ's. I can bake bread in between making calls. No one is micromanaging me.
The cons... I can work outside the home for less days with a more secure payment schedule.
I'm refusing to work past 6:30 pm. The other day I logged in and booked an appointment that had been confirmed through email. Through a pounding headache, tear filled stinging eyes with my body aching; I was trying to be responsible and keep an eye on my email... I booked an appointment without cc'ing someone that needs to be cc'd. Will I made a critical error... Why yes I did. I worked when I shouldn't have been working. I haven't logged in since. Things like this may be easier to take when your actually getting paid and not having to deal with the BS of someone not giving you the tools or knowledge to do your job properly.
Yes I know: The grass isn't greener on the other side... I think I take back most of the bitching I did about my old job. Every company has it's BS.
My son:
I found out on Friday that he was taking a bus to British Columbia on Sunday. Ontario to British Columbia is a 3 day bus ride.
2 weeks ago I had attended a group through the Schizophrenia Society and spoke to some of the others about how to go about getting my son admitted to hospital through court order. As usual it was a frustrating experience as everyone kept telling me that the hospital etc should have been telling me what to do. Well they weren't even with me asking for guidance. That included the PACT team. So even though I figured I had a bit of a fight ahead of me I still wanted to look into it.
I had been under the impression that my son was taking some medications as his nurse had told me that according to a worker at the shelter he was taking some. I knew that he wasn't taking care of his personal hygiene as I was helping with that when I saw him. I would get him to change his cloths and I would use wipes to clean his pits and face. Once I even took in Q-tips and had him clean his ears. Of course I had to do all this in the car since "Clients were not allowed to receive visitors".
Friday my son says to me: By the way I need to come and get my stuff because I'm going to Nanna's tomorrow. Both my husband and myself worked Friday and Saturday. Saturday I packed up what stuff he had here and took it to him. He asked if he could come home for the night and I agreed. I went into the shelter to collect his stuff and he had taken most of his cloths and electronics with him. There was nothing to collect and he was even wearing someone else's cloths and shoes.
I had thought that maybe my son and I could spend the evening together watching TV. It was after 9 by the time we got home. The first thing I had him do was put on some of his own cloths to find out that the shower he was supposed to have taken several days before wasn't obviously a good shower. He still smelled really bad. His hair and nails had been cut by his nurse from PACT. How he missed how bad my son smelled, I don't know.
I knew that my son's addiction had progressed from alcohol and marijuana to possibly cocaine and morphine. At one point I had brought one of his leather jackets home to try and clean and deodorize it but I had to throw it out. In the lining I found a baggy of white stuff. He thought he was buying cocaine. I think he got aspirin and bath salts. He did on one occasion tell me of a really nice guy that introduced him to morphine, he even had clean needles.
So many times I have fought the urge to bring him home. Canadian Thanksgiving I almost did. That morning I was going to... Then I thought it all through. To what end? I have no control over his money and therefor his ability to drink and use. When he drinks he becomes completely unmanageable in the home and puts everyone at physical risk. It would be 2 weeks of withdrawal, attitude and hopefully him just starting to get even on medications again before he got in another $600 from disability. And around it goes again. That's providing I could even keep him in the home that long.
Within 15 minutes of me bringing him home on Saturday he had spilled milk and juice all of the floor. By 10 he was outside in the back yard punching the walls. According to him he was doing art. I'm not sure either one of my neighbors that have young children were appreciating his form of art.
The fun part was when I decided to go through his backpack. The smell alone was enough to make me want to be sick. A couple of bottles of alcohol. One was almost full. My son not drink his alcohol! He was out of it to not remember that he had it. In the end I ended up tossing it and my husband went and got him a new one the next morning.
What else did I find? Lots of new needles in sterilized packaging along with Stericups... Sterilized cups for cooking your drugs in. Now don't get me wrong. I'm all for teaching addicts to be mindful of the transmission of diseases while they are shooting up. But seriously! Here's a new needle and cooking pot, don't forget to use an alcohol wipe first before you shot up with hands that are brown from nicotine and a months worth of build up body odor surrounding you. Come on! Really! I think they need to expand on these items to include a self-care manual with a toothbrush, toothpaste and at least some hand sanitizer and body wipes.
I didn't get to spend the evening with my son watching TV. I did get to spend until about 3 am with his voices. I have never seen them so bad. It was a constant dialogue between him and them. All you could hear was him whispering/talking to them under his breathe along with sporadic outbursts of laughter. Once I walked into the kitchen to him cocking and shooting a pretend gun.
He did take his medications when I gave them to him and finally they shut his voices up at around 3. Oh yes the medications I had been told he was taking. I picked up a months worth of unopened medications packages dating back to Sept 15.
I had been complacent again. After the last time his grandmother had said she wasn't taking him I thought I had some breathing room. I figured it was just a matter of time before he was admitted to hospital again. With that admission I was going to push for a reevaluation of his diagnoses since the PACT team was refusing my request. I would have also tried pushing for some sort of temporary decision making capabilities until I could further figure out how to get power of attorney through the mental health courts.
Sometimes I shake my head at myself because I really should know better. Everything was just too quiet. Whenever I asked my son if he was talking to his grandmother he would say not a lot. The PACT team stopped calling me. My son stopped asking to come home... Really that should have been enough for me to know. Hindsight is 20/20.
What bothers me the most is that I wasn't deemed worthy enough of so much as a phone call to say: Hey, I'm making arrangements for your son... I don't care what one wants to think of me personally. You can think I'm scum of the earth if you want to however the fact remains that I'm the one that carried him for 9 months and gave birth to him. The alone deserves a minimum amount of respect and consideration.
I wasn't deemed worthy enough of a phone call to say he made it there either. He did by the way.
I'm not sure how I feel about him being there. As I have been going through my own journey of letting go of things that I can't change, I know that I can't change or fix his addiction and therefor his mental health. I wasn't willing any longer to turn my home and world into circus to accommodate him. His grandmother is. Would I rather him be with her then where he was? Yes.
I don't think that it's going to have a good ending however I accept that this is what they both want.
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, September 25, 2015
Glass Houses, Time For A Second Opinion
Hello readers! I have missed you...
Life, as it does, has kept going.
My son is currently in a shelter. He did come home for a little while.
I did manage to arrange a family meeting while he was inpatient. A lot of good that did. I shouldn't say that. His case manager requested that they do a assessment of my son to see what type of life skills he has for living on his own. No surprise there. He doesn't have any. He never has. He can't take care of himself when he is living in an environment when most of his basic needs are being taken care of. His level of self-care is non-existent at this point.
Since there was no where for him to go when it came time for him to be released from the hospital, I brought him home. He certainly wasn't stable, just not in crisis anymore.
It took less the 24 hours for things to start to fall apart. 5 days later he was in a shelter. During that short time it was attitude about everything. Smoking in his room. Sleeping outside on the front steps. Leaving a trail of mess wherever he went including spit and vomit. Swearing at me... It all came to a head when my husband asked him to clean up his mess on the front steps as there was cigarette butts everywhere, garbage and glass dishes that we were worried a kid could get hurt since they play around my front steps. That wasn't taken very well by my son. The end result... Michael throwing my coffee maker on the floor, smashing it and screaming in my face to F-off. The next day I had his nurse take him to the shelter.
For the most part it's been the same as any other shelter stay. Calling me for money and cigarettes. He did receive a payment from disability for almost $600 while in there. That was gone in no time. He told me that he got robbed. I don't believe it. I know what he was like the last time he got robbed. How upset and animated he was about it. This time... Nothing but calm. We did end up buying him 2 cartoons of cigarettes that was gone is just over a week. According to my son they kept disappearing, that someone must be taking them out of his backpack. You would have to see my son with his backpack. It doesn't leave his side. Of course not... I would bet my life on it there is marijuana in it. Actually I don't need to do that as he admitted to me last night that he has some.
There was arrangements being made for him to go into a group home. They were redoing the room so it was taking a little longer for them to paint etc. His nurse went and cleaned him up pretty good for the meeting. I was impressed when I saw him. Sadly he lost his spot. I guess he was acting pretty inappropriate while at this meeting. My son didn't want to go there since he knew arrangements were being made for him to possibly go with his grandmother. He made that pretty clear during the meeting that he didn't want to be there.
The shelter gives first priority to PACT clients. My son was a shoe-in. Normally one has to wait a long time to get into a group home but circumstances arose at just the right time. I remember thinking: Finally. We can start getting him on the right track to growing up and being responsible. I was wrong. Another PACT client got it.
Last week I found out that a plane ticket was in the works.
The conversations regarding this between my husband and I has been... He sounds like I did a year ago. Can't you do this? What if you do that? He can't go there... Did you tell so and so about this? Yes I've done it all. Which is most likely why there was zero assistance coming from anyone on this end to help it happen. No one would even take him to the airport however just like before, no one could stop it. Legally an adult and I don't have power of attorney.
This Monday was a tough day for me. After a weekend of trying to resolve myself to the idea of yet again letting go and letting my son mess up his life even further, I ended up going to the store and buying cigarettes. 3 months... I stood there thinking I can fall apart right now which I'm not inclined to do or smoke. I was also butting heads with my boss and ready to quit for a moment ;).
For the past 24 hours or so I have been struggling with feelings of hurt. I know that I can sometimes sound pretty harsh about my son's grandmother. I'm certainly not in agreement with what she tries to do. Still I have always understood that she thinks she is doing what is best and that her actions are out of love for my son. We just don't agree on what love is ;).
I know that I try to come off like I don't care what other people think of me. Of course I do to a certain extent. I don't change what I'm doing because of it because I truly believe in what I'm doing and why.
I found out how my son was going to get to the airport. His great-uncle. I haven't spoken to this person since I was with my kids Dad. However when we were together we used to hang out with him a lot... I called him and left him a message to please call me before putting my son on a plane. I have been informed that he won't talk to me except to... well anyways. All he knows about me now is what he has been told by my son's grandmother. I can only imagine the horrible person that he thinks that I am. How I'm turning my back on my son, putting him out on the streets and certainly not showing him any love... Yes the thought of someone thinking about me like that, hurts. Surprisingly it hurts a lot. Not much I can do except remind myself that however he sees me is behind the glass of his own glass house.
Yesterday morning I was informed that he wasn't going there. His grandmother had changed her mind.
Now what? I don't know. Again time has been lost where his treatment team could have been looking for housing for him. I saw my son last night. Would I consider taking him back? Yes if there is power of attorney. My son says that power of attorney is against his religion.
This brings me to the second opinion. I want a second opinion on his diagnoses. I know that I have questioned if he has schizophrenia and then I end up falling back on that diagnoses. Still there has always been something that says that there is a lot more going on. When he gets sick he presents as schizophrenic. I had asked his nurse to bring it up to his treatment team to have him re-evaluated. His nurse got turned down. Due to my son's history of diagnoses and referrals etc the schizophrenia diagnoses is staying. That means that one doctor reads another doctors notes, sees my son while he is again presenting with apparent psychosis and nods his head in agreement. Yes, schizophrenia. Let's not question the status-quo.
Here's a what if? What if in 2011 the doctor's in British Colombia knew the extent of my son's marijuana use. The marijuana use that was hidden from them and covered up. The marijuana use that was causing his medications to not work and therefore giving him the diagnoses note of: Medication resistant. The marijuana use that got him the sub-type diagnoses of paranoid schizophrenia. It's always been the marijuana that causes him to be paranoid. When he isn't using the paranoia is gone, the belief in chi, telekinesis and whatever else he used to do before coming to live with me, is also gone. Without marijuana where is his paranoid schizophrenia? Good question.
Since he has been in the shelter I'm pretty sure he is back to daily use again. He is way to mellow. Not a care in the world. He is presenting as someone in psychosis... Takes a long time to answer a question or respond when asked to do something. I was told that the shelter staff have been having to direct him or tell him to not being doing certain things like lying on the floors etc. It's because he is stoned.
I really wish a professional would take the time to help me understand what I'm seeing and put it all into perspective because it's not adding up. As far as I know the defining characteristic of having a psychotic break is losing touch with reality. My son doesn't lose touch with reality. This has always been something that keeps standing out for me. Over the years conversations about his breaks has come up. He remembers all of his breaks, if that is what they are. He remembers his first one where he was catatonic. He heard everyone talking to him and felt them touching him. He was just lost in his own head from the all of the marijuana that he had smoked. The first break I went through with him where he believed he was a vampire, in a gang and chewed on my fingernails. He remembers doing that. When he punched out his grandmother. He remembers all of that. He didn't break with reality. In each of these instances he had been smoking marijuana and having recently stopped taking prescribed amounts of medications or stopped completely. Even if one doesn't have psychosis and stops medications like that then the rebound affect can be psychosis. And yet even with all that my son doesn't break with reality. So many times I will think that he is lost in there. Until you say or do something and realize he is very much aware.
I'm not sure what my son's mental illnesses are... I have some thoughts and ideas and they fit better then schizophrenia. Sadly schizophrenia would probably be the better choice. Since the beginning I have questioned if what I'm seeing is sociopath. That is also in his genes. I questioned narcissism. A lot of the characteristics of his personality that can't be explained or attributed to schizophrenia or even ADHD and ODD can be seen and makes sense if one has narcissistic personality disorder. Could what he is going through be the beginning stages of either one of these? My son is still young. His personality is still developing. I have watched him become more and more adapt at manipulation. I have watched his mood swings and play of emotions when he isn't getting what he wants. Narcissistic are not without emotion. In fact they have lots of them and can be very loving I'm sure when it suites their own purposes. What happens when they aren't getting what they want or what they feel they deserve?
My son just called me. He wants me to come see him today. I was surprised at that request since he knows that I'm not going to give him any money and I dropped of smokes last night. Sometimes he breaks my heart into little pieces. I was watching some teenagers on skateboards last night. My son has missed out on all that. Regardless of what my childhood and life has been, I had playing in the rain, fighting with my best friends, sleep-overs, embarrassing classroom moments, first loves, first break-ups and learning about sex all the wrong ways...
I can't give him his lost childhood. I wish that I could give him his adulthood.
The very same people who are treating me like I'm nothing are the very same people who are leaving me to pick up the pieces time and time again with no support. I find it somewhat ironic. Strike that. I find it very ironic. If I'm such a horrible mother/person who doesn't know how to love or help my son, why am I the one being left to deal with the consequences of other peoples choices yet again?
Time to get some things out of the way before I start work.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Life, as it does, has kept going.
My son is currently in a shelter. He did come home for a little while.
I did manage to arrange a family meeting while he was inpatient. A lot of good that did. I shouldn't say that. His case manager requested that they do a assessment of my son to see what type of life skills he has for living on his own. No surprise there. He doesn't have any. He never has. He can't take care of himself when he is living in an environment when most of his basic needs are being taken care of. His level of self-care is non-existent at this point.
Since there was no where for him to go when it came time for him to be released from the hospital, I brought him home. He certainly wasn't stable, just not in crisis anymore.
It took less the 24 hours for things to start to fall apart. 5 days later he was in a shelter. During that short time it was attitude about everything. Smoking in his room. Sleeping outside on the front steps. Leaving a trail of mess wherever he went including spit and vomit. Swearing at me... It all came to a head when my husband asked him to clean up his mess on the front steps as there was cigarette butts everywhere, garbage and glass dishes that we were worried a kid could get hurt since they play around my front steps. That wasn't taken very well by my son. The end result... Michael throwing my coffee maker on the floor, smashing it and screaming in my face to F-off. The next day I had his nurse take him to the shelter.
