Rural living, Auntie, Demons

I didn't realize it has been so long since I last blogged. March 2023, so 3 years.

My son is still stable and doing pretty well, all things considered. Still smoking pot and drinking on the weekends but med-compliant, managing his own finances and day to day care like laundry, showering etc. I help out with scheduling his blood-work and keeping on top of his prescriptions. 

He moved in with his sister about 3 years ago and about 2 years ago, hubby and I moved there too. So now we all live in the same house.

He did have an issue just over 2 years ago with low blood platelets that is still being monitored. I guess he had an infection and a cold and his body went a bit haywire fighting it all. Couple of blood transfusions and an extended hospital stay... Steroids... He's holding steady, low still but not threatening.

We live pretty rural now (well water and septic) so not much opportunity for him to socialize or be involved in any social programs. The highlight of the week is going grocery shopping on the weekend which by-the-way is a 40 minute drive to get to a sensible grocery store. He gets his snacks and of course his bottle or two. Not ideal but I don't begrudge him this. He's 32 now and he's still here and relatively happy. He has his moments where some negativity comes through after drinking 2 nights in a row... How normal is that? Pretty normal actually for anyone that drinks. Geesh... I just called my mentally ill son, normal! If you have read any of my blog, yes, I can be a bit sarcastic/facetious as I point out things that neurotypicals prefer not to have pointed out. ;)

I don't think I mentioned it in my last post... I do sourdough bread now. It's a love/hate relationship. Love the bread, not so fond of making it lol. But hubby loves it too so it's a relationship that will keep. I make my own beef jerky now too. My son and I are avid fans of it so it's a staple on the weekly grocery list to get a beef roast... Last year I started my own veggie garden for the first time. I've maintained others but never started my own from seeds. Started out really well but the weather last year was pretty bi-polar (gasp, I used this as a verb!)... One week torrential rain and the next week heat wave. My poor garden wasn't happy so I lost a lot but still I did get a good crop of tomatoes and some beans and cucumbers. Haven't made up my mind yet if I'm going to try again this year. Most likely I will, just not so much of it and better prep-work to the soil.

As I have moved, I no longer manage the RV park. Ironically my life seems a lot more hectic and busy but than again living with my 2 adult kids and my 2 grandkids would account for that. I keep myself busy with the grandkids, baking, moderating a sourdough group, knitting and crocheting. Church most Sundays. I play Pokemon Go now and even crochet mods. I go through phases with that and currently in a 'I'm sick of crocheting' phase. But this past winter I crocheted some cute hand-warmers that me and my granddaughter really like. 

Hubby is doing good. He survived the down-time of no work this winter. Barely... :) That man needs to be active to be happy. Almost 70... We are getting old. He's being monitored for swollen prostrate and I guess a spot on his kidneys but overall he's in good shape. Still adores me... Blessed I am to have him.

I have 3 cats. 2 I brought with me when I moved and 1 that was a barn rescue... He was a little spitfire in the beginning. Couldn't get near him. Now, he's the most affectionate cat I have ever met. Lost the top of one of his ears and the tip of his tail to frostbite. Gives him character!

Recently we went to visit some family. Stayed with my older sister and managed to fit in some of my family and some of hubby's family. Hubby hates to fly so it was a 34-35 hour drive each way for 3 days of visiting. My mom was adopted and on this trip I got to meet her bio half-sister for the first time. She's pretty cool, dare I say cute! If you are younger than the word cute may not seem appropriate, even distasteful but as you get older... Hubby thinks I'm cute and for sure it's a term of endearment and a compliment. 

My younger sister, I had not seen in about 14 or so years. Not even sure what to write here... Mental illness and psychosis comes in so many different forms. I knew that there was... I thought that I was prepared... I have seen a lot with my son through breaks and hallucinations. I wasn't prepared for this face. My son had some grandiose delusions with respect to being a god, a vampire... Dealing with demons... Demonic possession was a new face for me. It was a short visit if you can even call it that. Short exchange of words. It wasn't my sister so prolonged exposure on my part wasn't going to accomplish anything.

I don't disbelieve in possession. I don't disbelieve that there is another plain of existence that most don't see. I also believe in mental illness. I can say that perhaps for the first time in my life, I came face to face with the possibility of... She appears to believe that she is possessed and I can't say that she isn't. It may seem odd to read that but I'm also a Believer in God and I believe the Bible so it's not a stretch to believe in demons. Regardless of which... Demonic possession/psychosis sucks! 

It's almost noon here... I'm still in my PJ's and have jerky to put in the dehydrator. 

To those who still follow this... My apologies for taking so long to blog and update that my son is still my son.

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2026. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

The Proof is in the Pudding (bottle)

A phrase I tend to use a lot is the proof is in the pudding... Basically it means talk is cheap. Make the pudding (do the action) then we will see if one is really capable of doing what they say they can do. Once the pudding is made... there is your proof.

This morning I found 3 empty bottles of alcohol in my son's backpack. Here in Canada we call them mickeys. 375ml bottles. 2 fireball whiskey and 1 captain morgan's rum.

I know that at least one of them if not two of  them are new. Yesterday he went for a ride... To the liquor store obviously and drank at least a mickey last night.

I've noticed for a couple of weeks now that my son seems a bit off. Nothing major but it's there and I couldn't put my finger on what it was causing it. In the back of my head I was beginning to question if his medications were starting to stop working. Now I know why... He's binge drinking again.

My son has an addictive personality. He can't just have one... Once triggered he seems to go through phases of needing to drink. I'm usually prepared for it after his birthday or special occasions like Christmas.

I'm starting to have trouble sleeping again. Waking up every 1-2 hours. This morning it kinda clicked in my head. Before when my son lived with me this would be my sleep pattern. As any parent out there with mentally ill children know... There is no letting our guards down completely.

I'm grateful that he is still taking his medications. That's why I don't sleep... It's constantly waking up to check on him and try to 'nicely' remind/tell him to take his medications without of course triggering his defiance. Without his medications and with the drinking he is doing he can be a step away from a relapse. Sadly that is all that it takes.

He has been spending long periods again just lying there... On his back, arms crossed over his chest. I really don't like seeing it. It's how someone looks in a coffin. He's what I call in his own head space. Not a good spot for him to be in for any length of time.

Usually he is waking us up all night, in and out smoking. How much he smokes tends to go down as well when he isn't doing well. He hasn't been smoking as much at night as he usually does. He's not even smoking weed like he normally does now that I think about it.... When he's not using his main crutch (marijuana), that's a red flag.

Of all the things that my son goes through with his diagnoses, I would have to say that addiction is what I dislike the most. I think I hate alcohol. I only have to look around me and remember my own past to remind myself why I don't want it in my life, ever again.

I'm out of practice I guess... Not that there is anything I can do to change what is happening except pray that God take away his need for alcohol. Geesh... Everyone's need for it!

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2020. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

6 months clean. Now what? Praying.

On the 17th I was clean from drugs for 6 months. As I'm sure I've said before, being clean is actually the easiest thing in my life right now. Living in a drug free environment I'm sure plays a big part.

Would that one day I could say that my son had some clean time under his belt. The last time he was here he again mentioned living with us. I don't really know exactly what the plan is or who is doing what however it seems that his dad is helping him to save to get his own place as the group home he is living in is closing. While my son is looking forward to this change, I am not. I have no idea who is going to be responsible for his medications, him taking them, or who is going to have control over his money. The condition for him living with me is that I have power of attorney. Trust me the last thing I want is to have control over his money and medications however given that we know what is capable of happening when he is sick, we can't have that around my grandson.

My son smokes a lot of marijuana. The last time he was here he actually didn't smoke a lot on the first night. What a difference. It was like having my son here. I know there are a lot of benefits to marijuana however not if one has psychosis. I certainly wish the world or those who advocate for it understood the damage it does to someone predisposed to psychosis. It's not a one size fits all. My son doesn't smoke too much then get all cuddly and get the munchies. He loses contact with this world in a bad way.

I've thought about calling his dad and asking what the plan is.... Given past experience I'm not sure it would do much good. I would probably get accused of meddling and/or get a lot of: I don't knows....

A couple of weeks ago my hubby left to go back to where we moved from last year, for work. He didn't leave in a good way and I wasn't a part of the decision to go. In fact I've had to make it known that we didn't break up. Not that it didn't feel like it at the time.

I've been reading a book called Sacred Marriage by Gary Thomas. His website: Gary Thomas
I can honestly say that I love this book. The hard part is that the more it shows me how a marriage could be, the more it shows me how lacking my own marriage is. Don't get me wrong, my marriage is something I can't even imagine myself walking away from. I have a lot of work ahead of me. Not just as a wife but as a newly born Christian woman.

I think I have finally gotten rid of most of the fleas on my cats. At least I haven't found any on them in the last week. Knock on wood. Apparently vinegar kills and repels them so I've started mopping my floors with it. It's also not harmful to the cats like most store bought household cleaners so bonus.

