Firstly I would like to wish all my readers a very Merry Christmas and Happy New Year!
All I can think is wow what a year and I can't wait for it to be over...
At church I had my eyes opened to a word that I never really thought about before other then seeing it in the stores on advent calendars. You know the ones with little chocolates in it to countdown the days until Christmas. Well advent is the 4 weeks leading up to the celebration of the birth of Jesus.
I'm sure a lot has questioned the timing of this as I think most of us realize that Jesus wasn't born at Christmas. He was born sometime between March and October. While our calendars date the start of a new year in January... That was not always the case. Spring is the beginning. A time of renewal.
I seriously love Christmas! The last couple of years have been harder to celebrate and this year... I'm going to do my best to celebrate from the point of advent. A time to slow down and enjoy. A time of being grateful for what I do have. Yes a lot easier said than done.
We are pretty much settled into our new 'little' home. A lot to learn and a lot to not take for granted. Water, plumping, sewer, heating, condensation and cooking in a propane oven. All of it needs to be paid attention to and not taken for granted. I've pretty much got the timing of emptying our holding tanks figured out. Getting condensation in my closet and cupboards under control. Showering... Another adjustment on time and water management. Now it's trying to figure out how to cut down on drafts and better heat the place.
When it's just me and hubby here it's not so bad when it comes to lack of room. Add my son and sometimes my daughter and grandson. It gets a little tight. I feel bad when I tell my daughter no to babysitting however spending the day keeping the little one out of or away from my son and his 'mess' is not something one can look forward too. ;)
My son asked last night if he can half move in. He is going off of disability and the group home wants him to pay out of pocket more than what disability covered. I would have to agree with him that staying there wouldn't make sense. I have on occasion tried to look for housing for him. He's supposed to be getting help with this however I guess no one is having any luck with it.
Almost a month ago hubby had a mild stroke. He's gone off medications that he was taking to help stabilize his moods. Between that and his loss of feeling and functioning in his right side, it's hard for him to move around in such little space. Add my son who is in and out a lot of the night which keeps the trailer rocking and disturbing his sleep.
The doctor put hubby on blood pressure and cholesterol medications. His blood pressure is now the best it's been in years so that's a good thing. He's finally not bulking at me trying to put us on a better diet of less salt, sugar and just overall more healthy. Struggling to get used to his CPAP machine for sleep apnea. He needs to get used to it though as sleep apnea causes lack of oxygen to the brain therefore causing more stress on the body and therefor raising blood pressure.
Where am I at with all this? Most days struggling. A couple of times I've been all gung-ho about going back to work. Honestly a part of me is so looking forward to getting back out there around people and helping to financially support us. Okay... Just planning getting out of here. I feel stifled.
Each time I start something happens that makes me rethink what I'm doing. Aside for all the rest I'm in the beginning stages of menopause. Possible about to go fully menopausal. My normal cycle is every 21 days. Yup twice a month. I went 4-5 months where I only had 3. Great right! I started looking for work and ended up with 2 last month. Not so great as they hit me hard and heavy. Spent days fighting off a migraine.
Even if I didn't have to worry about that... Guess who does and takes care of pretty much everything? Am I supposed to work and come home and take care of everything at home too? I'm not even sure at this point how capable he is to cook for himself.
Edit: Section removed due to privacy reasons.
I guess the next decision we have to make is whether to let my son stay here from Monday to Friday every week. Last week we had discussed cutting it down a day.
Oh well... If any of my readers want to pray for us I would greatly appreciate it!
I probably won't blog again until the new year. Hopefully it will be with good news that at least his pension is sorted out!
Ohhh I felt my grandaughter move!
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2019. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Showing posts with label Feelings. Show all posts
Showing posts with label Feelings. Show all posts
Tuesday, December 3, 2019
Monday, April 29, 2019
The five long languages and self-love.
I find myself sitting here and thinking about what happens when we allow ourselves to become as sick as the people around us.
At one point I was pretty much living and breathing schizophrenia in my quest to help my son. Everything I did was with him in mind and I ended up needing antidepressants myself.
Whether it's mental health or physical health, it's so easy to let ourselves become our environment.
Yesterday was hubby's birthday and two weeks before that was mine... Needless to say it hasn't been a better year with respect to these dates then it has been in the past. I can't recall when the last time was that we shared any of these important dates on a good note. Perhaps we never have. Birthdays, anniversaries, Christmas, Mother's Day... All seem to become.... Well worse than any other day.
I have to ask myself why?
My journey of self-discovery with Christianity is teaching me to look at myself first. Even if I don't want to, I find myself expecting more during these times. Expecting my hubby to put others first. To me more precise, to put me first. I really do know better however feelings sadly to not care what is logical. So everytime I set myself up for hurt.
Really the fault is mine. I shouldn't expect more on any given day. I shouldn't put my hopes in other people's actions. I know where my hope should be... Where my longing for love should be. It's not with Man. It's with God. I know He is the only one that can fill that emptiness. Still not as easy as that. I wish it was. That's where expectations tend to mess things up.
I have recently learned about the five love languages. While we receive and give love using all five: quality time, words of affirmation, gifts, acts of service and physical touch, we tend to appreciate one or more of these more then the others.
Hubby and I actually discussed these a little bit one day and are now more aware of what each others are. You would think that would help us.... It only helps when one is willing to look outside oneself.
I did a self-test and discovered I seem to be in a three-way tie with words of affirmation, acts of service and quality time. Still I know that my main one is acts of service. It's how I show everyone that I love them, by doing things for them. Words have very little meaning to me when actions are not there to support the words. It's certainly not physical touch since I tend to shy away for physical contact. My hubby's is most likely physical touch. I've always known that to some degree. So even when we are not getting along I still hold his hand when we are out because if I don't... Things just keep going downhill.
So it's expectations that like I said, mess things up. Now that he knows my love language... Nothing has changed.
The fault is with me, expecting things to chance.
Physically and mentally that puts me in a situation where I am allowing someone else to have control over my health. Because I want hubby to show me that he loves me by doing something... anything. Make a healthy dinner. Keep his word. The list can go on. I get unhealthy. I wait for someone else to take care of me and I get disappointed when it doesn't happen.
It's a cycle I need to break. I know what I need and I know how to take care of myself. I know when I'm doing these things for myself that I feel so much better. Physically and mentally.
Time for me to do my exercises and eat before I get my grandson for the day.
To all the caregivers out there: Take care of yourself. Take the time to eat right and find some me-time to do something that is selfishly for yourself only.
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2019. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
At one point I was pretty much living and breathing schizophrenia in my quest to help my son. Everything I did was with him in mind and I ended up needing antidepressants myself.
Whether it's mental health or physical health, it's so easy to let ourselves become our environment.
Yesterday was hubby's birthday and two weeks before that was mine... Needless to say it hasn't been a better year with respect to these dates then it has been in the past. I can't recall when the last time was that we shared any of these important dates on a good note. Perhaps we never have. Birthdays, anniversaries, Christmas, Mother's Day... All seem to become.... Well worse than any other day.
I have to ask myself why?
My journey of self-discovery with Christianity is teaching me to look at myself first. Even if I don't want to, I find myself expecting more during these times. Expecting my hubby to put others first. To me more precise, to put me first. I really do know better however feelings sadly to not care what is logical. So everytime I set myself up for hurt.
Really the fault is mine. I shouldn't expect more on any given day. I shouldn't put my hopes in other people's actions. I know where my hope should be... Where my longing for love should be. It's not with Man. It's with God. I know He is the only one that can fill that emptiness. Still not as easy as that. I wish it was. That's where expectations tend to mess things up.
I have recently learned about the five love languages. While we receive and give love using all five: quality time, words of affirmation, gifts, acts of service and physical touch, we tend to appreciate one or more of these more then the others.
Hubby and I actually discussed these a little bit one day and are now more aware of what each others are. You would think that would help us.... It only helps when one is willing to look outside oneself.
I did a self-test and discovered I seem to be in a three-way tie with words of affirmation, acts of service and quality time. Still I know that my main one is acts of service. It's how I show everyone that I love them, by doing things for them. Words have very little meaning to me when actions are not there to support the words. It's certainly not physical touch since I tend to shy away for physical contact. My hubby's is most likely physical touch. I've always known that to some degree. So even when we are not getting along I still hold his hand when we are out because if I don't... Things just keep going downhill.
So it's expectations that like I said, mess things up. Now that he knows my love language... Nothing has changed.
The fault is with me, expecting things to chance.
Physically and mentally that puts me in a situation where I am allowing someone else to have control over my health. Because I want hubby to show me that he loves me by doing something... anything. Make a healthy dinner. Keep his word. The list can go on. I get unhealthy. I wait for someone else to take care of me and I get disappointed when it doesn't happen.
It's a cycle I need to break. I know what I need and I know how to take care of myself. I know when I'm doing these things for myself that I feel so much better. Physically and mentally.
Time for me to do my exercises and eat before I get my grandson for the day.
To all the caregivers out there: Take care of yourself. Take the time to eat right and find some me-time to do something that is selfishly for yourself only.
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2019. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Tuesday, April 16, 2019
An apology...
I have debated deleting some of my blog posts as they have perhaps been a bit to harsh. While I try not to, a lot of the times when I blog it's because I'm feeling overwhelmed with things and I find this a great outlet. Of course being a public blog, anyone can read it... I have thought about changing that as well however that is just my emotions getting in the way again.
So while I am not deleting anything, I am deeply sorry that anything that I have written has caused my daughter any pain or upset.
Regardless of anything that I have written, my daughter is and always has been someone that I look up to. None of us are perfect, certainly not myself. I know I still have a long ways to go to be the person that I want to be.
As for my daughter... A phrase I have always liked: Perfectly imperfect. She's beautiful inside and out. She has a heart of gold and has forgiven me more then any mother could hope for. With her to lead the way I am now over 6 months clean and I have found my faith. She has given me a precious gift of being grandmother.
So to my daughter: I hope that you will always know how much I love you and what having you in my life means to me. I really wouldn't change any of it.
Love Mom.
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2019. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
So while I am not deleting anything, I am deeply sorry that anything that I have written has caused my daughter any pain or upset.
Regardless of anything that I have written, my daughter is and always has been someone that I look up to. None of us are perfect, certainly not myself. I know I still have a long ways to go to be the person that I want to be.
As for my daughter... A phrase I have always liked: Perfectly imperfect. She's beautiful inside and out. She has a heart of gold and has forgiven me more then any mother could hope for. With her to lead the way I am now over 6 months clean and I have found my faith. She has given me a precious gift of being grandmother.
So to my daughter: I hope that you will always know how much I love you and what having you in my life means to me. I really wouldn't change any of it.
Love Mom.
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2019. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Saturday, August 26, 2017
This circus has 2 Ringleaders
I think I'm just going to have to accept that my life is never going to be without it's complications.
A couple of days ago I meet with my counselor from the ADAPT program for addiction.
Without going into all the dirty details... I found out that my husband and daughter were using drugs together. I found out that my husband didn't go and stay clean 4 years ago like I thought he did. I found out that everyone but me knew that he was using and helped him and my daughter to keep it from me. I know right... 3 months later and yeah it still hurts big time. However it is getting better.
Some may be thinking: leave him, kick him out....
Whether you believe addiction is a disease or not, it's not something that I believe in turning my back on family for. After-all I'm an addict too and well I ended up relapsing too. Sad yes I know. Basically 15 years clean of my drug of choice and I'm back struggling with urges that I thought were long in my past.
So even if I did leave my husband. That still leaves my daughter. Like the title says: This circus has 2 Ringleaders: Senior is my husband, Junior is my daughter. It also has an 11 month old baby that needs his family.
I understand addiction, which helps, however it's not helping me with my feelings of betrayal, hurt and of course the anger. Honestly thinking back I couldn't have coped without something. Using helped me to be able to think about it all without completely losing it. In hindsight I guess a prescription of Valium or Perks would have been the more logical choice or at least the choice that wouldn't have ended up with my daughter making the choice to put her son in foster care.
Still I find myself not regretting the choice to use with my husband. Amidst all the rest, jealousy reared it's ugly head. Jealousy that my daughter had a relationship with my husband that I wasn't a part of or even understood. Using comes with a certain amount of intimacy. An intimacy that my husband and I had long lost. Now I know why but for the past say two years I couldn't understand what was happening or why.
As with any addiction it's progressive. As time was going by the family unit was dying. There was no family time of watching our TV shows like we used to during the week after dinner. No spending the weekends together. Everyone was busy... I was home, with the baby most of the time, being 'the curtain'. The person that was helping to present to the rest of the world and The Children's Aid Society the happy, stable, functioning lie that everything was ok.
What happened when I joined that circus? It seems I became the bad guy for a lot of people. Everyone was ok with me being in the dark and being lied to. Not so much ok with me letting the curtain fall and all hell break lose. Well tough shit I say!
I'm done being everyone else's pillar or curtain or justification for any of their choices.
So many emotions I'm still struggling with. So many times I have heard from different people since I found out that they are so happy that I now know because they didn't like lying to me. Really! Great, thanks! Now that everyone else is absolved of feeling any guilt over their actions... Yes I still sometimes wonder how they can look me in the face at all. Like I said I understand addiction but that doesn't really help that much. The lying and manipulations are a choice and don't have to be a part of using.
There are so many things from the past couple of years that at the time I was so utterly confused and frustrated about because I couldn't understand what was going on. It was all just making me feel like a failure... Nothing I was doing was right or helping or fixing what I could see was falling apart but like I said: didn't know why.
So many situations that have been tainted with the truth of it all. One being my wedding. I'm pretty sure they all feel pretty good about the fact that they were all apparently without drugs on my special day. Not saying much for the rest of the trip or the fact that my husband and his brother couldn't seem to get it together enough to even dress themselves properly. I can now think about that day and look at pictures and still feel some form of happiness that it was my wedding day. I still love my wedding dress!
I finally got around to tidying up my basement and starting a new puzzle. I love doing puzzles. Our basement walls are covered in the puzzles we have as a family done together... unfortunately I was the only straight one doing them. For a bit I couldn't look at them without wanting to take them all down. The puzzle I started is a new one that has nothing to do with the past. My own form of therapy.
There are more... I've asked my counselor with ways to cope with the short term feelings of hurt and anger that overcome me when certain things come to light. We will discuss these next week. As time goes by there will be more situations that will make sense now that I have a clue.
From the start my daughter has said to me: How could you have not know? You had blinders on. I say: No, not really. One can't see what one doesn't know. How could I know the difference between my husband or her for that matter, using and not using if they were never clean?
Now I'm working on getting some structure back into my own life. Getting back into using my stepper and exercising. I started back doing my inside sales job a couple of days ago. Eating right, sleeping right. Back on my anti-depressants.
