You've lost your muchness.

One of my favorite movies is Alice in Wonderland.



The above quote came to mind last night when I was lying in bed listening to my son on the phone with his Nana doing his usual venting/lying.

On Friday when his case worker dropped off his medications; no change... She wasn't there for the team meeting so she doesn't know what was said other then his nurse told her that he would talk to me about the fact that there was no change. I let her know what was happening and she said she would try to find out what was going on.

That afternoon I spent a long time with my son rubbing his back and talking to him. I had decided to order pizza for dinner and he wanted me to get larges so that he could have left-overs. I agreed. About 20 minutes later I walk into his room to ask him what he wanted on one of the pizzas and he was smoking... He told me that I needed to prove to him why he wasn't allowed to smoke in his room since he pays for it. *sigh* Yes he pays for the privilege of using it. Just like I pay rent for the privilege of using this townhouse. It's still not my townhouse. Again I remind him that his cigarettes need to stay downstairs.

What happened next I won't say as even though I blog I still don't think disclosing what he was doing is appropriate. I will just say that it was gross and he was doing it for about 15 minutes in the living room. Numerous times I asked him to stop. I asked him to take it to his room. I asked him to wash his hands. He refused to do any of it. Laughed at me when I got mad.

Yes I took away his cigarettes. I ask so little from him and give so much. I went upstairs. A little while later he comes up stating that he had washed his hands, can he have his smokes back, that he was only scratching his penis. He didn't say it so nicely to me. Also as far as I can tell he certainly hadn't washed his hands. I told him no, that he knows full well what he was doing. He punched my bedroom door twice, called me a bitch and told me to fuck off. Thankfully he walked away after that as I wasn't sure for a minute if I was going to have to call 911, which I didn't want to do.

Friday night I asked hubby to sleep in my/our bed so that I could take a sleeping pill. He agreed but then went to his own bed. *sigh* Wasn't much I could so since I had already taken it. If my son was up to no good that night then I wouldn't know.

Yesterday was pretty quiet. Once my son asked me to explain what he did wrong... Honestly he knows and was doing his normal manipulation of details to suite himself. I said I wasn't going to discuss it and reminded him that he had punched my door twice etc. He said that I deserved it. He can try to pretend/play like none of that happened with his Nana but he knows full well what he did and the difference between how he talks to me about it and how he talks to her about it is a dead give away that he knows and remembers exactly what he did. Telling her the truth wouldn't get him the same sympathy... meaning money as that is what he is looking for.

On a side not to all this. I still included him on ordering the pizza and he got to pick the makings of one large. He also got onion rings. As for the cigarettes. He is still not without nicotine. He has his vaporizer that his aunt got him for his birthday with 3 bottles of e-liquid and one of them contains nicotine. Upstairs sometimes overwhelming smells of him using it along with this incense kick that he has been on lately. The incense I'm pretty sure started to cover up the smell of cigarette smoke.

Last night when I heard him on the phone... I think a part of me broke. I just felt like crying. I just don't know what else to do. Sure I can give in to him smoking in his room. To what end? Do I next give in to him masturbating and other things in the living room? I give into that then it will be drinking... It will never stop until he is smoking, drinking & using in his room, being a complete slob, off his meds and psychotic.

Either way it's not a life I'm willing to live or have in my home.

I still haven't gotten over my withdrawal from schizophrenia related sites that started in May. I try. I log into the forum almost every morning and check for moderator related flags but the thought of reading and catching up... My Facebook page is suffering. I have not been participating or giving much support in any of the Facebook groups that I'm in. I try to read the posts but reading about more parents and caregivers going through their hell just makes me feel sick. I'm trying so hard to keep myself positive and distance myself from the negative that I can't read too much from others to even give them support.

The other day I responded to a tweet by Coach Amy White of the blog Far From Paradise. She asked what being a caregiver has taught us. My response: It's taught me that I'm stronger then I thought I was and weaker then I though I was.

If you had asked me in 2012 if I had it in me to deal with all that we have been through since, I'm sure I would have looked completely shocked and if I had known what was to come... Maybe I wouldn't have stayed at home and brought him home. But then again, he's my son and I love him and even if I didn't think I had it in me I'm sure I would have done exactly what I did. Knowing what I know now... Yes I would do it all again. So yes I found more strength than I knew that I had.

I have also found weakness. Times like now and the past couple of weeks where I just can't seem to find the fight anymore. I'm sure it's buried deep down somewhere as I always seem to find it.

Imagine where I would be without my antidepressant? ;) I'm tired. Mentally tired. I'm at a lose.

Yes I've lost my muchness... I'm off. Back to my Facebook games where I don't have to think of mental illness. Where the flowers are beautiful and things are made from magic.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Define Odd

I have used the word odd a couple of times today and after the last time, I thought to myself: What does odd mean? Well... for me it means things that make you go hmm... I won't say things that aren't normal as our normal is odd ;) So things that stand out for me within our 'normal'.

At 9 AM this morning I was thinking about titling this blog post: Sadly I know where my child is... And it was standing outside the liquor store waiting for it to open since he got his disability money today. He returned stating that they didn't open until 10 AM so he got munchies instead. I did check the times online and they open at 10. Now it's 12 and he has not gone back out. Yes this is odd... or red flag material. He was awake 30 minutes ago. So what changed? He was awake this morning at 5:30 when I got up, most likely counting down the time to when he could get to the liquor store. He was at the liquor store for 9. Now it's 12...

Could he have gotten a hold of marijuana instead? A distinct possibility. He hasn't been down for a cigarette in a bit either. Awake, not smoking, just lying there... usually not good signs. He was playing one of his games this morning before he went out. Of course I could be over-thinking... I doubt it though.

I guess it was Friday that my son asked me for $3 to go to the store for candy. I was busy paying bills and not really thinking and gave him the $3. He left on his bike. He doesn't need his bike to go get candy since we have a corner store almost attached to the the town-home complex. Between that $3 and other change he had been collecting he went and got a mickey (small bottle) of vodka.

I can say that I was pissed. Of all the things that one can say or do that I will tolerate, lying is the one thing that will get me madder then anything else. I didn't say much just let him know that I was pissed off. He said that he deserved to get the alcohol. I deserve to not be lied to!

Hubby and I left to take Gucci to the vet. She got her booster and a clean bill of health. Her sneezing is fairly common and nothing to worry about unless it gets worse. It has been getting better as she settles in. Apparently stress can trigger it. Who knew? Got her a toothbrush and poultry flavored enzymatic toothpaste as she had some plaque on her back teeth. So ya I'm learning how to brush a cats teeth ;)

I don't know if it was Friday or Saturday night but my son decided he really wanted a PRN which means a benzo. It must have been Saturday as I think he was craving alcohol pretty bad. He asked me to take him to the hospital. I actually said no that I wasn't spending 6-12 hours in emergency because he was going through withdrawals and they won't give him a benzo anyways. They will most likely give him more Olanzapine and he is already taking the max dose of that. I know this may sound harsh however it's not the first time he has done this to get a benzo and it probably won't be the last. He started getting mad and told me I had no idea what he was going through... My cue to leave the room which I did. A little while later he comes downstairs and watches TV with us. Then really nicely asks me if I will go to the store and get him some NyQuil. *high five* for trying... I told him no that I know he only wants it for the alcohol content which effectively ended that conversation.

A little note: If you know someone recovering from or trying to get sober. Keep them away from cough syrups etc that contain alcohol. If you know someone recovering from or trying to get clean from drugs. Be careful of over the counter cold medications. As far as I know crystal meth/speed is made from the same active ingredient. These things can be an instant trigger for relapse without the person even being aware that they have put themselves in that situation.

I tried to get a little creative on Sunday. Decided to take some pictures so that I could make some picture posts for my Facebook page. A couple of hours later, looked at them on the computer... They were all date stamped with 2007/01/01. Hopefully I can crop that off of most of them.

Sunday night my son randomly asked me about tetanus shots. He said that his robot had injected him with one...