Here where I'm living, it seems like spring has finally sprung! Can't say the same for where hubby is. Karma ;) I know... not really nice of me but what can I say... I've been trying to get into the habit of getting myself and my grandson outside for a bit during the day now to enjoy the nice weather.

I also need to start getting healthy again and lose a little weight. All my 'big' cloths are now my tight cloths. Not that I'm complaining as it's part of the recovery process. Having gone so long without getting the right nutrition or even enough to eat due to using, I have to give my body a break and rebuild some stamina. Still it's time....

I had other things on my mind to B about... However I will leave them in my head where they belong. Actually I will give them God, where they belong. Just another step in the process of learning to let go. Now I'm learning to: Let go and let God.

I'm also working on something that I thought I had a good handle on and that's unconditional love. When it comes to my children and most of the world, it's easy. When it comes to my hubby, not so much. It's harder when you have expectations of someone that you consider to by half of yourself and therefore half as capable.

Bye for now....

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2019. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Blueberry to Kiwi and a heartbeat.

Say hello to the newest member of our family. Fur-baby Kiwi.

At first my daughter named her Blueberry as her eyes were blue however I'm guessing just as human babies are usually born with blue eyes that change color, so too do kittens.

It has taken some time for Gucci to adjust as she can be a bit of a tyrant where Gucci is concerned. Gucci seems to be her favorite toy and Gucci's tail her favorite thing to stalk. On a good note, Gucci is getting more exercise! Now Gucci tolerates her napping beside her.

Yes I know, Gucci is a bit overweight. About 2 pounds according to the last vet visit. I have cut down on her wet food so hopefully she will lose a bit.

Kiwi has taken a liking to sleeping on my pillow when she sleeps with me. Gucci always wakes me up in the morning, usually between 5:30-6:30, by licking, head-butting or little nips on my ear if I ignore her too long. This morning I woke up to Kiwi on my pillow licking one side of my face and Gucci on the other side of pillow licking the other side of my face. Hard to wake up in a bad mood when you are being greeted with that!

2 weeks ago my daughter had her first appointment with the OBGYN. Neither one of us was expecting to hear what we did. The baby's heartbeat. We both cried... She has her first ultrasound appointment tomorrow.

My daughter is currently upstairs, in bed. She should be on her way to school. My daughter is being my daughter... Doing things the hard way. For the past 2 weeks she has only attended school 2 days each week.

Hubby called this morning to ask if she was up and should he text her. No. She only lies anyways and says she is up when she isn't. According to her she isn't lying because she sticks her foot of the bed so therefor her foot is up. Cute the first couple of times... Now, not so much. I have no intentions of ruining my mornings by calling and calling her until she gets snippy about it. It's her schooling and her tuition that she will have to pay back.

It's somewhat hard to not get pissy about her old group of friends that insist on contributing to her being up late, talking on the phone, however I lay the blame where it belongs, at her feet. I may not have to worry about that one too much shortly though. I have been telling her that I'm not going to pay her phone bill if it keeps up. I guess soon they are going to cut off outgoing calls. Good.

The other thing is Netflix. She watches it til all hours of the night/morning. I have been warning her that she won't be able to watch it on my internet... Last night I disconnected it. She can watch it on her phone however she will just be running up a bigger bill.

I didn't see her yesterday. She stayed in her room all day and didn't come out until I went to bed, even though I called her for dinner. *sigh*

Diagnosed, non-diagnosed...! ;)

Friday my son was taken to the long-term treatment facility. His Nana called crying that he was gone... I told her half way through the conversation that it's a good thing I'm a calm person and asked: Gone where? before I reacted. He has called me a couple of times to ask for money. Last night I asked him if he would sign a consent for me to talk to his doctor there. No, he wants to keep everything between him and his doctor. He asked if I would send out the laptop. I told him that I'm not comfortable with it being where I can't keep an eye on it. He could easily sell a $3000 laptop for $100 if he wanted marijuana bad enough. Then he suggested that perhaps he should come back here. Only if power of attorney is signed which is apparently against his religion. He agreed it is. :)

As for how he is. It's hard to tell. From what his Nana tells me, not good at all. He denies having any hallucination symptoms, voices etc when talking to me. He sounds fairly in the present however it's only for short periods that I'm talking to him.

Need to get ready for work...

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

A BS Interpreter needed. #9

I think I need one. A Bullshit Interpreter. Someone who can translate for me some of the BS...

What can I say. Sometimes dealing with 'professionals' can really get my dander up (piss me off).

Sunday Michael was involuntarily admitted to hospital. This would be his 9th involuntary admittance. It's the best place for him right now. I have seen him a couple of times. He is doing ok actually however he is actively hallucinating if you know the signs. Yesterday I got him into some clean cloths and had him put on some deodorant. I looked at the paper by his bed and he is on his second form until the 25th. He doesn't understand the reason: Serious bodily harm to oneself. As best I could I explained that when he isn't thinking clearly he is physically at risk of hurting himself. He said the problem was the sun, that is was damaging him...

Turns out I was right about the marijuana. He did admit to having some plus I found the pipe in his backpack. On Tuesday when we saw him, I asked him if I could have his backpack for a minute. He asked why and I said I wanted to snoop through it. Really I wanted it to clean out all the garbage but I thought it was cute when he handed it over. Whether he realizes it or not I take that as I sign that he does when it comes right down to it, trust me. It was over half full of garbage, a days worth of missed medications and of course his pipe. All went in the garbage.

I let him know that depending on what happens that I want to get power of attorney. He said that he would rather I didn't do that. I would rather not do it either however he keeps doing things that puts himself in these situations.

One nurse commented that she was shocked at the change in my son when he was around me. I guess he was pretty out of it before I visited. Yes my son can pull it together when he needs to. I think he wanted me to see how well he was doing so that I could get him smoking privileges. He did get them the next day.

When my son was first admitted and his nurse called me, he spoke of a family meeting. I hadn't heard anything about one since that so I brought it up to his nurse last night. So far his nurses have been really nice. She told me to call in the morning so that I could get the doctor as that's when they do their rounds. If anyone has had to call a hospital for a loved one I'm sure you have heard some of these. If you call in the morning it's: We are in the middle of shift change, call back in an hour. You call back in an hour and it's various responses that pretty much end with: Call back tonight. You call at night and it's: Call in the morning when the doctor is here.

So this morning I thought ok let's wait until after 8 and shift change... I call and ask if the doctor has seen my son yet that I would like to talk to him. Her reply was: It's only 8:30. Yes I was told to call in the morning, what time does the doctor normally get there to do his rounds? Before 10 and that I should call back in a couple of hours.

Hello BS Interpreter. I really need your help here...

I did request that a note be left for his doctor to call me. She said she would 'put it on the board'.

I could also use a BS Interpreter for when I get quoted privacy laws. Have you ever asked anyone who is quoting them if they have ever read them? I have and the answer was no. Guess what? I have read them. One person at the shelter quoted them at me, with my son right beside me, telling me that she couldn't tell me if he was there or not. This topic deserves it's own post and eventually I will get around to writing a good one that I'm probably going to submit to the local newspapers.

I will say this though: To anyone who is going to quote me privacy laws. Please read them first because I have and all you appear to be doing to me is protecting your own right to do less work or even use a little common sense.

I hope everyone has an awesome weekend! I'm off to get my day started.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

I'm seemingly not living very well. The 4 C's and Acceptance

'I'm seemingly not living very well.' Is what my son said to me yesterday when I pointed out for the umpteenth time that the patio table was not an ashtray. No he is not functioning very well at the moment.

The fact that he recognizes that he isn't living/functioning very well, I think is a good thing.

I don't know if it's that I'm perhaps a bit fed up with schizophrenia or if it's that I have been going through a phase of acceptance. Both I guess. On one hand I don't seem to have the motivation to be blogging, tweeting etc about mental illness. I think I just needed a bit of a break from it on social media and honestly I'm staring it in the face 24/7 at the moment and that's enough for me right now.

To a certain extend I have always accepted schizophrenia however I'm not sure I accepted how little control I have over it. On Monday and Tuesday evening my hubby and I attended a group through ADAPT for caregiver's of concurrent disorders (addiction and mental illness). Yes I pointed out that according to the DSM that addiction is now considered to be a mental illness ;).

For the first time I am seeking help in dealing with or coping with what our family is going through. It feels good. The 3 C's came up with a twist and I really liked it. The 4 C's: I didn't Cause it, I can't Control it, I can't Cure it but I can learn to Cope. I have always accepted that I didn't cause it and even that I don't have very much control over it however I have still been trying to control it to the best of ability. That ever present hope that if I do enough then my son will go into remission and start to build a life for himself.

I still have that hope however I can't build his life for him. I can't cure his schizophrenia. I can't...