Most of all, wanting to find a way to get my grandson back with family, however that might look like. My daughter is currently living in a dry-group home. Which means they monitor for drugs and alcohol. Baby-daddy is currently living with me. Another complicated situation. Visitation at the moment is one day a week at my place and one day a week with my daughter at the group home. The times should go up with each passing week as long as we all stay clean.
Not sure how all that is going to play out. My daughter needs to be in her own place in order to get her son back full time. Or back here but she seems pretty determined that my place is not a safe place. I say: bullshit! How safe my place is, is on her own choices and always have been. She will have to make the same choices here or on her own when it comes to using. But for the moment these are not my choices to make. I'm really hoping that given the time her and baby-daddy will get their son back.
Now for some good news! My son is doing really good. I guess just over a month ago, he was transferred to a group home. Yes a big step. A lot more freedom however still with structure when it comes to taking his medications. He calls me once or twice a week. Usually just to talk about what is going on with his laptop and the games that he is playing.
Time for a fresh cup of coffee and my Facebook games!
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
A couple of days ago I meet with my counselor from the ADAPT program for addiction.
Without going into all the dirty details... I found out that my husband and daughter were using drugs together. I found out that my husband didn't go and stay clean 4 years ago like I thought he did. I found out that everyone but me knew that he was using and helped him and my daughter to keep it from me. I know right... 3 months later and yeah it still hurts big time. However it is getting better.
Some may be thinking: leave him, kick him out....
Whether you believe addiction is a disease or not, it's not something that I believe in turning my back on family for. After-all I'm an addict too and well I ended up relapsing too. Sad yes I know. Basically 15 years clean of my drug of choice and I'm back struggling with urges that I thought were long in my past.
So even if I did leave my husband. That still leaves my daughter. Like the title says: This circus has 2 Ringleaders: Senior is my husband, Junior is my daughter. It also has an 11 month old baby that needs his family.
I understand addiction, which helps, however it's not helping me with my feelings of betrayal, hurt and of course the anger. Honestly thinking back I couldn't have coped without something. Using helped me to be able to think about it all without completely losing it. In hindsight I guess a prescription of Valium or Perks would have been the more logical choice or at least the choice that wouldn't have ended up with my daughter making the choice to put her son in foster care.
Still I find myself not regretting the choice to use with my husband. Amidst all the rest, jealousy reared it's ugly head. Jealousy that my daughter had a relationship with my husband that I wasn't a part of or even understood. Using comes with a certain amount of intimacy. An intimacy that my husband and I had long lost. Now I know why but for the past say two years I couldn't understand what was happening or why.
As with any addiction it's progressive. As time was going by the family unit was dying. There was no family time of watching our TV shows like we used to during the week after dinner. No spending the weekends together. Everyone was busy... I was home, with the baby most of the time, being 'the curtain'. The person that was helping to present to the rest of the world and The Children's Aid Society the happy, stable, functioning lie that everything was ok.
What happened when I joined that circus? It seems I became the bad guy for a lot of people. Everyone was ok with me being in the dark and being lied to. Not so much ok with me letting the curtain fall and all hell break lose. Well tough shit I say!
I'm done being everyone else's pillar or curtain or justification for any of their choices.
So many emotions I'm still struggling with. So many times I have heard from different people since I found out that they are so happy that I now know because they didn't like lying to me. Really! Great, thanks! Now that everyone else is absolved of feeling any guilt over their actions... Yes I still sometimes wonder how they can look me in the face at all. Like I said I understand addiction but that doesn't really help that much. The lying and manipulations are a choice and don't have to be a part of using.
There are so many things from the past couple of years that at the time I was so utterly confused and frustrated about because I couldn't understand what was going on. It was all just making me feel like a failure... Nothing I was doing was right or helping or fixing what I could see was falling apart but like I said: didn't know why.
So many situations that have been tainted with the truth of it all. One being my wedding. I'm pretty sure they all feel pretty good about the fact that they were all apparently without drugs on my special day. Not saying much for the rest of the trip or the fact that my husband and his brother couldn't seem to get it together enough to even dress themselves properly. I can now think about that day and look at pictures and still feel some form of happiness that it was my wedding day. I still love my wedding dress!
I finally got around to tidying up my basement and starting a new puzzle. I love doing puzzles. Our basement walls are covered in the puzzles we have as a family done together... unfortunately I was the only straight one doing them. For a bit I couldn't look at them without wanting to take them all down. The puzzle I started is a new one that has nothing to do with the past. My own form of therapy.
There are more... I've asked my counselor with ways to cope with the short term feelings of hurt and anger that overcome me when certain things come to light. We will discuss these next week. As time goes by there will be more situations that will make sense now that I have a clue.
From the start my daughter has said to me: How could you have not know? You had blinders on. I say: No, not really. One can't see what one doesn't know. How could I know the difference between my husband or her for that matter, using and not using if they were never clean?
Now I'm working on getting some structure back into my own life. Getting back into using my stepper and exercising. I started back doing my inside sales job a couple of days ago. Eating right, sleeping right. Back on my anti-depressants.
Most of all, wanting to find a way to get my grandson back with family, however that might look like. My daughter is currently living in a dry-group home. Which means they monitor for drugs and alcohol. Baby-daddy is currently living with me. Another complicated situation. Visitation at the moment is one day a week at my place and one day a week with my daughter at the group home. The times should go up with each passing week as long as we all stay clean.
Not sure how all that is going to play out. My daughter needs to be in her own place in order to get her son back full time. Or back here but she seems pretty determined that my place is not a safe place. I say: bullshit! How safe my place is, is on her own choices and always have been. She will have to make the same choices here or on her own when it comes to using. But for the moment these are not my choices to make. I'm really hoping that given the time her and baby-daddy will get their son back.
Now for some good news! My son is doing really good. I guess just over a month ago, he was transferred to a group home. Yes a big step. A lot more freedom however still with structure when it comes to taking his medications. He calls me once or twice a week. Usually just to talk about what is going on with his laptop and the games that he is playing.
Time for a fresh cup of coffee and my Facebook games!
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, March 17, 2017
Regret vs Guilt
I took part in my daughter's counselling session today and afterwords I was thinking about something her counselor said. Something to the affect of: It took me a long time to not feel guilty about enjoying my alone time.
I don't know when I stopped feeling guilty as a general rule. Sure there are times when I feel guilt. Like when my son calls and I'm putting my grandson to sleep so I don't answer my phone. I know why he is calling. So yes I feel fleeting moments of it.
I regret a lot of things that have happened but no I don't feel guilt about them anymore. I certainly don't feel guilty about what I feel. Good or bad.
Over the years there have been phrases or teachings that I have held on to. Some are from a rehabilitation course that I took, others from my many hours reading articles on the internet.
There are no right or wrong feelings. We can't not feel what we feel. We can learn to act and react differently to those feelings.
Give yourself the same love and compassion you would someone else. I may expect more from myself that I do others however I'm not harder on myself for those expectations.
My daughter has been having a bit of a tough time emotionally. Adjusting to being a mother doesn't happen overnight. Yes there are and will be times when one wants to walk away from it all. Hand over the crying baby, call someone, anyone, and spend the whole night playing cards....
There are times when I don't want to be Gramma. Strike that. There are times when I don't want to me mom, still. I can feel guilty for feeling that way or I can accept that what I feel is natural and in my opinion, to be expected.
When I give myself the right to feel these things without guilt and react to them with love and compassion then they don't feel so overwhelming anymore. I can feel them and let them pass, as they do.
I wouldn't give up being Mom or Gramma for the world. So letting guilt over feelings that I have no control over, get a hold on me, just doesn't make sense to me.
Sometimes I say things that could be left unsaid. Do things that didn't have to be done. For those things I feel regret. I don't feel guilt. At that moment in time it felt justified or I would not have done or said them.
We have enough things to weigh us down without adding the very things that make us human.
BarbieBF
Mom
Gramma
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2017. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I don't know when I stopped feeling guilty as a general rule. Sure there are times when I feel guilt. Like when my son calls and I'm putting my grandson to sleep so I don't answer my phone. I know why he is calling. So yes I feel fleeting moments of it.
I regret a lot of things that have happened but no I don't feel guilt about them anymore. I certainly don't feel guilty about what I feel. Good or bad.
Over the years there have been phrases or teachings that I have held on to. Some are from a rehabilitation course that I took, others from my many hours reading articles on the internet.
There are no right or wrong feelings. We can't not feel what we feel. We can learn to act and react differently to those feelings.
Give yourself the same love and compassion you would someone else. I may expect more from myself that I do others however I'm not harder on myself for those expectations.
My daughter has been having a bit of a tough time emotionally. Adjusting to being a mother doesn't happen overnight. Yes there are and will be times when one wants to walk away from it all. Hand over the crying baby, call someone, anyone, and spend the whole night playing cards....
There are times when I don't want to be Gramma. Strike that. There are times when I don't want to me mom, still. I can feel guilty for feeling that way or I can accept that what I feel is natural and in my opinion, to be expected.
When I give myself the right to feel these things without guilt and react to them with love and compassion then they don't feel so overwhelming anymore. I can feel them and let them pass, as they do.
I wouldn't give up being Mom or Gramma for the world. So letting guilt over feelings that I have no control over, get a hold on me, just doesn't make sense to me.
Sometimes I say things that could be left unsaid. Do things that didn't have to be done. For those things I feel regret. I don't feel guilt. At that moment in time it felt justified or I would not have done or said them.
We have enough things to weigh us down without adding the very things that make us human.
BarbieBF
Mom
Gramma
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2017. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, September 25, 2015
Glass Houses, Time For A Second Opinion
Hello readers! I have missed you...
Life, as it does, has kept going.
My son is currently in a shelter. He did come home for a little while.
I did manage to arrange a family meeting while he was inpatient. A lot of good that did. I shouldn't say that. His case manager requested that they do a assessment of my son to see what type of life skills he has for living on his own. No surprise there. He doesn't have any. He never has. He can't take care of himself when he is living in an environment when most of his basic needs are being taken care of. His level of self-care is non-existent at this point.
Since there was no where for him to go when it came time for him to be released from the hospital, I brought him home. He certainly wasn't stable, just not in crisis anymore.
It took less the 24 hours for things to start to fall apart. 5 days later he was in a shelter. During that short time it was attitude about everything. Smoking in his room. Sleeping outside on the front steps. Leaving a trail of mess wherever he went including spit and vomit. Swearing at me... It all came to a head when my husband asked him to clean up his mess on the front steps as there was cigarette butts everywhere, garbage and glass dishes that we were worried a kid could get hurt since they play around my front steps. That wasn't taken very well by my son. The end result... Michael throwing my coffee maker on the floor, smashing it and screaming in my face to F-off. The next day I had his nurse take him to the shelter.
For the most part it's been the same as any other shelter stay. Calling me for money and cigarettes. He did receive a payment from disability for almost $600 while in there. That was gone in no time. He told me that he got robbed. I don't believe it. I know what he was like the last time he got robbed. How upset and animated he was about it. This time... Nothing but calm. We did end up buying him 2 cartoons of cigarettes that was gone is just over a week. According to my son they kept disappearing, that someone must be taking them out of his backpack. You would have to see my son with his backpack. It doesn't leave his side. Of course not... I would bet my life on it there is marijuana in it. Actually I don't need to do that as he admitted to me last night that he has some.
There was arrangements being made for him to go into a group home. They were redoing the room so it was taking a little longer for them to paint etc. His nurse went and cleaned him up pretty good for the meeting. I was impressed when I saw him. Sadly he lost his spot. I guess he was acting pretty inappropriate while at this meeting. My son didn't want to go there since he knew arrangements were being made for him to possibly go with his grandmother. He made that pretty clear during the meeting that he didn't want to be there.
The shelter gives first priority to PACT clients. My son was a shoe-in. Normally one has to wait a long time to get into a group home but circumstances arose at just the right time. I remember thinking: Finally. We can start getting him on the right track to growing up and being responsible. I was wrong. Another PACT client got it.
Last week I found out that a plane ticket was in the works.
The conversations regarding this between my husband and I has been... He sounds like I did a year ago. Can't you do this? What if you do that? He can't go there... Did you tell so and so about this? Yes I've done it all. Which is most likely why there was zero assistance coming from anyone on this end to help it happen. No one would even take him to the airport however just like before, no one could stop it. Legally an adult and I don't have power of attorney.
This Monday was a tough day for me. After a weekend of trying to resolve myself to the idea of yet again letting go and letting my son mess up his life even further, I ended up going to the store and buying cigarettes. 3 months... I stood there thinking I can fall apart right now which I'm not inclined to do or smoke. I was also butting heads with my boss and ready to quit for a moment ;).
For the past 24 hours or so I have been struggling with feelings of hurt. I know that I can sometimes sound pretty harsh about my son's grandmother. I'm certainly not in agreement with what she tries to do. Still I have always understood that she thinks she is doing what is best and that her actions are out of love for my son. We just don't agree on what love is ;).
I know that I try to come off like I don't care what other people think of me. Of course I do to a certain extent. I don't change what I'm doing because of it because I truly believe in what I'm doing and why.
I found out how my son was going to get to the airport. His great-uncle. I haven't spoken to this person since I was with my kids Dad. However when we were together we used to hang out with him a lot... I called him and left him a message to please call me before putting my son on a plane. I have been informed that he won't talk to me except to... well anyways. All he knows about me now is what he has been told by my son's grandmother. I can only imagine the horrible person that he thinks that I am. How I'm turning my back on my son, putting him out on the streets and certainly not showing him any love... Yes the thought of someone thinking about me like that, hurts. Surprisingly it hurts a lot. Not much I can do except remind myself that however he sees me is behind the glass of his own glass house.
Yesterday morning I was informed that he wasn't going there. His grandmother had changed her mind.
Now what? I don't know. Again time has been lost where his treatment team could have been looking for housing for him. I saw my son last night. Would I consider taking him back? Yes if there is power of attorney. My son says that power of attorney is against his religion.
This brings me to the second opinion. I want a second opinion on his diagnoses. I know that I have questioned if he has schizophrenia and then I end up falling back on that diagnoses. Still there has always been something that says that there is a lot more going on. When he gets sick he presents as schizophrenic. I had asked his nurse to bring it up to his treatment team to have him re-evaluated. His nurse got turned down. Due to my son's history of diagnoses and referrals etc the schizophrenia diagnoses is staying. That means that one doctor reads another doctors notes, sees my son while he is again presenting with apparent psychosis and nods his head in agreement. Yes, schizophrenia. Let's not question the status-quo.