This caused me to start thinking about his Citalopram/Celexa as for some reason I thought his last bottle of vodka was on Tuesday instead of Friday so it shouldn't be still affecting his psychosis. He is downing these mickeys or 375 ml bottles of vodka or rum like Kool-Aid. Either way the antidepressant doesn't appear to be doing him any good and in fact may be hindering his recovery as it can do for some people diagnosed with schizophrenia or schizoaffective disorder. So as of yesterday I have cut his dose in half from 20 mg to 10 mg.

His nurse was here yesterday and I discussed this with her. She acknowledged that it was possible and said she would let his psychiatrist and team know that I was doing this. I would stop it completely however I don't want him experiencing withdrawal or negative side affects from coming off it cold turkey as can happen with these medications.

Yesterday afternoon my son tells me that he is: Seemingly having a really good day. I responded that that was good and I was happy for him. Shortly after I paused... How many times has he done this for me to find out that the reason he is having a 'good day' is because he has abused a medication or is using when I didn't know it. I counted my Venlafaxine. They are all there.

I'm still worried though. We have been very careful to not say Adderall in front of my son. My hubby is on this for his ADHD and if you recall it triggered my son's psychosis in July last year. We usually refer to it as my hubby's ADHD med... Well the other I let it slip and my son was in the car with us... Can I trust my son to not get into them? Unfortunately I can't. My hubby did have them stashed in the car just in case and I said he was overreacting... Maybe he's not. Just in case I should count them I guess.

My son has been having a lot of baths since he's been back home. I think part of this is for 'private time' as I have caught him several times now. Why am I catching him? Because he is not closing the bathroom door. Same with yesterday I went to go upstairs and he is in his room masturbating with the door open. Not the first time. I'm being cautioned to not go upstairs in my own home because he is masturbating! I have heard that tactile hallucinations can fuel this so I'm not sure if that is what this is or just my son being hormonal. Either is possible. Regardless it needs to be addressed somehow. He can masturbate all he wants but he really needs to learn consideration and how to do it privately. As well as follow up hygiene.

It's 2 PM now and he just left for the 'store'... *sigh*

Going to see what I can do with those pictures I took and try not to over-think what the next week is going to be like.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Going blind...

It's been a quiet week. My son seems to be recovering and his psychotic thoughts and voices are going away. He is still somewhat delusional in thinking but nothing major. Yesterday I teased him because he was making a sandwich and cleaning up after himself. He replied that he was feeling healthier. Yes that happens when you are not in psychosis :)

The other day he told me that he thought he was going blind. My gut told me that he didn't mean physically so I asked him what it was that he couldn't see. He is having trouble seeing his psychotic thoughts or imaginings. I explained that this was because he is not as psychotic anymore and what he was seeing was part of his schizophrenia. I spoke about this with my hubby and explained that I try really hard not to use terms like normal as they don't really apply here and for my son the goal is not to be normal. I know that for him it can feel like a lose to not see these things so the best that I can do is approach it from the viewpoint of not being psychotic rather then being normal.

This morning we had another little chat. I try to nicely point out that certain thoughts or ideas are delusional because no I can't help him obtain a spaceship so that he can travel the universe. I may be able to do a lot of things and figure out stuff however I do not have those types of contacts :).

Not surprisingly we also discussed marijuana. Earlier in the week I was helping him find a power cord and looked in his coat... Found a pot pipe and screens. Told him it was being confiscated. He doesn't feel like this world has anything for him so he wants to hide in marijuana. Yes he acknowledged that. At one point he tried the: Can we try and you can give me so much every day. My response was: I am not Nana. He grinned and dropped that approach moving on to the idea of getting his own place. All I can do is remind him that it's up to him how many hospitalizations he wants to have before he realizes that marijuana is not worth it. It's his journey I'm afraid.

He would like to have a girlfriend. Well he isn't going to meet any girls by not participating in life. His case worker from PACT was here earlier in the week. She asked him if he had voices and of course his answer was no ;) I stepped in and said perhaps asking how many voices or what they are saying would get a more realistic answer. My son replied that yes he has voices, entities which is normal for him.

Starting next week I'm hoping that he will be more involved with PACT's outings. When asked my son hesitated and I stepped in and said that I would answer for him and yes. Wednesday is there next group meeting were they discuss what type of outings the group will do and someone from PACT will come and pick him up. Monday's they go to the YMCA which again I said yes to. He can swim, work out or do whatever he wants during that time. His worker said she would look into getting him a pass. I don't think she has heard back from ADAPT yet.

I haven't had him call disability yet :( I really should get on that.

He has been taking his medications and it's fairly easy to tell that the psychosis and voices are leaving him. His face is much clearer. He is eating good. He is watching TV and playing games. Maybe not for long periods but still he is doing it. I do feel for him here as it has to be hard to be in this in-between stage where he wants to interact with schizophrenia yet it's getting harder to do. He can 'think' psychotic thoughts yet can't 'see' them as easily anymore. One day he spoke to me about one of his entities that he thought was his son. Whether they are real or not the lose of them will still feel like a lose to him.

Another topic we discussed today was love. I asked him what he thought love was? To be soft like a baby. Translation being soft on him or lenient ;) There are a lot of different sides to love. Sometimes love is hard. It can be a lot of things at one time. Because I'm not always soft it doesn't mean that I love any less. Sometimes making the hard choices is love.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

My Mom's Boyfriend

I have been thinking on this since last night. My son refers to my hubby as "My mom's boyfriend". He is my son's step-dad since hubby and I are common-law. The thing is... He is not just my boyfriend. He is not just my son's step-dad. No disrespect to anyone however my hubby as been there for me, my son and my daughter since he came into our lives, to the best of his ability.

So today I wanted to take the time to acknowledge my husband and all that he is, has been and continues to be for me and my family. He may not always have the patience or understanding that I sometimes expect from him. Really who does?

In September 2012 I decided to leave my job with my hubby's support. In April 2013 I brought my son home with my hubby's support. In July 2014 we drove across Canada for my daughter's grade 12 graduation. Three months ago we decided it was time to move to a bigger place as it looked like my daughter was going to be moving back with me. Of course my daughter has decided not to move and my son is currently in a shelter... So now we are moving into a 3 bedroom town-home and it's just the 2 of us :)

Yesterday evening my son called: Are you bringing me smokes? Without even hesitating my hubby was there to drive me to my son even though he had worked all day. Today he was there to drive me to the shelter for a scheduled meeting. Just like always he is there. He may not have a very good understanding of mental illness but he is trying and he is trying very hard. No matter what it is he says to me: Barb whatever it is you know that I'm behind you 100%. Do what you gotta do... The best part of that is that I know that I can count on him to be true to that.

He may not be my son's biological father however he has been there for over two years now for my son. Yes he finds it hard. We all find it hard. BUT he is willing to try. He is willing to put himself out there emotionally and financially for me, my children and by extension my children's family. It's my husband that is there trying to understand. So much to say however I will leave it at that and just say that he is the one making it all possible.

So thank you to my hubby for being a better husband and step-dad then I could have hoped for! To quote the movie Avatar: "I see you" and I love you for all that you are willing to put up with from me and my children.

Back to my son... I had a fairly nice conversation with a taxi driver today as hubby couldn't come back to get me after the meeting which I will discuss shortly, so I took a cab home. He asked me if I was working in the town he picked me up in? I said no that I didn't work and that I was visiting my son at the shelter because he is there due to mental illness. He asked me what mental illness? I told him schizophrenia and addiction. We actually had a nice conversation about it as he himself used to work in a facility that dealt with mental illness. A very nice man and he wished me good luck when he dropped me off. I thanked him stating I could use some ;)

I did go see my son at the shelter last Saturday and meet with the lady that I had spoken to on the phone. We went over my son's medications a little bit. They don't oversee medication compliancy so my son has been missing some doses here and there. Discussed my son's level of self-care which is pretty non-existent. They may not equipped to handle the support my son seems to need. I didn't put him there... Discussed his need for drug treatment which my son still doesn't want to acknowledge. I had taken him his winter jacket and brought back his other one. He called me later that night. I'm not sure what happened but his roommate accused him of touching his stuff and threatened him. I talked to the shelter the next morning and that guy was no longer there. The person I spoke to was working when my son arrived there so he was aware of my son's case and we talked for a minute about what was going on.