It's been just over 2 weeks since I took him off the Latuda and started the Olanzapine. It's felt like a long 2 weeks. I have to keep reminding myself that it's only been 2 weeks. If someone broke a limb no one would expect recovery in just 2 weeks. You are looking at months at least. Even with the common cold it can take up to 3 months for the cough to completely go away. Yet here I am thinking: It's been 2 weeks, why hasn't the medication fixed this yet? *face palm* I really do know better. It's just hard to watch and wait.

Something that has been on my mind lately is something I read in an article about asylums or better yet how we need long term facilities. We do. I remember reading that people going through crisis had a place to go and just be or adjust, taking all the time they needed. I wonder if my son needs time to just be and adjust. Time to learn and recognize his own schizophrenia.

Over the past couple of weeks I have been noticing things. When I ask my son if he is hallucinating I don't get the auto-response of no. Now it's I think so. He is learning to recognize that what he sees, I don't. One day I noticed that he was very clammy/sweaty and asked if he was having an episode and he answered with I think so.

So I'm thinking: If I jump in and up his medications is this the right thing? On the surface the answer may seem like a yes. I'm not so sure. Maybe he needs to be in a place where he is stable enough to be aware of what schizophrenia is doing to him so that he can learn or see what it is also keeping him from doing. Living!

He seemed to be slowly improving until Wednesday when he went to the library with part of a group through PACT. He came back a bit more symptomatic and that night didn't sleep well. Yesterday he was off again and I even caught him masturbating in the living room. Can't say I was impressed with that ;). I let him know that I didn't like it and asked him to not do that in the living room. He agreed...

I think the stress of going to the library was too much for him right now. For a bit I actually wondered if he smoked marijuana with someone however I didn't see the other signs and he wasn't relaxed at all so I'm ruling that out. When I told him that he needed to get ready to go he said he didn't want to.  I reminded him that he had told his case worker and nurse that he would go. I got him clean cloths and got his backpack ready for him. I didn't tell him that he had to go or that he could stay home. I let him know that if he found it too much that he could come home and that I think he should at least try that getting out may be good for him.

What struck me during the above conversation was like a flashback to when they are small and don't want to go to school. That's another twist that schizophrenia has thrown at us. He has been childlike for lack of a better word. Even my hubby has commented that sometimes when he answers me it's like he is a kid. Him not wanting to go to group was like a child not wanting to go to school. He went because even though I didn't tell him he had to, I didn't tell him couldn't and like a child he was in a way doing what he was told.

My main goal this last couple of weeks has just been to keep him on a good schedule for bed and spending time with him. I have been massaging and scratching his back whenever he asks which is 3-7 times a day. Sometimes at 6 in the morning... oi. It would be nice if it was after I had my coffee but oh well. When he asks, off I go. Every night I spend time with him, just cuddling/holding him. I was a little uncomfortable with this in the beginning however I have lightened up about it. When I first started massaging his back I could visibly see and feel him relax as I was doing it. I think it's been a good experience for both of us. It seems to be bringing us closer together. Hubby has been vacated to the smaller sofa while my son and I occupy the big one, while we watch our TV shows after dinner. Sometimes he puts his head in my lap. Yesterday I even got him to take 2 omega-3! The day before 2 multi-vitamins. I smiled when he walked away because I don't think he even realized what had happened. He stopped beside me while I was getting hubby and I our supplements, I handed him the multi-vitamins and he took them. :) Same with the omega-3. I offered him 2 and first he said no so I asked him to take just one and he decided to take both of them!

It's been a lot of going behind him and putting stuff away. Making sure things are turned off or reminding him that he has things turned on, like the deep fryer ;). I have been pointing all these things out to him however I have been doing it with a very loving tone. No judgments or being mad. Just letting him know that he isn't doing them. I think that is why he was able to say or see that he isn't living (functioning) very well. He knows that he hasn't been able to do these minor things.

I haven't been taking him out much. Realistically I think that even grocery shopping would take more energy then he has right now. I haven't told him that he can't come with us however I have stated that being clean needs to happen for him to come. Since he doesn't have it in him to really do this then he decides not to come. No worries he still gets his fair share of treats and usually McDonald's that we pick up for him on the way back.

With the hygiene thing... Again I have been pointing it out and again with a loving tone. Last weekend we got him new track-pants as he lost some weight and although the same size, they fit him better due to the style. That night I let him know he needed to get clean and put on clean cloths. He asked if he could not shower. I let him know that he didn't have to but I was going to clean him. He replied: You're going to clean me, ok let's do this... I washed his pits, neck, face and hands and had him put on all clean cloths. He even asked me to get him clean underwear. ;)

Slowly he seems to be becoming more aware of things like his own body odor. Baby steps right?

I'm in the middle of making flat bread as hubbies family is having a get together tomorrow. Not sure what to do about my son. Yesterday he was asking about the date and checking his bank account. Addiction... While he wants to come tomorrow, as soon as he realizes or remembers the date again... Take him with us when he will have triggered symptoms again or leave him home alone with no one making sure he isn't burning the house down ;)

I almost forgot. I finally booked camping! Next Saturday so that should hopefully give him something to look forward to.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Bye bye Latuda

I was really hoping or had high hopes for the Latuda as I have heard of good results with it. However the small positives that I have seen are in no way outweighing the negatives. Honestly I'm not sure that the small positives I have seen are even as a result of the Latuda. The only positives I have been seeing is my son sometimes picking up after himself and making himself things to eat which most likely can be attributed to years of me trying to install this habit in him.

My hubby took my son out with him to clean the car on Saturday and they came back with these for Mother's Day:

My son came downstairs where I was doing laundry and gave them to me saying: I thought these would do you. Meaning he picked them out and thought I would like them. He was right!

As I mentioned on Friday he went to the liquor store. I don't think he drank everything on Friday although I can't say when he finished it. One day earlier in the week he threw out the empty bottles. This time he  managed to hide them so that they weren't obvious.

After I cut the Latuda from 80 mg to 40 mg it was still several days before he actually took it and kept it down. He has been vomiting off and on. I wasn't sure if it was the Latuda causing this or not but I'm pretty sure that it is. Although part of it could also be how much he is smoking.

On Monday his new nurse visited. He seems nice... Sometimes my husband will comment that we need someone with more experience. I tend to agree ;) I don't know if it's that I'm so involved in researching medications or watching for signs, however I find that most of his treatment team just don't seem to get it. Maybe I think that I know more then I do. I know what I'm seeing and I know what my gut is telling me and I'm listening.

First I got the run down on cutting pills in half... Hmm... Ok way beyond that. I did my research first. I think I may have gotten chastised for cutting the dose as "How is the doctor going to know if the medication is working as prescribed?" The dose as prescribed was landing my son in an hallucinating state that could have had him suicidal if I hadn't intervened. So thanks for the input but my son is my priority not the doctor.

My son was looking at his nurse, not listening to him, and smiling to the point of almost laughing. His nurse was glad to see him happy... I found that a bit ludicrous, no pun intended. He's not 'happy', he's experiencing symptoms. My son continues to deny voices and hallucinations if asked outright if he is experiencing them. It's obvious that he is. Something I have difficulty pinpointing is the difference between intrusive thoughts and voices. Personally I think that are pretty close to each other with voices perhaps being one step above intrusive thoughts. Intrusive thoughts implies that they are intruding or not wanted however if one is welcoming them then one wouldn't consider them intrusive. Still they are not, for lack of a better description, our own thoughts. So I asked about the difference. His nurse explained to me the difference between thoughts and voices. I guess he missed the word 'intrusive'.

Monday and Tuesday he managed to keep down the 40 mg doses of Latuda. Yesterday (Wednesday) he vomited twice. Once all over the bathroom. That was fun to clean up ;). Since Friday he has started with hand movements, like he is flicking something. It has been progressively getting worse. Now he is doing it almost all the time about once every minute or less. If I hold the hand that is doing it, he starts with the other hand. He says that it isn't bothering him however it IS bothering me because I know it shouldn't be happening. The last 2-3 days he has become very needy in wanting me to cuddle with him. Wanting to sit almost on me on the sofa. Wanting me to file his nails and rub and scratch his back. I'm doing my best to accommodate this change and spend more time with him. Last night he wanted to sleep in my bed. Sadly this is something I'm not comfortable with however I did hold him for awhile in his bed.

Yesterday morning I talked to his case worker. She has been with us since, I think, July of last year. Possibly before that. One thing that I truly appreciate about her is that she listens to me. She doesn't cut me off mid-sentence when I'm telling her about what I'm seeing (his new nurse does as have others). In fact she has commented what a good thing it is that my son has me. She doesn't question the decisions that I make when it comes to medications. Like I said, she listens. So she knows that I make the decisions that I do with some knowledge of what I'm doing. At least that is how I'm reading it ;). I feel reasonably confident that what I tell her gets relayed to the psychiatrist with the appropriate emphasis on the concerning things that I see. With all the others... not so much. Even if she doesn't agree with what I'm doing she doesn't chastise me for it, instead brings it to the attention of his psychiatrist.