Here's a what if? What if in 2011 the doctor's in British Colombia knew the extent of my son's marijuana use. The marijuana use that was hidden from them and covered up. The marijuana use that was causing his medications to not work and therefore giving him the diagnoses note of: Medication resistant. The marijuana use that got him the sub-type diagnoses of paranoid schizophrenia. It's always been the marijuana that causes him to be paranoid. When he isn't using the paranoia is gone, the belief in chi, telekinesis and whatever else he used to do before coming to live with me, is also gone. Without marijuana where is his paranoid schizophrenia? Good question.
Since he has been in the shelter I'm pretty sure he is back to daily use again. He is way to mellow. Not a care in the world. He is presenting as someone in psychosis... Takes a long time to answer a question or respond when asked to do something. I was told that the shelter staff have been having to direct him or tell him to not being doing certain things like lying on the floors etc. It's because he is stoned.
I really wish a professional would take the time to help me understand what I'm seeing and put it all into perspective because it's not adding up. As far as I know the defining characteristic of having a psychotic break is losing touch with reality. My son doesn't lose touch with reality. This has always been something that keeps standing out for me. Over the years conversations about his breaks has come up. He remembers all of his breaks, if that is what they are. He remembers his first one where he was catatonic. He heard everyone talking to him and felt them touching him. He was just lost in his own head from the all of the marijuana that he had smoked. The first break I went through with him where he believed he was a vampire, in a gang and chewed on my fingernails. He remembers doing that. When he punched out his grandmother. He remembers all of that. He didn't break with reality. In each of these instances he had been smoking marijuana and having recently stopped taking prescribed amounts of medications or stopped completely. Even if one doesn't have psychosis and stops medications like that then the rebound affect can be psychosis. And yet even with all that my son doesn't break with reality. So many times I will think that he is lost in there. Until you say or do something and realize he is very much aware.
I'm not sure what my son's mental illnesses are... I have some thoughts and ideas and they fit better then schizophrenia. Sadly schizophrenia would probably be the better choice. Since the beginning I have questioned if what I'm seeing is sociopath. That is also in his genes. I questioned narcissism. A lot of the characteristics of his personality that can't be explained or attributed to schizophrenia or even ADHD and ODD can be seen and makes sense if one has narcissistic personality disorder. Could what he is going through be the beginning stages of either one of these? My son is still young. His personality is still developing. I have watched him become more and more adapt at manipulation. I have watched his mood swings and play of emotions when he isn't getting what he wants. Narcissistic are not without emotion. In fact they have lots of them and can be very loving I'm sure when it suites their own purposes. What happens when they aren't getting what they want or what they feel they deserve?
My son just called me. He wants me to come see him today. I was surprised at that request since he knows that I'm not going to give him any money and I dropped of smokes last night. Sometimes he breaks my heart into little pieces. I was watching some teenagers on skateboards last night. My son has missed out on all that. Regardless of what my childhood and life has been, I had playing in the rain, fighting with my best friends, sleep-overs, embarrassing classroom moments, first loves, first break-ups and learning about sex all the wrong ways...
I can't give him his lost childhood. I wish that I could give him his adulthood.
The very same people who are treating me like I'm nothing are the very same people who are leaving me to pick up the pieces time and time again with no support. I find it somewhat ironic. Strike that. I find it very ironic. If I'm such a horrible mother/person who doesn't know how to love or help my son, why am I the one being left to deal with the consequences of other peoples choices yet again?
Time to get some things out of the way before I start work.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Life, as it does, has kept going.
My son is currently in a shelter. He did come home for a little while.
I did manage to arrange a family meeting while he was inpatient. A lot of good that did. I shouldn't say that. His case manager requested that they do a assessment of my son to see what type of life skills he has for living on his own. No surprise there. He doesn't have any. He never has. He can't take care of himself when he is living in an environment when most of his basic needs are being taken care of. His level of self-care is non-existent at this point.
Since there was no where for him to go when it came time for him to be released from the hospital, I brought him home. He certainly wasn't stable, just not in crisis anymore.
It took less the 24 hours for things to start to fall apart. 5 days later he was in a shelter. During that short time it was attitude about everything. Smoking in his room. Sleeping outside on the front steps. Leaving a trail of mess wherever he went including spit and vomit. Swearing at me... It all came to a head when my husband asked him to clean up his mess on the front steps as there was cigarette butts everywhere, garbage and glass dishes that we were worried a kid could get hurt since they play around my front steps. That wasn't taken very well by my son. The end result... Michael throwing my coffee maker on the floor, smashing it and screaming in my face to F-off. The next day I had his nurse take him to the shelter.
For the most part it's been the same as any other shelter stay. Calling me for money and cigarettes. He did receive a payment from disability for almost $600 while in there. That was gone in no time. He told me that he got robbed. I don't believe it. I know what he was like the last time he got robbed. How upset and animated he was about it. This time... Nothing but calm. We did end up buying him 2 cartoons of cigarettes that was gone is just over a week. According to my son they kept disappearing, that someone must be taking them out of his backpack. You would have to see my son with his backpack. It doesn't leave his side. Of course not... I would bet my life on it there is marijuana in it. Actually I don't need to do that as he admitted to me last night that he has some.
There was arrangements being made for him to go into a group home. They were redoing the room so it was taking a little longer for them to paint etc. His nurse went and cleaned him up pretty good for the meeting. I was impressed when I saw him. Sadly he lost his spot. I guess he was acting pretty inappropriate while at this meeting. My son didn't want to go there since he knew arrangements were being made for him to possibly go with his grandmother. He made that pretty clear during the meeting that he didn't want to be there.
The shelter gives first priority to PACT clients. My son was a shoe-in. Normally one has to wait a long time to get into a group home but circumstances arose at just the right time. I remember thinking: Finally. We can start getting him on the right track to growing up and being responsible. I was wrong. Another PACT client got it.
Last week I found out that a plane ticket was in the works.
The conversations regarding this between my husband and I has been... He sounds like I did a year ago. Can't you do this? What if you do that? He can't go there... Did you tell so and so about this? Yes I've done it all. Which is most likely why there was zero assistance coming from anyone on this end to help it happen. No one would even take him to the airport however just like before, no one could stop it. Legally an adult and I don't have power of attorney.
This Monday was a tough day for me. After a weekend of trying to resolve myself to the idea of yet again letting go and letting my son mess up his life even further, I ended up going to the store and buying cigarettes. 3 months... I stood there thinking I can fall apart right now which I'm not inclined to do or smoke. I was also butting heads with my boss and ready to quit for a moment ;).
For the past 24 hours or so I have been struggling with feelings of hurt. I know that I can sometimes sound pretty harsh about my son's grandmother. I'm certainly not in agreement with what she tries to do. Still I have always understood that she thinks she is doing what is best and that her actions are out of love for my son. We just don't agree on what love is ;).
I know that I try to come off like I don't care what other people think of me. Of course I do to a certain extent. I don't change what I'm doing because of it because I truly believe in what I'm doing and why.
I found out how my son was going to get to the airport. His great-uncle. I haven't spoken to this person since I was with my kids Dad. However when we were together we used to hang out with him a lot... I called him and left him a message to please call me before putting my son on a plane. I have been informed that he won't talk to me except to... well anyways. All he knows about me now is what he has been told by my son's grandmother. I can only imagine the horrible person that he thinks that I am. How I'm turning my back on my son, putting him out on the streets and certainly not showing him any love... Yes the thought of someone thinking about me like that, hurts. Surprisingly it hurts a lot. Not much I can do except remind myself that however he sees me is behind the glass of his own glass house.
Yesterday morning I was informed that he wasn't going there. His grandmother had changed her mind.
Now what? I don't know. Again time has been lost where his treatment team could have been looking for housing for him. I saw my son last night. Would I consider taking him back? Yes if there is power of attorney. My son says that power of attorney is against his religion.
This brings me to the second opinion. I want a second opinion on his diagnoses. I know that I have questioned if he has schizophrenia and then I end up falling back on that diagnoses. Still there has always been something that says that there is a lot more going on. When he gets sick he presents as schizophrenic. I had asked his nurse to bring it up to his treatment team to have him re-evaluated. His nurse got turned down. Due to my son's history of diagnoses and referrals etc the schizophrenia diagnoses is staying. That means that one doctor reads another doctors notes, sees my son while he is again presenting with apparent psychosis and nods his head in agreement. Yes, schizophrenia. Let's not question the status-quo.
Here's a what if? What if in 2011 the doctor's in British Colombia knew the extent of my son's marijuana use. The marijuana use that was hidden from them and covered up. The marijuana use that was causing his medications to not work and therefore giving him the diagnoses note of: Medication resistant. The marijuana use that got him the sub-type diagnoses of paranoid schizophrenia. It's always been the marijuana that causes him to be paranoid. When he isn't using the paranoia is gone, the belief in chi, telekinesis and whatever else he used to do before coming to live with me, is also gone. Without marijuana where is his paranoid schizophrenia? Good question.
Since he has been in the shelter I'm pretty sure he is back to daily use again. He is way to mellow. Not a care in the world. He is presenting as someone in psychosis... Takes a long time to answer a question or respond when asked to do something. I was told that the shelter staff have been having to direct him or tell him to not being doing certain things like lying on the floors etc. It's because he is stoned.
I really wish a professional would take the time to help me understand what I'm seeing and put it all into perspective because it's not adding up. As far as I know the defining characteristic of having a psychotic break is losing touch with reality. My son doesn't lose touch with reality. This has always been something that keeps standing out for me. Over the years conversations about his breaks has come up. He remembers all of his breaks, if that is what they are. He remembers his first one where he was catatonic. He heard everyone talking to him and felt them touching him. He was just lost in his own head from the all of the marijuana that he had smoked. The first break I went through with him where he believed he was a vampire, in a gang and chewed on my fingernails. He remembers doing that. When he punched out his grandmother. He remembers all of that. He didn't break with reality. In each of these instances he had been smoking marijuana and having recently stopped taking prescribed amounts of medications or stopped completely. Even if one doesn't have psychosis and stops medications like that then the rebound affect can be psychosis. And yet even with all that my son doesn't break with reality. So many times I will think that he is lost in there. Until you say or do something and realize he is very much aware.
I'm not sure what my son's mental illnesses are... I have some thoughts and ideas and they fit better then schizophrenia. Sadly schizophrenia would probably be the better choice. Since the beginning I have questioned if what I'm seeing is sociopath. That is also in his genes. I questioned narcissism. A lot of the characteristics of his personality that can't be explained or attributed to schizophrenia or even ADHD and ODD can be seen and makes sense if one has narcissistic personality disorder. Could what he is going through be the beginning stages of either one of these? My son is still young. His personality is still developing. I have watched him become more and more adapt at manipulation. I have watched his mood swings and play of emotions when he isn't getting what he wants. Narcissistic are not without emotion. In fact they have lots of them and can be very loving I'm sure when it suites their own purposes. What happens when they aren't getting what they want or what they feel they deserve?
My son just called me. He wants me to come see him today. I was surprised at that request since he knows that I'm not going to give him any money and I dropped of smokes last night. Sometimes he breaks my heart into little pieces. I was watching some teenagers on skateboards last night. My son has missed out on all that. Regardless of what my childhood and life has been, I had playing in the rain, fighting with my best friends, sleep-overs, embarrassing classroom moments, first loves, first break-ups and learning about sex all the wrong ways...
I can't give him his lost childhood. I wish that I could give him his adulthood.
The very same people who are treating me like I'm nothing are the very same people who are leaving me to pick up the pieces time and time again with no support. I find it somewhat ironic. Strike that. I find it very ironic. If I'm such a horrible mother/person who doesn't know how to love or help my son, why am I the one being left to deal with the consequences of other peoples choices yet again?
Time to get some things out of the way before I start work.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, February 13, 2015
Brick by Brick
My new Facebook page has been growing. I feel privileged for the opportunity to share my story with others. A picture/quote that came across my news-feed yesterday:
I'm not saying that anyone is throwing bricks at me however sometimes it feels that way. Yesterday was an emotional day for me. Regrettably I lost it a little bit on several people. I don't regret my feelings, not at all. I do regret acting on them. Having vented some of my frustration, I think today I am in better control and able to blog about it without being to negative... At least I hope so :).
Thursday evening my son called, stoned, stating that he was being getting kicked out of the shelter due to marijuana use. I could hear someone in the back ground talking to my son about him going to another shelter. At this point I wasn't worried about my son having a place to go as it sounded like it was being taken care of. I did call the shelter shortly after and got privacy laws quoted to me. They passed on the message to my son that I had called and he called me back. He let me know that they had agreed to let him stay. I asked him to sign a release so that I could talk to the shelter and he refused.
From my point of view based on limited information, my son was safe and it appeared he was playing at the same game as September 2014. Honestly I still think he is to a certain degree however hopefully it all won't play out the same way.
Please note: Below is a reflection of my thoughts and feelings. It is my blog after all :)
The last time that I had spoken to my son's Nana was on Tuesday and she said she would probably call me back later that day. I had asked her to not agree to my son having the option of going back to British Columbia because when this happens it gives my son the freedom to turn his back on me and the services available to him here. My son isn't looking at long-term anything. He only sees if he is getting what he wants which for him right now is the opportunity and freedom to use marijuana. Whether it's today, tomorrow or 6 months down the road. I know the mindset of an addict and suffering through anything is worth it if you know the opportunity to use again is waiting.
Wednesday night I commented to my hubby that she hadn't called... My hubby told me to call her because he felt that there was something going on behind my back again. I got mad at hubby, telling him to revisit his CBT thinking and that I believed we weren't going to go down that path again. That we were talking this time and that she had given me her word. Sometimes I should listen to my hubby ;).
In between all this I'm trying to get a hold of disability and limit the damage that I am afraid my son will do to himself if he gets what he wants. Since my son wouldn't sign a release and no one at the shelter would call me back I was under the impression that my son was being taken care of and that everything was ok. Well aside from the fact that he was in a shelter...
Yesterday I started to get an uneasy feeling since I had still not received a phone call which at this point I found really odd. I decided to call Nana myself. I can't say that the conversation went very well. Eventually I had to hang up before I completely lost it. This is when I find out that obviously my son had signed a release for the shelter to talk to his Nana. This is when I find out that she had called the shelter about them not kicking him out. Yes I am grateful for that.
Honestly I don't remember all of the conversation as some key phrases caught my attention. As I stood outside smoking, trying to keep my cool and listen... I didn't keep my cool. 'I don't want him out in the snow.' I have heard this before and the result of this thinking got my son the worst break he has ever had. I don't think I can describe the fear for my son's future that overwhelmed me. 'He can't come here now but after he....' Like I said before in my son's way of thinking he has already won the opportunity to get what he wants which is the freedom to use marijuana. A little FYI. My daughter currently lives with Nana. The thought of her being physically put in harms way makes me feel sick to my stomach. 'She won't be living here then...' For me these few words told me all that I needed to know OR was able to retain at the time.