I went to see my son last night and bring him some smokes. Not sure what my son is saying however they were under the impression that my son was without the proper clothing and needed assistance with that. He has winter boots and a dresser full of cloths. He only has... Yes that's because he packed himself and his goal at the time had nothing to do with what he was going to wear but with the opportunity to get high. So I packed a small suitcase this morning with his boots, another pair of jeans, long sleeved shirts and more socks and underwear. Last night he was supposed to have a shower. That didn't happen. It probably won't unless someone 'guides' him into having one.

Today I went to the shelter and meet with my son's case worker from PACT, the lady from Ready4Life and one of the shelter staff. Actually the guy I just spoke about. I wasn't sure how it was going to go with the lady from Ready4Life or how I was going to react to her... but it was fine. We discussed my son's possible housing options. We are all in agreement that he isn't capable of living on his own. He can't see that which makes it harder because they can only do what he will agree to. As far as I can tell the goal is to get him into the group home that better fits him because he can't be in the one that expects him to be out during the day.

I guess the shelter had tried to have my son agree to go to Safe Beds as they can offer more support and oversee medications however as usual for my son he declined. I explained that because my son is not stable that I think he confuses this time in the shelter with September 2014. He put up resistant to getting the right kind of help then too. He turns his back on and puts up road blocks to those trying to help him because right now his addiction is controlling him. He doesn't want support... He wants freedom. One comment he made was the he wants to snort percocets for the rest of his life. Not hard to tell where his thinking is at since he used to snort his Nana's perks.

At least this time we all seem to be on the same page and because we were all together my son didn't put up much resistance to all of us working together to help him achieve his long-term goal of having his own place. It came up about him coming home... That's not an easy question to answer. I would love to have my son come home however the reality is that once he gets it into his head that he wants to use then all of his promises of not being disrespectful or violent and doing chores etc, all go out the window.

We all tried to impress on him that this is the time that he needs to start making the right decisions. He can only stay at this shelter for 30 days. I'm ok with him coming home in between if it's needed however he still needs to participate in making choices that are going to keep him stable. He has it in his head that he doesn't have to worry about it because he will have his own place by then. Or he thinks he will be in British Columbia? Not if I have my say. I can't see him getting the same assistance as last time from the case workers here as they seem to already have a much clearer picture of how my son is acting. It wasn't even me this time that first commented that certain behaviors could be considered manipulative. Yes A++ in that skill ;).

I think the short-term goal is to get him into Safe Beds as they are much better equipped to deal with my son's issues. He did agree to have Safe Beds oversee his medications as I guess they are in the same building. It's a start. I did on several occasions speak to my son and try to get him to pay attention. I can't say I like it when people talk to him and he is obviously not paying attention to them and they keep talking... So I step in and get his attention and repeat what they had to say in words then I think will make sense to him. I asked him what he plans on doing if it comes to the point of his 30 days being up there and he doesn't have housing in place because he is not going back to BC. I had to repeat that scenario twice which is fine because that means he was listening. He seemed less resistant to Safe Beds after that and agreed to them overseeing his medications.

Whether we can get him into some sort of drug treatment is still up in the air. The lady from Ready4Life will be contacting ADAPT which is for addiction services. Maybe they can help to teach him how addiction is controlling his live. He doesn't see it as a problem. I explained to him that if his need to use is affecting his life and choices then it is a problem. Someone doesn't have to be drunk all the time or high all the time to have an addiction problem. If it changes who they are then it's a problem and my son's need/want to use changes who he is and how he acts. Also it furthers his schizophrenia which keeps him unstable.

Not sure exactly what is happening with disability. They still haven't called me back however my son says he is getting a check direct deposited next week. They did process him a drug benefits card which PACT has so they are now taking care of ordering and getting his medications.

Poor hubby... He is getting off of work, taking me to get my son smokes which is a 20 minute drive each way and then he may have to go work his second job of snow plowing.

Oh... Did you see that my blog got accepted here: Mental Health Writer's Guild. My Facebook page reached 500 likes yesterday. Ya me!

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Brick by Brick

My new Facebook page has been growing. I feel privileged for the opportunity to share my story with others. A picture/quote that came across my news-feed yesterday:



I'm not saying that anyone is throwing bricks at me however sometimes it feels that way. Yesterday was an emotional day for me. Regrettably I lost it a little bit on several people. I don't regret my feelings, not at all. I do regret acting on them. Having vented some of my frustration, I think today I am in better control and able to blog about it without being to negative... At least I hope so :).

Thursday evening my son called, stoned, stating that he was being getting kicked out of the shelter due to marijuana use. I could hear someone in the back ground talking to my son about him going to another shelter. At this point I wasn't worried about my son having a place to go as it sounded like it was being taken care of. I did call the shelter shortly after and got privacy laws quoted to me. They passed on the message to my son that I had called and he called me back. He let me know that they had agreed to let him stay. I asked him to sign a release so that I could talk to the shelter and he refused.

From my point of view based on limited information, my son was safe and it appeared he was playing at the same game as September 2014. Honestly I still think he is to a certain degree however hopefully it all won't play out the same way.

Please note: Below is a reflection of my thoughts and feelings. It is my blog after all :)

The last time that I had spoken to my son's Nana was on Tuesday and she said she would probably call me back later that day. I had asked her to not agree to my son having the option of going back to British Columbia because when this happens it gives my son the freedom to turn his back on me and the services available to him here. My son isn't looking at long-term anything. He only sees if he is getting what he wants which for him right now is the opportunity and freedom to use marijuana. Whether it's today, tomorrow or 6 months down the road. I know the mindset of an addict and suffering through anything is worth it if you know the opportunity to use again is waiting.

Wednesday night I commented to my hubby that she hadn't called... My hubby told me to call her because he felt that there was something going on behind my back again. I got mad at hubby, telling him to revisit his CBT thinking and that I believed we weren't going to go down that path again. That we were talking this time and that she had given me her word. Sometimes I should listen to my hubby ;).

In between all this I'm trying to get a hold of disability and limit the damage that I am afraid my son will do to himself if he gets what he wants. Since my son wouldn't sign a release and no one at the shelter would call me back I was under the impression that my son was being taken care of and that everything was ok. Well aside from the fact that he was in a shelter...

Yesterday I started to get an uneasy feeling since I had still not received a phone call which at this point I found really odd. I decided to call Nana myself. I can't say that the conversation went very well. Eventually I had to hang up before I completely lost it. This is when I find out that obviously my son had signed a release for the shelter to talk to his Nana. This is when I find out that she had called the shelter about them not kicking him out. Yes I am grateful for that.

Honestly I don't remember all of the conversation as some key phrases caught my attention. As I stood outside smoking, trying to keep my cool and listen... I didn't keep my cool. 'I don't want him out in the snow.' I have heard this before and the result of this thinking got my son the worst break he has ever had. I don't think I can describe the fear for my son's future that overwhelmed me. 'He can't come here now but after he....' Like I said before in my son's way of thinking he has already won the opportunity to get what he wants which is the freedom to use marijuana. A little FYI. My daughter currently lives with Nana. The thought of her being physically put in harms way makes me feel sick to my stomach. 'She won't be living here then...' For me these few words told me all that I needed to know OR was able to retain at the time.

I think what totally pushed me over the edge was being told that I was wrong in believing in 'tough love' and that everyone else was telling her that I was wrong. I couldn't get my mind around it. Who was everyone else? At this point no one knew my side of what had happened. What professionals had been consulted? I find out that the same women from Ready4Life that had previously been involved, is involved again and as far as I can tell played a very incompetent game of telling both Nana and myself that we were doing the right thing and after assuring me that she would not drop the ball... Dropped the ball.

I'm not proud of some of the things that I said. I do regret letting my feelings of hurt, fear and betrayal govern my words. I don't regret my feelings. In my eyes what happened is that my son was once again give the opportunity to turn his back on me and the kind of support that I want to provide because I believe he can be and do better. All I could see was my son being in the same situation in British Columbia that he has been in time and time again. Things may not always be smooth sailing here in Ontario however his schizophrenia and more importantly his addiction has not been given free reign to wreck havoc on his brain.