Yesterday his case worker and I agreed that my son is regressing. That what I'm seeing is not right for my son. I could tell that his hallucinating is getting worse again. He is lost. Goes the cupboard and doesn't seem to know what he is there for. I could tell by how he is walking that he is mentally lost. Some of his behavior has been almost child-like. After he vomited yesterday evening I told my hubby that Dr. Barb is saying no more Latuda. ;) I've tried to give it a chance however enough is enough.

This morning I called PACT and left a voice message as I know they are having their team meeting today with the psychiatrist and I wanted them to be aware of what I was doing. Last night I gave my son 10 mg of Olanzapine. He seems quite willing to go back on it. Yup, conundrum that he is! He was put on the Latuda because he decided to come off the Olanzapine. *sigh* I gave it to him around 8:30 last night. Put him to bed shortly after, spending time with him cuddling. Found out that there was a war going on his head... When I checked on him around 10, he was sleeping and snoring! As if that was a sound I ever thought I would be happy to hear and I was! I don't think he has had a sound sleep for over two weeks now.

I haven't been in the backyard for the past couple of days as it's been a bit chilly. I went out there this morning as when I looked out there I saw a pile of cigarette butts on the patio table. There is an ashtray on the other side of the table. I guess it was too far away and my son has been butting out his cigarettes on the table. There was butts everywhere. Some of them I could tell hadn't even been put out but went out on there own. It's a good thing there is no smoking in most of the house or there is a distinct possibility we could have been dealing with a house fire. I cleaned them up.

His nurse called me back after receiving my message this morning. I sat there silently fuming as he chastised me for making medication decisions without the psychiatrists ok. Finally I got blunt with him and told him that I'm going to do what I think is best for my son. I know what he has been prescribed and why. Keeping him on medications that are not working and making him worse, regardless of the doctor's orders is not going to happen. He kept cutting me off when I tried to explain what I have been seeing. Basically we ended the call with me saying that my son's psychiatrist should have enough understanding of me by now to know that I'm going to do what I think is best. If history is any indication he has yet to go against any of my decisions and I seriously doubt that he will this time either. The goal is to keep my son out of the hospital not put him there.

I think I need to do some research on medications. I think we need one that only affects dopamine and not serotonin as well, as most of them do. For me the only question right now is what dose of Olanzapine. Previously he was taking 20 mg a day which is supposed to be maximum dose and I would rather not go back to that if we don't have to.

Today he seems a bit better. The hand thing is still going strong. I'm guessing that will take time to go away however if I don't see an improvement in it within the next day or so I will be addressing it further.

We had our follow up appointment with ADAPT on Monday. It's at the mall which is like a 10 minute walk. My son will not be continuing with them. Voluntary and all that crap and he doesn't think that drinking 400 ml of 40% alcohol is a problem. So there you have it. I'm going to continue with them. I need the support and help learning to better cope with being the parent of an addict with mental illness. I have already booked an appointment for next month and registered with some sessions on the 25th and 26th. They also offer support and funding for quitting smoking so I'm going to get hubby and I registered so that hopefully they can provide us with free patches!

I did start the process of registering with a company for work from home opportunities. Been meaning to finish that for the past couple of days.

I wrote a piece for a book that I'm going to be participating in. It's currently pinned to the top of my Facebook page if any of my readers who are parents or caregivers are interested in telling their story and helping to support the non-profit that is putting it together. You can find my Facebook link on the side of this blog or by clicking above.

May 17-23 is Schizophrenia Awareness Week. I had grand intentions of creating a whole lot of literature and informational pieces to highlight on my Facebook page and the event that I created. I still have today and tomorrow...

PS: He has been continuing to take his Invega!

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Latuda Roller Coaster

It's been a bit of an interesting week. When my son's case worker stopped by on Monday to drop off his medications for the week and check in, I told her that what I have been seeing is different. I didn't know how to explain different... Just that I wasn't sure that I liked what I was seeing. The Latuda seemed to be helping however in some ways it wasn't.

He went from Friday to Tuesday barely eating. Even though he was going to bed he wasn't sleeping good and he wasn't napping during the day either.

Monday evening he randomly hugged me... Good sign right?

Tuesday he asked for the internet back. I asked him if he remembered the things that he had said to me and he replied that he remembered all of it. I asked if he still felt justified in saying what he did. Yes err no... He was upset. Ok I can understand that. I let him know that threatening me was illegal and reminded him that he had threatened to hurt me. He told me that he would never hurt me. Didn't I know that? That's the crutch isn't it? My son, Michael, would never hurt me. Psychosis and alcohol on the other hand is a different story. I gave him back the internet, not that he has used it, and told him that we really need to work on his anger issues.

We talked about his tobacco use. He told me that I had agreed that if he bought one tube of tobacco that I would buy him two. Ok we need to get to the bottom of where these misconceptions are coming from. When did I say that? I didn't but another time I told him that if he bought one carton of cigarettes then I would buy him two cartons. Yes I did do this once because he had spent his money on furniture for his room. Grrr... It does get irritating that whenever I do something nice that it gets turned into something like this. So I made it clear that I would get him some tobacco like I said I would but not two tubes and next month I don't plan on helping with this again.

I talked to his worker at disability and let her know that they are still deducting $40 from his payments due to the supposed over payment of him collecting disability from two provinces at once. This should be fixed for next payment so that they are only deducting $10. The drug cards finally got faxed over to the pharmacy that is supplying his medications and starting next month they should be mailing them to me.

I also tried to address the alcohol... It's not helping him. It's depressing him and triggering anger. He is not a happy drunk when he drinks now. It's seriously impairing him and his functionality. Off he went to the liquor store anyways...

I know he thinks I'm being hard on him however I can't continue to support his drinking and we are not spending more money on his tobacco then we do our own. We shouldn't have to. Hubby has been talking about quitting again. Maybe we should. It's harder to tell my son no when we are smoking.

Wednesday morning he started drinking at 9 AM. I didn't say anything... thought I guess I should be happy that he didn't drink it all the day before. Sad isn't it when that is what I'm left with... Back to the different that I noted at the beginning of this post. I haven't had much experience in seeing my son actively hallucinate. Things don't usually get that far here. I asked my son if he was hallucinating and he said no. Now my bad here because really I'm asking someone who is seeing what they see as being just as real as everything I see and expecting him to know the different ;) I notice by Wednesday afternoon that he was acting odd even for him. It was like he was pushing stuff away from him and it almost looked like bouncing a ball or something... Things I couldn't see.

Yesterday was a bit of a roller coaster for him. Early afternoon he was making noises that I couldn't at first tell if it was crying or laughing. However the look on his face was one of pain. At the same time he was having issues with his privates. I'm guessing tactile hallucinations. Several times I asked him if he was ok and if he was crying. He said no however at one point he told me to leave him alone and stop looking at him while he was crying. He didn't want me touching him and he couldn't tell me why he was crying just that he was. I asked if it was ok if I called PACT and talked to his nurse about the Latuda that his dose is too high. He said yes.

I called and of course his nurse wasn't in, his case worker wasn't available and the other nurses were all in a meeting but I could leave a message. I did. They haven't called me back yet.

The off and on crying and issues with his privates continued for about an hour. I was on the verge of putting us in a cab and going to emergency. I asked him if he was having thoughts of hurting himself and he said that he wasn't. I asked that if he did that he let me know right away. Finally it stopped and he said that he was feeling better. I was coloring and he joined me. Then it started again however not as bad as before and was shorter. Then he was very happy. I think perhaps a bit manic based on the continual smile. I could see that he was hallucinating again. That had me concerned for a bit as he was doing air punches or interacting with his hallucinations, I'm not sure, but too close to me so I asked him not to do that around me. Thankfully this didn't last long.

Since PACT didn't call me back, I looked it up and his Latuda pills can be cut in half. Latuda is supposed to be taken with food. Not snacks but an actual meal. Given that he hasn't been eating that has been a tough one and he wanted to take it at night with his Invega. I think between the too high dose and not taking it with food that it has been hitting him too hard. Latuda can cause mania as far as I know. I know it's not supposed to be sedating which means it can be activating. Since he has been taking it before bed I think it's been interfering with his sleep as Wednesday night he did take two Melatonin and still didn't sleep good.

So I have cut his dose from 80 mg to 40 mg and gave it to him with dinner last night. The up side to the mini manic phase seems to be that he ate dinner fairly good. He didn't eat all of it but he did eat his chicken and salad so an ok base for the Latuda.

He still hasn't showered however he has been in the bath the last two nights. While it may sound like a good thing... When he is experiencing symptoms or tactile hallucinations he seems to like the sensation of being in the tube so it's not really a good sign when he wants to have a bath every day. Last night I went into the bathroom and took out his dirty socks, underwear and shirt and put out clean ones so that he had no choice but to but on clean ones.

Around 9:30 last night I went into his room and had him take his Invega and two Melatonin. He slept although not as deep as I would like. He got up today at 8:30 AM. Not bad actually as he has been getting up with me and hubby around 5 for the past week. I had debating not giving him any Latuda last night however if I did that I ran the risk of him not taking it again as he has done this with several medications in the past. Just because 80 mg is too much I don't want to not give this medication a chance. He needs the antipsychotic right now.