I think what totally pushed me over the edge was being told that I was wrong in believing in 'tough love' and that everyone else was telling her that I was wrong. I couldn't get my mind around it. Who was everyone else? At this point no one knew my side of what had happened. What professionals had been consulted? I find out that the same women from Ready4Life that had previously been involved, is involved again and as far as I can tell played a very incompetent game of telling both Nana and myself that we were doing the right thing and after assuring me that she would not drop the ball... Dropped the ball.
I'm not proud of some of the things that I said. I do regret letting my feelings of hurt, fear and betrayal govern my words. I don't regret my feelings. In my eyes what happened is that my son was once again give the opportunity to turn his back on me and the kind of support that I want to provide because I believe he can be and do better. All I could see was my son being in the same situation in British Columbia that he has been in time and time again. Things may not always be smooth sailing here in Ontario however his schizophrenia and more importantly his addiction has not been given free reign to wreck havoc on his brain.
I'm still having a hard time getting my mind around this. Just like the last time I am but a phone call away. Physically I am 20 minutes away from my son. If anything about my actions are in question. Pick up the phone and call me! If my son is literally at risk of being out on the streets. Pick up the phone and call me! I thought that there had been an agreement after the last fiasco that we would pick up the phone... "Fool me once shame on you. Fool me twice shame on me."
I was so pissed off by the time I got of the phone. I was shaking and struggled to not cry. I came inside and I thought this is enough. The shelter needed to be set straight and any misconceptions that I was feeling they may have needed to be addressed. I called them and said: This is 'blank's' mom and I know that you can't talk to me but I KNOW that you can listen and I need to talk to someone about my son. I was put through to someone.
I am so thankful that I had enough sense to not let this go and to in a sense push myself onto the shelter. I am also thankful that the lady I spoke to was understanding of my yelling at her. Yes I yelled at her a lot. I couldn't understand how it was that I had called and left a message on Tuesday stating my son's diagnoses and for them to call me with no return phone call. Or that his Nana was able to be involved from another province yet I was being excluded. Granted it is partly due to my son's wonderful resistance to signing a release giving me access.
One of the first things I was told was that the police dropped of my son stating that I had kicked him out. I was again shocked. Yes I yelled at her: I did not kick out my son. He did this all on his own because he doesn't want to pay me room and board and wants to get high. And he got what he wanted as he did get high. Through a fair amount of yelling and even some tears I managed to, I hope, give them a bigger picture of what is going on. I think a apologized several times for yelling. She was very nice about it saying she could hear me crying...
I guess the reason they had not called me is because they had been told that I had kicked out my son. I guess it looked like I was turning my back on my son and not being supportive. I made it very clear that I have been here and that every decision that I have made has been based on the advise of professionals. Yes my son's grandmother loves my son. I have never denied that however when that love keeps my from learning to manage his own illness and addiction or accept responsibility for his actions then yes I have an issue.
My son needs support. I am in complete agreement. They were not aware that my son was a part of The PACT Team and that through this team he has access to a psychiatrist, nurse, case worker and peer support. Yes they are understaffed at the moment which complicates things however my son has refused to participate actively in his own treatment. Why should he? Every time things get tough he gets to run away instead of learning to help himself.
My son needs anger management and treatment. Again I'm in complete agreement. I have known for 2 years now that my son needs anger management. I can only work with the services that I am aware of and PACT does not offer anger management. He needs drug rehab and treatment. I have looked into those too. My son refuses. So unless he is in a situation like he is currently in, my hands get tied as to what I can do. Unless I get power of attorney I can't force my son to take these steps. Instead I get to try my best to but things back to together, to have them torn apart again and again.
Because of my phone call and resulting 'temper tantrum' the lady had my son sign releases for me and the PACT team! *big sigh of relief* I am no longer on the outside of this situation. *fingers crossed* he may even get transferred into a treatment facility where he should have gone years ago. There was also talk of other services that I was unaware of. Like I said I'm so glad I made that call. In the beginning I could hear/feel the walls that were up regarding me. I do believe I tore them down. At least I really hope so because my goal here is NOT to increase my son's suffering but to increase his chances of having a future.
I texted him last night letting him know that I love him. He replied that he loved me to. Brick by brick I will rebuild...
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I'm not saying that anyone is throwing bricks at me however sometimes it feels that way. Yesterday was an emotional day for me. Regrettably I lost it a little bit on several people. I don't regret my feelings, not at all. I do regret acting on them. Having vented some of my frustration, I think today I am in better control and able to blog about it without being to negative... At least I hope so :).
Thursday evening my son called, stoned, stating that he was being getting kicked out of the shelter due to marijuana use. I could hear someone in the back ground talking to my son about him going to another shelter. At this point I wasn't worried about my son having a place to go as it sounded like it was being taken care of. I did call the shelter shortly after and got privacy laws quoted to me. They passed on the message to my son that I had called and he called me back. He let me know that they had agreed to let him stay. I asked him to sign a release so that I could talk to the shelter and he refused.
From my point of view based on limited information, my son was safe and it appeared he was playing at the same game as September 2014. Honestly I still think he is to a certain degree however hopefully it all won't play out the same way.
Please note: Below is a reflection of my thoughts and feelings. It is my blog after all :)
The last time that I had spoken to my son's Nana was on Tuesday and she said she would probably call me back later that day. I had asked her to not agree to my son having the option of going back to British Columbia because when this happens it gives my son the freedom to turn his back on me and the services available to him here. My son isn't looking at long-term anything. He only sees if he is getting what he wants which for him right now is the opportunity and freedom to use marijuana. Whether it's today, tomorrow or 6 months down the road. I know the mindset of an addict and suffering through anything is worth it if you know the opportunity to use again is waiting.
Wednesday night I commented to my hubby that she hadn't called... My hubby told me to call her because he felt that there was something going on behind my back again. I got mad at hubby, telling him to revisit his CBT thinking and that I believed we weren't going to go down that path again. That we were talking this time and that she had given me her word. Sometimes I should listen to my hubby ;).
In between all this I'm trying to get a hold of disability and limit the damage that I am afraid my son will do to himself if he gets what he wants. Since my son wouldn't sign a release and no one at the shelter would call me back I was under the impression that my son was being taken care of and that everything was ok. Well aside from the fact that he was in a shelter...
Yesterday I started to get an uneasy feeling since I had still not received a phone call which at this point I found really odd. I decided to call Nana myself. I can't say that the conversation went very well. Eventually I had to hang up before I completely lost it. This is when I find out that obviously my son had signed a release for the shelter to talk to his Nana. This is when I find out that she had called the shelter about them not kicking him out. Yes I am grateful for that.
Honestly I don't remember all of the conversation as some key phrases caught my attention. As I stood outside smoking, trying to keep my cool and listen... I didn't keep my cool. 'I don't want him out in the snow.' I have heard this before and the result of this thinking got my son the worst break he has ever had. I don't think I can describe the fear for my son's future that overwhelmed me. 'He can't come here now but after he....' Like I said before in my son's way of thinking he has already won the opportunity to get what he wants which is the freedom to use marijuana. A little FYI. My daughter currently lives with Nana. The thought of her being physically put in harms way makes me feel sick to my stomach. 'She won't be living here then...' For me these few words told me all that I needed to know OR was able to retain at the time.
I think what totally pushed me over the edge was being told that I was wrong in believing in 'tough love' and that everyone else was telling her that I was wrong. I couldn't get my mind around it. Who was everyone else? At this point no one knew my side of what had happened. What professionals had been consulted? I find out that the same women from Ready4Life that had previously been involved, is involved again and as far as I can tell played a very incompetent game of telling both Nana and myself that we were doing the right thing and after assuring me that she would not drop the ball... Dropped the ball.
I'm not proud of some of the things that I said. I do regret letting my feelings of hurt, fear and betrayal govern my words. I don't regret my feelings. In my eyes what happened is that my son was once again give the opportunity to turn his back on me and the kind of support that I want to provide because I believe he can be and do better. All I could see was my son being in the same situation in British Columbia that he has been in time and time again. Things may not always be smooth sailing here in Ontario however his schizophrenia and more importantly his addiction has not been given free reign to wreck havoc on his brain.
I'm still having a hard time getting my mind around this. Just like the last time I am but a phone call away. Physically I am 20 minutes away from my son. If anything about my actions are in question. Pick up the phone and call me! If my son is literally at risk of being out on the streets. Pick up the phone and call me! I thought that there had been an agreement after the last fiasco that we would pick up the phone... "Fool me once shame on you. Fool me twice shame on me."
I was so pissed off by the time I got of the phone. I was shaking and struggled to not cry. I came inside and I thought this is enough. The shelter needed to be set straight and any misconceptions that I was feeling they may have needed to be addressed. I called them and said: This is 'blank's' mom and I know that you can't talk to me but I KNOW that you can listen and I need to talk to someone about my son. I was put through to someone.
I am so thankful that I had enough sense to not let this go and to in a sense push myself onto the shelter. I am also thankful that the lady I spoke to was understanding of my yelling at her. Yes I yelled at her a lot. I couldn't understand how it was that I had called and left a message on Tuesday stating my son's diagnoses and for them to call me with no return phone call. Or that his Nana was able to be involved from another province yet I was being excluded. Granted it is partly due to my son's wonderful resistance to signing a release giving me access.
One of the first things I was told was that the police dropped of my son stating that I had kicked him out. I was again shocked. Yes I yelled at her: I did not kick out my son. He did this all on his own because he doesn't want to pay me room and board and wants to get high. And he got what he wanted as he did get high. Through a fair amount of yelling and even some tears I managed to, I hope, give them a bigger picture of what is going on. I think a apologized several times for yelling. She was very nice about it saying she could hear me crying...
I guess the reason they had not called me is because they had been told that I had kicked out my son. I guess it looked like I was turning my back on my son and not being supportive. I made it very clear that I have been here and that every decision that I have made has been based on the advise of professionals. Yes my son's grandmother loves my son. I have never denied that however when that love keeps my from learning to manage his own illness and addiction or accept responsibility for his actions then yes I have an issue.
My son needs support. I am in complete agreement. They were not aware that my son was a part of The PACT Team and that through this team he has access to a psychiatrist, nurse, case worker and peer support. Yes they are understaffed at the moment which complicates things however my son has refused to participate actively in his own treatment. Why should he? Every time things get tough he gets to run away instead of learning to help himself.
My son needs anger management and treatment. Again I'm in complete agreement. I have known for 2 years now that my son needs anger management. I can only work with the services that I am aware of and PACT does not offer anger management. He needs drug rehab and treatment. I have looked into those too. My son refuses. So unless he is in a situation like he is currently in, my hands get tied as to what I can do. Unless I get power of attorney I can't force my son to take these steps. Instead I get to try my best to but things back to together, to have them torn apart again and again.
Because of my phone call and resulting 'temper tantrum' the lady had my son sign releases for me and the PACT team! *big sigh of relief* I am no longer on the outside of this situation. *fingers crossed* he may even get transferred into a treatment facility where he should have gone years ago. There was also talk of other services that I was unaware of. Like I said I'm so glad I made that call. In the beginning I could hear/feel the walls that were up regarding me. I do believe I tore them down. At least I really hope so because my goal here is NOT to increase my son's suffering but to increase his chances of having a future.
I texted him last night letting him know that I love him. He replied that he loved me to. Brick by brick I will rebuild...
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Thursday, December 4, 2014
Hospitals - Good or Bad, Pat Deegan PhD
If you read my last post... I guess I jinxed it! My son has started saying no taking a multi-vitamin. So much for knocking on wood ;) I will keep trying of course!
His case worker was here this morning with some paper work to sign. One was giving them access to help take care of his medications for him by switching pharmacies to the one they use. That way they can be more on top of them and deliver them to him.
She also had paperwork for some group homes and other types of housing. I knew this was coming and I've been somewhat at war with myself on which way to go. I certainly don't want my son and I butting heads as we have in the past and I do believe that he needs to eventually make this step however I decided that for right now, he is not ready. The group home will have expectations that I don't think he can meet right now. The better one will expect him to participate in activities outside of the home during the day which will be great when he reaches the point of being able to go to school or work but right now it will be too much for him. Other housing types involve shared living which I'm sure my son would think is great until it comes time for him to do his share of the chores etc ;) Again something that needs to happen but not while he is still getting his feet back under him. I let him know that for now we are putting this on hold and he was in agreement.
He asked me something either last night or the night before about going to the hospital. First he said he wanted to go for a check up and I let him know that I could arrange this with the family doctor if he feels that he needs one and he said yes. I haven't arranged it as upon further discussion this is not what he meant. He wanted to go and just be there for a couple of days to rest. It's sad that our health care system is so overburdened that the opportunity for someone to check themselves 'for a rest' is not really an option. I reminded him that it doesn't work that way and that he usually ends up in emergency for days until a bed opens up which is not where he wants to be. If that option was available though I would have gladly taken him. I'm actually happy that he considers this to be an option. I remember him telling me after his hospitalization here in September 2013 that he would like to come back and 'visit for a rest' sometime. I don't know what his future holds however hospitals are probably going to be a part of the rest of his life and he needs to feel like they are a safe place to go when needed.
This question got me thinking. I know that on the outside looking in that the conditions one finds oneself while inpatient is not usually ideal. You aren't checking into a 5 star hotel. It's more like a bottom of the line fast food chain... However when you are hungry and it is taking care of your needs then even a fast food chain has it's purposes. Sometimes the good out-ways the bad. I remember when my daughter was in the hospital for back surgery... For days she went through agony because the nursing staff seriously didn't have a clue. Certainly not ideal however it was still the best place for her. Like I said this question got me thinking. There is a lady named Patricia Deegan who has a PhD in psychology and is a researcher. She is also diagnosed with schizophrenia. While watching one of her videos she said something that stuck with me. It was along the lines of not just taking medications or just going to the hospital but using medications and using the hospital. I don't know why but this spoke volumes to me of taking an active, not passive approach to treatment. Of using what is available to ones benefit. Granted my son is far from this, yet, however the hospital needs to feel like a safe place for him and I'm glad that it does.
Some links for Patricia Deegan PhD.
Pat Deegan
Patricia Deegan's amazing story (video)
Mom
BarbieBF
His case worker was here this morning with some paper work to sign. One was giving them access to help take care of his medications for him by switching pharmacies to the one they use. That way they can be more on top of them and deliver them to him.
She also had paperwork for some group homes and other types of housing. I knew this was coming and I've been somewhat at war with myself on which way to go. I certainly don't want my son and I butting heads as we have in the past and I do believe that he needs to eventually make this step however I decided that for right now, he is not ready. The group home will have expectations that I don't think he can meet right now. The better one will expect him to participate in activities outside of the home during the day which will be great when he reaches the point of being able to go to school or work but right now it will be too much for him. Other housing types involve shared living which I'm sure my son would think is great until it comes time for him to do his share of the chores etc ;) Again something that needs to happen but not while he is still getting his feet back under him. I let him know that for now we are putting this on hold and he was in agreement.