For the most part it's been the same as any other shelter stay. Calling me for money and cigarettes. He did receive a payment from disability for almost $600 while in there. That was gone in no time. He told me that he got robbed. I don't believe it. I know what he was like the last time he got robbed. How upset and animated he was about it. This time... Nothing but calm. We did end up buying him 2 cartoons of cigarettes that was gone is just over a week. According to my son they kept disappearing, that someone must be taking them out of his backpack. You would have to see my son with his backpack. It doesn't leave his side. Of course not... I would bet my life on it there is marijuana in it. Actually I don't need to do that as he admitted to me last night that he has some.
There was arrangements being made for him to go into a group home. They were redoing the room so it was taking a little longer for them to paint etc. His nurse went and cleaned him up pretty good for the meeting. I was impressed when I saw him. Sadly he lost his spot. I guess he was acting pretty inappropriate while at this meeting. My son didn't want to go there since he knew arrangements were being made for him to possibly go with his grandmother. He made that pretty clear during the meeting that he didn't want to be there.
The shelter gives first priority to PACT clients. My son was a shoe-in. Normally one has to wait a long time to get into a group home but circumstances arose at just the right time. I remember thinking: Finally. We can start getting him on the right track to growing up and being responsible. I was wrong. Another PACT client got it.
Last week I found out that a plane ticket was in the works.
The conversations regarding this between my husband and I has been... He sounds like I did a year ago. Can't you do this? What if you do that? He can't go there... Did you tell so and so about this? Yes I've done it all. Which is most likely why there was zero assistance coming from anyone on this end to help it happen. No one would even take him to the airport however just like before, no one could stop it. Legally an adult and I don't have power of attorney.
This Monday was a tough day for me. After a weekend of trying to resolve myself to the idea of yet again letting go and letting my son mess up his life even further, I ended up going to the store and buying cigarettes. 3 months... I stood there thinking I can fall apart right now which I'm not inclined to do or smoke. I was also butting heads with my boss and ready to quit for a moment ;).
For the past 24 hours or so I have been struggling with feelings of hurt. I know that I can sometimes sound pretty harsh about my son's grandmother. I'm certainly not in agreement with what she tries to do. Still I have always understood that she thinks she is doing what is best and that her actions are out of love for my son. We just don't agree on what love is ;).
I know that I try to come off like I don't care what other people think of me. Of course I do to a certain extent. I don't change what I'm doing because of it because I truly believe in what I'm doing and why.
I found out how my son was going to get to the airport. His great-uncle. I haven't spoken to this person since I was with my kids Dad. However when we were together we used to hang out with him a lot... I called him and left him a message to please call me before putting my son on a plane. I have been informed that he won't talk to me except to... well anyways. All he knows about me now is what he has been told by my son's grandmother. I can only imagine the horrible person that he thinks that I am. How I'm turning my back on my son, putting him out on the streets and certainly not showing him any love... Yes the thought of someone thinking about me like that, hurts. Surprisingly it hurts a lot. Not much I can do except remind myself that however he sees me is behind the glass of his own glass house.
Yesterday morning I was informed that he wasn't going there. His grandmother had changed her mind.
Now what? I don't know. Again time has been lost where his treatment team could have been looking for housing for him. I saw my son last night. Would I consider taking him back? Yes if there is power of attorney. My son says that power of attorney is against his religion.
This brings me to the second opinion. I want a second opinion on his diagnoses. I know that I have questioned if he has schizophrenia and then I end up falling back on that diagnoses. Still there has always been something that says that there is a lot more going on. When he gets sick he presents as schizophrenic. I had asked his nurse to bring it up to his treatment team to have him re-evaluated. His nurse got turned down. Due to my son's history of diagnoses and referrals etc the schizophrenia diagnoses is staying. That means that one doctor reads another doctors notes, sees my son while he is again presenting with apparent psychosis and nods his head in agreement. Yes, schizophrenia. Let's not question the status-quo.
Here's a what if? What if in 2011 the doctor's in British Colombia knew the extent of my son's marijuana use. The marijuana use that was hidden from them and covered up. The marijuana use that was causing his medications to not work and therefore giving him the diagnoses note of: Medication resistant. The marijuana use that got him the sub-type diagnoses of paranoid schizophrenia. It's always been the marijuana that causes him to be paranoid. When he isn't using the paranoia is gone, the belief in chi, telekinesis and whatever else he used to do before coming to live with me, is also gone. Without marijuana where is his paranoid schizophrenia? Good question.
Since he has been in the shelter I'm pretty sure he is back to daily use again. He is way to mellow. Not a care in the world. He is presenting as someone in psychosis... Takes a long time to answer a question or respond when asked to do something. I was told that the shelter staff have been having to direct him or tell him to not being doing certain things like lying on the floors etc. It's because he is stoned.
I really wish a professional would take the time to help me understand what I'm seeing and put it all into perspective because it's not adding up. As far as I know the defining characteristic of having a psychotic break is losing touch with reality. My son doesn't lose touch with reality. This has always been something that keeps standing out for me. Over the years conversations about his breaks has come up. He remembers all of his breaks, if that is what they are. He remembers his first one where he was catatonic. He heard everyone talking to him and felt them touching him. He was just lost in his own head from the all of the marijuana that he had smoked. The first break I went through with him where he believed he was a vampire, in a gang and chewed on my fingernails. He remembers doing that. When he punched out his grandmother. He remembers all of that. He didn't break with reality. In each of these instances he had been smoking marijuana and having recently stopped taking prescribed amounts of medications or stopped completely. Even if one doesn't have psychosis and stops medications like that then the rebound affect can be psychosis. And yet even with all that my son doesn't break with reality. So many times I will think that he is lost in there. Until you say or do something and realize he is very much aware.
I'm not sure what my son's mental illnesses are... I have some thoughts and ideas and they fit better then schizophrenia. Sadly schizophrenia would probably be the better choice. Since the beginning I have questioned if what I'm seeing is sociopath. That is also in his genes. I questioned narcissism. A lot of the characteristics of his personality that can't be explained or attributed to schizophrenia or even ADHD and ODD can be seen and makes sense if one has narcissistic personality disorder. Could what he is going through be the beginning stages of either one of these? My son is still young. His personality is still developing. I have watched him become more and more adapt at manipulation. I have watched his mood swings and play of emotions when he isn't getting what he wants. Narcissistic are not without emotion. In fact they have lots of them and can be very loving I'm sure when it suites their own purposes. What happens when they aren't getting what they want or what they feel they deserve?
My son just called me. He wants me to come see him today. I was surprised at that request since he knows that I'm not going to give him any money and I dropped of smokes last night. Sometimes he breaks my heart into little pieces. I was watching some teenagers on skateboards last night. My son has missed out on all that. Regardless of what my childhood and life has been, I had playing in the rain, fighting with my best friends, sleep-overs, embarrassing classroom moments, first loves, first break-ups and learning about sex all the wrong ways...
I can't give him his lost childhood. I wish that I could give him his adulthood.
The very same people who are treating me like I'm nothing are the very same people who are leaving me to pick up the pieces time and time again with no support. I find it somewhat ironic. Strike that. I find it very ironic. If I'm such a horrible mother/person who doesn't know how to love or help my son, why am I the one being left to deal with the consequences of other peoples choices yet again?
Time to get some things out of the way before I start work.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, August 7, 2015
Not in a good mood.
I just got off the phone with Michael and his answer for not wanting to talk to me is that he is not in a good mood right now. No I guess not. He has not been in a good mood for awhile. The roller coaster ride of feeding your addiction then going through withdrawal is enough to put one in a bad mood. He may not be able to see that right now but for those of us on the outside looking in, shouldn't that be enough of a reason to push for addiction treatment instead of thinking that using in any amount is ok?
I called the shelter this morning to find out how he was doing. I have spoken about the lady from the shelter before that talks to me openly about my son. She seems to understand where I'm coming from and genuinely wants to help my son. She told me that she told PACT that his mother is tired, needs a break and she sees how I'm there for him and that I love him. I keep thinking I need to get her a box of chocolates or something.
He did have a shower and get cleaned up! She said I would have been proud to see him. The shelter didn't make this happen however she did push PACT to be pro-active and get more involved that my son needed them. If they didn't help the shelter would have to find somewhere else for him to go as he couldn't stay there like he was. So his nurse stepped in and helped him get cleaned up and do his laundry.
This is what needs to happen. This is why I try to step out of the picture if I can. So that my son can start to learn to lean on, trust and interact with his treatment team. As well-meaning as even my own intentions are, my love or want to help, can interfere with my son seeking the right kind of support.
When I got my son's cigarettes, we kept one carton in the car so that he wouldn't go through them too quickly. He wants the other carton now so I will get hubby to drop them off on the way home tonight and he also wants a coffee ;). Michael asked if we could take him out for dinner or something. Tomorrow is my day off and hopefully if hubby isn't working then maybe I will see about putting a picnic together and spending some time at a park. I know my son likes that as does hubby.
I think he is back taking at least some of his medications. He said he forgot last night so I told him to go ask for them once he got off the phone.
I will leave it at that for today...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I called the shelter this morning to find out how he was doing. I have spoken about the lady from the shelter before that talks to me openly about my son. She seems to understand where I'm coming from and genuinely wants to help my son. She told me that she told PACT that his mother is tired, needs a break and she sees how I'm there for him and that I love him. I keep thinking I need to get her a box of chocolates or something.
He did have a shower and get cleaned up! She said I would have been proud to see him. The shelter didn't make this happen however she did push PACT to be pro-active and get more involved that my son needed them. If they didn't help the shelter would have to find somewhere else for him to go as he couldn't stay there like he was. So his nurse stepped in and helped him get cleaned up and do his laundry.
This is what needs to happen. This is why I try to step out of the picture if I can. So that my son can start to learn to lean on, trust and interact with his treatment team. As well-meaning as even my own intentions are, my love or want to help, can interfere with my son seeking the right kind of support.
When I got my son's cigarettes, we kept one carton in the car so that he wouldn't go through them too quickly. He wants the other carton now so I will get hubby to drop them off on the way home tonight and he also wants a coffee ;). Michael asked if we could take him out for dinner or something. Tomorrow is my day off and hopefully if hubby isn't working then maybe I will see about putting a picnic together and spending some time at a park. I know my son likes that as does hubby.
I think he is back taking at least some of his medications. He said he forgot last night so I told him to go ask for them once he got off the phone.
I will leave it at that for today...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Monday, August 3, 2015
Why yes, I'm ecstatic!
Sarcasm!
Forewarned this post may be a bit if a rant.
I saw my son yesterday. He's a mess. He has obviously been in the same cloths for a long time. He hasn't showered or even washed that I can tell. He hasn't been taking his medications. I'm pretty sure he has been smoking marijuana.
Hubby and I picked him up to take him and get cigarettes. First we had to go to the bank so that I could transfer him his $314 that I owed him from disability. The whole time we were with him he was clenching his fist with all of his strength. I knew when I saw this that he wasn't taking his medications. At one point hubby said he asked my son why he was doing this and my son replied that he was trying to make his body work right. His brain isn't working right so his body isn't going to. He ended up giving me his bank card so that I could buy the smokes for him because he couldn't 'catch his breath' to get out of the car and do it himself.
I told my son that once we got back to the shelter I was going to go in with him so he could get his medications and put on some clean cloths. He said ok. As soon as we walked in to the shelter... Hello ODD. His defiance came out of nowhere. He didn't want his medications. One of the staff said they have been talking to him about showering etc however he 'bolts' or leaves the shelter.
Hubby and I have been talking about what to do. So far we haven't come up with any solid answers. I try not to get pissy with him when he asks me what I'm going to do. But seriously, if I had the answers I would be doing it. I don't have them... I don't know what to do.
I know how much I wanted to grab my son's stuff and bring him home.
Here's the catch. I'm a recovered addict. If I want to stay a recovered addict then one thing that I need to be able to do is think things through to the end. One of the problems with being an addict is that the mind only wants to see the good parts of using. Not the negative consequences and as long as one can keep blocking out those memories then one can keep pretending that using is ok.
I forget the exact wording of what was said during an ADAPT meeting but something along the lines of: An addict will not change until the pain of using is worse then the pain of not using.
I can bring him home. He has over $300 in his bank account. He is unstable and defiant. He believes he should be able to smoke and drink in his room. It doesn't take a genius to figure out where that scenario is most likely going.
I had already said to my husband that I need to bring him home if I can put some things in place. Before I left I tried to talk to my son. I wasn't expecting it to be an in-depth conversation considering his mental state. I got worse then I was expecting. I went to crouch/sit beside him and he got mad and told me to stand up and talk to him. I don't know why he gets like this with me. I mean the not wanting me to talk to him on his level. It just goes against everything that I have read on how to talk to someone experiencing psychosis. Especially since he gets so defiant with me being the main disciplinary. Yet he still gets mad, doesn't want me on his level and wants me to take the authoritative stance. The only thing I can reason is that somewhere in his head is a recognition that he actually needs someone to take on the role of authority for him. But then his ODD gets in the way...
I asked him if he remembered talking to his Nana about not going out there. Yes. I told him that I want to take him home however I can't if he has control over his money to buy alcohol because alcohol is killing him. I want power of attorney. He refused.
A couple of days ago I received a message from his grandmother stating that she had told him no to him coming there and she hoped that made everyone happy. Needless to say I didn't respond. The sarcastic side of me wanted to answer with: Why yes, I'm ecstatic. Thank you! I figured not answering was the better option.
My daughter calls to find out if I got the message and to include the side-note that obviously Nana didn't really mean it and that she would step in and take him if she felt it was necessary.
As far as I know that plans are/were to have my son go directly into a shelter out there. So switching one shelter for another? Then I guess work on getting him into his own place since this is what he wants. Well it's what he says he wants. He knows full well that once he gets there he can say no to any form of assisted living and that if he does that then he will end up with Nana. The ideal situation for him. He doesn't have to care about anyone except himself. He doesn't have to try to be sober and stable. To be blunt, he doesn't have to try period. He will get his pat on the head while someone else cleans up after him and protects him from himself.
The rant. Can you see my son living on his own?! He can't even keep himself stable when he is living somewhere that is feeding him and providing him with basic amenities. Yet that is what him and his grandmother seem to be concocting between the two of them. Unless he is telling her that he will go into a group home out there. If that is the case and it is being believed I can only shake my head some more.
My son, in my opinion, needs several basic things. Mainly he needs long-term treatment for addiction. By long-term I'm thinking 3-6 months to start. He needs help from non-family, so he can't use and manipulate them, to help him become stable, stay stable and learn to mature and grow up. Until he gets these things. Everything else is just prolonging everyone's suffering, including and especially his own.
My son isn't stupid by no means. When I had the police take him, one of them went with him to his room to collect his things. My son was very drunk. Not as drunk as I thought. He made sure to disconnect, unplug and turn off the laptop so that I couldn't have access to it. Before leaving he wanted my phone to call his Nana. I know some may think: Well yes she is the one he knows will support him. Hmm. The one that will support him or enable him. There is a big difference.
Honestly he has support coming out his.... ;) Agencies and people just waiting for him to give the go ahead and they will be right there. PACT has peer support, group support and vocational (job) support. ADAPT has addiction support. Applications have been started for housing. He has an open file at the YMCA for free schooling at his own pace. My son is 21 and says no thank you...
He also has me and my husband. Apparently I expect too much. Expecting Michael to follow basic rules that a 5 year old can follow, clean up after himself, treat me with respect, not be violent, try to be medication compliant and engage is addiction services is apparently too much for him. How do you respond to that? Seriously if he is that bad off then he really should be in the hospital with 24/7 care not traipsing on a plane across the country!
Where we are at now is not new. He has been here before. He has played the system, played and manipulated emotions until he got what he wanted. Freedom from responsibility, stability or sobriety.
Do you think he doesn't know that if he doesn't participate in recovery plans here that in time he will get what he wants? Of course he does. Like I said he isn't stupid.