I'm still having a hard time getting my mind around this. Just like the last time I am but a phone call away. Physically I am 20 minutes away from my son. If anything about my actions are in question. Pick up the phone and call me! If my son is literally at risk of being out on the streets. Pick up the phone and call me! I thought that there had been an agreement after the last fiasco that we would pick up the phone... "Fool me once shame on you. Fool me twice shame on me."

I was so pissed off by the time I got of the phone. I was shaking and struggled to not cry. I came inside and I thought this is enough. The shelter needed to be set straight and any misconceptions that I was feeling they may have needed to be addressed. I called them and said: This is 'blank's' mom and I know that you can't talk to me but I KNOW that you can listen and I need to talk to someone about my son. I was put through to someone.

I am so thankful that I had enough sense to not let this go and to in a sense push myself onto the shelter. I am also thankful that the lady I spoke to was understanding of my yelling at her. Yes I yelled at her a lot. I couldn't understand how it was that I had called and left a message on Tuesday stating my son's diagnoses and for them to call me with no return phone call. Or that his Nana was able to be involved from another province yet I was being excluded. Granted it is partly due to my son's wonderful resistance to signing a release giving me access.

One of the first things I was told was that the police dropped of my son stating that I had kicked him out. I was again shocked. Yes I yelled at her: I did not kick out my son. He did this all on his own because he doesn't want to pay me room and board and wants to get high. And he got what he wanted as he did get high. Through a fair amount of yelling and even some tears I managed to, I hope, give them a bigger picture of what is going on. I think a apologized several times for yelling. She was very nice about it saying she could hear me crying...

I guess the reason they had not called me is because they had been told that I had kicked out my son. I guess it looked like I was turning my back on my son and not being supportive. I made it very clear that I have been here and that every decision that I have made has been based on the advise of professionals. Yes my son's grandmother loves my son. I have never denied that however when that love keeps my from learning to manage his own illness and addiction or accept responsibility for his actions then yes I have an issue.

My son needs support. I am in complete agreement. They were not aware that my son was a part of The PACT Team and that through this team he has access to a psychiatrist, nurse, case worker and peer support. Yes they are understaffed at the moment which complicates things however my son has refused to participate actively in his own treatment. Why should he? Every time things get tough he gets to run away instead of learning to help himself.

My son needs anger management and treatment. Again I'm in complete agreement. I have known for 2 years now that my son needs anger management. I can only work with the services that I am aware of and PACT does not offer anger management. He needs drug rehab and treatment. I have looked into those too. My son refuses. So unless he is in a situation like he is currently in, my hands get tied as to what I can do. Unless I get power of attorney I can't force my son to take these steps. Instead I get to try my best to but things back to together, to have them torn apart again and again.

Because of my phone call and resulting 'temper tantrum' the lady had my son sign releases for me and the PACT team! *big sigh of relief* I am no longer on the outside of this situation. *fingers crossed* he may even get transferred into a treatment facility where he should have gone years ago. There was also talk of other services that I was unaware of. Like I said I'm so glad I made that call. In the beginning I could hear/feel the walls that were up regarding me. I do believe I tore them down. At least I really hope so because my goal here is NOT to increase my son's suffering but to increase his chances of having a future.

I texted him last night letting him know that I love him. He replied that he loved me to. Brick by brick I will rebuild...

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

He is not OK. Medications.

Like the title says... I really wish that I could pinpoint what triggered or caused this to be happening since Saturday night however I think what it boils down to is the wrong medication(s). For two years now I have read articles and stories about the difference that the right medication(s) and the right dose of medication(s) can make.

Currently my son is only taking one antipsychotic regularly and that is the Invega. He does take Olanzapine sometimes but only when I'm able to 'nicely' suggest it so that he can get a good nights sleep. As I did last night and he said that he took one.

In the past my son was the most stable and recovering while on Clozapine/Clozaril and Risperidone. How many of you add these medications to your computer's dictionary so that you know if you have spelled them right or not? ;) In June 2014 before the Adderall my son was maintaining stability and improving on 150 mg of Clozapine and 1 mg of Risperidone. Over a period of about nine months he had titrated down from 450 mg to 150 mg of Clozapine. Neurontin/Gabapentin and Trazodone was also in there however he never took it regularly. So he was doing really good on two antipsychotics that he took regularly. We added the Adderall for ADHD, lost stability and unfortunately have not gotten back to where he was in June 2014.

As most parents/caregivers know med-compliancy is a big part of the picture. What is important to me is not what is important to my son. If you have been reading my blog then you may be aware that I'm pretty sure my son wanted off the Invega Sustenna (injection) as it killed his libido. And yes it hurt to receive it. I have thought about discussing with his treatment team having the oral Invega upped from 6 mg to 9 mg. I did bring this up to his nurse on Monday however and this is a big however... I am worried about the increase having an affect on his libido and therefor causing him to become non-compliant with his medications.

Like I said. What is important to me isn't important to him. Keeping his libido is more important to him then losing his mental health.

Two tweets that I saw recently that apply here where from Dr. Xavier Amador. One stating that between 50 - 75% of those diagnosed with schizophrenia don't take their medications is prescribed. Another stated that about half don't know that they have schizophrenia. From my own research I know that this is due to anosognosia or lack of insight. It's part of the condition itself that stops the person from recognizing that what they are experiencing is part of the disorder.

I forget exactly what hubby and I were talking about the other night but it was about something my son must have said. I joked with my hubby that my son was telling confabulations because he has anosognosia. My hubby didn't understand me either :) This means that he was saying things that appear to be untrue because he can't see that they aren't true. Schizophrenia causes him to believe in things and see things that most of us don't. How realistic they are have little to do with my perception of reality and more to do with his perception which is being controlled by a disease/disorder that changes how he sees things.

Sorry I'm getting off track... Another concern is weight gain and other side affects from these medications. For awhile my son had to wear a belt with his jeans as they were falling off. I think it was two or three days ago that he commented that he needed new jeans because the ones he had on where getting tight. His eating habits haven't changed. What if increasing his Invega causes him to gain weight and become non-compliant due to this? I know on 450 mg of Clozapine he gained weight then lost it on lower doses.

From a medical standpoint or even that of his treatment team my son is stable and therefore ok. From my point of view, he is not ok. I have seen how well he can do and honestly I don't think I'm ready to accept that what I'm currently seeing or what he is experiencing, is the new normal for him. I know that for some voices etc are a daily part of their lives. I don't know... Maybe after his last break this will be his new normal?

So the question is: What can I do? My son IS being med-compliant. I can't risk interfering with that to any big degree. If we change his medications than we may lose that compliancy. Or worse put him on the wrong medication and lose his current stability. I don't even know what medication could be considered at this point. I do believe he has been on most of them. I do believe that Invega is a good medication for him however it doesn't appear to be enough on its own or at the current dose.

For the moment I will continue to hope that what he is experiencing is a hiccup and not long term. Sunday night he stayed up until after 3 AM and got a little upset with me when I pointed out that how he was talking was delusional. Sometimes, when he is doing good and his mood is stable, I am able to point this out to him without him getting upset. Sunday was not one of those times :) When he started telling me what I was saying (that I wasn't saying) I knew it was pointless and he was too wrapped up in what he was experiencing to listen to me anyways. I didn't push it, left it alone and went to bed.

The reality is that I can't do much about it right now. He is in driver's seat when it comes to his medications. As long as what he is experiencing is not bothering him and it's not, then he will not want to stop it.

He does seem to be a bit better today. I think he was playing a game on his computer and he is now watching stuff. I don't think he has touched his Nvidia gaming system in awhile. I heard him on the phone with his Nana stating that technology is boring and depressing. He can't see that it's symptoms of schizophrenia causing him to not get enjoyment out of these things. Schizophrenia can be depressing. I didn't listen to too much of that conversation as it was fairly delusional and it can be hard for me to stay quiet ;)

He wants to move to... Mexico? and live without technology etc., that it would be great. I did point out that the people living in Mexico without technology and basic necessities may not agree with his point of view. Like I said, hard for me to not say anything. I went for a smoke before I could say anything else. He loves technology... When he is healthy.

His case worker at PACT should be dropping by tomorrow with more Invega. She also contacted disability in British Columbia and got a letter from them for disability here in Ontario. *fingers crossed* this gets us somewhere as I have emailed BC again and now left his worker at disability 3-4 messages with no call back.