He asked me something either last night or the night before about going to the hospital. First he said he wanted to go for a check up and I let him know that I could arrange this with the family doctor if he feels that he needs one and he said yes. I haven't arranged it as upon further discussion this is not what he meant. He wanted to go and just be there for a couple of days to rest. It's sad that our health care system is so overburdened that the opportunity for someone to check themselves 'for a rest' is not really an option. I reminded him that it doesn't work that way and that he usually ends up in emergency for days until a bed opens up which is not where he wants to be. If that option was available though I would have gladly taken him. I'm actually happy that he considers this to be an option. I remember him telling me after his hospitalization here in September 2013 that he would like to come back and 'visit for a rest' sometime. I don't know what his future holds however hospitals are probably going to be a part of the rest of his life and he needs to feel like they are a safe place to go when needed.
This question got me thinking. I know that on the outside looking in that the conditions one finds oneself while inpatient is not usually ideal. You aren't checking into a 5 star hotel. It's more like a bottom of the line fast food chain... However when you are hungry and it is taking care of your needs then even a fast food chain has it's purposes. Sometimes the good out-ways the bad. I remember when my daughter was in the hospital for back surgery... For days she went through agony because the nursing staff seriously didn't have a clue. Certainly not ideal however it was still the best place for her. Like I said this question got me thinking. There is a lady named Patricia Deegan who has a PhD in psychology and is a researcher. She is also diagnosed with schizophrenia. While watching one of her videos she said something that stuck with me. It was along the lines of not just taking medications or just going to the hospital but using medications and using the hospital. I don't know why but this spoke volumes to me of taking an active, not passive approach to treatment. Of using what is available to ones benefit. Granted my son is far from this, yet, however the hospital needs to feel like a safe place for him and I'm glad that it does.
Some links for Patricia Deegan PhD.
Pat Deegan
Patricia Deegan's amazing story (video)
Mom
BarbieBF
Friday, November 7, 2014
The Worry Jar
I saw reference to this on one of the groups that I'm in. It was for children but I thought why can't I have one too? So I got a jar, wrote down most of my worries and put them in the jar...
That I won't get out of dept
That I won't be able to help my son and keep him stable and safe
That my son will hate me for what I need to do
You get the point... I tend to worry and over think things so even if only for a moment it was a relief to put those worries in a jar... In a safe place... Until I'm ready to pull them out. Kind of like housework :) It's not going anywhere and will wait for me.
The Worry Jar Technique: Help Your Child Overcome Worries and Anxiety
The Worry Solution
I was talking to my best friend and another call came through... It was my son. I ended up having a good cry once I got off the phone. Still am a little bit ;) I can't say that I have heard him sound quit so lost and hopeless. The Invega is working so he is much more coherent but he is still somewhat delusional. He wants me and him to move to another country... The first thing he asked me is if I was coming to get him. For the first time in a long time, probably since the Adderall... he seemed to genuinely believe that I love him! I think that is what broke me, when he said that he knew that I loved him. No ego, no defiance..
I told him that I want to get power of attorney so that this doesn't happen again. He asked about getting or being his own attorney and I told him that up until now he has been his own attorney and look at where it has gotten him. In the hospital again and that even if he doesn't realize it he is lucky that he isn't in jail. I think he is having a hard time understanding what happened. I am not a scientist however I think after psychosis the brain tries to piece together what happened in a reasonably logical way and the pieces just don't fit so confabulations are created.
I did my best to explain to him what me having power of attorney means. That if he decides to go off of medications that I think that he needs then I get to make that decision. I asked him if he is willing to have me help him get his life back on track, back to where we were before the Adderall, to be his attorney or decision maker and he said yes. It was heartbreaking to have my son tell me that he is only looking forward to being here with me and doing nothing because no one well ever want him. As I have always tried to do. I told him that he is so much more then that. That he is an awesome human being and that I will do my best to give him the live that he deserves. That I will not let schizophrenia do this to him without a fight. I love him too much. So no he can not come here and do nothing... My rules have not changed. That I will push him to be the person that I know that he is capable of being.
I asked him if he still had voices, not to lie to me because I know that he did. He says the entities are gone now and that he is alone, that it is just him. Apparently they were driving him nuts (I smiled too!), constantly nagging him. I told him these entities are a part of schizophrenia and that the Invega will help keep them away. Him wanting them gone is a good thing.
I asked him to be a little patient and to give me some time to try to get everything sorted out. I'm still waiting to hear back from disability and the lawyer. Hopefully Monday will have my phone ringing with the answers that I need.
Mom
BarbieBF
That I won't get out of dept
That I won't be able to help my son and keep him stable and safe
That my son will hate me for what I need to do
You get the point... I tend to worry and over think things so even if only for a moment it was a relief to put those worries in a jar... In a safe place... Until I'm ready to pull them out. Kind of like housework :) It's not going anywhere and will wait for me.
The Worry Jar Technique: Help Your Child Overcome Worries and Anxiety
The Worry Solution
I was talking to my best friend and another call came through... It was my son. I ended up having a good cry once I got off the phone. Still am a little bit ;) I can't say that I have heard him sound quit so lost and hopeless. The Invega is working so he is much more coherent but he is still somewhat delusional. He wants me and him to move to another country... The first thing he asked me is if I was coming to get him. For the first time in a long time, probably since the Adderall... he seemed to genuinely believe that I love him! I think that is what broke me, when he said that he knew that I loved him. No ego, no defiance..
I told him that I want to get power of attorney so that this doesn't happen again. He asked about getting or being his own attorney and I told him that up until now he has been his own attorney and look at where it has gotten him. In the hospital again and that even if he doesn't realize it he is lucky that he isn't in jail. I think he is having a hard time understanding what happened. I am not a scientist however I think after psychosis the brain tries to piece together what happened in a reasonably logical way and the pieces just don't fit so confabulations are created.
I did my best to explain to him what me having power of attorney means. That if he decides to go off of medications that I think that he needs then I get to make that decision. I asked him if he is willing to have me help him get his life back on track, back to where we were before the Adderall, to be his attorney or decision maker and he said yes. It was heartbreaking to have my son tell me that he is only looking forward to being here with me and doing nothing because no one well ever want him. As I have always tried to do. I told him that he is so much more then that. That he is an awesome human being and that I will do my best to give him the live that he deserves. That I will not let schizophrenia do this to him without a fight. I love him too much. So no he can not come here and do nothing... My rules have not changed. That I will push him to be the person that I know that he is capable of being.
I asked him if he still had voices, not to lie to me because I know that he did. He says the entities are gone now and that he is alone, that it is just him. Apparently they were driving him nuts (I smiled too!), constantly nagging him. I told him these entities are a part of schizophrenia and that the Invega will help keep them away. Him wanting them gone is a good thing.
I asked him to be a little patient and to give me some time to try to get everything sorted out. I'm still waiting to hear back from disability and the lawyer. Hopefully Monday will have my phone ringing with the answers that I need.
Mom
BarbieBF
Thursday, October 16, 2014
Before and After
We are done painting... for now... Still have the kitchen and doors to do. The kitchen will be done some day :). We have to get a different kind of paint for the doors but honestly neither my hubby or myself are looking forward to tackling those. I did take some before and after pics. Pardon the mess!
This is the living room.
This is the spare bedroom:
Our bedroom, I'm very happy with:
Do you see how high the bed is?! I almost need a footstool to get in it and hubby laughs at me when I slide off until my feet reach the floor. Other then the fact that it seems to collect dust faster then I can blink, I really do love it! By the way, that is an Elvis Presley, Jailhouse Rock Barbie and Pez on my dresser. Along with signed by DJ Fontana drumsticks!
I don't think the before pic of the spare bedroom walls does justice to the difference. My daughter went through a poster phase... Yup, tape all over two walls that I never could get completely off. My son finished the job with his feet wherever his computer desk was. The walls look much better now!
I talked to my son yesterday. While he sounded better then the last time I talked to him which was the day before he was admitted, he still didn't sound very good. He could follow me but was still pretty distracted and I had to repeat a lot of what I was saying. I asked him what pills (medications) he was taking and he told me Clozapine and Lithium but he didn't seem to know the name of the third one. When my son is stable he is pretty on top of the names of his medications so to me this is just another sign of how unwell he still is. I don't know if it's an indication of where he is at mentally or if he is still peeved at me however he wouldn't respond to me telling him that I loved him. Even when things were tough between us we had always managed to hold on to that to some degree. Now he sounds very cold and far away emotionally. Perhaps detached is a better word. I can't help but wonder if he is abusing percocets or something as even when unstable he is not usually that detached and cold. Even when he was at the shelter, before leaving, he would respond to me telling him that I loved him. Even if he didn't mean it he at least went through the motions. It felt like even doing that was too much for him. I did my best to let him know that I still loved him and despite what we went through that I will always love him, that nothing can change that.
Mom
BarbieBF
This is the living room.
Our bedroom, I'm very happy with:
Do you see how high the bed is?! I almost need a footstool to get in it and hubby laughs at me when I slide off until my feet reach the floor. Other then the fact that it seems to collect dust faster then I can blink, I really do love it! By the way, that is an Elvis Presley, Jailhouse Rock Barbie and Pez on my dresser. Along with signed by DJ Fontana drumsticks!
I don't think the before pic of the spare bedroom walls does justice to the difference. My daughter went through a poster phase... Yup, tape all over two walls that I never could get completely off. My son finished the job with his feet wherever his computer desk was. The walls look much better now!
I talked to my son yesterday. While he sounded better then the last time I talked to him which was the day before he was admitted, he still didn't sound very good. He could follow me but was still pretty distracted and I had to repeat a lot of what I was saying. I asked him what pills (medications) he was taking and he told me Clozapine and Lithium but he didn't seem to know the name of the third one. When my son is stable he is pretty on top of the names of his medications so to me this is just another sign of how unwell he still is. I don't know if it's an indication of where he is at mentally or if he is still peeved at me however he wouldn't respond to me telling him that I loved him. Even when things were tough between us we had always managed to hold on to that to some degree. Now he sounds very cold and far away emotionally. Perhaps detached is a better word. I can't help but wonder if he is abusing percocets or something as even when unstable he is not usually that detached and cold. Even when he was at the shelter, before leaving, he would respond to me telling him that I loved him. Even if he didn't mean it he at least went through the motions. It felt like even doing that was too much for him. I did my best to let him know that I still loved him and despite what we went through that I will always love him, that nothing can change that.
Mom
BarbieBF
Thursday, September 11, 2014
Betrayal
The definition of betrayal is the breaking or violation of a presumptive contract, trust, or confidence that produces moral or psychological conflict within a relationship...
At the moment I'm sure a lot of people are feeling betrayed however I can only speak of my own feelings regarding this. Truth for me in any form has always been very important to me. Regardless of what my son has gone through or is experiencing I have never lied to him, or anyone else and I have certainly not done things without being upfront about what I am doing and why. Lying by omission is the same as outright lying in my eyes as the intent to deceive is the same.
This last 24 plus hours have left me feeling betrayed. Yesterday I was so mad and frustrated that honestly speaking in a normal tone was almost beyond my capabilities which really isn't like me :) I have had to emotionally step back and examine what the root cause is and it's an overwhelming sense of betrayal. Not by my son. That doesn't mean that he is not hurting me however I do understand that schizophrenia is playing it's part in not allowing my son to see the bigger picture. He can't see past his current mental state. I know that he feels betrayed by me. I wish that I could change that however at least where I'm concerned he seems to measure love by how much I can give him. If I'm not spending money on him or letting him do whatever he wants then I don't love him.
That doesn't mean that I am not there for him as I have been for the past 15 months. There has not been a single moment where every decision and consequence has not been weighed with only one goal in mind and that is his stability and future. I am trying to give him what he needs not what he thinks he wants. A 5 year old says I want to stay up all night, drink pop/cola and watch horror movies. Do we let them just because it's what they want? No we don't because as parents we know that there is a much bigger picture and what that child needs is stability and boundaries. The child has a temper tantrum, rolls on the floor kicking and screaming telling us how horrible we are and that we don't love them. Any of this sound familiar? Unfortunately my son is 20 so his temper tantrums are not harmlessly rolling around on the floor kicking and screaming. They are putting holes in walls, breaking things, threatening physical violence and now he has the vocabulary and understanding of emotions to know how to manipulate them. I have listened to my son, lots, and I know how he measures and interprets love. Not at the age displayed on his birth certificate. One of the symptoms of schizophrenia is cognitive impairment. Schizophrenia is a mental disorder characterized by a breakdown of thought processes and by a deficit (loss) of typical emotional response. It's a splitting of mental functions. My son is unable, in my opinion, to act or react to emotions or his environment as his age implies. His emotions override rational thought on a bigger scale than is typical or normal. Because he feels something than it must be. Paranoia is a good example of this. I have marveled at my son's ability to turn a thought into reality regardless of the facts. The facts that don't serve him are quickly forgotten or ignored. As he has told me himself he just doesn't let himself think about it. One of the perks of his mental illness. I don't blame my son as it's not his fault that schizophrenia has done this however love for him is a tool that he uses to manipulate others into giving him what he wants.
So the question is. Do we give in and figuratively speaking hand over the keys to the car just because our child thinks they deserve it? For me the answer at some point has to be no. He can have my love, all that I have to give if he wants it, without monetary strings attached. BUT therein lies the problem. I'm done giving financially so I am of little use. My worth is tied to my bank card. For him it's time to move on...
It took some phone calls and piecing together to try and figure out what appears to have been going on. It's not so much what is being done but how it is being done. Before my son moved back with me, everything that I did was done upfront, not behind anyone's back. I kept everyone in the loop. I didn't hide what I was doing. I didn't not pick up a phone and inform the people involved of my actions and certainly not the very people who loved my son. It appears I have not been given this same consideration or respect. Despite the fact that I am here, everyday, talking to his care workers, trying to make plans, trying to keep my son stable, trying to make the system work for him even though he is fighting against it tooth and nail... I apparently do not warrant any consideration.
Honestly I'm pissed... Beyond pissed really. I want to yell and scream and remind everyone that despite what anyone thinks this is MY SON! And if anyone thinks that I am just going to sit back and let my son, without a fight, become the chronic marijuana smoking, percocet stealing, hallucinating, delusional boy that I brought home 15 months ago. They don't know me very well. It took me months to get him even remotely stable. I remember 16 months ago. I remember being begged to take him, now! I remember a boy who almost daily was calling me that he wanted to reincarnate, come back as a bird, so that he could fly to my window. Sending me videos from the hours that he spent doing telekinesis. I remember a boy who was so stoned at times that he could hardly talk. I remember the stolen percocets and the stolen bank card. I remember no food because he spent most of his money on marijuana. I remember sending money just so the rent could be paid. I remember sending money so that Christmas could happen. I remember being their for emotional support regardless of the circumstances. I researched medications. I researched diet and sent vitamins and supplements. I tried for months to get my son. Until one day when resources were tapped out I was told to take him! Not in a month or a week but now!