Something I had too look at and acknowledge was/is that his masturbation episodes are tied into his alcohol use and not his schizophrenia so yes it is more behavioral. I didn't know until I found out about him calling dial-a-bottle that he was during the time of his masturbating frequently and in public, drinking almost a bottle of alcohol a day. I also found out that one of the ladies at the shelter caught him doing this in public and had to talk to him about it. I didn't tell her that I knew that he had purchased a bottle of alcohol since being there. Just like I didn't tell them that I'm pretty sure he probably has marijuana on him. Maybe that is why he bolts when expected to shower and change cloths? He keeps his jacket on and close to him when he is hiding stuff.
There is also the distinct possibility that if he gets himself kicked out of there then in steps his safety net. I may not be actively stopping this from happening however I'm certainly not going to help it happen.
Of all the blogs that I read. Jagged Little Edges is without a doubt one of my favorites. Lorelie doesn't hold any punches on what addiction is and the truth of it's ugliness is spelled out in black and white. Lorelie's last blog post: Loving An Addict Means Saying No.
A lot of Lorelie's posts are also highlighted on: Addiction Campuses
I know there are a lot of families who struggle with concurrent disorders of addiction and mental illness. I only speak for what I see with my son. He doesn't use to self-medicate symptoms. He uses/drinks to feed/satisfy his addictions. It's doing this that triggers his schizophrenia and causes the rebound affect. Also my son doesn't want to medication his symptoms. He very much enjoys his psychosis when he is in it. Probably another reason why he didn't want to take his medications yesterday. Why mess with his high? I have been around addiction enough to recognize that mind-set. I have been there. Don't eat too much before doing this drug or you will lessen the high...
I did tell the lady at the shelter that my son was psychotic and needed his medications so hopefully they were a little more attentive last night about 'reminding him' to take them. It's not a part of their duties and they get busy. Not sure I buy that. The other shelter had less staff and they did more. They followed up on medications. They searched more for drugs etc. being brought in. I know because I watched them do it. Too bad it was in such a horrible neighborhood. I have yet to see this shelter search anyone including my son. The lady asked what the signs were of my son's psychosis. To me it's obvious but I'm mom and have looked at his face for signs for years now. I asked if she knew what high looks like? What extreme exhaustion looks like? Combine them and you have my son's current face. Again I left out that he was most likely high... Really in the end it was the psychosis I'm trying to nip in the butt before something negative happens and high or not high he would still look pretty much the same from psychosis.
My appointment with ADAPT last week got rescheduled to the 18th of August. Today is a civic holiday here in Ontario, Canada so I'm not working! Hubby is :(. My work schedule has changed. Now I'm 12-6:30 Mon-Fri and I think 10:30-2 on Sunday. So 6 days a week and more hours. I may see if I can switch from Sunday to Saturday as Sunday is the one day I can pretty much count on hubby not working. The hours are being split between me and another lady. I got paid! I needed it to help cover rent due to what I had to give to Michael. I got my hair cut yesterday. Pretty short. I guess it's a bob? shorter at the back and long around the face. It feels good. I haven't had a cigarette in 6 weeks! I'm not sure how long it's been for hubby. I think 3 weeks. My homemade protein bars were a hit. We both like them. Have to make more today. I may even get back on my stepper today and do some exercise.
The above things make me happy. Certainly not the situation that my son is in or the fact that I have to fight so hard to try and get him the treatment that he needs.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Forewarned this post may be a bit if a rant.
I saw my son yesterday. He's a mess. He has obviously been in the same cloths for a long time. He hasn't showered or even washed that I can tell. He hasn't been taking his medications. I'm pretty sure he has been smoking marijuana.
Hubby and I picked him up to take him and get cigarettes. First we had to go to the bank so that I could transfer him his $314 that I owed him from disability. The whole time we were with him he was clenching his fist with all of his strength. I knew when I saw this that he wasn't taking his medications. At one point hubby said he asked my son why he was doing this and my son replied that he was trying to make his body work right. His brain isn't working right so his body isn't going to. He ended up giving me his bank card so that I could buy the smokes for him because he couldn't 'catch his breath' to get out of the car and do it himself.
I told my son that once we got back to the shelter I was going to go in with him so he could get his medications and put on some clean cloths. He said ok. As soon as we walked in to the shelter... Hello ODD. His defiance came out of nowhere. He didn't want his medications. One of the staff said they have been talking to him about showering etc however he 'bolts' or leaves the shelter.
Hubby and I have been talking about what to do. So far we haven't come up with any solid answers. I try not to get pissy with him when he asks me what I'm going to do. But seriously, if I had the answers I would be doing it. I don't have them... I don't know what to do.
I know how much I wanted to grab my son's stuff and bring him home.
Here's the catch. I'm a recovered addict. If I want to stay a recovered addict then one thing that I need to be able to do is think things through to the end. One of the problems with being an addict is that the mind only wants to see the good parts of using. Not the negative consequences and as long as one can keep blocking out those memories then one can keep pretending that using is ok.
I forget the exact wording of what was said during an ADAPT meeting but something along the lines of: An addict will not change until the pain of using is worse then the pain of not using.
I can bring him home. He has over $300 in his bank account. He is unstable and defiant. He believes he should be able to smoke and drink in his room. It doesn't take a genius to figure out where that scenario is most likely going.
I had already said to my husband that I need to bring him home if I can put some things in place. Before I left I tried to talk to my son. I wasn't expecting it to be an in-depth conversation considering his mental state. I got worse then I was expecting. I went to crouch/sit beside him and he got mad and told me to stand up and talk to him. I don't know why he gets like this with me. I mean the not wanting me to talk to him on his level. It just goes against everything that I have read on how to talk to someone experiencing psychosis. Especially since he gets so defiant with me being the main disciplinary. Yet he still gets mad, doesn't want me on his level and wants me to take the authoritative stance. The only thing I can reason is that somewhere in his head is a recognition that he actually needs someone to take on the role of authority for him. But then his ODD gets in the way...
I asked him if he remembered talking to his Nana about not going out there. Yes. I told him that I want to take him home however I can't if he has control over his money to buy alcohol because alcohol is killing him. I want power of attorney. He refused.
A couple of days ago I received a message from his grandmother stating that she had told him no to him coming there and she hoped that made everyone happy. Needless to say I didn't respond. The sarcastic side of me wanted to answer with: Why yes, I'm ecstatic. Thank you! I figured not answering was the better option.
My daughter calls to find out if I got the message and to include the side-note that obviously Nana didn't really mean it and that she would step in and take him if she felt it was necessary.
As far as I know that plans are/were to have my son go directly into a shelter out there. So switching one shelter for another? Then I guess work on getting him into his own place since this is what he wants. Well it's what he says he wants. He knows full well that once he gets there he can say no to any form of assisted living and that if he does that then he will end up with Nana. The ideal situation for him. He doesn't have to care about anyone except himself. He doesn't have to try to be sober and stable. To be blunt, he doesn't have to try period. He will get his pat on the head while someone else cleans up after him and protects him from himself.
The rant. Can you see my son living on his own?! He can't even keep himself stable when he is living somewhere that is feeding him and providing him with basic amenities. Yet that is what him and his grandmother seem to be concocting between the two of them. Unless he is telling her that he will go into a group home out there. If that is the case and it is being believed I can only shake my head some more.
My son, in my opinion, needs several basic things. Mainly he needs long-term treatment for addiction. By long-term I'm thinking 3-6 months to start. He needs help from non-family, so he can't use and manipulate them, to help him become stable, stay stable and learn to mature and grow up. Until he gets these things. Everything else is just prolonging everyone's suffering, including and especially his own.
My son isn't stupid by no means. When I had the police take him, one of them went with him to his room to collect his things. My son was very drunk. Not as drunk as I thought. He made sure to disconnect, unplug and turn off the laptop so that I couldn't have access to it. Before leaving he wanted my phone to call his Nana. I know some may think: Well yes she is the one he knows will support him. Hmm. The one that will support him or enable him. There is a big difference.
Honestly he has support coming out his.... ;) Agencies and people just waiting for him to give the go ahead and they will be right there. PACT has peer support, group support and vocational (job) support. ADAPT has addiction support. Applications have been started for housing. He has an open file at the YMCA for free schooling at his own pace. My son is 21 and says no thank you...
He also has me and my husband. Apparently I expect too much. Expecting Michael to follow basic rules that a 5 year old can follow, clean up after himself, treat me with respect, not be violent, try to be medication compliant and engage is addiction services is apparently too much for him. How do you respond to that? Seriously if he is that bad off then he really should be in the hospital with 24/7 care not traipsing on a plane across the country!
Where we are at now is not new. He has been here before. He has played the system, played and manipulated emotions until he got what he wanted. Freedom from responsibility, stability or sobriety.
Do you think he doesn't know that if he doesn't participate in recovery plans here that in time he will get what he wants? Of course he does. Like I said he isn't stupid.
Something I had too look at and acknowledge was/is that his masturbation episodes are tied into his alcohol use and not his schizophrenia so yes it is more behavioral. I didn't know until I found out about him calling dial-a-bottle that he was during the time of his masturbating frequently and in public, drinking almost a bottle of alcohol a day. I also found out that one of the ladies at the shelter caught him doing this in public and had to talk to him about it. I didn't tell her that I knew that he had purchased a bottle of alcohol since being there. Just like I didn't tell them that I'm pretty sure he probably has marijuana on him. Maybe that is why he bolts when expected to shower and change cloths? He keeps his jacket on and close to him when he is hiding stuff.
There is also the distinct possibility that if he gets himself kicked out of there then in steps his safety net. I may not be actively stopping this from happening however I'm certainly not going to help it happen.
Of all the blogs that I read. Jagged Little Edges is without a doubt one of my favorites. Lorelie doesn't hold any punches on what addiction is and the truth of it's ugliness is spelled out in black and white. Lorelie's last blog post: Loving An Addict Means Saying No.
A lot of Lorelie's posts are also highlighted on: Addiction Campuses
I know there are a lot of families who struggle with concurrent disorders of addiction and mental illness. I only speak for what I see with my son. He doesn't use to self-medicate symptoms. He uses/drinks to feed/satisfy his addictions. It's doing this that triggers his schizophrenia and causes the rebound affect. Also my son doesn't want to medication his symptoms. He very much enjoys his psychosis when he is in it. Probably another reason why he didn't want to take his medications yesterday. Why mess with his high? I have been around addiction enough to recognize that mind-set. I have been there. Don't eat too much before doing this drug or you will lessen the high...
I did tell the lady at the shelter that my son was psychotic and needed his medications so hopefully they were a little more attentive last night about 'reminding him' to take them. It's not a part of their duties and they get busy. Not sure I buy that. The other shelter had less staff and they did more. They followed up on medications. They searched more for drugs etc. being brought in. I know because I watched them do it. Too bad it was in such a horrible neighborhood. I have yet to see this shelter search anyone including my son. The lady asked what the signs were of my son's psychosis. To me it's obvious but I'm mom and have looked at his face for signs for years now. I asked if she knew what high looks like? What extreme exhaustion looks like? Combine them and you have my son's current face. Again I left out that he was most likely high... Really in the end it was the psychosis I'm trying to nip in the butt before something negative happens and high or not high he would still look pretty much the same from psychosis.
My appointment with ADAPT last week got rescheduled to the 18th of August. Today is a civic holiday here in Ontario, Canada so I'm not working! Hubby is :(. My work schedule has changed. Now I'm 12-6:30 Mon-Fri and I think 10:30-2 on Sunday. So 6 days a week and more hours. I may see if I can switch from Sunday to Saturday as Sunday is the one day I can pretty much count on hubby not working. The hours are being split between me and another lady. I got paid! I needed it to help cover rent due to what I had to give to Michael. I got my hair cut yesterday. Pretty short. I guess it's a bob? shorter at the back and long around the face. It feels good. I haven't had a cigarette in 6 weeks! I'm not sure how long it's been for hubby. I think 3 weeks. My homemade protein bars were a hit. We both like them. Have to make more today. I may even get back on my stepper today and do some exercise.
The above things make me happy. Certainly not the situation that my son is in or the fact that I have to fight so hard to try and get him the treatment that he needs.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
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Wednesday, July 15, 2015
I'm alright.
Two blog posts in one week. Don't you feel lucky? ;)
I was talking to my son's case worker at PACT this morning and she asked me if I was alright then commented that I sound stronger then I ever have. Yes I am alright. As matter of fact I'm good for the first time in a long time.
I had my counselling session yesterday with ADAPT. We discussed my job and how I'm handling and balancing everything with my not smoking, my son, my hubby etc. I'm adjusting and settling into a good routine.
My son is a different story. He isn't adjusting. He isn't anything except digging himself deeper into alcohol and therefor schizophrenia.
I found out Monday morning that he had called dial-a-bottle to deliver his alcohol. He did this last Thursday. So he was drinking alcohol in his room, hiding it from me, knowing that I had no clue because he hadn't gone anywhere on his bike. He got 3 bottles, which was gone by Monday morning. He also tried to call them early Monday morning.
He no longer has cell phone service. It's his phone but the service I was paying for. He came to me asking for it back that he wanted to call his Nana. I offered him my phone that he can use that whenever he wants. Did he want my phone to call her? His answer was no. Of course not. He really didn't want it for that reason. He wanted it back to call dial-a-bottle.
I'm not sure why he hasn't gone to the liquor store on his bike yet. He has had money since Monday. He received a direct deposit from the government for around $300. He also discovered money from them on Thursday that he didn't tell me about since it was used for alcohol that he was hiding from me. I'm questioning if the liquor store has refused to serve him. He says no.
I tried talking to him this morning about him going to an addiction treatment center. He doesn't have a problem and it's not impacting his life... The only problem is my problem. My problem is with all my house rules being broken and not being shown any respect.
I called his case worker to find out where his applications for housing are at.
As time goes by and reach new steps in acceptance than I'm more and more reaching a point where I have to acknowledge that I can't help someone who doesn't want to help themselves. The more I give the more I'm cushioning him from the consequences of his own actions.
However I guess what it really boils down to is where I'm at. I'm in counselling for myself. I have quit smoking. I am now working. Hubby just quit smoking too. He also started a new medication to help with some side affects from his other medications. We are trying to build a life. A good life. A healthy life.
I know my boundaries and I know what is good for me and what isn't. I keep letting them slip and get pushed aside because he is my son and I love him. As I act from a place of love, he acts from a place of addiction. Of self-centered I want and I should be able to have because I want...
Okay...
I'm ready for the next step. I'm ready to accept the consequences of the choices I want to make for my life because I want a better life and I deserve a better life. If my son wants the life that he is choosing then all I can say at this point is ok. Go and get it.
I thought I had more time to write this blog however someone regarding work called and now I have to start work in 10 minutes.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I was talking to my son's case worker at PACT this morning and she asked me if I was alright then commented that I sound stronger then I ever have. Yes I am alright. As matter of fact I'm good for the first time in a long time.
I had my counselling session yesterday with ADAPT. We discussed my job and how I'm handling and balancing everything with my not smoking, my son, my hubby etc. I'm adjusting and settling into a good routine.
My son is a different story. He isn't adjusting. He isn't anything except digging himself deeper into alcohol and therefor schizophrenia.
I found out Monday morning that he had called dial-a-bottle to deliver his alcohol. He did this last Thursday. So he was drinking alcohol in his room, hiding it from me, knowing that I had no clue because he hadn't gone anywhere on his bike. He got 3 bottles, which was gone by Monday morning. He also tried to call them early Monday morning.
He no longer has cell phone service. It's his phone but the service I was paying for. He came to me asking for it back that he wanted to call his Nana. I offered him my phone that he can use that whenever he wants. Did he want my phone to call her? His answer was no. Of course not. He really didn't want it for that reason. He wanted it back to call dial-a-bottle.