My son just asked how he could go about getting some money for an online game. Can he do grunt work with my hubby... It's hard to keep a straight face sometimes. I pointed out that I have seen how much energy he has lately, that he is like 'the walking dead' so I doubt that he has the energy for grunt work ;) He will have money when he has money and he can spend his 'just $28'.

What can I say... Life can be tough sometimes ;)

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

A Disgrace

I had Dr. Phil on yesterday. I wasn't watching it but I did catch/hear a couple of sentences that got to me and reminded me why I don't watch these shows. A mom got put on the spot when they highlighted one of her blog entries that she said she hated her son that day. My reaction was empathy. I can imagine what the listening audience's reaction was... At the end of the show was asked to take down her blog.

This blog for me has been a life saver. Without it I would probably have ended up on medications a long time ago in order to deal with the stress and anxiety of taking care of my son. It's my place to vent. To get my emotions and thoughts out. No right or wrong. And yes sometimes I hate my son... Not who he is underneath all of the symptoms of schizophrenia, ADHD, ODD and what have you but the symptoms, attitudes and just plane old bullshit that I sometimes have to deal with that at times make up who my son is and yes I hate it. Like right now...

I only caught the tail end of this little rant. "This is my fucking house. I'm not a fucking disgrace like you." (Only the first couple of seconds - the rest is silence)

Yes today I'm a disgrace because I won't take him over to his friend's to drink and get high. I also won't buy him more cigarettes when he already has a carton. Oh and I won't agree to the purchase of a $300 tablet or something for his birthday.

Yesterday my son was all of a sudden being nice... His tone completely changed to that I want something tone. He let me know that his WOW subscription had expired and why did I get it for him if I wasn't going to keep paying for it? Then last night he wakes me up to ask about me helping to pay for a present... Even in my half sleep state my mind registered there must be something up. He wouldn't be asking so nicely or commenting 'That was easy' when I first said yes I would think about it. Same with the cigarettes. As soon as I said no to more cigarettes, his whole tone, body language changed to swearing and telling me what a disgrace I am. I couldn't even look at his face and had to look away as his face was... ugly.

These are the cold hard facts of what it is to deal with some forms of mental illness. It's not pretty or wrapped up all nice in a pink bow. It's ugly and it's hateful and it's enough to make anyone want to run for the hills. As parents and caregivers we are supposed to be compassionate, empathetic, sympathetic and understand that when our loved ones lash out, it's not them - it's the illness. No judgments. Guess what? We are only human too and we have feelings and those feelings get hurt and trampled on daily. Our basic human rights to be treated with even the minimum amount of respect and courtesy are null and void. Our homes that we are responsible for are being taken over by temper tantrums, mood swings and psychotic behaviors. We do everything in our power to do the right thing. To love with boundaries. To keep them stable and safe, sometimes to our own detriment and harm.

On the Dr. Phil show this mom was being told, I think by her sister? that her son's problems was a parenting issue. Like I said I wasn't really watching it, only hearing certain sentences so I could have heard this incorrectly.  However it won't be the first or the last time that I have heard this. Family members, friends or perhaps even strangers that think that they could do it better.

I can only say to anyone that doesn't understand the horror, the heartache, the hurt and pain, the guilt and yes even the hate that is not without a broken heart full of love... Come into my home. Walk in my shoes. When my son is standing over you (he's about 6 feet tall, weighs about 180 pounds and is muscular), full of rage that you did nothing to provoke, refusing the medications that keep him stable because they are poison and affected his libido, threatening you with violence because you dared to say no... I'm open to suggestions. Because right now I don't know what to do.

I know that my son is currently not sick enough, not psychotic enough to be involuntarily admitted.

Schizophrenia.com - Recommended First Aid for Schizophrenia and Psychosis

CAMH - Creating a crisis plan

Treatment Advocacy Center - Psych Crisis Resource Kit

They are wonderful guidelines... Currently rereading and going through them now and updating medical information.

After his outburst that I didn't respond to he went to his room. I'm sitting here with these wonderful thoughts going through my head: Is he in their stewing? Is he suicidal? Is he just lying there listening to his voices? Is he going to eventually come out and apologize that he wasn't in control or come out still raging? Yes I know that he isn't in control. That would be why I'm sitting here with my boots on and my cell phone in my lap, just in case.

He did take the oral Invega last night however didn't take any Olanzapine.

Yes it is a disgrace. A disgrace that I need to choose between my son or my own safety. A disgrace that there is no where to go or so few housing resources available for my son (if he would even use them). A disgrace that no matter how much I give, it is never enough. And if I stop giving... A disgrace that schizophrenia has yet again buried my son somewhere within itself.

Credit to Understanding Schizophrenia - Poem



Mom
BarbieBF

Another waiting game

I think it's just a matter of time before my son is inpatient again.

He has been off the Lithium for five days and off Trazodone for four days and it's been four days since his Invega shot was due. He has been taken his Olanzapine at night.

I don't know why or what instigated him just asking me this however he just asked me if I still had his knives. He hasn't asked or spoken about them since September so I'm pretty leery about why he is asking for them now. It honestly sucks when you don't know if you should be afraid of your own son or not. I tense when he walks behind me. *breathe* He is cutting his Trazodone pills into four pieces, he said it is so that he doesn't take too much. I said no to having his knives. His response was that I need to compensate him for them. Consider them compensation for the plane tickets and everything else that I have been paying for for the past month or so. The standard, default answer to kick him out... I told him that I wasn't going to have that conversation so he replied that maybe he should take away my computer.

So here I am, not saying anything because to respond or try to be rational with him at this point is pretty useless. I think my nerves are shot. For the past three days? he has been doing very little. I don't know why, if he is doing it on purpose or not, however I can hear him breathing from across the room. Or wheezing may be a better word, breathing through his nose. Yes it's my nerves, because seriously, listening to it is very much getting on them. I think I made the mistake of asking him one day if he was doing it on purpose. If it bothers me my son is will do it...

Another mistake I may have made was try to discuss with him why he wanted to go off the Lithium. Since he lives with me I know how much time he spends masturbating which he very much likes to do and I have noticed that since on the Invega Sustenna that it had basically stopped (a possible side-affect). So I asked him if the reason he wanted off the Lithium was because he thought that it might be causing this even though he has been on it for two years with no issue. I told him that it's the not Lithium causing this, that is was probably the Invega. Yah, not that smart of me. Granted it may not have made a difference one way or the other as once my son gets it in his head to do something there doesn't appear to be anything I can do to stop him.

Yesterday I walked by his room and he was masturbating with his door open. I think he was at it for a good twenty minutes. Other then to watch porn he has not been on the laptop for probably a week now.

If you were to ask my son how he is doing? He would say good, that he has been relaxing, watching TV and going to bed reasonably. The truth is a bit different. If he is sitting/lying in the living room with the TV on than he will say that he is watching TV. He isn't. Ask him what he is watching or what it is about? I only have basic cable now and the weather channel can't be that entertaining for hours at a time ;) Relaxing... Heavy breathing while he is lost in his own head-space as I call it. Going to bed... Sometime between 1-3 when I get up and interrupt him 'relaxing' or ask him to go to bed. It took me about three days to get him in the shower as it had been over two weeks. Finally succeeded as with hubby's help we made it shower day for everyone!

He is eating dinner and snacking so that is good. He hasn't lost his appetite although I can see it starting to slip some. I can tell based on the number of messes that I'm having to pick up. Putting the water jug back in the fridge or anything else after using it is not currently a part of his reality. I did tell him yesterday that if he has the energy to masturbate for twenty minutes then he should have enough energy to pick up a piece of garbage. Considering the amount of 'exercise' he can get doing this, he should be doing all the heavy lifting around here ;)

I just had a conversation with him about the conversation that I had with his Nana last. I had no idea that he has apparently been calling her for weeks about going out there, that there is a lot of yelling going on here and that he doesn't like my hubby... According to my son he hasn't been saying any of this. He did acknowledge that being able to masturbate may be why he wanted off the medications that he does like to do it. He doesn't want to be sick however he does want to do this and he does like psychosis.