There is a much bigger picture then the circumstances that my son is currently finding himself. It took me everyday, constantly pushing, researching, working with his treatment team but we accomplished so much. He has not been inpatient in a year! He has been stable, in fact better then he has been in 4 years! He has been drug and alcohol free for long periods! He has attended school! I have done everything that I can do to not let schizophrenia have my son. I have advocated and fought even him when needed to keep him moving forward and stable. Regarding schizophrenia symptoms his worse days have been better then his best days 16 months ago.
I can only sit here and shake me head and ask wth is everyone thinking?! There is so much that I want to say. I'm trying my best to be diplomatic and fair which limits what I can unleash... I guess in the end I only have this to say. Where will my son be when the next heart attack happens? Where will my son be when one or both are inpatient or suicidal again? Who is going to keep him off of marijuana and percocets? Who is going to advocate less medications or even the right medications? Certainly not the psychiatrist he appears to be going back too. Of all the time he treated my son he couldn't even see that my son had ADHD which two other psychiatrists noted after meeting him only once. My son didn't like or respect him and certainly never listened to him. BUT he will prescribe Clonazepam or whatever benzo my son wants. Benzos that only make my son worse.
As much as I want to fight for my son it appears I have lost the fight which in my eyes means my son has lost too. Everything that I have done for the past 15 months has been for nothing. Everything that I have fought for and accomplished is now blowing uselessly in the wind. So with a very heavy heart and tearful eyes I wave the white flag of surrender...
Sorry this post probably doesn't make sense unless I state that it looks like my son is moving. Away from me and back to where he used to live 15 months ago.
Mom
BarbieBF
So the question is. Do we give in and figuratively speaking hand over the keys to the car just because our child thinks they deserve it? For me the answer at some point has to be no. He can have my love, all that I have to give if he wants it, without monetary strings attached. BUT therein lies the problem. I'm done giving financially so I am of little use. My worth is tied to my bank card. For him it's time to move on...
It took some phone calls and piecing together to try and figure out what appears to have been going on. It's not so much what is being done but how it is being done. Before my son moved back with me, everything that I did was done upfront, not behind anyone's back. I kept everyone in the loop. I didn't hide what I was doing. I didn't not pick up a phone and inform the people involved of my actions and certainly not the very people who loved my son. It appears I have not been given this same consideration or respect. Despite the fact that I am here, everyday, talking to his care workers, trying to make plans, trying to keep my son stable, trying to make the system work for him even though he is fighting against it tooth and nail... I apparently do not warrant any consideration.
Honestly I'm pissed... Beyond pissed really. I want to yell and scream and remind everyone that despite what anyone thinks this is MY SON! And if anyone thinks that I am just going to sit back and let my son, without a fight, become the chronic marijuana smoking, percocet stealing, hallucinating, delusional boy that I brought home 15 months ago. They don't know me very well. It took me months to get him even remotely stable. I remember 16 months ago. I remember being begged to take him, now! I remember a boy who almost daily was calling me that he wanted to reincarnate, come back as a bird, so that he could fly to my window. Sending me videos from the hours that he spent doing telekinesis. I remember a boy who was so stoned at times that he could hardly talk. I remember the stolen percocets and the stolen bank card. I remember no food because he spent most of his money on marijuana. I remember sending money just so the rent could be paid. I remember sending money so that Christmas could happen. I remember being their for emotional support regardless of the circumstances. I researched medications. I researched diet and sent vitamins and supplements. I tried for months to get my son. Until one day when resources were tapped out I was told to take him! Not in a month or a week but now!
There is a much bigger picture then the circumstances that my son is currently finding himself. It took me everyday, constantly pushing, researching, working with his treatment team but we accomplished so much. He has not been inpatient in a year! He has been stable, in fact better then he has been in 4 years! He has been drug and alcohol free for long periods! He has attended school! I have done everything that I can do to not let schizophrenia have my son. I have advocated and fought even him when needed to keep him moving forward and stable. Regarding schizophrenia symptoms his worse days have been better then his best days 16 months ago.
I can only sit here and shake me head and ask wth is everyone thinking?! There is so much that I want to say. I'm trying my best to be diplomatic and fair which limits what I can unleash... I guess in the end I only have this to say. Where will my son be when the next heart attack happens? Where will my son be when one or both are inpatient or suicidal again? Who is going to keep him off of marijuana and percocets? Who is going to advocate less medications or even the right medications? Certainly not the psychiatrist he appears to be going back too. Of all the time he treated my son he couldn't even see that my son had ADHD which two other psychiatrists noted after meeting him only once. My son didn't like or respect him and certainly never listened to him. BUT he will prescribe Clonazepam or whatever benzo my son wants. Benzos that only make my son worse.
As much as I want to fight for my son it appears I have lost the fight which in my eyes means my son has lost too. Everything that I have done for the past 15 months has been for nothing. Everything that I have fought for and accomplished is now blowing uselessly in the wind. So with a very heavy heart and tearful eyes I wave the white flag of surrender...
Sorry this post probably doesn't make sense unless I state that it looks like my son is moving. Away from me and back to where he used to live 15 months ago.
Mom
BarbieBF
Sunday, August 31, 2014
I'm Spent. Financially and Emotionally Spent.
My husband asked me this morning 'Are you in a bad mood?' and 'What's wrong? Is it.....' Now I'm not blaming my hubby for not getting it or understanding as I've come to the conclusion that expecting him or anybody else in my live to get it, at this point, is probably pointless. I have so many incomplete, jumbled thoughts going through my head right now so forewarned the following blog posting is my own self-indulgent petty me party... So please feel free not to read it.
Sleeping on the sofa has turned into a pretty big pet peeve of mine as I told my hubby this morning. It's not a new thing, in fact, I have had issue with it for some time now as allowing my hubby to do it meant allowing my son to do it and that meant a very smelly sofa. Not his fault I know however completely unnecessary. And I see no reason why I should be listening to someone snore in the living room. I don't say don't sleep. I say go to bed, sleep the day away if you want, but don't do it on the sofa. I try to keep my cool about it, repeat it and repeat it... months of repeating it... Sometimes I get pissy about it, like this morning. Okay he got it this time... I think really! Because plan English didn't make it clear all those other times?! I really do wonder what language I need to speak sometimes to be understood.
I started doing my grocery list this morning and I'm looking in my cupboards. I'm looking at all the stuff that we have gotten for my son. Noodles, pop tarts, popcorn, nuts, snacks of every type. Every so often I have to go through everything and throw stuff out because it was something he wanted to try and didn't like or for whatever reason he didn't want to eat it so it expires. Unopened jars of peanut butter, cheese-whiz and other things. Same with the freezer. Pizza pops, beef patties, hungry man dinners... I have always made sure that there is always things for him to eat. If it's kool-aid then lots of it and of course the sugar. If it's iced tea, now we have two big things of it. He wants to try different kinds of coffee, at one point we had 3 or 4 kinds of instant coffee. Even when he didn't come grocery shopping with us the cart included his treats, his apple juice, whatever phase he was currently going through that I knew that he liked. I know what kinds of chips he likes and always made sure to switch it up so that he didn't get sick of one kind. Beef jerky til he got sick of it. We have never been stingy in the food department as our $300 weekly grocery bills can attest to. I have made so many concessions on the types of meals I make. Sometimes I had to make a conscious choice to make my hubby's favorite meals because my son didn't like it and so many meals were planned with him in mind. Even with getting my son his treats we had trouble keeping certain foods for my hubby for work as my son took whatever he wanted, whenever he wanted it. We didn't get mad, just bought more of it. Most weeks I had trouble finding room to put away the groceries as the cupboards and fridge were full of things my son liked to eat. Today's grocery bill was $140.
My mind goes through a list of things that we have gotten for him since he moved in with us 15 months ago. The first was the deep fryer that he had to have and used almost daily while he went through his potatoe and onion ring phase. The breakfast sandwich maker for when he went through his breakfast sandwich phase. The $200 bike and accessories. The $200 Nintendo3DS and games. The $400 PSP4 and games. The $3000 laptop. The $600 we spent on his tobacco etc the first three months he lived with us and this doesn't include the $600+ per month we spent out of pocket on medications for three months. He wanted a better TV so we switched him TV's. He broke his computer desk, we got him another one. He needed winter boots, we got them. He wanted $80 shoes, we got them. He wanted sandals, we got them. McDonald's, Tim Horton's, restaurants, movies, rings, watches, lighters, cloths, trips to the store. I'm guessing my son has easily cost us $10000 and that doesn't include the numerous times I have not made him pay me back for things or give the amount of money that he is supposed to give me every month so that he can buy his tobacco, gaming subscriptions or whatever else he had set his mind to wanting. It certainly doesn't include the grocery bills, the extra internet charges, the movies he rented through cable before I locked those channels, even laundry money or all the notebooks and pens that I bought him while inpatient and even afterwards whenever he wanted them. We paid for everything and then some. It also doesn't include the damage that he has done to the apartment and the things I own and the things that he has smashed and broken.
Edit: sorry pictures where removed and now I can't find them
These are all the knife marks or where he was stabbing his bed with his knives.
This is the hole he put into a closet door on Thursday when I was calling 911.
He called me yesterday on his new cell phone, he was at the mall. This would be out of the disability check that he told the shelter that he didn't have, that I had. Since he is spending it then he obviously knows that he has it so outright lied about me having it. He wanted the number for his disability worker because he wants to switch how he is getting 'paid' so that he can get more money. I can't even say how much this phone call pissed me off. I probably won't hear from him again until he wants something. I actually believed that perhaps he was confused and didn't know or remember that he had the check on him and so I bought him two cartons of cigarettes on Friday that I was going to take to him yesterday evening along with his notebooks, search-a-word that I know he likes and whatever else I thought he might need. He is outright refusing to give me any money for supporting him in August. Honestly I feel kicked in the gut as I'm probably going to have to draw again from my line of credit to pay the rent. My son just thinks my hubby makes money so we don't need this. No matter how many times I go over our monthly expenses which include $1200 for groceries, about $1000 for car insurance and related expenses, $930 for rent, $400 for cable, internet and phones (last internet bill over by $50 again) and our visas and line of credit payments as I'm about $30000 in debt... All quit pointless I guess because he really couldn't or can't give two hoots about my finances.
So ya financially I'm done giving and giving. The pot has run dry. Because it is the long weekend I can't even do anything about this until Tuesday. I did try calling the shelter but none of the full time staff that knows the systems is in right now. I was hoping that someone could talk to him and help him to see reason that what he is doing is not right. The government isn't handing him this money so that he can freely spend it where ever he pleases. I will be calling disability on Tuesday to let them know that he no longer resides here so that they don't continue to provide him with monies that are not being used as they are supposed to.
Emotionally spent too.
Mom
BarbieBF
Sleeping on the sofa has turned into a pretty big pet peeve of mine as I told my hubby this morning. It's not a new thing, in fact, I have had issue with it for some time now as allowing my hubby to do it meant allowing my son to do it and that meant a very smelly sofa. Not his fault I know however completely unnecessary. And I see no reason why I should be listening to someone snore in the living room. I don't say don't sleep. I say go to bed, sleep the day away if you want, but don't do it on the sofa. I try to keep my cool about it, repeat it and repeat it... months of repeating it... Sometimes I get pissy about it, like this morning. Okay he got it this time... I think really! Because plan English didn't make it clear all those other times?! I really do wonder what language I need to speak sometimes to be understood.
I started doing my grocery list this morning and I'm looking in my cupboards. I'm looking at all the stuff that we have gotten for my son. Noodles, pop tarts, popcorn, nuts, snacks of every type. Every so often I have to go through everything and throw stuff out because it was something he wanted to try and didn't like or for whatever reason he didn't want to eat it so it expires. Unopened jars of peanut butter, cheese-whiz and other things. Same with the freezer. Pizza pops, beef patties, hungry man dinners... I have always made sure that there is always things for him to eat. If it's kool-aid then lots of it and of course the sugar. If it's iced tea, now we have two big things of it. He wants to try different kinds of coffee, at one point we had 3 or 4 kinds of instant coffee. Even when he didn't come grocery shopping with us the cart included his treats, his apple juice, whatever phase he was currently going through that I knew that he liked. I know what kinds of chips he likes and always made sure to switch it up so that he didn't get sick of one kind. Beef jerky til he got sick of it. We have never been stingy in the food department as our $300 weekly grocery bills can attest to. I have made so many concessions on the types of meals I make. Sometimes I had to make a conscious choice to make my hubby's favorite meals because my son didn't like it and so many meals were planned with him in mind. Even with getting my son his treats we had trouble keeping certain foods for my hubby for work as my son took whatever he wanted, whenever he wanted it. We didn't get mad, just bought more of it. Most weeks I had trouble finding room to put away the groceries as the cupboards and fridge were full of things my son liked to eat. Today's grocery bill was $140.
My mind goes through a list of things that we have gotten for him since he moved in with us 15 months ago. The first was the deep fryer that he had to have and used almost daily while he went through his potatoe and onion ring phase. The breakfast sandwich maker for when he went through his breakfast sandwich phase. The $200 bike and accessories. The $200 Nintendo3DS and games. The $400 PSP4 and games. The $3000 laptop. The $600 we spent on his tobacco etc the first three months he lived with us and this doesn't include the $600+ per month we spent out of pocket on medications for three months. He wanted a better TV so we switched him TV's. He broke his computer desk, we got him another one. He needed winter boots, we got them. He wanted $80 shoes, we got them. He wanted sandals, we got them. McDonald's, Tim Horton's, restaurants, movies, rings, watches, lighters, cloths, trips to the store. I'm guessing my son has easily cost us $10000 and that doesn't include the numerous times I have not made him pay me back for things or give the amount of money that he is supposed to give me every month so that he can buy his tobacco, gaming subscriptions or whatever else he had set his mind to wanting. It certainly doesn't include the grocery bills, the extra internet charges, the movies he rented through cable before I locked those channels, even laundry money or all the notebooks and pens that I bought him while inpatient and even afterwards whenever he wanted them. We paid for everything and then some. It also doesn't include the damage that he has done to the apartment and the things I own and the things that he has smashed and broken.
This is three fist holes in his bedroom door and below it is where he was throwing his switch blade at the door.
This is the hole he put into a closet door on Thursday when I was calling 911.