I'm not sure why he hasn't gone to the liquor store on his bike yet. He has had money since Monday. He received a direct deposit from the government for around $300. He also discovered money from them on Thursday that he didn't tell me about since it was used for alcohol that he was hiding from me. I'm questioning if the liquor store has refused to serve him. He says no.
I tried talking to him this morning about him going to an addiction treatment center. He doesn't have a problem and it's not impacting his life... The only problem is my problem. My problem is with all my house rules being broken and not being shown any respect.
I called his case worker to find out where his applications for housing are at.
As time goes by and reach new steps in acceptance than I'm more and more reaching a point where I have to acknowledge that I can't help someone who doesn't want to help themselves. The more I give the more I'm cushioning him from the consequences of his own actions.
However I guess what it really boils down to is where I'm at. I'm in counselling for myself. I have quit smoking. I am now working. Hubby just quit smoking too. He also started a new medication to help with some side affects from his other medications. We are trying to build a life. A good life. A healthy life.
I know my boundaries and I know what is good for me and what isn't. I keep letting them slip and get pushed aside because he is my son and I love him. As I act from a place of love, he acts from a place of addiction. Of self-centered I want and I should be able to have because I want...
Okay...
I'm ready for the next step. I'm ready to accept the consequences of the choices I want to make for my life because I want a better life and I deserve a better life. If my son wants the life that he is choosing then all I can say at this point is ok. Go and get it.
I thought I had more time to write this blog however someone regarding work called and now I have to start work in 10 minutes.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Sunday, July 12, 2015
A right of passage
Thought I would give a quick update...
Not a lot has changed over the past week. Getting more comfortable with the job and fitting myself into the schedule my boss wants me on. In my opinion the hours are... Well they are broken up throughout the day. Monday to Friday he wants 11:30 - 1, 4:30 - 6 then 8-10. Friday's 11:30 - 2 and Saturday's 9-1. The 8-10 shift is a no go for me. I'm not giving up what little time hubby and I have together during the week and once I get my son back on a sensible sleep schedule than 8 is our bedtime ;). There is also fact that I'm pretty sure calling after 9 PM is legally not a go. I don't get calling at 9 AM on a Saturday and not at 9 AM during the week when it's expected that people be up. Aside from that I'm booking appointments and have submitted my first invoice. So hopefully I will be seeing some money soon!
On July 6 my son's nurse was here for his weekly visit. Like I told his psychiatrist who was here the following day, I think I held it together pretty good. When I told his nurse about his excessive, not in private, out in public masturbating... His response was that since my son didn't have a girlfriend that masturbating was a right of passage and that him doing it out on the front veranda was behavioral. *pats self on back* for not losing it ;).
They drop of his medications every Friday in a blister pack (medications are in pop-out boxes for each day). Which I think is ridiculous and have told them several times it's not necessary but the PACT team insists on it. I guess they like it because when they visit they can see if patients/clients are taking their medications. Since my son doesn't get himself his meds, I do it, it's pointless. A waste of the pharmacists time and resources (and I think costs the government more money) and means every week someone has to come here on Friday instead of just giving me a months supply in a bottle. Anyways... Because I'm apparently not using the blister pack properly (haha) which means not starting the new pack on Friday when they bring it and instead using up the remainder of the previous blister pack, then his nurse couldn't understand what days medications he had missed. For clarification the blister packs have 7 days. Monday to Sunday. So I start a new one on Monday. Confusing right? His nurse thought so. So when I showed him that my son had missed taking his meds on Tuesday and Thursday, he decided that my son had missed 2 days in a row. Sometimes there is just no point in carrying on a conversation...
He did however set up an appointment for Michael's psychiatrist to come here the next day. I filled him. Let him know that even though I appreciate how his nurse is with Michael and that in that regard he is doing very good, that he doesn't take my concerns seriously or listen to me very well. His psychiatrist makes decisions based on the feedback from the other team members and when that feedback isn't relayed properly then I tend to get a bit upset. It's certainly not the first time I have dealt with this. His first nurse with PACT was bad for that too. She blamed almost everything on behavior. I asked his psychiatrist what to do when this happens. Call in and make an appointment with him.
We discussed medication options and decided to add back the Lithium. *shakes head* I have off and on been suggesting this since he was in the shelter in February. I asked for clarification on who I am thinking about my son's behaviors and if I was completely off track. It's a bit of both I guess. On one hand yes some things are behavioral and I can acknowledge that. Punching and kicking my door, behavioral. Insisting on smoking in his room, behavioral. Not knowing that it is inappropriate to masturbate in front of your mother or out in public because one can't see past the urge to do it, not so much. His psychiatrist agreed that this behavior is not normal even for him and he isn't doing it just to piss me off. The problem though is that upping medications will not necessarily correct this. Upping his Invega could cause the opposite affect of what we are looking for and make his negative symptoms worse. I can understand that. Adding the Lithium back should increase the effectiveness of his Invega and hopefully help with his negative symptoms. I think Lithium tends to act like an antidepressant with Michael whereas actual antidepressants do him no good. Why would they? In the bigger picture he is not depressed. He is experiencing negative symptoms which is different.
The Lithium was dropped off on Wednesday. Of course he missed his medications on Thursday due to alcohol. If anyone thinks that alcohol is harmless... Come see what I see. It's far from harmless for my son. It's keeping him unstable and robbing him of a future. Hopefully we have a 3 week break from it and I can work on getting him started on some sort of stability.
He has his days and nights mixed up again. I'm reminding him several times throughout the night to take his pills however he isn't taking them until morning and then sleeping. If it happens again tonight I think I may just let him miss them and try to start fresh tomorrow night.
As for the smoking in his room. It's a constant battle. Thursday night I found his whiskey bottle in his room. His psychiatrist agreed with me that Michael most likely has ODD (oppositional defiant disorder) and sadly trying to discipline around and keep the appropriate boundaries is even more important due to the ODD. You let one slip and they all go. The mess he is making of his bedroom floor :(. They are shellacked and he throws his cigarettes on them when I walk into his room so I won't see it. Oh yes... According to him he is accidentally smoking in his room. Haha. Because you accidentally close your bedroom door, light an incense to cover up the smell and find something to use for an ashtray. Sometimes that is his garbage can with liquids thrown in it. I have removed his garbage can. He doesn't use it for actual garbage anyways. I have tapped a note to the top of the stairs that says 'no smoking, leave your smokes downstairs' and another one to his bedroom door. At least he can't pretend like he doesn't know the rule :).
The last day or so it's cigarettes... I have warned him and warned him that I'm quit and I'm not supplying him with cigarettes. He knew this when hubby took him to get cigarettes. He got 2 cartons which he now doesn't like. Where we go you can actually smoke in the store and you can try every kind of cigarette that they have to see if you like them. He tried them. I'm guessing he was more concerned with getting the cheaper ones so that he had money for alcohol. His choice. I also gave him the cigarettes that we had gotten for him from before which was another 4 packs. Yesterday he wanted me to buy him a couple of packs with the extra money he is giving me. He isn't giving me any money. Disability is sending me MY portion of his payments. I didn't respond to this comment at all. Then it was can he have a pack of hubby's. Hubby doesn't keep his cigarettes in the home anymore and he wasn't home yesterday. Kinda sad that we can't even keep our own things in our own home. Hubby is also quitting. We just got him patches too. So Michael I'm afraid is going to be shit out'a luck in the smoking department. The kicker though is that he does have cigarettes. He just doesn't like them.
So today is my day off! Yeah! I have to finish the laundry I started yesterday evening. I really need to clean the floors as Michael has spelt pretty much everything, everywhere. I need to wash his blankets too. Still haven't gotten him in the shower :(. He did have a bath on Monday night however that had more do with him liking being in the bathtub when he is drunk. God I hate alcohol!
I guess that wasn't a quick update after all. :)
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Not a lot has changed over the past week. Getting more comfortable with the job and fitting myself into the schedule my boss wants me on. In my opinion the hours are... Well they are broken up throughout the day. Monday to Friday he wants 11:30 - 1, 4:30 - 6 then 8-10. Friday's 11:30 - 2 and Saturday's 9-1. The 8-10 shift is a no go for me. I'm not giving up what little time hubby and I have together during the week and once I get my son back on a sensible sleep schedule than 8 is our bedtime ;). There is also fact that I'm pretty sure calling after 9 PM is legally not a go. I don't get calling at 9 AM on a Saturday and not at 9 AM during the week when it's expected that people be up. Aside from that I'm booking appointments and have submitted my first invoice. So hopefully I will be seeing some money soon!
On July 6 my son's nurse was here for his weekly visit. Like I told his psychiatrist who was here the following day, I think I held it together pretty good. When I told his nurse about his excessive, not in private, out in public masturbating... His response was that since my son didn't have a girlfriend that masturbating was a right of passage and that him doing it out on the front veranda was behavioral. *pats self on back* for not losing it ;).
They drop of his medications every Friday in a blister pack (medications are in pop-out boxes for each day). Which I think is ridiculous and have told them several times it's not necessary but the PACT team insists on it. I guess they like it because when they visit they can see if patients/clients are taking their medications. Since my son doesn't get himself his meds, I do it, it's pointless. A waste of the pharmacists time and resources (and I think costs the government more money) and means every week someone has to come here on Friday instead of just giving me a months supply in a bottle. Anyways... Because I'm apparently not using the blister pack properly (haha) which means not starting the new pack on Friday when they bring it and instead using up the remainder of the previous blister pack, then his nurse couldn't understand what days medications he had missed. For clarification the blister packs have 7 days. Monday to Sunday. So I start a new one on Monday. Confusing right? His nurse thought so. So when I showed him that my son had missed taking his meds on Tuesday and Thursday, he decided that my son had missed 2 days in a row. Sometimes there is just no point in carrying on a conversation...
He did however set up an appointment for Michael's psychiatrist to come here the next day. I filled him. Let him know that even though I appreciate how his nurse is with Michael and that in that regard he is doing very good, that he doesn't take my concerns seriously or listen to me very well. His psychiatrist makes decisions based on the feedback from the other team members and when that feedback isn't relayed properly then I tend to get a bit upset. It's certainly not the first time I have dealt with this. His first nurse with PACT was bad for that too. She blamed almost everything on behavior. I asked his psychiatrist what to do when this happens. Call in and make an appointment with him.
We discussed medication options and decided to add back the Lithium. *shakes head* I have off and on been suggesting this since he was in the shelter in February. I asked for clarification on who I am thinking about my son's behaviors and if I was completely off track. It's a bit of both I guess. On one hand yes some things are behavioral and I can acknowledge that. Punching and kicking my door, behavioral. Insisting on smoking in his room, behavioral. Not knowing that it is inappropriate to masturbate in front of your mother or out in public because one can't see past the urge to do it, not so much. His psychiatrist agreed that this behavior is not normal even for him and he isn't doing it just to piss me off. The problem though is that upping medications will not necessarily correct this. Upping his Invega could cause the opposite affect of what we are looking for and make his negative symptoms worse. I can understand that. Adding the Lithium back should increase the effectiveness of his Invega and hopefully help with his negative symptoms. I think Lithium tends to act like an antidepressant with Michael whereas actual antidepressants do him no good. Why would they? In the bigger picture he is not depressed. He is experiencing negative symptoms which is different.
The Lithium was dropped off on Wednesday. Of course he missed his medications on Thursday due to alcohol. If anyone thinks that alcohol is harmless... Come see what I see. It's far from harmless for my son. It's keeping him unstable and robbing him of a future. Hopefully we have a 3 week break from it and I can work on getting him started on some sort of stability.
He has his days and nights mixed up again. I'm reminding him several times throughout the night to take his pills however he isn't taking them until morning and then sleeping. If it happens again tonight I think I may just let him miss them and try to start fresh tomorrow night.
As for the smoking in his room. It's a constant battle. Thursday night I found his whiskey bottle in his room. His psychiatrist agreed with me that Michael most likely has ODD (oppositional defiant disorder) and sadly trying to discipline around and keep the appropriate boundaries is even more important due to the ODD. You let one slip and they all go. The mess he is making of his bedroom floor :(. They are shellacked and he throws his cigarettes on them when I walk into his room so I won't see it. Oh yes... According to him he is accidentally smoking in his room. Haha. Because you accidentally close your bedroom door, light an incense to cover up the smell and find something to use for an ashtray. Sometimes that is his garbage can with liquids thrown in it. I have removed his garbage can. He doesn't use it for actual garbage anyways. I have tapped a note to the top of the stairs that says 'no smoking, leave your smokes downstairs' and another one to his bedroom door. At least he can't pretend like he doesn't know the rule :).
The last day or so it's cigarettes... I have warned him and warned him that I'm quit and I'm not supplying him with cigarettes. He knew this when hubby took him to get cigarettes. He got 2 cartons which he now doesn't like. Where we go you can actually smoke in the store and you can try every kind of cigarette that they have to see if you like them. He tried them. I'm guessing he was more concerned with getting the cheaper ones so that he had money for alcohol. His choice. I also gave him the cigarettes that we had gotten for him from before which was another 4 packs. Yesterday he wanted me to buy him a couple of packs with the extra money he is giving me. He isn't giving me any money. Disability is sending me MY portion of his payments. I didn't respond to this comment at all. Then it was can he have a pack of hubby's. Hubby doesn't keep his cigarettes in the home anymore and he wasn't home yesterday. Kinda sad that we can't even keep our own things in our own home. Hubby is also quitting. We just got him patches too. So Michael I'm afraid is going to be shit out'a luck in the smoking department. The kicker though is that he does have cigarettes. He just doesn't like them.
So today is my day off! Yeah! I have to finish the laundry I started yesterday evening. I really need to clean the floors as Michael has spelt pretty much everything, everywhere. I need to wash his blankets too. Still haven't gotten him in the shower :(. He did have a bath on Monday night however that had more do with him liking being in the bathtub when he is drunk. God I hate alcohol!
I guess that wasn't a quick update after all. :)
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
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Thursday, June 18, 2015
Rockin' the Boat, A Mustang & Several Cans of Worms.
Yesterday I had such a great day! Seriously it was all good. Tuesday I got hit with major sedation from my antidepressants. I'm guessing due to it having build up in my system. Yesterday I woke up with the urge to do things... By 9 AM I was already thinking about the things I wanted to make/bake. I made beef jerky, cookies, bread, cheese crackers and tried a new rice recipe for dinner. Cleaned the fridge and did some rearranging in the kitchen. Monday I spent several hours vacuuming and de-cob-webbing our unfinished basement. I knew then that my antidepressants were doing their thing ;).
Last night my son decided to throw a wrench in things. Out of the blue he doesn't need/want his Olanzapine. It's time to try and go off them... Because barely a month of regaining some stability is long enough, I guess.
I'm sitting here trying really hard not to be pissed. For the past 3-4 weeks both myself and my hubby have been nothing but supportive and understanding. I have been patiently cleaning up his messes. Spending quality time with him doing things like messaging and scratching his back, brushing his hair, filing his nails, cuddling and even flossing his teeth. Yup you read that right. His teeth are mess. When the ashtray in the back yard, that is only 3 feet away from him, is to far away; that's ok, I take it too him. I have picking up his garbage, hosing down the yard due to his spitting... What do I ask for in return? Not very much. Perhaps that is the problem. I have been expecting way too little. In my quest to be understanding I am making things way to easy for him, again.
In my last blog post I mentioned him smoking in his room. Another thing that I have been very patient about. I have not yelled at him. I have said very little actually unless I catch him doing it. I have been keeping an eye out and finding what he uses for ashtrays when I can so that I can 'remind him' that there is no smoking in his room. A couple of times I have found the cups or containers that he uses and have removed them. For the past couple of days I haven't been able to find anything. Smart little bugger he is... He forgot this morning to put the lid back on the peanut can that he has been using. The one I thought was full of peanuts. It was full of cigarette butts.