I called PACT and left another message letting them know I cut the dose. Hopefully today I will see a reduction in what I was seeing yesterday. Probably not though as he appeared to be hallucinating a little while ago and is now off to the liquor store again...

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Jinxed! A new nurse.

Logically I know that my last blog post highlighting the good didn't actually jinx things. Still it feels like schizophrenia is somewhere saying: na-na, na-na, boo-boo... I'm better then you. I got your son... (again)

By Tuesday morning the negative symptoms were obvious. His case worker dropped by with something for my son to sign so she could help straighten out the disability thing. She commented on how 'flat' he was. One word answers. No expression.

I guess it took a week for the Olanzapine to come completely out of his system.

For a couple of days I was managing to get some vitamins in him although it was hit or miss on which ones. One day he took his multi-vitamins. The next day the B50. Another day the omega-3 because he thinks the multi-vitamin is giving him energy. Now he is not taking any of them.

He has been eating dinners as I have been trying to make things that I know he likes and is healthy to keep him eating. He is not eating outside of that.

His sleeping is all over the place, when he does sleep. He won't take his Melatonin for some reason. This kind-of sucks because the Melatonin we take has 5-HTP and L-Theanin which can help him.

Friday I actually left him home alone for the most of the day. After being up all night and the previous two days he had finally gone to sleep. It was a busy day for hubby and I. Hubby had two doctors appointments and each of them were over an hour. We had car parts to get. Also Friday was the last day of my hubby's interlock condition on his license! If you don't know what this is then it's a device that is put in your car to make sure there is no drinking and driving. He is finally free of it! So we had to go to the license place and we had to go have the device removed from the car which was another hour long appointment. I must say that although a long and tiring day, it was good to be out of the house doing 'normal' stuff.  My son's case worker stopped by to check on him since I wasn't home.

Hubby walked away from the doctor's appointments with a ton of medications ;) He has been coughing up some green/black stuff and green is usually a sign of infection so he got antibiotics for that. He also got something for his back. While I'm all for chiropractor first... He was still not getting much relief and these seem to be helping his back to relax. Which should help his next adjustment go even better.

My son was up when we returned, playing online. This was the last time he played online that I'm aware of. I was worried that he might not be ok if he woke up and I wasn't here but he seemed ok. Said he didn't call because his phone was dead but that he was charging it. He did answer the door to his case worker.

Saturday we took him with us to help out my hubby's son with an errand.

Yesterday he decided not to go grocery shopping with us. This doesn't happen very often. He really likes to go but I'm guessing even doing that is becoming too much for him at this point. Yesterday was also his Dad's birthday. I brought it up once but I didn't bring it up again because I know he can't process it right now.

Tuesday his case worker told me that he has a new nurse coming on board. His case worker has been seeing him almost every week however I do believe this is supposed to be a nurse making the weekly house calls. His from awhile ago is on maternity leave. So his new nurse dropped by today. He seemed nice and my son seemed to be ok with him.

I actually took myself to the basement for a cigarette while he was here to give them a chance to talk as I know I have a tendency to interrupt... I think I did pretty good and only interrupted a couple of times ;) It was easy to tell that participating in the conversation was a struggle for my son. I'm surprised he managed to ignore the voices as well as he did. His nurse commented that his answers where pretty short and one worded... Yes that's all he is capable of right now. Actually this was the most he has spoken in days. It can take several times asking just to get an answer on what type of tea he wants after dinner. Not that he drinks it but I keep hoping that he will and take the supplements I keep putting out.

I walked out with the nurse and filled in some of the blanks and corrected some things. Like I told him, I don't know if it's my son being delusional or if he just knows what to say. He doesn't give accurate information on questions about sleeping, eating or activities. He told his nurse that he went to bed at 11 last night. I think this is because he has been told that it's a good bed time. He went to bed at 2 when I got up and had him go. He was wide awake at 5 when I got up. He didn't sleep. Same with eating. He says he has been eating good. Dinner only for most of the week now. He says he has been playing his games. He hasn't since Friday. He says that he has no voices. I told his nurse we call them entities. They started becoming obvious last Monday.

His smoking is up and down. His fingers are brown, I noticed last night. He may go awhile without but then will smoke sometimes three in a row. That seems to be lessening today. So while smoking a lot is not a good sign, smoking less is an even worse sign. When he is smoking a lot he is stressed. When he isn't smoking much than he has gone further into his head. He has actually been smoking the cigarettes that he didn't want (we couldn't return them, we tried) and not even complaining about them which isn't like him.

After several days of me nicely hinting, my hubby actually managed to suggest and get him into a bath on Thursday. I think he has been in the same clothes ever since. Will have to try and get him in clean clothes today after he wakes up. I'm pretty sure he is sleeping now. He had a short snooze yesterday but other then that has been awake since possibly Friday around noon. It's hard to tell sometimes. He will go to bed when I prompt him but that doesn't mean he is sleeping.

His nurse set up an appointment with his psychiatrist for tomorrow morning. That's an appointment that has been long overdue. We certainly need to do discuss his medications and how to proceed. I know I have been hesitant about upping his Invega due to possible lose of his libido however that doesn't seem to be happening right now anyways and honestly it's not something we need happening right now as when he is like this he can have no sense of keeping it private.

ADAPT called me this morning. She apologized for taking so long to get back to me. I let her know that my son seems to relapses so we set up a tentative follow up appointment in two weeks. She also gave me some information on the next family event that deals with concurrent disorders, mental illness and addiction, and who to contact to register. I have actually met the lady that I am to contact. We meet through the early intervention program my son was in before PACT. I have also talked to her at an event I attended through the Schizophrenia Society of Ontario.

I'm off. Gucci is demanding some petting time and the homemade beef jerky I made is calling my name...

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Define Odd

I have used the word odd a couple of times today and after the last time, I thought to myself: What does odd mean? Well... for me it means things that make you go hmm... I won't say things that aren't normal as our normal is odd ;) So things that stand out for me within our 'normal'.

At 9 AM this morning I was thinking about titling this blog post: Sadly I know where my child is... And it was standing outside the liquor store waiting for it to open since he got his disability money today. He returned stating that they didn't open until 10 AM so he got munchies instead. I did check the times online and they open at 10. Now it's 12 and he has not gone back out. Yes this is odd... or red flag material. He was awake 30 minutes ago. So what changed? He was awake this morning at 5:30 when I got up, most likely counting down the time to when he could get to the liquor store. He was at the liquor store for 9. Now it's 12...

Could he have gotten a hold of marijuana instead? A distinct possibility. He hasn't been down for a cigarette in a bit either. Awake, not smoking, just lying there... usually not good signs. He was playing one of his games this morning before he went out. Of course I could be over-thinking... I doubt it though.

I guess it was Friday that my son asked me for $3 to go to the store for candy. I was busy paying bills and not really thinking and gave him the $3. He left on his bike. He doesn't need his bike to go get candy since we have a corner store almost attached to the the town-home complex. Between that $3 and other change he had been collecting he went and got a mickey (small bottle) of vodka.

I can say that I was pissed. Of all the things that one can say or do that I will tolerate, lying is the one thing that will get me madder then anything else. I didn't say much just let him know that I was pissed off. He said that he deserved to get the alcohol. I deserve to not be lied to!

Hubby and I left to take Gucci to the vet. She got her booster and a clean bill of health. Her sneezing is fairly common and nothing to worry about unless it gets worse. It has been getting better as she settles in. Apparently stress can trigger it. Who knew? Got her a toothbrush and poultry flavored enzymatic toothpaste as she had some plaque on her back teeth. So ya I'm learning how to brush a cats teeth ;)

I don't know if it was Friday or Saturday night but my son decided he really wanted a PRN which means a benzo. It must have been Saturday as I think he was craving alcohol pretty bad. He asked me to take him to the hospital. I actually said no that I wasn't spending 6-12 hours in emergency because he was going through withdrawals and they won't give him a benzo anyways. They will most likely give him more Olanzapine and he is already taking the max dose of that. I know this may sound harsh however it's not the first time he has done this to get a benzo and it probably won't be the last. He started getting mad and told me I had no idea what he was going through... My cue to leave the room which I did. A little while later he comes downstairs and watches TV with us. Then really nicely asks me if I will go to the store and get him some NyQuil. *high five* for trying... I told him no that I know he only wants it for the alcohol content which effectively ended that conversation.

A little note: If you know someone recovering from or trying to get sober. Keep them away from cough syrups etc that contain alcohol. If you know someone recovering from or trying to get clean from drugs. Be careful of over the counter cold medications. As far as I know crystal meth/speed is made from the same active ingredient. These things can be an instant trigger for relapse without the person even being aware that they have put themselves in that situation.