He called me yesterday on his new cell phone, he was at the mall. This would be out of the disability check that he told the shelter that he didn't have, that I had. Since he is spending it then he obviously knows that he has it so outright lied about me having it. He wanted the number for his disability worker because he wants to switch how he is getting 'paid' so that he can get more money. I can't even say how much this phone call pissed me off. I probably won't hear from him again until he wants something. I actually believed that perhaps he was confused and didn't know or remember that he had the check on him and so I bought him two cartons of cigarettes on Friday that I was going to take to him yesterday evening along with his notebooks, search-a-word that I know he likes and whatever else I thought he might need. He is outright refusing to give me any money for supporting him in August. Honestly I feel kicked in the gut as I'm probably going to have to draw again from my line of credit to pay the rent. My son just thinks my hubby makes money so we don't need this. No matter how many times I go over our monthly expenses which include $1200 for groceries, about $1000 for car insurance and related expenses, $930 for rent, $400 for cable, internet and phones (last internet bill over by $50 again) and our visas and line of credit payments as I'm about $30000 in debt... All quit pointless I guess because he really couldn't or can't give two hoots about my finances.
So ya financially I'm done giving and giving. The pot has run dry. Because it is the long weekend I can't even do anything about this until Tuesday. I did try calling the shelter but none of the full time staff that knows the systems is in right now. I was hoping that someone could talk to him and help him to see reason that what he is doing is not right. The government isn't handing him this money so that he can freely spend it where ever he pleases. I will be calling disability on Tuesday to let them know that he no longer resides here so that they don't continue to provide him with monies that are not being used as they are supposed to.
Emotionally spent too.
Mom
BarbieBF
Wednesday, August 27, 2014
Forty Four Hours
That is how long my son was awake...
Surprisingly he was more aware than I thought. I thought time was not passing for him and that he was pretty lost in his own world but apparently not. I called his case worker this morning, chocking back tears, and let her know that he had at this point been awake for 37 hours, was not eating much and seemed to be having trouble focusing on things that I was saying or asking him. She agreed to come and evaluate the situation. He knew what day of the week it was, knew approximately how long he had been awake and even knew how many days it had been since we took him to emergency and got the Seroquel prescription. Too aware for involuntary admittance but I already knew this. His reasons for the fasting and not sleeping was somewhat delusional. Not sure when he decided to follow the Muslim faith but he felt that he was energizing his mind and body by doing this as the Muslims do. His case worker had a hard time understanding this as not eating and sleeping does not energize you but mania does. In my opinion it was schizophrenia symptoms that was doing the energizing. He did eat some supper last night which was mostly all he had eaten in about 35 hours. He ate some rice, a bite of chicken and a bite of his brussel sprouts. According to him he ate a big plate of dinner. My son really does have an amazing ability to change his reality to suit or explain things. Like saying it simply makes it so. So even though we were pretty sure that the hospital wouldn't admit him, his worker managed to talk him into going down for a check up due to his fasting and not sleeping.
I'm afraid my own feelings overwhelmed me at one point as I can see where things are heading and I really don't want him progressing to the point that he always has in the past for involuntary admittance. I don't want to wait until he is delusional, hallucinating and hearing negative voices before he gets the help that he needs. I'm trying to be pro-active! Honestly I can't believe how long it is taking him to decompress or go into psychosis. Without alcohol and marijuana to speed it along it is as slow as molasses... and frustrating. I think my tears where somewhat shocking to my son and he ended up telling his worker that he thinks I'm having a mental break. I did grin at that one! So he was quit happy to leave with her as he couldn't handle being around me and my break down. It's a good thing I waited until they left to actually cry! And give myself an headache!
As we already knew would happen, he got released and was sent home. He went straight to bed and is as far as I know sleeping. He already decided when his worker was here that he was done fasting and not sleeping. I think he was just telling her what he thought she needed to hear to not have him admitted. Either way he is in bed where he needs to be.
Now that I'm more aware of who is reading my blog, there is a part of me that doesn't want to write this part. But I will do what I normally do and continue... While my son was sent home from the hospital it is temporary. There was no beds available at any of the shelters. I'm pretty sure that once the lady from Ready4Life gets back from vacation than things will hopefully get moving on his applications for the group homes. In the mean time I don't think that staying here is the best thing for him and neither does his case worker or PACT. I can't even say how much her support means to me right now. It's pretty obvious that he will continue as he is which in my opinion is only doing his brain more harm then good. I can't motivate him to help himself out of this. He needs help and they can provide it to him. I have said before that the shelter we are looking into is not an unsupervised flop house. It has structure and support staff. They will expect him to be part of a routine and be minimally functional. He needs someone other then me to expect something from him. People that will expect and help him to act like the adult that he is. After that it will be a group home.
I'm guessing my son will sleep for awhile so maybe hubby and I will go out for dinner since it's almost 5 PM and I haven't even thought about what to make today.
Mom
BarbieBF
Surprisingly he was more aware than I thought. I thought time was not passing for him and that he was pretty lost in his own world but apparently not. I called his case worker this morning, chocking back tears, and let her know that he had at this point been awake for 37 hours, was not eating much and seemed to be having trouble focusing on things that I was saying or asking him. She agreed to come and evaluate the situation. He knew what day of the week it was, knew approximately how long he had been awake and even knew how many days it had been since we took him to emergency and got the Seroquel prescription. Too aware for involuntary admittance but I already knew this. His reasons for the fasting and not sleeping was somewhat delusional. Not sure when he decided to follow the Muslim faith but he felt that he was energizing his mind and body by doing this as the Muslims do. His case worker had a hard time understanding this as not eating and sleeping does not energize you but mania does. In my opinion it was schizophrenia symptoms that was doing the energizing. He did eat some supper last night which was mostly all he had eaten in about 35 hours. He ate some rice, a bite of chicken and a bite of his brussel sprouts. According to him he ate a big plate of dinner. My son really does have an amazing ability to change his reality to suit or explain things. Like saying it simply makes it so. So even though we were pretty sure that the hospital wouldn't admit him, his worker managed to talk him into going down for a check up due to his fasting and not sleeping.
I'm afraid my own feelings overwhelmed me at one point as I can see where things are heading and I really don't want him progressing to the point that he always has in the past for involuntary admittance. I don't want to wait until he is delusional, hallucinating and hearing negative voices before he gets the help that he needs. I'm trying to be pro-active! Honestly I can't believe how long it is taking him to decompress or go into psychosis. Without alcohol and marijuana to speed it along it is as slow as molasses... and frustrating. I think my tears where somewhat shocking to my son and he ended up telling his worker that he thinks I'm having a mental break. I did grin at that one! So he was quit happy to leave with her as he couldn't handle being around me and my break down. It's a good thing I waited until they left to actually cry! And give myself an headache!
As we already knew would happen, he got released and was sent home. He went straight to bed and is as far as I know sleeping. He already decided when his worker was here that he was done fasting and not sleeping. I think he was just telling her what he thought she needed to hear to not have him admitted. Either way he is in bed where he needs to be.
Now that I'm more aware of who is reading my blog, there is a part of me that doesn't want to write this part. But I will do what I normally do and continue... While my son was sent home from the hospital it is temporary. There was no beds available at any of the shelters. I'm pretty sure that once the lady from Ready4Life gets back from vacation than things will hopefully get moving on his applications for the group homes. In the mean time I don't think that staying here is the best thing for him and neither does his case worker or PACT. I can't even say how much her support means to me right now. It's pretty obvious that he will continue as he is which in my opinion is only doing his brain more harm then good. I can't motivate him to help himself out of this. He needs help and they can provide it to him. I have said before that the shelter we are looking into is not an unsupervised flop house. It has structure and support staff. They will expect him to be part of a routine and be minimally functional. He needs someone other then me to expect something from him. People that will expect and help him to act like the adult that he is. After that it will be a group home.
I'm guessing my son will sleep for awhile so maybe hubby and I will go out for dinner since it's almost 5 PM and I haven't even thought about what to make today.
Mom
BarbieBF
Thursday, August 14, 2014
Conflicted
Today I'm feeling a little conflicted. The police were at my door again last night and informed me that my downstairs neighbors are deceased. Today is the first day in awhile that I was able to leave my apartment alone and feel safe in doing so. That is a relief. It is very sad though that this relief comes at such a high price and that is two people's lives.
I'm also conflicted on how to proceed with my son. He has not been taking his medications properly. I just talked to him about the fact that I have been counting his pills and that they don't add up. He has only taken 4 Invega in the past week when there should be 7 gone. He acknowledged that he hasn't been taking them, that he doesn't need them, this after trying to tell me that he has been taking them. He may have taken 50 mg of Clozapine last night however he is supposed to be taking 150 mg. He has not taken his Lithium in 2 days. First he tried to tell me that he took his pills after waking up this morning. I counted them today after he was asleep and he hadn't woken up and the count hadn't changed from yesterday. I have been noticing that he is, again, sometimes randomly laughing or giggling out loud for no apparent reason. Great!
I just told him that he needs to wash his bedding. It smells.
I got up this morning to the coffee table a mess again.
I'm thinking that I am not in that good of a mood today. Shouldn't getting a good night sleep have the opposite affect?! I have actually slept through the night for the last two nights. I don't think that has happened in years! I'm not sure if my insomnia is finally under control or if knowing that there have been police officers around has contributed. I'm going to go with having my insomnia under control, I hope!
Should I try getting my son's treatment involved? I'm not sure it will do much good at this point. For now I will *cross my fingers and toes* and hope that he remembers or decides to take his pills tonight...
Mom
BarbieBF
I'm also conflicted on how to proceed with my son. He has not been taking his medications properly. I just talked to him about the fact that I have been counting his pills and that they don't add up. He has only taken 4 Invega in the past week when there should be 7 gone. He acknowledged that he hasn't been taking them, that he doesn't need them, this after trying to tell me that he has been taking them. He may have taken 50 mg of Clozapine last night however he is supposed to be taking 150 mg. He has not taken his Lithium in 2 days. First he tried to tell me that he took his pills after waking up this morning. I counted them today after he was asleep and he hadn't woken up and the count hadn't changed from yesterday. I have been noticing that he is, again, sometimes randomly laughing or giggling out loud for no apparent reason. Great!
I just told him that he needs to wash his bedding. It smells.
I got up this morning to the coffee table a mess again.
I'm thinking that I am not in that good of a mood today. Shouldn't getting a good night sleep have the opposite affect?! I have actually slept through the night for the last two nights. I don't think that has happened in years! I'm not sure if my insomnia is finally under control or if knowing that there have been police officers around has contributed. I'm going to go with having my insomnia under control, I hope!
Should I try getting my son's treatment involved? I'm not sure it will do much good at this point. For now I will *cross my fingers and toes* and hope that he remembers or decides to take his pills tonight...
Mom
BarbieBF
Thursday, July 31, 2014
Oppositional Defiant Disorder (ODD) and Anger
I thought I would center today's post on ODD since I make reference to my son's ODD fairly frequently and I myself am trying to get a better understanding of what is happening and motivating my son's behavior.
Two articles that have caught my attention today are:
Oppositional Defiant Disorder (ODD) and AD/HD
http://www.additudemag.com
Physiology of Anger
http://www.mentalhelp.net
My son's nurse was here this morning. I had tried to get him up before she arrived but I had no success as yet again he was up all night and didn't go to sleep until after 4. Another morning of waking up to him sleeping on the sofa. By the way it is one of the apartment rules that he sleep in his own bed. She dropped off a list of the weekly event schedule for June, July & August. Hopefully the next one will make it to him earlier :) I brought up to her that even though I know my son isn't officially diagnosed with ODD that it seems to be controlling his behavior so much right now. During this conversation she commented that his pdoc had mentioned that he might not have schizophrenia but psychosis NOS. I don't know what to think. I'm guessing only time will tell for sure. In the meantime it's symptoms of ODD that I think need the most attention right now. My son did get up while she was still here not that he particularly played a big part in the conversation. We were discussing what services Ready4Life could help him with and I rubbed his leg to get him to pay attention since this is his life and services that he will need to be aware of and to ask for help with. Defiance poked it's little head up and he kind of snapped: yes I know and went back to ignoring us. As I said on another post his only concern seems to be getting away from me without any regard to what is going to happen once he is on his own or any thoughts as to how is going to manage and take care of himself. I'm guessing that part of this defiance or anger is because I have made it clear that we will not be spending money on him like we have in the past. We did take him to get cigarettes for the rest of the month before he spent what little money he did have. He ended up buying an E-Cigarette Vaporizer and extra flavored cartridges that don't give nicotine and one carton of cherry flavored cigarettes. He still had one carton of his normal cigarettes. My son smokes at least a carton a week. The math doesn't really work does it? Last night he decided to spend the last of his money on a pocket knife. A knife I heard hitting his bedroom door last night. I reminded him again that he has a whole month to go yet and he will have no money for cigarettes or energy drinks etc. His response is that he will go without. We have had our issues in the past trying to limit his cigarettes when my hubby and I were the ones paying for them. It was a daily argument at 30 a day. Maybe I should be looking forward to him moving out so that I don't have to deal with this!
When his nurse asked him about PACT talking to Ready4Life and I stated that he had signed a waiver allowing Ready4Life to talk to PACT, his defiance reared it's head again. He didn't recall signing it. The lady from Ready4Life had made it quit clear what it was and had made sure that he understood what it was that he was signing although I guess at the time his only concern was not having my name on it. If you read the above link my son fits all of the criteria not just four. I have seen him purposely not do things just because I have asked him to do it. I have seen him purposely do things around me that he knows that I don't like that he does not do around other people. All these things and more are happening consistently even when he is not psychotic and they are having a significant impairment on his functioning. I have some pretty basic apartment rules that he is refusing to follow like cleaning up after himself and sleeping in his own bed. Rules that a 5 year old can follow. Rules that he has agreed are reasonable and that he knows he has to do however blames everyone else for him not doing them. I guess I need to get back to some basics on how to handle/discipline ADHD and ODD as I have been lax on the boundaries and not enforcing the consequences. This should be fun!
The above article on anger helps to give a better understanding of anger. However I still don't get why someone with psychosis seems unable to feel or react appropriately to emotions like love yet seem to have an unending supply of emotions like anger and resentment. Perhaps it's because different neurotransmitters are involved? I wonder if that is something that science should be looking into! Between feelings of anger and resentment and what appears to be ODD to me, my son seems to be acting and reacting on a basic instinct of, well to put it bluntly, screw you. With no regard to his own mental or physical well-being. Being defiant is more important.
Oops... I forgot that I had started making some bread.