Last weekend hubby got my son another carton of cigarettes as he has gone through 3 cartoons in just over 2 weeks. Of course smoking in his room means that he is smoking even more.
My son agreed last night to take his Olanzapine this morning... Yes as I'm sure you guessed, so far that has not happened. After I found the 'peanut can', I was thinking to myself: 'Do I really want to rock the boat and bring it up?'; as I didn't want to trigger his ODD defiance and cause him to not take the Olanzapine. Honestly what am I thinking... I'm not triggering his ODD. I'm not rockin' the boat... He is. I'm the one 'walking on eggshells' to not rock it and to what end?
I let him know this morning that if he isn't going to take the Olanzapine then he needs to call his nurse and let him know and discuss upping his Invega from 6 mg to 9 mg. Can I do it for him since I'm the one that seems to have a problem with this. Yes I absolutely have a problem with him going into psychosis, losing touch with reality and possibly one of us getting hurt. I can't hold him accountable for symptoms that he has no control over however he can be accountable for making choices that are going to cause a re-emergence of these symptoms. If he is going to make these decisions then he needs to be responsible for them and letting his treatment team know.
I also put away the rest of the carton of cigarettes that my hubby just got and let him know that I will give him a pack a day and they need to stay downstairs, not in his bedroom. Enough is enough. If hubby and I can smoke outside or in the basement then Michael can too and he is just going to have to figure that one out. I wonder how many times I have typed 'enough is enough'. Probably not enough ;) and certainly I need to have better follow through on these things or my son will just continue to break the rules with no consequences.
Ah yes the mustang. Hubby seems to be going through a phase. I feel a bit bad. I know how much he wants one and I won't tell him that he can't have one. He is the one earning a pay check after all. We did take one out for a test drive...
I'm not much for knowing about cars... She does look and sound nice though. Certainly suits hubby. It doesn't suit anything else though. The back seat was very cramped and he would lose a lot of functionality in the front as well. If it was just hubby and I, there would have been zero questions and we probably would have purchased it.
Hubby texted me this morning that one of the credit cards didn't work. I haven't been keeping close tabs on our accounts over the last week. Not that it would have mattered as some things came up that needed to be attended to. Hubby is now completely in debt in his name ;) Actually he has no more credit left and his bank account is in overdraft. Oops.
I hadn't heard from my daughter for a couple of days. Never a good thing. If she doesn't call me on the way to work, then she probably isn't working. She called me last night. She lost her painting job. That was coming and I'm surprised it took that long. She has issues with getting to work on time and having enough bus money to even get to work. She refuses to ask me for help unless it's absolutely necessary. Both hubby and I gave her some 'loving advice' on asking me for help. Regardless of where we are at financially we will gladly help her with getting a bus pass for the month. Same with getting to the doctor for a bladder infection that she has had for a long time now. She doesn't have money for the prescription. Get to the doctor and let me know how much it will cost. Good lord... She is struggling to be independent and to be strong. She is struggling to pay her rent, she is struggling to even take care of herself properly and she isn't succeeding. She needs to come home because she is taking on the responsibility of way to much and to many people where she is.
I meet with my worker at ADAPT on Tuesday. Still doing intake or background information. She asked me about complicated relationships. Haha! All of them! Some I have let go to the wayside as I really don't need them. Some are a little harder as I can't walk away from them. I have an idea of which ones play on me the most as they are the ones that my negative thoughts are on loop about and part of the reason I'm on Venlafaxine. To stop that negative loop that I dislike and I seem to have little control over lately. There is no closure or resolution.
I'm grateful and already this lady has helped me on two occasions with helping me to see what I was missing. Once regarding my husband and on Tuesday. She commented that my feelings on one relationship seemed to be motivated by fear. I know that my anger is usually fueled by something else. Hurt feelings and betrayal are the normal culprits and still do play a part however I completely overlooked fear. She was right. Fear of the damage that it has caused and continues to cause, on occasion. Damage that I have so little control over. I can usually put things behind me however I'm having trouble with this one. To the point where I'm on guard because I feel I have to be or I could easily lose my cool again. I don't like doing that.
Last weekend hubby and I found a store that sells semi-permanent titanium or grey hair dye. I have been looking for silver but no luck so far. As I have been watching my grey slowly grow in, I have been liking it. Hubby says he likes it too. So I want to highlight it with grey. I would do it myself but I don't think I could manage seeing to pull my hair through every second row of the cap.
I think I'm going to try printing my resume and taking it over to the pet store that is just around the corner. I held off as my son was interested for all of what, 24 hours... I'm no way comfortable with the idea of working full time right now as my poor home would be in shambles but part-time. I was excited a couple of weeks ago about another work from home opportunity however after looking into some reviews it appeared to be mostly another scam where you pay a lot of fees with little to no guarantee of work.
Michael has been attending the group meetings through PACT for the past 3 weeks. Thought I would throw that in there!
My quit date for quitting smoking is this weekend. Wish me luck!
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Last night my son decided to throw a wrench in things. Out of the blue he doesn't need/want his Olanzapine. It's time to try and go off them... Because barely a month of regaining some stability is long enough, I guess.
I'm sitting here trying really hard not to be pissed. For the past 3-4 weeks both myself and my hubby have been nothing but supportive and understanding. I have been patiently cleaning up his messes. Spending quality time with him doing things like messaging and scratching his back, brushing his hair, filing his nails, cuddling and even flossing his teeth. Yup you read that right. His teeth are mess. When the ashtray in the back yard, that is only 3 feet away from him, is to far away; that's ok, I take it too him. I have picking up his garbage, hosing down the yard due to his spitting... What do I ask for in return? Not very much. Perhaps that is the problem. I have been expecting way too little. In my quest to be understanding I am making things way to easy for him, again.
In my last blog post I mentioned him smoking in his room. Another thing that I have been very patient about. I have not yelled at him. I have said very little actually unless I catch him doing it. I have been keeping an eye out and finding what he uses for ashtrays when I can so that I can 'remind him' that there is no smoking in his room. A couple of times I have found the cups or containers that he uses and have removed them. For the past couple of days I haven't been able to find anything. Smart little bugger he is... He forgot this morning to put the lid back on the peanut can that he has been using. The one I thought was full of peanuts. It was full of cigarette butts.
Last weekend hubby got my son another carton of cigarettes as he has gone through 3 cartoons in just over 2 weeks. Of course smoking in his room means that he is smoking even more.
My son agreed last night to take his Olanzapine this morning... Yes as I'm sure you guessed, so far that has not happened. After I found the 'peanut can', I was thinking to myself: 'Do I really want to rock the boat and bring it up?'; as I didn't want to trigger his ODD defiance and cause him to not take the Olanzapine. Honestly what am I thinking... I'm not triggering his ODD. I'm not rockin' the boat... He is. I'm the one 'walking on eggshells' to not rock it and to what end?
I let him know this morning that if he isn't going to take the Olanzapine then he needs to call his nurse and let him know and discuss upping his Invega from 6 mg to 9 mg. Can I do it for him since I'm the one that seems to have a problem with this. Yes I absolutely have a problem with him going into psychosis, losing touch with reality and possibly one of us getting hurt. I can't hold him accountable for symptoms that he has no control over however he can be accountable for making choices that are going to cause a re-emergence of these symptoms. If he is going to make these decisions then he needs to be responsible for them and letting his treatment team know.
I also put away the rest of the carton of cigarettes that my hubby just got and let him know that I will give him a pack a day and they need to stay downstairs, not in his bedroom. Enough is enough. If hubby and I can smoke outside or in the basement then Michael can too and he is just going to have to figure that one out. I wonder how many times I have typed 'enough is enough'. Probably not enough ;) and certainly I need to have better follow through on these things or my son will just continue to break the rules with no consequences.
Ah yes the mustang. Hubby seems to be going through a phase. I feel a bit bad. I know how much he wants one and I won't tell him that he can't have one. He is the one earning a pay check after all. We did take one out for a test drive...
I'm not much for knowing about cars... She does look and sound nice though. Certainly suits hubby. It doesn't suit anything else though. The back seat was very cramped and he would lose a lot of functionality in the front as well. If it was just hubby and I, there would have been zero questions and we probably would have purchased it.
Hubby texted me this morning that one of the credit cards didn't work. I haven't been keeping close tabs on our accounts over the last week. Not that it would have mattered as some things came up that needed to be attended to. Hubby is now completely in debt in his name ;) Actually he has no more credit left and his bank account is in overdraft. Oops.
I hadn't heard from my daughter for a couple of days. Never a good thing. If she doesn't call me on the way to work, then she probably isn't working. She called me last night. She lost her painting job. That was coming and I'm surprised it took that long. She has issues with getting to work on time and having enough bus money to even get to work. She refuses to ask me for help unless it's absolutely necessary. Both hubby and I gave her some 'loving advice' on asking me for help. Regardless of where we are at financially we will gladly help her with getting a bus pass for the month. Same with getting to the doctor for a bladder infection that she has had for a long time now. She doesn't have money for the prescription. Get to the doctor and let me know how much it will cost. Good lord... She is struggling to be independent and to be strong. She is struggling to pay her rent, she is struggling to even take care of herself properly and she isn't succeeding. She needs to come home because she is taking on the responsibility of way to much and to many people where she is.
I meet with my worker at ADAPT on Tuesday. Still doing intake or background information. She asked me about complicated relationships. Haha! All of them! Some I have let go to the wayside as I really don't need them. Some are a little harder as I can't walk away from them. I have an idea of which ones play on me the most as they are the ones that my negative thoughts are on loop about and part of the reason I'm on Venlafaxine. To stop that negative loop that I dislike and I seem to have little control over lately. There is no closure or resolution.
I'm grateful and already this lady has helped me on two occasions with helping me to see what I was missing. Once regarding my husband and on Tuesday. She commented that my feelings on one relationship seemed to be motivated by fear. I know that my anger is usually fueled by something else. Hurt feelings and betrayal are the normal culprits and still do play a part however I completely overlooked fear. She was right. Fear of the damage that it has caused and continues to cause, on occasion. Damage that I have so little control over. I can usually put things behind me however I'm having trouble with this one. To the point where I'm on guard because I feel I have to be or I could easily lose my cool again. I don't like doing that.
Last weekend hubby and I found a store that sells semi-permanent titanium or grey hair dye. I have been looking for silver but no luck so far. As I have been watching my grey slowly grow in, I have been liking it. Hubby says he likes it too. So I want to highlight it with grey. I would do it myself but I don't think I could manage seeing to pull my hair through every second row of the cap.
I think I'm going to try printing my resume and taking it over to the pet store that is just around the corner. I held off as my son was interested for all of what, 24 hours... I'm no way comfortable with the idea of working full time right now as my poor home would be in shambles but part-time. I was excited a couple of weeks ago about another work from home opportunity however after looking into some reviews it appeared to be mostly another scam where you pay a lot of fees with little to no guarantee of work.
Michael has been attending the group meetings through PACT for the past 3 weeks. Thought I would throw that in there!
My quit date for quitting smoking is this weekend. Wish me luck!
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
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Friday, June 12, 2015
A little bit manic? ADAPT, Camping & Rules
To anyone that follows my blog regularly, my apologies for not writing...
I seem to still be struggling a bit with getting back into my grove and my social media with respect to mental illness. I upped my Venlafaxine on Saturday to what my family doctor wants me taking as I was noticing that my thoughts were going back to that negative loop where everything and anything that I'm not impressed with was auto-repeat in my head ;). It takes a couple of days for it to build up and by Wednesday the sedation kicked in and I ended up napping and going to bed early. So hopefully I can get back on track.
Hubby's family get together went well. Very well actually. I ended up reminding/telling my son that he had money as we were taking him to get cigarettes. I asked him to hold off on buying alcohol until after the family get together as I didn't want him being symptomatic while there. He agreed to wait. I know that he found it a bit tiresome but he said that he had a good time.
He didn't buy alcohol until later Monday afternoon. My bad... but I told him that the liquor store wasn't open on Sundays. I didn't think that it was. Hubby told me afterwards that it was open.
I'm guessing it was the alcohol that triggered it; he went a bit manic on Tuesday. Out of nowhere he was putting on jeans, grooming his beard and looking for his dress shoes. We had an interesting conversation about his teeth that day. Some delusional thinking in that he believed he was 'born' when he first started having memories around 3 or 4 and that he has grown new teeth 4 times. His ODD started to act up a little bit. When I didn't engage he said to me: Come on lets talk about this... Translation, come on lets argue ;). Sorry no. I told him that I thought he was being delusional, that I gave birth to him so I know when he was born, if he had teeth or not and that I wasn't going to continue this conversation. I walked away.
He went to his PACT group the following Wednesday which was golf. He participated and had fun. His new nurse from PACT has taken him out of the house for the past two Mondays. I think he is also pushing at PACT that Michael be more involved with the outings so it doesn't look like I have to question if he is on the list for Wednesday's groups anymore. Now his rides are just showing up. I think Monday's outing to the YMCA is being looked at as well. Last Wednesday was supposed to be a trail hike but due to rain they ended up going to the mall instead.
Camping last weekend went well. He said that he had fun. It's hard to tell sometimes. He looks like he is not really paying much attention to where he is yet he must be. Hubby and I stayed up until around 10 and Michael stayed up after that watching the fire ;). His reason for wanting to go camping is the fire. The store at the campsite sells little packets that causes the flames to go different colors which is kinda cool. We got 2 of them this time. Roasted some marshmallows. Hubby and I froze our butts off that night. Not quit warm enough at night yet...
I have had 2 appointments with ADAPT now. I will be meeting with my counselor once a week until she can get through my history. Also because I'm now a client of ADAPT then I'm able to participate in another program they have called 'STOP' which is for quitting smoking. I meet with a gentleman for that Wednesday morning and he gave me a months supply of patches and some lozenges. Now I just have to set my quit date. Because of my own past history with addiction I'm a little bit of both. I'm there as a family member of an addict but I'm also a recovering addict so I should be able to attend some of the programs for that as well.
Every Friday (today) they have a get together for addiction clients where people can talk about addiction, mental illness and how to have a better life. My son keeps asking if he can come to group with hubby and I and of course the answer is no. I reminded him of a youth thing that happens on Wednesday nights however I can't go to that one so he says no. He seemed open to the idea of going to today's session so we will see depending on the weather as it's supposed to downpour. Also I think his motivation may be the food court at the mall where ADAPT is and I can't keep handing money out to these things. Every group he wants money for McDonald's...
Wednesday hubby noticed that Michael seemed a bit edgy or cranky. A week without alcohol and he was/is probably experiencing some withdrawal symptoms. Being aware of this I didn't say anything that would play into that scenario. You know the one that has the addict pushing for a fight or argument so that they have a reason to drink or use ;). I can't say that I want to go through this every time my son gets money. It may not seem like much, however it's a constant cycle of him feeding his addiction then going through withdrawal when he has to go without. Sadly it's him that is suffering with withdrawal...
Hubby and I had group again last night. It was a repeat of the same theme as the last one we attended which was concurrent disorders: addiction and mental illness. Hubby seems to be getting a lot out of these groups. It's helping him to see/hear from others, other then just me. The group last night was through the Schizophrenia Society of Ontario (SSO) and they meet once a month at that location. I was sort of aware however I will make a bigger effort in the future to attend these.
I did speak to the lady from SSO for a minute about advocacy and other things. These are the items that SSO is currently working on: Policy and Advocacy
Rules... It came to our attention on Wednesday night, I think, that my son has started smoking in his bedroom. I totally missed the red flag of my son being in his room all night. Here I was thinking: Yah he's sleeping through the night. *face palm* I'm usually more on top of it then that but I guess between upping my antidepressants and my want to not see the negatives... I totally missed it until hubby commented that upstairs smelled like cigarette smoke.