I had talked to him on Tuesday about the fact that I had been accepted for the townhouse. Yah! And that I didn't think that I wanted him to move with me under the current circumstance. I went over the contract that he signed with me stating that he has not been doing anything that he agreed on. It was my fault for not reminding him or making him do these things and that he has his own problems to deal with. When I asked what those problems were I got told that they were none of my business. The conversation pretty much ended there.

Like I just told my son, if he wants to be psychotic that is his choice. He still has to accept responsibility for his own life, his schizophrenia and the choices that he is making. I'm not going to pretend like it's not there or that he is not being delusional in his thinking or that the road he is choosing to go down is one that I will support. I will not support him manipulating me or his Nana and causing conflicts between us that are not helping anyone including him. He wants to run away and bury himself in marijuana and/or alcohol. Last night he wanted to go to his friends. I checked his messages this morning and they had been discussing having a couple of beers. One message was: About the drinking thing did you mean tonight? Marijuana has usually been a part of these scenarios.

Again he asked about me not taking my portion of his disability check when he gets it. How is he supposed to get his own place without money? First he has to put forth an effort to get a place. Why would I agree to hand him over money for a place to live when he isn't even trying to find one? We all know where that money well go. Besides if he goes into a group home than disability will pay the group home directly so he won't have to worry about it. He needs to work with PACT and disability to make this happen.

His case worker should be here shortly. She apparently has oral Invega for him. Maybe if he had this 2-3 weeks ago we wouldn't be here? That could be wishful thinking on my part :). Not sure who is paying for them however I told her that I can't. She has been in contact with disability and is giving them a hard time about the drug card. My son said that he will discuss medications with her when she arrives. Guess where he is again? ;)

It looks like we have bought a car! Did I tell you that the motor is going, again, in our car? I had to transfer $1300 from my line of credit today to pay for the car and it's safety etc. Our rent will be going up over $400 a month plus heat which is electric. My son said to me yesterday: Since you are moving and will have more money can you buy me a plane ticket? Hrm... Laugh, cry... anxiety meds!? :) I took a sleeping pill the night before last and it did nothing. Last night I took another which I don't usually do as they can be very addicting but I slept for over four hours! Score one for me :)

His case worker just left. He has agreed to 'try' the oral Invega but will stop them if he doesn't think they are working. He is ok with the side affects of not taking or going off medications cold turkey. She gave him a one week supply of samples so hopefully by next week the disability/drug card thing will be straightened out. He tried to tell her that his Nana is buying him a plane ticket so that he doesn't have to be in a shelter again. Grrr... I'm not sending him to a shelter right now. It's not an all or nothing situation or at least it shouldn't be. I said no that Nana is not buying him a ticket right now. He then agreed to sign forms for a group home. It's ridiculous that he thinks well enough to play on Nana's emotions like this yet can't think to put away a water jug. I asked her to check into the one that has less restrictions and he doesn't have to be out Mon-Fri 9-?. Still onsite support every day just not 24/7.

I guess I should go and perhaps message his friend since my son just brought up going over there to drink. He deserves it... I told him that alcohol and marijuana well probably have him in the hospital by Saturday. It's a sin for me to put him in the hospital you know? I'm not putting him in the hospital, he is putting himself there so he needs to discuss this sin with himself!

Mom
BarbieBF

Who wants to be depressed?

How do you rationally talk to someone who is being irrational? I guess you don't...

If I could get inside my son's head for 5 minutes and try to figure out what he is thinking or what is motivating his behavior... I have some ideas based on what I know of my son so far.

2 nights ago he got it into his head that it was unfair of me to expect him to sit on the small sofa or love-seat so that hubby and I could have the big sofa. He has rights you know? Yes so do we. Hubby and I did vacate the living room and spent some time in our bedroom partially due to this and partially due to the fact that the power had gone out so we just went to our room. When the power came back on and we were able to get the movie we were watching back on, it was several times asking very nicely, please can you move to the other sofa? According to my son the love-seat is uncomfortable. To clarify the love-seat and the big sofa are the same set and in fact the big sofa is harder and more worn out then the love-seat. He finally agreed to move but wanted to rearrange the living room furniture because of it. I said no and that when he has his own place and his own furniture he can decide where he wants it and who sets were. He won't be inviting me to his place. Honestly I found this somewhat humorous so my tone was light when I responded and told him to remember that when he is calling me with: Mom I have no money. Mom I can't pay my bills or Mom I'm hungry... Off he went to call his Nana...

Later that night, around 12, he was taking a part one of my bookshelves, taking my mouse-pad for my computer and just overall making a racket in his room since his floor is a mess and he can't walk in there without walking on stuff. All this so he could play on his laptop in bed. I think he is playing World of Warcraft again which is good however I will get back to that...

Yesterday, I thought, was a pretty good day. He spend the day in the living room with hubby and I watching movies and going for smokes with us. Once we asked him to walk to the store with us however he didn't see the point in going since I said I wasn't going to spend any money... Hubby had won some free Lotto tickets.

Last night when I saw that he had gone to bed and not taking his pills, I took the dish into him. I'm not taking the Lithium... I tried to talk him into taking half of it as stopping it like that may cause him to get too depressed or even suicidal considering he is not ok right now. He said that he wants to be depressed. I tried... but like I said: How do you rationally talk to someone who is being irrational? He told me to take them. Well I don't have a chemical imbalance of too much dopamine in my brain so I don't need them. He is not a robot... No and these pills would not work on a robot because robots don't have dopamine but he does because he is human. Since I have such a problem with this then I should fix it... That's what I'm trying to do. I told him that what he is saying isn't logical. I have never heard anyone say that they wanted to be depressed. How is he going to take care of himself when he is living in the shared townhouse living that he wants if he is too depressed to take care of himself. That's another thing... He needs a shower. I could smell him from 3-4 feet away. He says that is ok that there is nothing wrong with the smell of BO (body odor). I gave up and went to bed.

Now, today, he is refusing his Olanzapine as well. He has been taking one when he gets up for the past 2 days since I know that he needs it due to the Invega wearing off and it has been helping. Now today... It's a PRN (as needed) and he doesn't need it. I said to him: Can you please explain to me what is going on in your head because I don't understand why you want to be sick? Why do I care so much? Because I love you and I give a crap about your mental health. Oh well, I'm not taking it.

I'm wondering if his wanting to be depressed could have anything to do with him playing World of Warcraft again. His subscription will be running out soon. When I bought the upgrade as an early Christmas present and paid for the monthly subscription it was under two conditions. One he not spend the little money he had on alcohol and two that he was to pay me back for the monthly subscription the following day. Well he didn't pay me back and the money did go on alcohol. He is aware that I cancelled the subscription from charging my credit card again this month. Only time will tell but if I here: Mom I'm depressed so I need you to buy... I'm not saying my son doesn't think that he has experienced depression however I'm pretty sure he has no idea what long-term depression really feels like. Not being euphorically or intensely happy is not depressed. Not being hyper is not depressed. Being bored is not depressed.

My daughter called this morning... Mom I need money... Mom doesn't have any money... I think it's long past time for this to start being a reality for someone other then me and my hubby. The motor is gone in our car, again... I won't rant about this as really in the end it's for me to start putting my foot down and saying no. I'm not mad at my daughter... My love is free but it's time to start looking elsewhere for money.

I need a shower and hubby is home so I'm off...

Mom
BarbieBF

You're real?!

Friday was the first time I had seen my son since September and obviously since his last full psychotic break. This break has a different feel about it then the one I saw him go through September of last year. A lot of it is the same of course however I don't recall the disorganization and word salad. I find myself having to ask him what certain words mean and once he describes it then I fill in the appropriate word. On the plane ride home he was tapping the tray and arm rest with a knuckle. When I asked him why he said he was testing the bandwidth of the carriage. I asked if he meant the density of the airplane and he said yes. Once he told me I was his limbo which meant I was like his left arm.