Mom
BarbieBF
Two articles that have caught my attention today are:
Oppositional Defiant Disorder (ODD) and AD/HD
http://www.additudemag.com
Physiology of Anger
http://www.mentalhelp.net
My son's nurse was here this morning. I had tried to get him up before she arrived but I had no success as yet again he was up all night and didn't go to sleep until after 4. Another morning of waking up to him sleeping on the sofa. By the way it is one of the apartment rules that he sleep in his own bed. She dropped off a list of the weekly event schedule for June, July & August. Hopefully the next one will make it to him earlier :) I brought up to her that even though I know my son isn't officially diagnosed with ODD that it seems to be controlling his behavior so much right now. During this conversation she commented that his pdoc had mentioned that he might not have schizophrenia but psychosis NOS. I don't know what to think. I'm guessing only time will tell for sure. In the meantime it's symptoms of ODD that I think need the most attention right now. My son did get up while she was still here not that he particularly played a big part in the conversation. We were discussing what services Ready4Life could help him with and I rubbed his leg to get him to pay attention since this is his life and services that he will need to be aware of and to ask for help with. Defiance poked it's little head up and he kind of snapped: yes I know and went back to ignoring us. As I said on another post his only concern seems to be getting away from me without any regard to what is going to happen once he is on his own or any thoughts as to how is going to manage and take care of himself. I'm guessing that part of this defiance or anger is because I have made it clear that we will not be spending money on him like we have in the past. We did take him to get cigarettes for the rest of the month before he spent what little money he did have. He ended up buying an E-Cigarette Vaporizer and extra flavored cartridges that don't give nicotine and one carton of cherry flavored cigarettes. He still had one carton of his normal cigarettes. My son smokes at least a carton a week. The math doesn't really work does it? Last night he decided to spend the last of his money on a pocket knife. A knife I heard hitting his bedroom door last night. I reminded him again that he has a whole month to go yet and he will have no money for cigarettes or energy drinks etc. His response is that he will go without. We have had our issues in the past trying to limit his cigarettes when my hubby and I were the ones paying for them. It was a daily argument at 30 a day. Maybe I should be looking forward to him moving out so that I don't have to deal with this!
When his nurse asked him about PACT talking to Ready4Life and I stated that he had signed a waiver allowing Ready4Life to talk to PACT, his defiance reared it's head again. He didn't recall signing it. The lady from Ready4Life had made it quit clear what it was and had made sure that he understood what it was that he was signing although I guess at the time his only concern was not having my name on it. If you read the above link my son fits all of the criteria not just four. I have seen him purposely not do things just because I have asked him to do it. I have seen him purposely do things around me that he knows that I don't like that he does not do around other people. All these things and more are happening consistently even when he is not psychotic and they are having a significant impairment on his functioning. I have some pretty basic apartment rules that he is refusing to follow like cleaning up after himself and sleeping in his own bed. Rules that a 5 year old can follow. Rules that he has agreed are reasonable and that he knows he has to do however blames everyone else for him not doing them. I guess I need to get back to some basics on how to handle/discipline ADHD and ODD as I have been lax on the boundaries and not enforcing the consequences. This should be fun!
The above article on anger helps to give a better understanding of anger. However I still don't get why someone with psychosis seems unable to feel or react appropriately to emotions like love yet seem to have an unending supply of emotions like anger and resentment. Perhaps it's because different neurotransmitters are involved? I wonder if that is something that science should be looking into! Between feelings of anger and resentment and what appears to be ODD to me, my son seems to be acting and reacting on a basic instinct of, well to put it bluntly, screw you. With no regard to his own mental or physical well-being. Being defiant is more important.
Oops... I forgot that I had started making some bread.
Mom
BarbieBF
Wednesday, July 30, 2014
Between a Rock and a Hard Place.
I have not been so unsure of what to do in a long time. My heart is aching, my brain is saying it's time and I'm stuck, just stuck! No one can tell me what to do and no one can know what the outcome will be. I sometimes wonder about parent/caregiver PTSD. Watching our loved ones go through psychotic breaks and episodes is traumatic. Even when stable the fear of if/when the next break will happen is a daily concern and worry. We live with the anxiety and stress of questioning everything that we do. Is this the right choice? Will this work or make things worse? What if what I'm doing is wrong? and even What if what I'm doing is right? Then what? When things are tough we put our heads down, square our shoulders and pray for the strength to just get through one more day. We have learned to ride the waves, so to speak, and to hope for calmer waters. Then one day those waves abate just a little bit and we can look up. New uncharted territory. Do we pull ashore or keep riding the waves we now have intimate knowledge of? Christopher Columbus would not have discovered a new continent if he had stayed in the boat!
I woke up this morning to the usual mess in my kitchen and living room with my son snoring away on the sofa. Again he had not taken his pills until sometime this morning. I call his name and he sits up. The sofa is soaked with his sweat. Sweat that smells like hot sauce. After several attempts and incoherent responses I finally get him off the sofa and tell him he needs to clean up some of this mess as my husband won't be able to find room to even make his lunch for work. He managed to pick up a couple of items from the coffee table before heading to the bathroom to hug the toilet. A result of him being mobile while sedating meds are strong in his system or something else, as he has been going for 'walks' again. He must not have been very coherent when he was eating a bowl of canned ravioli as it was smeared on the sofa and on the floor. So it's 4:30 AM and I'm spot cleaning the sofa! Not a happy camper but I hold my tongue, put on some coffee since I'm obviously up, then talk him into moving from the bathroom to his bed so I can go pee. This is one boat that I don't want to be on anymore!
But! What will happen when he's on his own and there is no one that loves him watching out for him? Are his roommates going to tolerate even a quarter of what I tolerate? I have visions of him looking and smelling like a bum. Dirty laundry, dirty bedding. Garbage filled room. Not eating right. Perhaps even missed medications with un-monitored marijuana use. I see a psychotic break in the makings. PTSD or being realistic?
So I'm stuck between this proverbial rock and a hard place. My head is saying it's time to let go and my heart is saying but my little boy... There in lies perhaps a very important truth. He will always be my little boy but he is no longer a little boy. If I don't step back then I am only stunting him further as he will never learn to take responsibility for his own life and self-care. He will continue to have unrealistic expectations of both himself and those around him. The thought of him being 30 and us still treading the same waters is perhaps my life line. I can't imagine another 10 years of being maid and minion to my adult son.
His nurse said to me this morning: He is the one always saying that he is an adult and wants to be treated like one. She also pointed out that him moving out doesn't mean that I will never see him again. I tell myself that kids grow up and move away from home everyday. Granted most of those kids have a firmer grasp on reality and don't have cognitive deficits. They have learned through school and part time jobs, good and bad, how things work. On the up side my son has a network of people willing to help him. Until now I have been the one doing the asking for him. Baby steps mama! I need to step back and he needs to step up! Have I talked myself into letting this happen yet? I think so... *pushes me the rock out of the way and baby steps around it*
An article on Caregivers & PTSD: http://dontloseheart.org/
Mom
BarbieBF
Wednesday, July 23, 2014
Serenity to accept the things I cannot change...
I wear the Serenity Prayer on a charm on my necklace. My mom bought it for me in 2001, not long before she passed away, when I was on my first attempt to get clean from addiction. It held meaning for us both then and today I find myself revisiting it's meaning yet again.
Above picture credit to: Etsy
My normal optimism had deserted me for a little bit. I tried to blame it on PMS which I'm sure played it's part but I also recognize that there are things going on that are making me feel sad. My daughter left yesterday to go back home with her dad. I miss her already. This journey I find my son and I on is, as usual, keeping me on my toes but underneath all that is a sadness that has been building up for some time now. I find myself reading and rereading these words and realizing that once again I need to apply it's wisdom to my own life.
A couple of days ago my mom's birth sister contacted me wanting to met up with my sister and I at an Elvis Festival going on this weekend. For those who are not aware an Elvis Festival is were Elvis Tribute Artists (ETA's) compete and show their love for Elvis Presley. For several years my older sister and I bonded and rebuilt our relationship through a mutual love of Elvis's music. Granted I had no idea about any of this the first time my sister asked me to go to Akron to see an ETA with her. Go where? To see a what? I still chuckle over the memory of that conversation. Anyways fast forward to January of this year and we had a falling out. Sadly over money and other things. I take full responsibility for the falling out as it is my quest for answers that has caused this rift. I find that without the answers, or proof of the answers I am getting, that I am unable to continue the relationship. Add in years of hurt and misunderstandings and I now find myself without not one but two sisters. My younger sister has also cut off communicating with me and I can only guess that it is a result of the falling out with my older sister as we were communicating up until that point. Since then she has not responded to me so I can only assume since she won't even confirm one way or the other her reasons. I have tried to put it behind me and I try to pretend like it doesn't hurt since the choice to walk away was mine. Well enough of pretending. It does hurt and it hurts more then I thought that it would. Not so much the current rift but the reasons leading up to it. So I read the words of the above prayer. I had finally found the courage to ask the questions that had been haunting me for a very long time. Questions that are still in my mind unanswered. Now I need the serenity to accept what I cannot change. Family can be hard sometimes. I see it also with other blogs that I follow. Hurt and misunderstandings that get in the way of the love that we share. Our own hurts and their hurts. Walking away doesn't lessen the pain nor the love so I guess acceptance is what we are left with and hopefully having the wisdom to know that which we cannot change can bring us the serenity that we seek.
I'm afraid we missed our appointment today with Ready4Life. We were 15 mintues late and just missed her. Rescheduled to Friday. Still have to get him down for blood work.
My son's psychiatrist appointment yesterday went well. We discussed, or I tried to discuss, my son's diagnose(s). Officially schizophrenia with concurrent disorders... The concurrent disorders being unofficially addiction, ADHD and ODD and per my son OCD. As my hubby sometimes jokes 'So we are playing the alphabet game.' Really in the end they are only letters of the alphabet. As long as we are taking care of symptoms or helping to lessen the 'stress' that he is going through then we are doing our jobs. My son agreed to a switch from Risperidone to Invega. No change in his Clozapine and we need to try and get him back on his Neurontin. His pdoc expressed concerns to my son that we do not want him relapsing and what he is currently experiencing may be an indication or leading up to what his previous breaks have been.
I find myself yet again at an acceptance crossroads. I have had to re-evaluate my own acceptance of my son's schizophrenia. My son has schizophrenia. There is a sadness yet a serenity in my own coming to terms with this. Accept the things I cannot change. There are so many things that I cannot change at the moment. His Nana's feelings towards me. That my daughter is there and not here. That my sisters are not currently a part of my family life. That we are in a lot of debt and my downstairs neighbor seems unable to keep her base from vibrating my floor. ;) Figured I would through the last two in there. However there are things that I am now learning to have the courage to do. I have been able to make my family, my husband and my children, the priority that they need to be in my life. I am doing my best to increase mental illness awareness and to help those that I can even if it's only to show support through my own experiences. I am where and who I need to be. As for my son's schizophrenia: I didn't cause it, I can't control it and I can't cure it... However I can and I will continue to be, to the best of my ability, the support that he needs me to be.
Mom
BarbieBF
Above picture credit to: Etsy
My normal optimism had deserted me for a little bit. I tried to blame it on PMS which I'm sure played it's part but I also recognize that there are things going on that are making me feel sad. My daughter left yesterday to go back home with her dad. I miss her already. This journey I find my son and I on is, as usual, keeping me on my toes but underneath all that is a sadness that has been building up for some time now. I find myself reading and rereading these words and realizing that once again I need to apply it's wisdom to my own life.
A couple of days ago my mom's birth sister contacted me wanting to met up with my sister and I at an Elvis Festival going on this weekend. For those who are not aware an Elvis Festival is were Elvis Tribute Artists (ETA's) compete and show their love for Elvis Presley. For several years my older sister and I bonded and rebuilt our relationship through a mutual love of Elvis's music. Granted I had no idea about any of this the first time my sister asked me to go to Akron to see an ETA with her. Go where? To see a what? I still chuckle over the memory of that conversation. Anyways fast forward to January of this year and we had a falling out. Sadly over money and other things. I take full responsibility for the falling out as it is my quest for answers that has caused this rift. I find that without the answers, or proof of the answers I am getting, that I am unable to continue the relationship. Add in years of hurt and misunderstandings and I now find myself without not one but two sisters. My younger sister has also cut off communicating with me and I can only guess that it is a result of the falling out with my older sister as we were communicating up until that point. Since then she has not responded to me so I can only assume since she won't even confirm one way or the other her reasons. I have tried to put it behind me and I try to pretend like it doesn't hurt since the choice to walk away was mine. Well enough of pretending. It does hurt and it hurts more then I thought that it would. Not so much the current rift but the reasons leading up to it. So I read the words of the above prayer. I had finally found the courage to ask the questions that had been haunting me for a very long time. Questions that are still in my mind unanswered. Now I need the serenity to accept what I cannot change. Family can be hard sometimes. I see it also with other blogs that I follow. Hurt and misunderstandings that get in the way of the love that we share. Our own hurts and their hurts. Walking away doesn't lessen the pain nor the love so I guess acceptance is what we are left with and hopefully having the wisdom to know that which we cannot change can bring us the serenity that we seek.
I'm afraid we missed our appointment today with Ready4Life. We were 15 mintues late and just missed her. Rescheduled to Friday. Still have to get him down for blood work.
My son's psychiatrist appointment yesterday went well. We discussed, or I tried to discuss, my son's diagnose(s). Officially schizophrenia with concurrent disorders... The concurrent disorders being unofficially addiction, ADHD and ODD and per my son OCD. As my hubby sometimes jokes 'So we are playing the alphabet game.' Really in the end they are only letters of the alphabet. As long as we are taking care of symptoms or helping to lessen the 'stress' that he is going through then we are doing our jobs. My son agreed to a switch from Risperidone to Invega. No change in his Clozapine and we need to try and get him back on his Neurontin. His pdoc expressed concerns to my son that we do not want him relapsing and what he is currently experiencing may be an indication or leading up to what his previous breaks have been.
I find myself yet again at an acceptance crossroads. I have had to re-evaluate my own acceptance of my son's schizophrenia. My son has schizophrenia. There is a sadness yet a serenity in my own coming to terms with this. Accept the things I cannot change. There are so many things that I cannot change at the moment. His Nana's feelings towards me. That my daughter is there and not here. That my sisters are not currently a part of my family life. That we are in a lot of debt and my downstairs neighbor seems unable to keep her base from vibrating my floor. ;) Figured I would through the last two in there. However there are things that I am now learning to have the courage to do. I have been able to make my family, my husband and my children, the priority that they need to be in my life. I am doing my best to increase mental illness awareness and to help those that I can even if it's only to show support through my own experiences. I am where and who I need to be. As for my son's schizophrenia: I didn't cause it, I can't control it and I can't cure it... However I can and I will continue to be, to the best of my ability, the support that he needs me to be.
Mom
BarbieBF
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