I tried to get a little creative on Sunday. Decided to take some pictures so that I could make some picture posts for my Facebook page. A couple of hours later, looked at them on the computer... They were all date stamped with 2007/01/01. Hopefully I can crop that off of most of them.

Sunday night my son randomly asked me about tetanus shots. He said that his robot had injected him with one...

This caused me to start thinking about his Citalopram/Celexa as for some reason I thought his last bottle of vodka was on Tuesday instead of Friday so it shouldn't be still affecting his psychosis. He is downing these mickeys or 375 ml bottles of vodka or rum like Kool-Aid. Either way the antidepressant doesn't appear to be doing him any good and in fact may be hindering his recovery as it can do for some people diagnosed with schizophrenia or schizoaffective disorder. So as of yesterday I have cut his dose in half from 20 mg to 10 mg.

His nurse was here yesterday and I discussed this with her. She acknowledged that it was possible and said she would let his psychiatrist and team know that I was doing this. I would stop it completely however I don't want him experiencing withdrawal or negative side affects from coming off it cold turkey as can happen with these medications.

Yesterday afternoon my son tells me that he is: Seemingly having a really good day. I responded that that was good and I was happy for him. Shortly after I paused... How many times has he done this for me to find out that the reason he is having a 'good day' is because he has abused a medication or is using when I didn't know it. I counted my Venlafaxine. They are all there.

I'm still worried though. We have been very careful to not say Adderall in front of my son. My hubby is on this for his ADHD and if you recall it triggered my son's psychosis in July last year. We usually refer to it as my hubby's ADHD med... Well the other I let it slip and my son was in the car with us... Can I trust my son to not get into them? Unfortunately I can't. My hubby did have them stashed in the car just in case and I said he was overreacting... Maybe he's not. Just in case I should count them I guess.

My son has been having a lot of baths since he's been back home. I think part of this is for 'private time' as I have caught him several times now. Why am I catching him? Because he is not closing the bathroom door. Same with yesterday I went to go upstairs and he is in his room masturbating with the door open. Not the first time. I'm being cautioned to not go upstairs in my own home because he is masturbating! I have heard that tactile hallucinations can fuel this so I'm not sure if that is what this is or just my son being hormonal. Either is possible. Regardless it needs to be addressed somehow. He can masturbate all he wants but he really needs to learn consideration and how to do it privately. As well as follow up hygiene.

It's 2 PM now and he just left for the 'store'... *sigh*

Going to see what I can do with those pictures I took and try not to over-think what the next week is going to be like.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Going blind...

It's been a quiet week. My son seems to be recovering and his psychotic thoughts and voices are going away. He is still somewhat delusional in thinking but nothing major. Yesterday I teased him because he was making a sandwich and cleaning up after himself. He replied that he was feeling healthier. Yes that happens when you are not in psychosis :)

The other day he told me that he thought he was going blind. My gut told me that he didn't mean physically so I asked him what it was that he couldn't see. He is having trouble seeing his psychotic thoughts or imaginings. I explained that this was because he is not as psychotic anymore and what he was seeing was part of his schizophrenia. I spoke about this with my hubby and explained that I try really hard not to use terms like normal as they don't really apply here and for my son the goal is not to be normal. I know that for him it can feel like a lose to not see these things so the best that I can do is approach it from the viewpoint of not being psychotic rather then being normal.

This morning we had another little chat. I try to nicely point out that certain thoughts or ideas are delusional because no I can't help him obtain a spaceship so that he can travel the universe. I may be able to do a lot of things and figure out stuff however I do not have those types of contacts :).

Not surprisingly we also discussed marijuana. Earlier in the week I was helping him find a power cord and looked in his coat... Found a pot pipe and screens. Told him it was being confiscated. He doesn't feel like this world has anything for him so he wants to hide in marijuana. Yes he acknowledged that. At one point he tried the: Can we try and you can give me so much every day. My response was: I am not Nana. He grinned and dropped that approach moving on to the idea of getting his own place. All I can do is remind him that it's up to him how many hospitalizations he wants to have before he realizes that marijuana is not worth it. It's his journey I'm afraid.

He would like to have a girlfriend. Well he isn't going to meet any girls by not participating in life. His case worker from PACT was here earlier in the week. She asked him if he had voices and of course his answer was no ;) I stepped in and said perhaps asking how many voices or what they are saying would get a more realistic answer. My son replied that yes he has voices, entities which is normal for him.

Starting next week I'm hoping that he will be more involved with PACT's outings. When asked my son hesitated and I stepped in and said that I would answer for him and yes. Wednesday is there next group meeting were they discuss what type of outings the group will do and someone from PACT will come and pick him up. Monday's they go to the YMCA which again I said yes to. He can swim, work out or do whatever he wants during that time. His worker said she would look into getting him a pass. I don't think she has heard back from ADAPT yet.

I haven't had him call disability yet :( I really should get on that.

He has been taking his medications and it's fairly easy to tell that the psychosis and voices are leaving him. His face is much clearer. He is eating good. He is watching TV and playing games. Maybe not for long periods but still he is doing it. I do feel for him here as it has to be hard to be in this in-between stage where he wants to interact with schizophrenia yet it's getting harder to do. He can 'think' psychotic thoughts yet can't 'see' them as easily anymore. One day he spoke to me about one of his entities that he thought was his son. Whether they are real or not the lose of them will still feel like a lose to him.

Another topic we discussed today was love. I asked him what he thought love was? To be soft like a baby. Translation being soft on him or lenient ;) There are a lot of different sides to love. Sometimes love is hard. It can be a lot of things at one time. Because I'm not always soft it doesn't mean that I love any less. Sometimes making the hard choices is love.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Breakfast with voices

Sunday we decided to go out for breakfast. It was me, my hubby, my son and his voices. They were entertaining my son and moderately irritating me. Not in an upsetting way however I did at one point ask my son if he could do me a favor and tell them to go away for a minute as they were pissing off mom ;) I think the waitress had come by our table 3 times and we couldn't order because my son wouldn't stop listening to them long enough to read the menu. Perhaps my request did the trick as he finally paid attention to the menu and made a choice. Saturday when we took him to buy a TV he could barely pay attention to the cashier.

This morning or last night I asked him if he ever tried to ignore them as he will need to learn to do that so that he can interact with people while out in public. He stated that ignoring them would make them worse. I replied that the opposite is usually true. The more attention you give to them the worse they can be and he needs to learn to tell them to leave him alone sometimes. Thankfully they seem to be humorous at the moment although what my son tends to find humorous would probably freak me out ;)

Saturday night and last night he got about 12 hours sleep each night. He took his medications when hubby and I were going to bed. Both nights he took his Invega, Olanzapine and a Melatonin.

This morning I talked to him about his medications. Letting him know that I'm thinking we may need to look at Clozapine again, what did he think about that? He asked if that was a good idea. Well it's either that or we try Olanzapine twice a day as he really shouldn't be dealing with voices like this. He agreed to Olanzapine twice a day. Today he seems a lot more clear eyed and his face doesn't have that combination high/overtired look that I see as psychosis.

I think he finally has his room set up. Mom I need something else for my TV as the dresser is too high. Mom I want a table to put my stuff on. He wanted to use cardboard boxes that I explained wouldn't hold the weight. I had a night stand that won't fit in our room so we put that in his room for the TV. Then I took the draws out of and the legs off of the dresser and laid it flat for a table, putting a table cloth on it. So now he has Netflix and an hdmi cord and can watch TV in his room. He still wants me to get him cable for his room... hmm not likely. Hubby and I don't even have cable in our room as we are trying to keep the bills lower not higher. Besides between Netflix and downloading what could he possibly watch on basic cable?

After breakfast yesterday we brought him back home as he was to tired to go grocery shopping. I did get him a new hoodie and 2 pairs of track pants since his last 2 pairs shrunk. I kept them for around the house since my legs are shorter. Oh... I can say house now instead of apartment ;)

I talked to his case worker from PACT today and let her know what happened. She will follow up and try to get a hold of ADAPT to set something up. Of course my son hesitated this morning when I brought this up. He is so easy to agree to things when he is getting what he wants then.... I reminded him that he agreed and that it is expected.

Next thing is contacting disability. I guess getting my son to call is the best option since his worker hasn't returned my last 6? phone calls. Hopefully I will tackle that tomorrow. Today I actually spend most of the day cleaning and organizing some stuff. Now hubby is on his way home from work so I should start dinner. Steak, baked potatoes and salad. Yum!

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Home again, home again, jiggety jig.

Yes my boy is home again...

Last night he called asking to come home. Earlier in the day I had spoken to his case worker from PACT about bringing him home so when he called I went with it. I agreed under the conditions that he participate with ADAPT for drug treatment and that we have to get the money thing straightened out with disability. Shortly after the shelter called to confirm what my son was saying about me picking him up. It turns out the lady at the shelter had given him a 'talking to' about what he was doing and how living with mom seemed like the best option for him.