I didn't realize just how much he was still in psychosis until we were in the cafeteria at the hospital and he asked me how to tell if something was real or not. I asked him he was unsure about being in the cafeteria and he said yes and was concerned that the cafeteria would be scary to me. I can only guess at what he must have been seeing or hallucinating to think I would find it scary. He had denied hearing voices with the hospital psychiatrist however he knew better. I usually refer to them as entities as voices to me just don't give them justice. They are not just the sound of a voice. Clearly these entities were with us in the cafeteria so I told my son to not be afraid to try some reality checking by walking up to and touching what he is seeing to see if they are real. I toke his hand and had him touch my shoulder and after a couple of seconds he squeezed my shoulder and either asked or stated: You are real?!. Yes hun I'm real. Then I had him do the same with his sister so that he could know that we were both really there. It was sad to think that up until then he must have questioned that he was walking and talking with hallucinations. The severity of how sick he was struck me at that instance.

I questioned if I should have had him released when I did and I very much question if he should be out of the hospital yet. He is still too unstable. He wrote some notes on the plane and his thoughts are messed up. Some are good however the others are about sex and weapons. He actually asked me if he could have a gun... I added to his notes by changing his good thought of having a 'somewhat health life' to a 'very healthy life' and adding love, hope, family and that I love him very much. He seemed to like this. He did spend some time playing Mahjong, a matching tile game, on my phone for a bit. I was impressed to see that he could multitask to a certain degree. He still matched tiles even while he was laughing at his voices or intrusive thoughts :) I did ask him what they (voices) thought about me or if they had anything to say about me and apparently not so that is a good thing. I tried a couple of times to ask what was so funny that they must be saying something fairly funny however he couldn't or wouldn't tell me other then one comment about a dog's penis... Not sure I want to know more then that. He seems to have a fascination with animals during these times and not in a good way.

I did call disability again and left a message that he is here. I just called the pharmacy here to find out if they can bill another province for medications and was told 'sometimes it works'. I was really hoping for a yes as I'm hoping to get a sleep aide prescribed since getting him to bed last night was pretty much a no go and he needs his sleep to recover.

I have talked to his case worker at PACT today and she has already set up an appointment for his psychiatrist to come see him tomorrow. I have to talk to him about the amount of Invega he is on as 75 mg seems low to me. I also have to talk to him about putting my son on a Community Treatment Order (CTO) for medications. Hopefully the number of hospitalizations, now 8 of them, will be enough to have one put into place. I forgot to ask his case worker if she had prepared any releases for him to sign. Maybe PACT can have better luck getting disability to respond if they have a release signed. I think the psychiatrist will assess if my son needs to be hospitalized or not. He was left on Lithium as the psychiatrist was concerned there may be a mood component and didn't want to take any chances. I'm guessing that means he could be schizoaffective?

We got home around 1:30 last night... I had hoped that I would get him to bed at a reasonable time. Nope! Having the laptop and PSP4 set up was the first priority. Then it was the TV blaring at around 5 AM as he was watching Constantine. He said after that episode. Then it was calling Nana. Then it was not being able to sleep. Then I was being woken up as he wanted his bank card, then his glasses cause he was playing his PSP... I think he finally went to sleep after my husband left for work. Not sure how to fix this as this can't keep happening, him getting his nights and days mixed up, as it can contribute to psychosis.

It's 2:50 PM and my son just got up! I was thinking I would have to drag him out of bed if I wanted him sleeping tonight. Now that he is up I will put away his cloths.

Mom
BarbieBF

The Worry Jar

I saw reference to this on one of the groups that I'm in. It was for children but I thought why can't I have one too? So I got a jar, wrote down most of my worries and put them in the jar...

That I won't get out of dept
That I won't be able to help my son and keep him stable and safe
That my son will hate me for what I need to do

You get the point... I tend to worry and over think things so even if only for a moment it was a relief to put those worries in a jar... In a safe place... Until I'm ready to pull them out. Kind of like housework :) It's not going anywhere and will wait for me.

The Worry Jar Technique: Help Your Child Overcome Worries and Anxiety

The Worry Solution

I was talking to my best friend and another call came through... It was my son. I ended up having a good cry once I got off the phone. Still am a little bit ;) I can't say that I have heard him sound quit so lost and hopeless. The Invega is working so he is much more coherent but he is still somewhat delusional. He wants me and him to move to another country... The first thing he asked me is if I was coming to get him. For the first time in a long time, probably since the Adderall... he seemed to genuinely believe that I love him! I think that is what broke me, when he said that he knew that I loved him. No ego, no defiance..

I told him that I want to get power of attorney so that this doesn't happen again. He asked about getting or being his own attorney and I told him that up until now he has been his own attorney and look at where it has gotten him. In the hospital again and that even if he doesn't realize it he is lucky that he isn't in jail. I think he is having a hard time understanding what happened. I am not a scientist however I think after psychosis the brain tries to piece together what happened in a reasonably logical way and the pieces just don't fit so confabulations are created.

I did my best to explain to him what me having power of attorney means. That if he decides to go off of medications that I think that he needs then I get to make that decision. I asked him if he is willing to have me help him get his life back on track, back to where we were before the Adderall, to be his attorney or decision maker and he said yes. It was heartbreaking to have my son tell me that he is only looking forward to being here with me and doing nothing because no one well ever want him. As I have always tried to do. I told him that he is so much more then that. That he is an awesome human being and that I will do my best to give him the live that he deserves. That I will not let schizophrenia do this to him without a fight. I love him too much. So no he can not come here and do nothing... My rules have not changed. That I will push him to be the person that I know that he is capable of being.

I asked him if he still had voices, not to lie to me because I know that he did. He says the entities are gone now and that he is alone, that it is just him. Apparently they were driving him nuts (I smiled too!), constantly nagging him. I told him these entities are a part of schizophrenia and that the Invega will help keep them away. Him wanting them gone is a good thing.

I asked him to be a little patient and to give me some time to try to get everything sorted out. I'm still waiting to hear back from disability and the lawyer. Hopefully Monday will have my phone ringing with the answers that I need.

Mom
BarbieBF

Discharged... What?!

That was pretty much my reaction on Friday morning when I called the hospital and was told that my son had been discharged. That my reaction was incredulous to say the least. Skeptical, shocked and mad were each fighting there way up to the surface as I was wondering who's ass I would put in that proverbial sling first. The lady in patient locating caught my obvious tone of bewilderment and fairly quickly said she would check for any notes regarding the discharge. He had been transferred to another hospital the night before. Whew! Would be an understatement on the relief I felt that he had not been discharged.

I called the new hospital and spoke to his nurse. She said that he was settled in and resting. I questioned the resting part as if he was awake and not moving I wouldn't call it resting. I asked if he was sedated and she said no he hadn't had much medications. I should have asked her if she noticed his foot going a mile a minute which I'm sure it was. I was asked if there was any foods that he liked because he wasn't eating and 'Was that normal for him?'. Sometimes I want to ask if they have any experience with psychosis from working in a psych ward? Because honestly I have to wonder. He is not eating because he is in psychosis. Hello! Anyone home up there? It reminded me of when my son was hospitalized last September (full psychotic break) and a nurse said to me 'Your son thinks you are trying to kill him. Do you know why?' I guess the diagnoses paranoid schizophrenia went over some peoples heads.

I patiently explained that yes it is normal for my son not to eat when he is in psychosis. He is to far in his own head or in psychosis to eat. Same with resting... He is not resting. I would bet my live on it that his mind or thoughts were racing a mile a minute. I was told that there was a patient phone that I could call and they would get him up to answer it. I said no I would wait a couple of days. Based on what I have seen in the past and what I was being told, there was no way that I was going to try and force my son to have a coherent conversation when he is obviously not up to it. Trying to force his brain to deal with reality before medications have a chance to work would be putting more stress on his brain which was certainly not needed, in my opinion.

I did let the nurse know which medications I believed would help to get him stable. Let her know that Trazodone would help him sleep and that Neurontin/Gabapentin helps a lot for his anxiety. All the while thinking that I sounded like a broken record since I had just done this less then a month ago and several other times over the past two months. I also gave another heads up on his actual diagnoses being paranoid schizophrenia with concurrent disorders. One being addiction so be careful with benzo's. I also gave a heads up on no stimulants for his ADHD - his foot going a mile a minute.