Yesterday he was smoking while I was upstairs so I smelled it. Of course he lied to me. I gave him several chances to tell me the truth and finally had to go find the 'ashtray' and take it out of his room and tell him to go outside. Once outside I brought it up and of course got the: I pay for my room... I didn't respond right away, waited a bit then said to him that I didn't want it to be that every time I bring up something that he is doing that he isn't supposed to be doing that I have to deal with his ODD. He asked what ODD was? Oppositional Defiant Disorder. He says: I'm not being defiant, ok maybe I am but that's because you won't listen. Listen to what? You want to do what you want regardless of the rules because you think you should be able to. Yes you pay for the room however that still doesn't give you the right to smoke in it. If he rented a whole apartment that was non-smoking than he still isn't allowed to smoke in it. The world has rules.
I let him know that moving forward there would be consequences to him not following this rule. Several hours later it's easy to know that he is STILL smoking in his room as he hasn't gone outside for a smoke. I let him know that I'm backing off on giving him attention until he can learn to follow this rule. This may sound harsh however if I let this boundary slip then every other rule or boundary will go out the window with it.
In last night's group there was discussion on the 'slippery slope' of addiction. Well there are slippery slopes with boundaries as well. My son loves to push them and whenever I don't try to keep them then he pushes them all. He will even tell me: Well this is a rule and you let me so I figure this rule doesn't apply either. Typical ODD behavior which is why boundary setting is so important. Regardless of all this I don't want my home full of cigarette smoke, certainly not upstairs when it contributes to my headaches and guess what? It's my home too.
So awesomely today I have totally triggered his ODD ;) by taking his cigarettes out of his room and putting them in the basement. Not an easy tightrope to walk. Enforcing the boundary without allowing this to turn into something ugly so keeping my tone neutral and not reacting to his attitude which as the moment seems to be staring me down...
I'm off to make a coffee and harass my daughter, if I can, as she hasn't been getting to work on time. All I can do is keep calling her phone...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I seem to still be struggling a bit with getting back into my grove and my social media with respect to mental illness. I upped my Venlafaxine on Saturday to what my family doctor wants me taking as I was noticing that my thoughts were going back to that negative loop where everything and anything that I'm not impressed with was auto-repeat in my head ;). It takes a couple of days for it to build up and by Wednesday the sedation kicked in and I ended up napping and going to bed early. So hopefully I can get back on track.
Hubby's family get together went well. Very well actually. I ended up reminding/telling my son that he had money as we were taking him to get cigarettes. I asked him to hold off on buying alcohol until after the family get together as I didn't want him being symptomatic while there. He agreed to wait. I know that he found it a bit tiresome but he said that he had a good time.
He didn't buy alcohol until later Monday afternoon. My bad... but I told him that the liquor store wasn't open on Sundays. I didn't think that it was. Hubby told me afterwards that it was open.
I'm guessing it was the alcohol that triggered it; he went a bit manic on Tuesday. Out of nowhere he was putting on jeans, grooming his beard and looking for his dress shoes. We had an interesting conversation about his teeth that day. Some delusional thinking in that he believed he was 'born' when he first started having memories around 3 or 4 and that he has grown new teeth 4 times. His ODD started to act up a little bit. When I didn't engage he said to me: Come on lets talk about this... Translation, come on lets argue ;). Sorry no. I told him that I thought he was being delusional, that I gave birth to him so I know when he was born, if he had teeth or not and that I wasn't going to continue this conversation. I walked away.
He went to his PACT group the following Wednesday which was golf. He participated and had fun. His new nurse from PACT has taken him out of the house for the past two Mondays. I think he is also pushing at PACT that Michael be more involved with the outings so it doesn't look like I have to question if he is on the list for Wednesday's groups anymore. Now his rides are just showing up. I think Monday's outing to the YMCA is being looked at as well. Last Wednesday was supposed to be a trail hike but due to rain they ended up going to the mall instead.
Camping last weekend went well. He said that he had fun. It's hard to tell sometimes. He looks like he is not really paying much attention to where he is yet he must be. Hubby and I stayed up until around 10 and Michael stayed up after that watching the fire ;). His reason for wanting to go camping is the fire. The store at the campsite sells little packets that causes the flames to go different colors which is kinda cool. We got 2 of them this time. Roasted some marshmallows. Hubby and I froze our butts off that night. Not quit warm enough at night yet...
I have had 2 appointments with ADAPT now. I will be meeting with my counselor once a week until she can get through my history. Also because I'm now a client of ADAPT then I'm able to participate in another program they have called 'STOP' which is for quitting smoking. I meet with a gentleman for that Wednesday morning and he gave me a months supply of patches and some lozenges. Now I just have to set my quit date. Because of my own past history with addiction I'm a little bit of both. I'm there as a family member of an addict but I'm also a recovering addict so I should be able to attend some of the programs for that as well.
Every Friday (today) they have a get together for addiction clients where people can talk about addiction, mental illness and how to have a better life. My son keeps asking if he can come to group with hubby and I and of course the answer is no. I reminded him of a youth thing that happens on Wednesday nights however I can't go to that one so he says no. He seemed open to the idea of going to today's session so we will see depending on the weather as it's supposed to downpour. Also I think his motivation may be the food court at the mall where ADAPT is and I can't keep handing money out to these things. Every group he wants money for McDonald's...
Wednesday hubby noticed that Michael seemed a bit edgy or cranky. A week without alcohol and he was/is probably experiencing some withdrawal symptoms. Being aware of this I didn't say anything that would play into that scenario. You know the one that has the addict pushing for a fight or argument so that they have a reason to drink or use ;). I can't say that I want to go through this every time my son gets money. It may not seem like much, however it's a constant cycle of him feeding his addiction then going through withdrawal when he has to go without. Sadly it's him that is suffering with withdrawal...
Hubby and I had group again last night. It was a repeat of the same theme as the last one we attended which was concurrent disorders: addiction and mental illness. Hubby seems to be getting a lot out of these groups. It's helping him to see/hear from others, other then just me. The group last night was through the Schizophrenia Society of Ontario (SSO) and they meet once a month at that location. I was sort of aware however I will make a bigger effort in the future to attend these.
I did speak to the lady from SSO for a minute about advocacy and other things. These are the items that SSO is currently working on: Policy and Advocacy
Rules... It came to our attention on Wednesday night, I think, that my son has started smoking in his bedroom. I totally missed the red flag of my son being in his room all night. Here I was thinking: Yah he's sleeping through the night. *face palm* I'm usually more on top of it then that but I guess between upping my antidepressants and my want to not see the negatives... I totally missed it until hubby commented that upstairs smelled like cigarette smoke.
Yesterday he was smoking while I was upstairs so I smelled it. Of course he lied to me. I gave him several chances to tell me the truth and finally had to go find the 'ashtray' and take it out of his room and tell him to go outside. Once outside I brought it up and of course got the: I pay for my room... I didn't respond right away, waited a bit then said to him that I didn't want it to be that every time I bring up something that he is doing that he isn't supposed to be doing that I have to deal with his ODD. He asked what ODD was? Oppositional Defiant Disorder. He says: I'm not being defiant, ok maybe I am but that's because you won't listen. Listen to what? You want to do what you want regardless of the rules because you think you should be able to. Yes you pay for the room however that still doesn't give you the right to smoke in it. If he rented a whole apartment that was non-smoking than he still isn't allowed to smoke in it. The world has rules.
I let him know that moving forward there would be consequences to him not following this rule. Several hours later it's easy to know that he is STILL smoking in his room as he hasn't gone outside for a smoke. I let him know that I'm backing off on giving him attention until he can learn to follow this rule. This may sound harsh however if I let this boundary slip then every other rule or boundary will go out the window with it.
In last night's group there was discussion on the 'slippery slope' of addiction. Well there are slippery slopes with boundaries as well. My son loves to push them and whenever I don't try to keep them then he pushes them all. He will even tell me: Well this is a rule and you let me so I figure this rule doesn't apply either. Typical ODD behavior which is why boundary setting is so important. Regardless of all this I don't want my home full of cigarette smoke, certainly not upstairs when it contributes to my headaches and guess what? It's my home too.
So awesomely today I have totally triggered his ODD ;) by taking his cigarettes out of his room and putting them in the basement. Not an easy tightrope to walk. Enforcing the boundary without allowing this to turn into something ugly so keeping my tone neutral and not reacting to his attitude which as the moment seems to be staring me down...
I'm off to make a coffee and harass my daughter, if I can, as she hasn't been getting to work on time. All I can do is keep calling her phone...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, May 29, 2015
I'm seemingly not living very well. The 4 C's and Acceptance
'I'm seemingly not living very well.' Is what my son said to me yesterday when I pointed out for the umpteenth time that the patio table was not an ashtray. No he is not functioning very well at the moment.
The fact that he recognizes that he isn't living/functioning very well, I think is a good thing.
I don't know if it's that I'm perhaps a bit fed up with schizophrenia or if it's that I have been going through a phase of acceptance. Both I guess. On one hand I don't seem to have the motivation to be blogging, tweeting etc about mental illness. I think I just needed a bit of a break from it on social media and honestly I'm staring it in the face 24/7 at the moment and that's enough for me right now.
To a certain extend I have always accepted schizophrenia however I'm not sure I accepted how little control I have over it. On Monday and Tuesday evening my hubby and I attended a group through ADAPT for caregiver's of concurrent disorders (addiction and mental illness). Yes I pointed out that according to the DSM that addiction is now considered to be a mental illness ;).
For the first time I am seeking help in dealing with or coping with what our family is going through. It feels good. The 3 C's came up with a twist and I really liked it. The 4 C's: I didn't Cause it, I can't Control it, I can't Cure it but I can learn to Cope. I have always accepted that I didn't cause it and even that I don't have very much control over it however I have still been trying to control it to the best of ability. That ever present hope that if I do enough then my son will go into remission and start to build a life for himself.
I still have that hope however I can't build his life for him. I can't cure his schizophrenia. I can't...
It's been just over 2 weeks since I took him off the Latuda and started the Olanzapine. It's felt like a long 2 weeks. I have to keep reminding myself that it's only been 2 weeks. If someone broke a limb no one would expect recovery in just 2 weeks. You are looking at months at least. Even with the common cold it can take up to 3 months for the cough to completely go away. Yet here I am thinking: It's been 2 weeks, why hasn't the medication fixed this yet? *face palm* I really do know better. It's just hard to watch and wait.
Something that has been on my mind lately is something I read in an article about asylums or better yet how we need long term facilities. We do. I remember reading that people going through crisis had a place to go and just be or adjust, taking all the time they needed. I wonder if my son needs time to just be and adjust. Time to learn and recognize his own schizophrenia.
Over the past couple of weeks I have been noticing things. When I ask my son if he is hallucinating I don't get the auto-response of no. Now it's I think so. He is learning to recognize that what he sees, I don't. One day I noticed that he was very clammy/sweaty and asked if he was having an episode and he answered with I think so.
So I'm thinking: If I jump in and up his medications is this the right thing? On the surface the answer may seem like a yes. I'm not so sure. Maybe he needs to be in a place where he is stable enough to be aware of what schizophrenia is doing to him so that he can learn or see what it is also keeping him from doing. Living!
He seemed to be slowly improving until Wednesday when he went to the library with part of a group through PACT. He came back a bit more symptomatic and that night didn't sleep well. Yesterday he was off again and I even caught him masturbating in the living room. Can't say I was impressed with that ;). I let him know that I didn't like it and asked him to not do that in the living room. He agreed...
I think the stress of going to the library was too much for him right now. For a bit I actually wondered if he smoked marijuana with someone however I didn't see the other signs and he wasn't relaxed at all so I'm ruling that out. When I told him that he needed to get ready to go he said he didn't want to. I reminded him that he had told his case worker and nurse that he would go. I got him clean cloths and got his backpack ready for him. I didn't tell him that he had to go or that he could stay home. I let him know that if he found it too much that he could come home and that I think he should at least try that getting out may be good for him.
What struck me during the above conversation was like a flashback to when they are small and don't want to go to school. That's another twist that schizophrenia has thrown at us. He has been childlike for lack of a better word. Even my hubby has commented that sometimes when he answers me it's like he is a kid. Him not wanting to go to group was like a child not wanting to go to school. He went because even though I didn't tell him he had to, I didn't tell him couldn't and like a child he was in a way doing what he was told.
My main goal this last couple of weeks has just been to keep him on a good schedule for bed and spending time with him. I have been massaging and scratching his back whenever he asks which is 3-7 times a day. Sometimes at 6 in the morning... oi. It would be nice if it was after I had my coffee but oh well. When he asks, off I go. Every night I spend time with him, just cuddling/holding him. I was a little uncomfortable with this in the beginning however I have lightened up about it. When I first started massaging his back I could visibly see and feel him relax as I was doing it. I think it's been a good experience for both of us. It seems to be bringing us closer together. Hubby has been vacated to the smaller sofa while my son and I occupy the big one, while we watch our TV shows after dinner. Sometimes he puts his head in my lap. Yesterday I even got him to take 2 omega-3! The day before 2 multi-vitamins. I smiled when he walked away because I don't think he even realized what had happened. He stopped beside me while I was getting hubby and I our supplements, I handed him the multi-vitamins and he took them. :) Same with the omega-3. I offered him 2 and first he said no so I asked him to take just one and he decided to take both of them!
It's been a lot of going behind him and putting stuff away. Making sure things are turned off or reminding him that he has things turned on, like the deep fryer ;). I have been pointing all these things out to him however I have been doing it with a very loving tone. No judgments or being mad. Just letting him know that he isn't doing them. I think that is why he was able to say or see that he isn't living (functioning) very well. He knows that he hasn't been able to do these minor things.
I haven't been taking him out much. Realistically I think that even grocery shopping would take more energy then he has right now. I haven't told him that he can't come with us however I have stated that being clean needs to happen for him to come. Since he doesn't have it in him to really do this then he decides not to come. No worries he still gets his fair share of treats and usually McDonald's that we pick up for him on the way back.
With the hygiene thing... Again I have been pointing it out and again with a loving tone. Last weekend we got him new track-pants as he lost some weight and although the same size, they fit him better due to the style. That night I let him know he needed to get clean and put on clean cloths. He asked if he could not shower. I let him know that he didn't have to but I was going to clean him. He replied: You're going to clean me, ok let's do this... I washed his pits, neck, face and hands and had him put on all clean cloths. He even asked me to get him clean underwear. ;)
Slowly he seems to be becoming more aware of things like his own body odor. Baby steps right?
I'm in the middle of making flat bread as hubbies family is having a get together tomorrow. Not sure what to do about my son. Yesterday he was asking about the date and checking his bank account. Addiction... While he wants to come tomorrow, as soon as he realizes or remembers the date again... Take him with us when he will have triggered symptoms again or leave him home alone with no one making sure he isn't burning the house down ;)
I almost forgot. I finally booked camping! Next Saturday so that should hopefully give him something to look forward to.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
The fact that he recognizes that he isn't living/functioning very well, I think is a good thing.
I don't know if it's that I'm perhaps a bit fed up with schizophrenia or if it's that I have been going through a phase of acceptance. Both I guess. On one hand I don't seem to have the motivation to be blogging, tweeting etc about mental illness. I think I just needed a bit of a break from it on social media and honestly I'm staring it in the face 24/7 at the moment and that's enough for me right now.
To a certain extend I have always accepted schizophrenia however I'm not sure I accepted how little control I have over it. On Monday and Tuesday evening my hubby and I attended a group through ADAPT for caregiver's of concurrent disorders (addiction and mental illness). Yes I pointed out that according to the DSM that addiction is now considered to be a mental illness ;).