When we picked him up and got into the car my son commented that one good thing came from him being at the shelter and that was realizing that living with me was the best place for him. Hubby and I just replied that we were glad something good came out of it. I'm thinking this was a reflection of what the shelter lady had said to him...

He did receive a payment from disability on Friday. This was concerning a lot of us as my son doesn't understand that people can take advantage of him for his money and if left for too long he could get himself into some serious trouble. He did buy an iPod yesterday and today hubby and I took him for cigarettes and to buy some stuff for his room. He paid for a TV and part of a futon while I paid for a computer chair in exchange for his tablet. Hopefully this will help cure him of sleeping on the sofa since he now has one in his room.

The first thing I had him do last night was have a shower. Today he put the corduroys back on and I told him to change ;) Last night he feel asleep on the sofa... I woke him up at 1 to go to bed and he ended up being awake all night. Hopefully he will sleep good tonight. I told him last night that he is not on enough antipsychotics and that I can see the psychosis on his face. He seems to have a lot of voices so I will see about making the Olanzapine a nightly medication. The Invega is good for other things but doesn't seem to touch the voices. He is now on an antidepressant, Citalopram/Celexa which he says helps him.

He seems happy to be home. He likes the new place. I'm happy he is home. I didn't realize how much I missed hearing: Mom... He also bought a new computer game today that I can hear him playing.

Me, I'm feeling somewhat dragged out. I think it's the Venlafaxine. I noticed today when we were out driving I was able to NOT comment on my hubby's minor 'road rage' which I usually can't resist doing so I'm guessing that's the Venlafaxine working. Hubby has been great today about driving my son around and helping to set it up stuff. Let me just say that futons are a biatch to set up!

Hubby had to go move some snow so I think I'm going to figure out the tablet and doing some reading on the Kindle app.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Liar liar pants on fire

I came across this picture today and it made me giggle. As any caregiver of someone with a mental illness knows, we sometimes need a little humor in our lives.

Wouldn't it be nice... Or if their noses grew like Pinocchio. Honestly it's not just our mentally ill loved ones. I would like to see this happen to a lot of grown ups I know too. ;)

Monday night things went south again. This time I can at least have the comfort of knowing that I did nothing to provoke it.

I was in bed when my son came into my room. He started and I asked him to leave, letting him know that I didn't appreciate how he has been talking to me and that there was no excuse for it. Him getting mad is not a good enough reason for calling me the things that he did. He left my room however stood outside the door continued to try and 'reason' with hubby and I that he was entitled to make up the rules since it's his place because he pays half the rent. The fact that he hasn't paid us anything since July 2014 is apparently a mood point to him. I closed my bedroom door. He kept it up. I asked him to stop. The swearing at me started... It still surprises me sometimes when I can hear it his tone that he is very much in control over what he is saying and swearing or calling me names on purpose.

Finally I opened the door and stop in front of him and told him he needed to stop or leave. He grabbed my arm and pushed me. Apparently I made the mistake of standing in front of his bedroom door and according to him he was justified in pushing me because I was in the way. If he had wanted in his bedroom he could have went in there instead of standing outside my bedroom door swearing and calling me names. There was no indication that he wanted to go into his room.

I told him that if he touched me like that again I would have him charged. I could still see and feel where he grabbed me 45 minutes later. Sshh Hubby doesn't know this. Hubby heard me say this and got out of bed saying this was enough. The sight that greeted him when he got to my son's bedroom door... My son pulling down his pants, showing me his ass and telling me to kiss it! Adorable isn't he? I told my husband to not get involved and pushed him back because yes my hubby was not impressed. For me, seeing my son's ass defused my anger. All I could think as I looked at it was: Boy if you were 5 years old I would be paddling that ass! Before you think child abuse! No I didn't make it a habit of spanking my kids ;)

I just looked at my son and told him that the way he was acting and the words coming out of his mouth were disgusting. He actually looked a little shocked. Then said he was going to call COAST which is the crisis outreach team in our area. Ok.. Make sure you tell them that you just pushed your mother and have been swearing and calling her names. Suddenly he was all business. Called them and said that he needed assistance and a place to stay. I went back to my bedroom and let him do his thing. I could hear by his answers that they were asking him mental health questions. He then called some shelters.

What floored me was he then called 911 stating that he needed a place to go because his mom's husband had physically threatened him with violence. I just sat there as I listened to him give 911 my husbands name. Pictures of my hubby being hulled off in handcuffs. Yes I know I was overreacting but seriously you never know. It's not like the police haven't made things worse before. I did nothing. My son started packing his stuff. He's getting good at this part. Hubby and I went out for a smoke as I wanted to meet the police when they arrived and let them know what had really happened.

They came in. The one officer pointed out to my son that the police were not a taxi service. The other officer told my son when he again spoke about my hubby threatening violence, that he was an adult and perfectly within his rights to leave if he didn't like it here. They left with him and took him to a shelter.

When my son was making his phone calls it hit me. What this was all about. No one had said anything to him about a shelter. No one had threatened him. He wanted this to happen. Why? Because he doesn't want to pay me room and board from the check he thinks he is getting this week. This is what happened in September 2014. He got to keep the whole check and he got high. Yes he got robbed of most of it but he still got marijuana. In his eyes that's a win. The way that he became totally coherent to make the calls and write down the numbers... Mind boggling.

What I was seeing had little to do with schizophrenia and a whole lot to do with addiction and manipulation. He couldn't get benzo's from his treatment team or hospital so he went with plan B. Honestly who can blame him. It worked the last time.

I find myself yet again in between that proverbial rock and a hard place. The rock being my right to not be abused and to be treated with respect and the hard place being my son's schizophrenia and addiction. I get that he isn't stable right now. I get that he is being controlled by addiction and perhaps some delusional thinking. Still... Son or not... I don't have to accept this type of behavior. No where in all the information regarding addiction or mental illness does it state that family members should allow themselves to be abused because a loved one has a mental illness.

My son called me yesterday. Mom, I want to come home... Has my check come in? I guess he forgot that in September he left with his check on him. Ops! I told him he couldn't come home right now that he caused this to happen and he has to deal with the consequences. I asked if he called for another reason other then wanting his check? Well I do want my check...

I know what shelter he is in and it's actually fairly nice. As far as I know it's the one he went to for a couple of hours the last time he called 911. Industrial area so shouldn't be drug traffic. Nice main room with computers and TV. You could tell the people there were a different crowd then the one he was in in September. I'm not worried about him there. Really if my son wants trouble bad enough he can find even from here. They will lock up and administer his medications. He will be fed and on a sensible sleep schedule. Honestly it's probably a good spot for him right now.

My biggest concern right now is trying to figure out what is happening with his disability payment. Yes I want my portion for room and board. We could use the money. He isn't cheap to support! Although my main concern is him not getting it. I know that sounds harsh but I live in reality. $800 would most likely get him in jail or worse. At the very least another psychotic break when he hasn't recovered from the last one.

I called disability and reception would not put me through to a supervisor this time. Told me to leave his worker another message and to fax them something stating my concerns. So I walked to Staples and faxed them a letter stating that my son doesn't want to pay me room and board for the second time and that I'm pretty sure he wants the money for drugs and I'm fearful of him ending up in jail or worse. He is not capable of handling his own finances. That was 4 hours ago. No phone call yet...

I did talk to his case worker at PACT. She has been trying to get in contact with the shelter. She had talked to my son's psychiatrist and team and his psychiatrist stated absolutely no benzos. I told her what has happened and she said it sounds behavioral. Honestly as time goes by I'm in agreement. I do know it's being fueled by his symptoms and addiction however it's still his choice to act the way that he is. He believes that no one else matters, period.

I did leave a message at the shelter to have someone call me.

So here we are again... Maybe this time he will get the help that he needs.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

It's none of your business... It doesn't take much.

First I would like to highlight some of the reading that I have been doing the last couple of days.

This blog caught my attention and I'm loving it: Behind The Walls
A couple of articles in particular that I really liked are: "Why a fear of labels can cause more damage then calling it like it is" and "The dangers of 'coddling' a child who lives with a serious mental illness. Five ways to be supportive instead".

Another site that I came across is: Empowering Parents
3 Parenting styles that undermine your authority
The Jekyll and Hyde Child

I have read and reread articles on keeping boundaries in place and keeping to the rules even more so when dealing with ADHD and/or ODD (Oppositional Defiance Disorder). Still I let them slip...

Saturday night I didn't stop him from sleeping on the sofa. Maybe one day I will learn... We had a good dinner. The chicken turned out good. Hubby again had to go snow plowing and left early evening. Around 9 or 10 I suggested to my son that he take an Olanzapine to knock out the voices and to get a good nights sleep as he hadn't slept much the night before and was up all day. He surprisingly easily agreed and went and took one and his Invega. Then dragged his blanket out to the sofa... I tidied up his room and fixed up his bed and told him to go to bed and watch his tablet or something. He went to bed and I went to read in bed.