For the first time I am seeking help in dealing with or coping with what our family is going through. It feels good. The 3 C's came up with a twist and I really liked it. The 4 C's: I didn't Cause it, I can't Control it, I can't Cure it but I can learn to Cope. I have always accepted that I didn't cause it and even that I don't have very much control over it however I have still been trying to control it to the best of ability. That ever present hope that if I do enough then my son will go into remission and start to build a life for himself.
I still have that hope however I can't build his life for him. I can't cure his schizophrenia. I can't...
It's been just over 2 weeks since I took him off the Latuda and started the Olanzapine. It's felt like a long 2 weeks. I have to keep reminding myself that it's only been 2 weeks. If someone broke a limb no one would expect recovery in just 2 weeks. You are looking at months at least. Even with the common cold it can take up to 3 months for the cough to completely go away. Yet here I am thinking: It's been 2 weeks, why hasn't the medication fixed this yet? *face palm* I really do know better. It's just hard to watch and wait.
Something that has been on my mind lately is something I read in an article about asylums or better yet how we need long term facilities. We do. I remember reading that people going through crisis had a place to go and just be or adjust, taking all the time they needed. I wonder if my son needs time to just be and adjust. Time to learn and recognize his own schizophrenia.
Over the past couple of weeks I have been noticing things. When I ask my son if he is hallucinating I don't get the auto-response of no. Now it's I think so. He is learning to recognize that what he sees, I don't. One day I noticed that he was very clammy/sweaty and asked if he was having an episode and he answered with I think so.
So I'm thinking: If I jump in and up his medications is this the right thing? On the surface the answer may seem like a yes. I'm not so sure. Maybe he needs to be in a place where he is stable enough to be aware of what schizophrenia is doing to him so that he can learn or see what it is also keeping him from doing. Living!
He seemed to be slowly improving until Wednesday when he went to the library with part of a group through PACT. He came back a bit more symptomatic and that night didn't sleep well. Yesterday he was off again and I even caught him masturbating in the living room. Can't say I was impressed with that ;). I let him know that I didn't like it and asked him to not do that in the living room. He agreed...
I think the stress of going to the library was too much for him right now. For a bit I actually wondered if he smoked marijuana with someone however I didn't see the other signs and he wasn't relaxed at all so I'm ruling that out. When I told him that he needed to get ready to go he said he didn't want to. I reminded him that he had told his case worker and nurse that he would go. I got him clean cloths and got his backpack ready for him. I didn't tell him that he had to go or that he could stay home. I let him know that if he found it too much that he could come home and that I think he should at least try that getting out may be good for him.
What struck me during the above conversation was like a flashback to when they are small and don't want to go to school. That's another twist that schizophrenia has thrown at us. He has been childlike for lack of a better word. Even my hubby has commented that sometimes when he answers me it's like he is a kid. Him not wanting to go to group was like a child not wanting to go to school. He went because even though I didn't tell him he had to, I didn't tell him couldn't and like a child he was in a way doing what he was told.
My main goal this last couple of weeks has just been to keep him on a good schedule for bed and spending time with him. I have been massaging and scratching his back whenever he asks which is 3-7 times a day. Sometimes at 6 in the morning... oi. It would be nice if it was after I had my coffee but oh well. When he asks, off I go. Every night I spend time with him, just cuddling/holding him. I was a little uncomfortable with this in the beginning however I have lightened up about it. When I first started massaging his back I could visibly see and feel him relax as I was doing it. I think it's been a good experience for both of us. It seems to be bringing us closer together. Hubby has been vacated to the smaller sofa while my son and I occupy the big one, while we watch our TV shows after dinner. Sometimes he puts his head in my lap. Yesterday I even got him to take 2 omega-3! The day before 2 multi-vitamins. I smiled when he walked away because I don't think he even realized what had happened. He stopped beside me while I was getting hubby and I our supplements, I handed him the multi-vitamins and he took them. :) Same with the omega-3. I offered him 2 and first he said no so I asked him to take just one and he decided to take both of them!
It's been a lot of going behind him and putting stuff away. Making sure things are turned off or reminding him that he has things turned on, like the deep fryer ;). I have been pointing all these things out to him however I have been doing it with a very loving tone. No judgments or being mad. Just letting him know that he isn't doing them. I think that is why he was able to say or see that he isn't living (functioning) very well. He knows that he hasn't been able to do these minor things.
I haven't been taking him out much. Realistically I think that even grocery shopping would take more energy then he has right now. I haven't told him that he can't come with us however I have stated that being clean needs to happen for him to come. Since he doesn't have it in him to really do this then he decides not to come. No worries he still gets his fair share of treats and usually McDonald's that we pick up for him on the way back.
With the hygiene thing... Again I have been pointing it out and again with a loving tone. Last weekend we got him new track-pants as he lost some weight and although the same size, they fit him better due to the style. That night I let him know he needed to get clean and put on clean cloths. He asked if he could not shower. I let him know that he didn't have to but I was going to clean him. He replied: You're going to clean me, ok let's do this... I washed his pits, neck, face and hands and had him put on all clean cloths. He even asked me to get him clean underwear. ;)
Slowly he seems to be becoming more aware of things like his own body odor. Baby steps right?
I'm in the middle of making flat bread as hubbies family is having a get together tomorrow. Not sure what to do about my son. Yesterday he was asking about the date and checking his bank account. Addiction... While he wants to come tomorrow, as soon as he realizes or remembers the date again... Take him with us when he will have triggered symptoms again or leave him home alone with no one making sure he isn't burning the house down ;)
I almost forgot. I finally booked camping! Next Saturday so that should hopefully give him something to look forward to.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Thursday, May 14, 2015
Bye bye Latuda
I was really hoping or had high hopes for the Latuda as I have heard of good results with it. However the small positives that I have seen are in no way outweighing the negatives. Honestly I'm not sure that the small positives I have seen are even as a result of the Latuda. The only positives I have been seeing is my son sometimes picking up after himself and making himself things to eat which most likely can be attributed to years of me trying to install this habit in him.
My hubby took my son out with him to clean the car on Saturday and they came back with these for Mother's Day:
My son came downstairs where I was doing laundry and gave them to me saying: I thought these would do you. Meaning he picked them out and thought I would like them. He was right!
As I mentioned on Friday he went to the liquor store. I don't think he drank everything on Friday although I can't say when he finished it. One day earlier in the week he threw out the empty bottles. This time he managed to hide them so that they weren't obvious.
After I cut the Latuda from 80 mg to 40 mg it was still several days before he actually took it and kept it down. He has been vomiting off and on. I wasn't sure if it was the Latuda causing this or not but I'm pretty sure that it is. Although part of it could also be how much he is smoking.
On Monday his new nurse visited. He seems nice... Sometimes my husband will comment that we need someone with more experience. I tend to agree ;) I don't know if it's that I'm so involved in researching medications or watching for signs, however I find that most of his treatment team just don't seem to get it. Maybe I think that I know more then I do. I know what I'm seeing and I know what my gut is telling me and I'm listening.
First I got the run down on cutting pills in half... Hmm... Ok way beyond that. I did my research first. I think I may have gotten chastised for cutting the dose as "How is the doctor going to know if the medication is working as prescribed?" The dose as prescribed was landing my son in an hallucinating state that could have had him suicidal if I hadn't intervened. So thanks for the input but my son is my priority not the doctor.
My son was looking at his nurse, not listening to him, and smiling to the point of almost laughing. His nurse was glad to see him happy... I found that a bit ludicrous, no pun intended. He's not 'happy', he's experiencing symptoms. My son continues to deny voices and hallucinations if asked outright if he is experiencing them. It's obvious that he is. Something I have difficulty pinpointing is the difference between intrusive thoughts and voices. Personally I think that are pretty close to each other with voices perhaps being one step above intrusive thoughts. Intrusive thoughts implies that they are intruding or not wanted however if one is welcoming them then one wouldn't consider them intrusive. Still they are not, for lack of a better description, our own thoughts. So I asked about the difference. His nurse explained to me the difference between thoughts and voices. I guess he missed the word 'intrusive'.
Monday and Tuesday he managed to keep down the 40 mg doses of Latuda. Yesterday (Wednesday) he vomited twice. Once all over the bathroom. That was fun to clean up ;). Since Friday he has started with hand movements, like he is flicking something. It has been progressively getting worse. Now he is doing it almost all the time about once every minute or less. If I hold the hand that is doing it, he starts with the other hand. He says that it isn't bothering him however it IS bothering me because I know it shouldn't be happening. The last 2-3 days he has become very needy in wanting me to cuddle with him. Wanting to sit almost on me on the sofa. Wanting me to file his nails and rub and scratch his back. I'm doing my best to accommodate this change and spend more time with him. Last night he wanted to sleep in my bed. Sadly this is something I'm not comfortable with however I did hold him for awhile in his bed.
Yesterday morning I talked to his case worker. She has been with us since, I think, July of last year. Possibly before that. One thing that I truly appreciate about her is that she listens to me. She doesn't cut me off mid-sentence when I'm telling her about what I'm seeing (his new nurse does as have others). In fact she has commented what a good thing it is that my son has me. She doesn't question the decisions that I make when it comes to medications. Like I said, she listens. So she knows that I make the decisions that I do with some knowledge of what I'm doing. At least that is how I'm reading it ;). I feel reasonably confident that what I tell her gets relayed to the psychiatrist with the appropriate emphasis on the concerning things that I see. With all the others... not so much. Even if she doesn't agree with what I'm doing she doesn't chastise me for it, instead brings it to the attention of his psychiatrist.
Yesterday his case worker and I agreed that my son is regressing. That what I'm seeing is not right for my son. I could tell that his hallucinating is getting worse again. He is lost. Goes the cupboard and doesn't seem to know what he is there for. I could tell by how he is walking that he is mentally lost. Some of his behavior has been almost child-like. After he vomited yesterday evening I told my hubby that Dr. Barb is saying no more Latuda. ;) I've tried to give it a chance however enough is enough.
This morning I called PACT and left a voice message as I know they are having their team meeting today with the psychiatrist and I wanted them to be aware of what I was doing. Last night I gave my son 10 mg of Olanzapine. He seems quite willing to go back on it. Yup, conundrum that he is! He was put on the Latuda because he decided to come off the Olanzapine. *sigh* I gave it to him around 8:30 last night. Put him to bed shortly after, spending time with him cuddling. Found out that there was a war going on his head... When I checked on him around 10, he was sleeping and snoring! As if that was a sound I ever thought I would be happy to hear and I was! I don't think he has had a sound sleep for over two weeks now.
I haven't been in the backyard for the past couple of days as it's been a bit chilly. I went out there this morning as when I looked out there I saw a pile of cigarette butts on the patio table. There is an ashtray on the other side of the table. I guess it was too far away and my son has been butting out his cigarettes on the table. There was butts everywhere. Some of them I could tell hadn't even been put out but went out on there own. It's a good thing there is no smoking in most of the house or there is a distinct possibility we could have been dealing with a house fire. I cleaned them up.
His nurse called me back after receiving my message this morning. I sat there silently fuming as he chastised me for making medication decisions without the psychiatrists ok. Finally I got blunt with him and told him that I'm going to do what I think is best for my son. I know what he has been prescribed and why. Keeping him on medications that are not working and making him worse, regardless of the doctor's orders is not going to happen. He kept cutting me off when I tried to explain what I have been seeing. Basically we ended the call with me saying that my son's psychiatrist should have enough understanding of me by now to know that I'm going to do what I think is best. If history is any indication he has yet to go against any of my decisions and I seriously doubt that he will this time either. The goal is to keep my son out of the hospital not put him there.
I think I need to do some research on medications. I think we need one that only affects dopamine and not serotonin as well, as most of them do. For me the only question right now is what dose of Olanzapine. Previously he was taking 20 mg a day which is supposed to be maximum dose and I would rather not go back to that if we don't have to.
Today he seems a bit better. The hand thing is still going strong. I'm guessing that will take time to go away however if I don't see an improvement in it within the next day or so I will be addressing it further.
We had our follow up appointment with ADAPT on Monday. It's at the mall which is like a 10 minute walk. My son will not be continuing with them. Voluntary and all that crap and he doesn't think that drinking 400 ml of 40% alcohol is a problem. So there you have it. I'm going to continue with them. I need the support and help learning to better cope with being the parent of an addict with mental illness. I have already booked an appointment for next month and registered with some sessions on the 25th and 26th. They also offer support and funding for quitting smoking so I'm going to get hubby and I registered so that hopefully they can provide us with free patches!
I did start the process of registering with a company for work from home opportunities. Been meaning to finish that for the past couple of days.
I wrote a piece for a book that I'm going to be participating in. It's currently pinned to the top of my Facebook page if any of my readers who are parents or caregivers are interested in telling their story and helping to support the non-profit that is putting it together. You can find my Facebook link on the side of this blog or by clicking above.
May 17-23 is Schizophrenia Awareness Week. I had grand intentions of creating a whole lot of literature and informational pieces to highlight on my Facebook page and the event that I created. I still have today and tomorrow...
PS: He has been continuing to take his Invega!
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
My hubby took my son out with him to clean the car on Saturday and they came back with these for Mother's Day:
My son came downstairs where I was doing laundry and gave them to me saying: I thought these would do you. Meaning he picked them out and thought I would like them. He was right!
As I mentioned on Friday he went to the liquor store. I don't think he drank everything on Friday although I can't say when he finished it. One day earlier in the week he threw out the empty bottles. This time he managed to hide them so that they weren't obvious.
After I cut the Latuda from 80 mg to 40 mg it was still several days before he actually took it and kept it down. He has been vomiting off and on. I wasn't sure if it was the Latuda causing this or not but I'm pretty sure that it is. Although part of it could also be how much he is smoking.
On Monday his new nurse visited. He seems nice... Sometimes my husband will comment that we need someone with more experience. I tend to agree ;) I don't know if it's that I'm so involved in researching medications or watching for signs, however I find that most of his treatment team just don't seem to get it. Maybe I think that I know more then I do. I know what I'm seeing and I know what my gut is telling me and I'm listening.
First I got the run down on cutting pills in half... Hmm... Ok way beyond that. I did my research first. I think I may have gotten chastised for cutting the dose as "How is the doctor going to know if the medication is working as prescribed?" The dose as prescribed was landing my son in an hallucinating state that could have had him suicidal if I hadn't intervened. So thanks for the input but my son is my priority not the doctor.
My son was looking at his nurse, not listening to him, and smiling to the point of almost laughing. His nurse was glad to see him happy... I found that a bit ludicrous, no pun intended. He's not 'happy', he's experiencing symptoms. My son continues to deny voices and hallucinations if asked outright if he is experiencing them. It's obvious that he is. Something I have difficulty pinpointing is the difference between intrusive thoughts and voices. Personally I think that are pretty close to each other with voices perhaps being one step above intrusive thoughts. Intrusive thoughts implies that they are intruding or not wanted however if one is welcoming them then one wouldn't consider them intrusive. Still they are not, for lack of a better description, our own thoughts. So I asked about the difference. His nurse explained to me the difference between thoughts and voices. I guess he missed the word 'intrusive'.
Monday and Tuesday he managed to keep down the 40 mg doses of Latuda. Yesterday (Wednesday) he vomited twice. Once all over the bathroom. That was fun to clean up ;). Since Friday he has started with hand movements, like he is flicking something. It has been progressively getting worse. Now he is doing it almost all the time about once every minute or less. If I hold the hand that is doing it, he starts with the other hand. He says that it isn't bothering him however it IS bothering me because I know it shouldn't be happening. The last 2-3 days he has become very needy in wanting me to cuddle with him. Wanting to sit almost on me on the sofa. Wanting me to file his nails and rub and scratch his back. I'm doing my best to accommodate this change and spend more time with him. Last night he wanted to sleep in my bed. Sadly this is something I'm not comfortable with however I did hold him for awhile in his bed.
Yesterday morning I talked to his case worker. She has been with us since, I think, July of last year. Possibly before that. One thing that I truly appreciate about her is that she listens to me. She doesn't cut me off mid-sentence when I'm telling her about what I'm seeing (his new nurse does as have others). In fact she has commented what a good thing it is that my son has me. She doesn't question the decisions that I make when it comes to medications. Like I said, she listens. So she knows that I make the decisions that I do with some knowledge of what I'm doing. At least that is how I'm reading it ;). I feel reasonably confident that what I tell her gets relayed to the psychiatrist with the appropriate emphasis on the concerning things that I see. With all the others... not so much. Even if she doesn't agree with what I'm doing she doesn't chastise me for it, instead brings it to the attention of his psychiatrist.
Yesterday his case worker and I agreed that my son is regressing. That what I'm seeing is not right for my son. I could tell that his hallucinating is getting worse again. He is lost. Goes the cupboard and doesn't seem to know what he is there for. I could tell by how he is walking that he is mentally lost. Some of his behavior has been almost child-like. After he vomited yesterday evening I told my hubby that Dr. Barb is saying no more Latuda. ;) I've tried to give it a chance however enough is enough.
This morning I called PACT and left a voice message as I know they are having their team meeting today with the psychiatrist and I wanted them to be aware of what I was doing. Last night I gave my son 10 mg of Olanzapine. He seems quite willing to go back on it. Yup, conundrum that he is! He was put on the Latuda because he decided to come off the Olanzapine. *sigh* I gave it to him around 8:30 last night. Put him to bed shortly after, spending time with him cuddling. Found out that there was a war going on his head... When I checked on him around 10, he was sleeping and snoring! As if that was a sound I ever thought I would be happy to hear and I was! I don't think he has had a sound sleep for over two weeks now.
I haven't been in the backyard for the past couple of days as it's been a bit chilly. I went out there this morning as when I looked out there I saw a pile of cigarette butts on the patio table. There is an ashtray on the other side of the table. I guess it was too far away and my son has been butting out his cigarettes on the table. There was butts everywhere. Some of them I could tell hadn't even been put out but went out on there own. It's a good thing there is no smoking in most of the house or there is a distinct possibility we could have been dealing with a house fire. I cleaned them up.
His nurse called me back after receiving my message this morning. I sat there silently fuming as he chastised me for making medication decisions without the psychiatrists ok. Finally I got blunt with him and told him that I'm going to do what I think is best for my son. I know what he has been prescribed and why. Keeping him on medications that are not working and making him worse, regardless of the doctor's orders is not going to happen. He kept cutting me off when I tried to explain what I have been seeing. Basically we ended the call with me saying that my son's psychiatrist should have enough understanding of me by now to know that I'm going to do what I think is best. If history is any indication he has yet to go against any of my decisions and I seriously doubt that he will this time either. The goal is to keep my son out of the hospital not put him there.
I think I need to do some research on medications. I think we need one that only affects dopamine and not serotonin as well, as most of them do. For me the only question right now is what dose of Olanzapine. Previously he was taking 20 mg a day which is supposed to be maximum dose and I would rather not go back to that if we don't have to.
Today he seems a bit better. The hand thing is still going strong. I'm guessing that will take time to go away however if I don't see an improvement in it within the next day or so I will be addressing it further.
We had our follow up appointment with ADAPT on Monday. It's at the mall which is like a 10 minute walk. My son will not be continuing with them. Voluntary and all that crap and he doesn't think that drinking 400 ml of 40% alcohol is a problem. So there you have it. I'm going to continue with them. I need the support and help learning to better cope with being the parent of an addict with mental illness. I have already booked an appointment for next month and registered with some sessions on the 25th and 26th. They also offer support and funding for quitting smoking so I'm going to get hubby and I registered so that hopefully they can provide us with free patches!
I did start the process of registering with a company for work from home opportunities. Been meaning to finish that for the past couple of days.
I wrote a piece for a book that I'm going to be participating in. It's currently pinned to the top of my Facebook page if any of my readers who are parents or caregivers are interested in telling their story and helping to support the non-profit that is putting it together. You can find my Facebook link on the side of this blog or by clicking above.
May 17-23 is Schizophrenia Awareness Week. I had grand intentions of creating a whole lot of literature and informational pieces to highlight on my Facebook page and the event that I created. I still have today and tomorrow...
PS: He has been continuing to take his Invega!
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, May 8, 2015
Latuda Roller Coaster
It's been a bit of an interesting week. When my son's case worker stopped by on Monday to drop off his medications for the week and check in, I told her that what I have been seeing is different. I didn't know how to explain different... Just that I wasn't sure that I liked what I was seeing. The Latuda seemed to be helping however in some ways it wasn't.
He went from Friday to Tuesday barely eating. Even though he was going to bed he wasn't sleeping good and he wasn't napping during the day either.
Monday evening he randomly hugged me... Good sign right?
Tuesday he asked for the internet back. I asked him if he remembered the things that he had said to me and he replied that he remembered all of it. I asked if he still felt justified in saying what he did. Yes err no... He was upset. Ok I can understand that. I let him know that threatening me was illegal and reminded him that he had threatened to hurt me. He told me that he would never hurt me. Didn't I know that? That's the crutch isn't it? My son, Michael, would never hurt me. Psychosis and alcohol on the other hand is a different story. I gave him back the internet, not that he has used it, and told him that we really need to work on his anger issues.
We talked about his tobacco use. He told me that I had agreed that if he bought one tube of tobacco that I would buy him two. Ok we need to get to the bottom of where these misconceptions are coming from. When did I say that? I didn't but another time I told him that if he bought one carton of cigarettes then I would buy him two cartons. Yes I did do this once because he had spent his money on furniture for his room. Grrr... It does get irritating that whenever I do something nice that it gets turned into something like this. So I made it clear that I would get him some tobacco like I said I would but not two tubes and next month I don't plan on helping with this again.
I talked to his worker at disability and let her know that they are still deducting $40 from his payments due to the supposed over payment of him collecting disability from two provinces at once. This should be fixed for next payment so that they are only deducting $10. The drug cards finally got faxed over to the pharmacy that is supplying his medications and starting next month they should be mailing them to me.
I also tried to address the alcohol... It's not helping him. It's depressing him and triggering anger. He is not a happy drunk when he drinks now. It's seriously impairing him and his functionality. Off he went to the liquor store anyways...
I know he thinks I'm being hard on him however I can't continue to support his drinking and we are not spending more money on his tobacco then we do our own. We shouldn't have to. Hubby has been talking about quitting again. Maybe we should. It's harder to tell my son no when we are smoking.
Wednesday morning he started drinking at 9 AM. I didn't say anything... thought I guess I should be happy that he didn't drink it all the day before. Sad isn't it when that is what I'm left with... Back to the different that I noted at the beginning of this post. I haven't had much experience in seeing my son actively hallucinate. Things don't usually get that far here. I asked my son if he was hallucinating and he said no. Now my bad here because really I'm asking someone who is seeing what they see as being just as real as everything I see and expecting him to know the different ;) I notice by Wednesday afternoon that he was acting odd even for him. It was like he was pushing stuff away from him and it almost looked like bouncing a ball or something... Things I couldn't see.
Yesterday was a bit of a roller coaster for him. Early afternoon he was making noises that I couldn't at first tell if it was crying or laughing. However the look on his face was one of pain. At the same time he was having issues with his privates. I'm guessing tactile hallucinations. Several times I asked him if he was ok and if he was crying. He said no however at one point he told me to leave him alone and stop looking at him while he was crying. He didn't want me touching him and he couldn't tell me why he was crying just that he was. I asked if it was ok if I called PACT and talked to his nurse about the Latuda that his dose is too high. He said yes.
I called and of course his nurse wasn't in, his case worker wasn't available and the other nurses were all in a meeting but I could leave a message. I did. They haven't called me back yet.
The off and on crying and issues with his privates continued for about an hour. I was on the verge of putting us in a cab and going to emergency. I asked him if he was having thoughts of hurting himself and he said that he wasn't. I asked that if he did that he let me know right away. Finally it stopped and he said that he was feeling better. I was coloring and he joined me. Then it started again however not as bad as before and was shorter. Then he was very happy. I think perhaps a bit manic based on the continual smile. I could see that he was hallucinating again. That had me concerned for a bit as he was doing air punches or interacting with his hallucinations, I'm not sure, but too close to me so I asked him not to do that around me. Thankfully this didn't last long.
Since PACT didn't call me back, I looked it up and his Latuda pills can be cut in half. Latuda is supposed to be taken with food. Not snacks but an actual meal. Given that he hasn't been eating that has been a tough one and he wanted to take it at night with his Invega. I think between the too high dose and not taking it with food that it has been hitting him too hard. Latuda can cause mania as far as I know. I know it's not supposed to be sedating which means it can be activating. Since he has been taking it before bed I think it's been interfering with his sleep as Wednesday night he did take two Melatonin and still didn't sleep good.
So I have cut his dose from 80 mg to 40 mg and gave it to him with dinner last night. The up side to the mini manic phase seems to be that he ate dinner fairly good. He didn't eat all of it but he did eat his chicken and salad so an ok base for the Latuda.
He still hasn't showered however he has been in the bath the last two nights. While it may sound like a good thing... When he is experiencing symptoms or tactile hallucinations he seems to like the sensation of being in the tube so it's not really a good sign when he wants to have a bath every day. Last night I went into the bathroom and took out his dirty socks, underwear and shirt and put out clean ones so that he had no choice but to but on clean ones.
Around 9:30 last night I went into his room and had him take his Invega and two Melatonin. He slept although not as deep as I would like. He got up today at 8:30 AM. Not bad actually as he has been getting up with me and hubby around 5 for the past week. I had debating not giving him any Latuda last night however if I did that I ran the risk of him not taking it again as he has done this with several medications in the past. Just because 80 mg is too much I don't want to not give this medication a chance. He needs the antipsychotic right now.
I called PACT and left another message letting them know I cut the dose. Hopefully today I will see a reduction in what I was seeing yesterday. Probably not though as he appeared to be hallucinating a little while ago and is now off to the liquor store again...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
He went from Friday to Tuesday barely eating. Even though he was going to bed he wasn't sleeping good and he wasn't napping during the day either.
Monday evening he randomly hugged me... Good sign right?
Tuesday he asked for the internet back. I asked him if he remembered the things that he had said to me and he replied that he remembered all of it. I asked if he still felt justified in saying what he did. Yes err no... He was upset. Ok I can understand that. I let him know that threatening me was illegal and reminded him that he had threatened to hurt me. He told me that he would never hurt me. Didn't I know that? That's the crutch isn't it? My son, Michael, would never hurt me. Psychosis and alcohol on the other hand is a different story. I gave him back the internet, not that he has used it, and told him that we really need to work on his anger issues.
We talked about his tobacco use. He told me that I had agreed that if he bought one tube of tobacco that I would buy him two. Ok we need to get to the bottom of where these misconceptions are coming from. When did I say that? I didn't but another time I told him that if he bought one carton of cigarettes then I would buy him two cartons. Yes I did do this once because he had spent his money on furniture for his room. Grrr... It does get irritating that whenever I do something nice that it gets turned into something like this. So I made it clear that I would get him some tobacco like I said I would but not two tubes and next month I don't plan on helping with this again.
I talked to his worker at disability and let her know that they are still deducting $40 from his payments due to the supposed over payment of him collecting disability from two provinces at once. This should be fixed for next payment so that they are only deducting $10. The drug cards finally got faxed over to the pharmacy that is supplying his medications and starting next month they should be mailing them to me.
I also tried to address the alcohol... It's not helping him. It's depressing him and triggering anger. He is not a happy drunk when he drinks now. It's seriously impairing him and his functionality. Off he went to the liquor store anyways...
I know he thinks I'm being hard on him however I can't continue to support his drinking and we are not spending more money on his tobacco then we do our own. We shouldn't have to. Hubby has been talking about quitting again. Maybe we should. It's harder to tell my son no when we are smoking.
Wednesday morning he started drinking at 9 AM. I didn't say anything... thought I guess I should be happy that he didn't drink it all the day before. Sad isn't it when that is what I'm left with... Back to the different that I noted at the beginning of this post. I haven't had much experience in seeing my son actively hallucinate. Things don't usually get that far here. I asked my son if he was hallucinating and he said no. Now my bad here because really I'm asking someone who is seeing what they see as being just as real as everything I see and expecting him to know the different ;) I notice by Wednesday afternoon that he was acting odd even for him. It was like he was pushing stuff away from him and it almost looked like bouncing a ball or something... Things I couldn't see.
Yesterday was a bit of a roller coaster for him. Early afternoon he was making noises that I couldn't at first tell if it was crying or laughing. However the look on his face was one of pain. At the same time he was having issues with his privates. I'm guessing tactile hallucinations. Several times I asked him if he was ok and if he was crying. He said no however at one point he told me to leave him alone and stop looking at him while he was crying. He didn't want me touching him and he couldn't tell me why he was crying just that he was. I asked if it was ok if I called PACT and talked to his nurse about the Latuda that his dose is too high. He said yes.
I called and of course his nurse wasn't in, his case worker wasn't available and the other nurses were all in a meeting but I could leave a message. I did. They haven't called me back yet.
The off and on crying and issues with his privates continued for about an hour. I was on the verge of putting us in a cab and going to emergency. I asked him if he was having thoughts of hurting himself and he said that he wasn't. I asked that if he did that he let me know right away. Finally it stopped and he said that he was feeling better. I was coloring and he joined me. Then it started again however not as bad as before and was shorter. Then he was very happy. I think perhaps a bit manic based on the continual smile. I could see that he was hallucinating again. That had me concerned for a bit as he was doing air punches or interacting with his hallucinations, I'm not sure, but too close to me so I asked him not to do that around me. Thankfully this didn't last long.
Since PACT didn't call me back, I looked it up and his Latuda pills can be cut in half. Latuda is supposed to be taken with food. Not snacks but an actual meal. Given that he hasn't been eating that has been a tough one and he wanted to take it at night with his Invega. I think between the too high dose and not taking it with food that it has been hitting him too hard. Latuda can cause mania as far as I know. I know it's not supposed to be sedating which means it can be activating. Since he has been taking it before bed I think it's been interfering with his sleep as Wednesday night he did take two Melatonin and still didn't sleep good.
So I have cut his dose from 80 mg to 40 mg and gave it to him with dinner last night. The up side to the mini manic phase seems to be that he ate dinner fairly good. He didn't eat all of it but he did eat his chicken and salad so an ok base for the Latuda.
He still hasn't showered however he has been in the bath the last two nights. While it may sound like a good thing... When he is experiencing symptoms or tactile hallucinations he seems to like the sensation of being in the tube so it's not really a good sign when he wants to have a bath every day. Last night I went into the bathroom and took out his dirty socks, underwear and shirt and put out clean ones so that he had no choice but to but on clean ones.
Around 9:30 last night I went into his room and had him take his Invega and two Melatonin. He slept although not as deep as I would like. He got up today at 8:30 AM. Not bad actually as he has been getting up with me and hubby around 5 for the past week. I had debating not giving him any Latuda last night however if I did that I ran the risk of him not taking it again as he has done this with several medications in the past. Just because 80 mg is too much I don't want to not give this medication a chance. He needs the antipsychotic right now.
I called PACT and left another message letting them know I cut the dose. Hopefully today I will see a reduction in what I was seeing yesterday. Probably not though as he appeared to be hallucinating a little while ago and is now off to the liquor store again...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
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