Within about 15 minutes I could hear him almost hysterically laughing. I went to check on him as for a minute I wondered if he was crying... No he was laughing. I again suggested he watch something on his tablet as he wasn't helping himself by putting so much attention into the voices. I told him that if he continued to do so that he may make it worse and possibly bring on tactile hallucination which I know he doesn't like. He did start playing a game on it. For about 10 minutes... Then he was dragging his blanket out to the sofa again stating he was going to watch TV. I reminded him that he wasn't sleeping on the sofa.

I dosed off for a bit and woke up I think around 11:30. Of course he is asleep on the sofa. I wake him up and he states: I'm going to sleep here tonight. No you are not. Hubby wasn't home but he would need the sofa when he got home since that is where he sleeps now due to his restless legs being so bad. I nicely shooed him off to bed. My hubby's pillow was soaked with my son's sweat. I'm sure the sofa was too. So I took off the pillow case and went hunting for another one. Didn't find one ;)

My son got up around 11:30 today. I asked: How did you sleep? Good. Then I asked: How are the voices? I guess today that question wasn't ok again. I got told it was none of my business. This time I let him know that that comment pissed me off. I didn't yell or anything like that however I did calmly tell him that he had pissed me off. That he is my business and so is his mental health. If he is not my business than he can call disability today and straighten out his file since he is on it due to his mental health which is none of my business. Then I went for a smoke. Sadly I'm smoking more lately...

A little while later he decides to tell me that he has no entities and that the they are voices now and aren't real. I had to ask him: Now was that so hard? Reality is he probably wants me to call disability for him.

Several hours later I brought up to him about sleeping on the sofa and that he had slept on my hubby's pillow and soaked it with sweat. He insists he didn't sleep on the sofa... He started bringing out the room and board contract we had signed stating I couldn't do... I pulled it out and read it. Along with the things he is supposed to be doing per the contract and isn't. It was starting to turn into a disagreement so I finally said: If you don't want to acknowledge it then that's ok. And I started putting my stuff on to go out for another smoke!

I'm not sure where the verbal outburst came from but it came... I got called a string of derogatory comments and swore at. So many I couldn't count them. I calmly walked over to where the wireless internet is and unplugged it stating: Well you have lost the internet for a while. (Rule is one day for each offense so I think around 10?) He calmly got up and left for a smoke. Now the tell-tale sign that my son was in complete control over what he was saying was the fact that when he left he very quietly closed the front door. The way he had talked to me was on purpose.

Shortly after his case worker showed up with his Invega. I gave her a quick rundown. She tried to talk to him and he laughed it off, said it was funny that he called me what he did. Then he tried asking for Ativan. Could he get it if he went to the hospital? She said not likely that his psychiatrist won't prescribe it and it's on his file at the hospital that he is benzo seeking.

I did discuss with his case worker then I'm really believing that the Olanzapine is bringing out aggression in my son. This is probably the 3rd time that I have seen him become more aggressive after taking it. Everyone says it shouldn't... Tell that to my son ;) Don't get me wrong as I do believe he was in control and that it is behavioral just being fueled by something. Either the Olanzapine or voices... Yet the Olanzapine seems to knock out the voices so that would even more point to the fact that his behavior is not schizophrenia related. I'm seriously on the fence with the Olanzapine. Knock out voices vs. apparently causing aggression.

I did bring up perhaps upping his Invega due to the brief conversation my son and I had Sunday morning about the fact that he shouldn't have to be killing entities in his head like he was. He stated he liked doing it... laughing at her. Finally I just said to his worker that he doesn't appear to be stable enough to be having this conversation. Although I would bet a paycheck (if I had one) on the fact that he made it appear worse to strengthen his case on  needing/wanting benzos. She is going to talk to his team about his behavior and see what they have to say. She may also be scheduling him an appointment with his psychiatrist as he is due and discussed having him participate in some of the groups and activities. One of them being swimming on Mondays. She thinks he needs out more. I agree.

He is supposed to make dinner tonight. We had spoken about that this morning. Before the disagreement ;). Hubby is now home and it's dinner time. I haven't reminded him will be his reason for not doing it. It's on his calendar which is on the end table... that he refuses to look it.

Perhaps another dinner out for hubby and I. He has been working so much I have hardly seen him this last week or so, so we could do with the one on one time.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Baby boy can we talk about medications?

Friday night my son actually went to bed early, around 9:30 and slept until 11:30 on Saturday. Saturday was an uneventful day with him spending some time on his computer playing games. Once he asked about what he could do to get a World of Warcraft subscription. Stating that he has been doing dishes... He has done dishes twice and he is supposed to be cooking dinner on Mondays and helping to clean the bathroom on Fridays which hasn't been happening. I nicely stated that I wasn't going to pay him for things that he should be doing to contribute to the household then went out for a cigarette. This is becoming my way of keeping myself from continuing or participating in needless discussions.

That evening I decided to take my cell phone to bed and read a book that I had downloaded on the Kindle app. My son came in and asked if we could watch a movie in my room. I try not to encourage him being in that type of situation with me. Besides the fact that he is physically an adult, I am aware that some of his thinking patterns when he is unwell can be sexual in nature and these thoughts don't discriminate regarding family. I don't know if he has ever had these types of thoughts (images, dreams and/or hallucinations) about me however I do know that he has about another family member and some other pretty out there imaging. I also know that tactile hallucinations can be sexual in nature. However I did agree to us watching a movie together in my bed. He picked out Snow White and The Huntsman.

I think for the second time I commented that he really needed to have a shower. He agreed and went to have a bath instead. I reminded him to wash, just like doing dishes, just being in water doesn't get them clean. After he was done we started watching the movie. Hubby had been snow plowing all day and got home when the movie was almost over and my son decided he had enough of the movie and was off to bed. I reminded him to take his pills.

I realized this morning when I got up that he must not have taken his Invega. I knew that he had been on the sofa during the night. When I got up at 6:30 he was too alert so I figure he didn't sleep. I asked him if he had taken his pills (Invega and Melatonin) and he said no. I suggested that he may want to do that. Notice how I said suggested... I don't tell him to take his medications. Coming from me it triggers his defiance or ODD. I suggest by saying things like: I think it would be a good idea if you took them. In a nice and monotone voice of course. If he doesn't... he doesn't. He did :)

Sadly this meant an increase in symptoms. Laughing out loud like he couldn't contain himself. Thankfully this seems to have calmed down as the day went on.

I came across this article the other day from HuffPost: The Consequences of Mental Illness That Nobody Talks About. Due to my research into schizophrenia I am aware that the three main types of symptoms are positive, negative and cognitive. The National Institute of Mental Health has a good break down here: Schizophrenia. The HuffPost article makes a very good point. If it wasn't for my research I would have no idea about the affects of schizophrenia and/or other mental illnesses on cognition. I speak about it when talking to his treatment team BUT no one has ever brought them up to me.

Sometimes it is the smaller things or the things that no one warns you about that can pull at my heart more then the positive and negative symptoms of schizophrenia. I seem to take some things in stride easier. Yes it hurts my heart when he is telling me about his voices/entities or tactile hallucinations. Yes it hurts my heart when I see him not playing computer games that I know he loves.

What broke my heart today was seeing my son standing in front of his dresser to get dressed to go grocery shopping and he was lost. Just standing there, in a shirt and underwear, looking at his dresser. I went in, pulled out a pair of pants and handed them to him. I also got a facecloth with soap and washed his face for him. He let me... Honestly I would rather he push my hand away and tell me he was too old to have his mother washing his face. As parents I'm sure most of us have been there and smiled when our little ones did this as a way of showing us their independence. Instead he stood there and let me. He stated he had washed his face yesterday. Which was really on Thursday when we went to the doctors.

He came into the bathroom to brush his teeth. I think hubby reminded him to. He told me something about his voices. I forget what now. Before this I had asked him if he was ok as I was concerned about him coming shopping with us if he couldn't ignore them. It's not what others may think that I worry about but him walking into something or someone because he isn't paying attention. He said that he was done killing them so they were gone for now... So when he entered the bathroom and said whatever it was I suggested ;) that maybe on Monday we could talk to someone about his medications because he shouldn't have to be dealing with them like this. He agreed... *fingers crossed* he is still in agreement after I talk to his treatment team!

Grocery shopping I didn't need to be worried about him wondering off. He stayed right beside me, following me, even when I wanted him to stay put for a second. Once I had to make sure I had his attention and say: Stay here for a minute so the cart isn't in the way while I get something. If I wanted him to follow my hubby instead of me then I had to tell him to follow hubby. And of course I watched to make sure he did ;). When we were getting the groceries out of the trunk I told him that I needed his muscles and right away he was there, took the bag I wanted him to and offered to close the trunk for me.

So for today anyways, it's not what schizophrenia gives him but what schizophrenia takes away from him that has me crying some on the inside. He will always be my baby boy however him letting me treat him like my baby boy is just not right!

Time to finish getting dinner ready as hubby has to snow plow again this evening. I decided to roast a chicken and I must say it is smelling good.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.