I just talked to my son on the patient phone. A fairly short conversation but at least he is still managing to respond to my I love yous. I asked him if he knew why he was in the hospital. He said because he hasn't been taking his medications since he went out there. I asked if he remembered hitting his grandmother. He stumbled and fell because he was almost dying although he doesn't know why he was almost dying. I seriously hate this disease at times like this. What it does to the mind and memory. If he can't see what schizophrenia is causing him to do... If he is sheltered from the reality of what he is capable of doing when he is in psychosis, how will he ever know what it is that we are fighting against and what the medications are helping to stop? I think he needs to know. He needs to know and see what schizophrenia is capable of making him do.

Still I set here questioning myself and not taking action. Honestly I can't believe I'm not following my gut on this... Like I haven't learned to trust it yet?! In life I think the things we feel the most quilt over are the things that we didn't do as apposed to the things we do wrong. We can sometimes be lucky enough to fix the wrongs that we have done but we can never go back and do what we should have done in the past. Will I have to deal with the guilt of doing nothing? God I hope not. I know why I'm not doing what I think is best. It's because I'm not sure of the support that I think that I should get to accomplish what is needed. As long as there is 'interference' then I will never have the assurance of knowing that bumps in the road are just that. Even if I decide to get guardianship, my son will always fight to take the easy road instead of centering on his own recovery. Round and round my mind goes...

Mom
BarbieBF

Addiction and Psychosis

What came first? The chicken or the egg? I know this may seem like an odd question. Sometimes I don't think the answer to that question is very important as what matters in the end is that we have chickens laying eggs... (Sorry that was a lame attempt at being funny) Does it really matter which came first?

My son has addiction and psychosis or schizophrenia. Science cannot say for sure what causes schizophrenia BUT it does know that certain things make it worse. We know that a lot of people with mental illness also have addiction problems. For some it is a way of coping with symptoms. For other's like my son, I'm not so sure. Since his schizophrenia symptoms are usually under control when he is not using marijuana and stable then I don't see someone who is self-medicating his schizophrenia but someone who is feeding his addiction. I do know that marijuana triggered his first psychotic break and caused him to be catatonic (immobile, unresponsive or not moving) for somewhere between 24-36 hours. He has spoken himself of how high he was when this happened. Of being aware of what was happening around him but unable to respond. He couldn't because schizophrenia had a hold of his brain. It took over until there was no room for anything else. It did what schizophrenia or psychosis does and caused him to break with reality.

First I will speak about addiction. This was taken from The Alcoholics Anonymous book:

"Men and women drink essentially because they like the affect produced by alcohol. The sensation is so elusive that, while they admit it is injurious, they cannot after a time differentiate the true from the false. To them, the alcoholic life seems the only normal one. They are restless, irritable and discontented, unless they can again experience the sense of ease and comfort which comes at once by taking a few drinks - drinks which they see others taking with impunity. After they have succumbed to the desire again, as so many do, and the phenomenon of craving develops, they pass through the well-known stage of a spree, emerging remorseful, with a firm resolution not to drink again. This is repeated over and over, and unless the person can experience an entire psychic change there is very little hope of his recovery."

"At a certain point in the drinking of every alcoholic, he passes into a state where the most powerful desire to stop drinking is of absolutely no avail. The tragic situation has already arrived in practically every case long before it is suspected. The fact is that most alcoholics, for reasons yet obscure, have lost the power of choice in drink. Our so-called will power becomes practically nonexistent. We are unable, at certain times, to bring into our consciousness with sufficient force the memory of the suffering and humiliation of even a week or a month ago. We are without defense against the first drink."

Abstinence is a solution that recovering addicts have to make. Whether it's alcohol, marijuana or cocaine. Without first abstaining how can the person see past the addiction to experience the change required for recovery?

Now lets look at psychosis. A sever mental disorder in which thought and emotions are so impaired that contact is lost with external reality. It is a break with reality. The exact cause of schizophrenia is unknown however we do know that schizophrenia occurs with changes in brain chemistry, specifically dopamine. I have long believed that my son's brain produces too much dopamine.

Using marijuana causes the brain to release more dopamine. That is why it feels good to be high. Dopamine is also called the 'feel good' chemical because it is directly responsible for feelings of pleasure, motivation and reward. At the same time, abusing marijuana blunts the brain's ability to respond to dopamine. So even though the brain is producing more of it, the brain's ability to respond is blunted, dulled down or has less of an affect. The brain doesn't know what to do with all of this dopamine. Unfortunately schizophrenia, in my opinion, does.

What do you think happens when you flood a brain already producing too much dopamine with even more dopamine? Other then feeding the addiction we are now feeding schizophrenia too by triggering psychosis. Anti-psychotics that block dopamine can only do so much when outside sources continue to flood the brain with even more dopamine which contradict or go against what the medication is trying to do. If anything this combination is, in my opinion, even more damaging as by limiting the dopamine in the brain the medication is also limiting dopamine in other parts of the body which is why some develop movement disorders among other serious complications. More marijuana... more medications... more risks. Less marijuana... less medications... less risks. Self-medicating to feel better which triggers or worsens psychosis symptoms. More anti-psychotics that don't work as they should because of self-medicating. It's a vicious cycle. 10% commit suicide. When there is no light at the end of the tunnel just a cycle of unhealthy choices...

Back to my original question. Whether my son developed addiction or psychosis first is a mood point. He is now suffering from both. How can we help him to recovery, be stable and to have the future that he deserves? Certainly not by feeding his addiction and schizophrenia!

Mom

BarbieBF

Hoping for the best.

I think I have my feet back under me, figuratively speaking. At least I don't feel like I'm down for the count. I won't say who but someone said/typed something to me today that lifted me in a way that I was not expecting. This person said: And don't be sorry, he's your son. A simple acknowledgement that... I really can't explain... Just thank you if you are reading this. It somehow made my day and helped me to realize that nothing can change this. I did allow schizophrenia to cause a rift that should not have happened. I allowed emotions, my sons and my own to get in the way. I stepped back just a little too much or perhaps a lot too much ;) I'm afraid I'm only human after all...

My son left yesterday on a flight to his father. I did not take him to the airport, someone from Ready4Life did. I couldn't. I did see him the night before, brought him some things, took him for a Tim Horton's coffee and let him talk for a bit. I sometimes do this to get an idea of where he is at mentally. If given the opportunity and if he feels safe then he usually opens up pretty easily about what he is thinking. As hard as it was to listen to my son's delusional thoughts and beliefs, I did take comfort in the fact that he still considers me a safe place to speak about them. I won't go into all of what he had to say except that he spoke of himself as being non-human, wanting to leave earth and not wanting to be connected to anyone by love.

I think off all the things that schizophrenia is, how I can love and hate it at the same time and I do, but the fact that it robs my son of the ability to feel love normally, is one of the hardest parts. I'm not saying that my son doesn't love because I know that he does. However he does love differently. He doesn't love in a way that allows for a certain amount of give and take or consideration for the other person. Of all the things that I fear for my son's future, one of my biggest fears is that schizophrenia will not release him enough for him to see the joy that giving can give. I do believe that it is possible as I see it happening with others. I just can't give up hope that it will happen with my son. That given time that part of him will mature and he will learn the true meaning of what it is to love and be loved.

I was talking to my daughter this morning. She asked if she was talking to much as she enjoyed talking to me. I enjoyed her talking to me too! It was actually reassuring to listen to her talk about her life.

As the title says, I'm doing my best to be positive or to hope for the best. As far as I know my son left with a limited supply of medications. I know that his Lithium wasn't refilled however I'm not to sure about his Clozapine. I did bring it up to him however he stated that he didn't plan on taking medications once he moved so there was no need, that if he has to be on medications for the rest of his life then he might as well end it now. I did reply that some people would gladly take pills if it meant a chance to keep living however I know that he doesn't see it this way so I let that conversation end. I have supplied what information I have regarding medications and his history and hopefully the right people will read and take note of what, I think, does or doesn't work best for my son. I am very relieved to know that it doesn't look like he is going back to the same psychiatrist that he used to have. If his new psychiatrist takes any interest in his past history and my notes then hopefully things will not turn out as I am fearing they will.

So I'm doing my best to have faith. That Donna, Dad & family and his new treatment team will take care of him. One day at a time right?

Mom
BarbieBF

Bronchitis, I Love You Too

My son called me on Friday, he has bronchitis and needed his disability drug card to fill his prescriptions. There wasn't too much that I could do until my husband got home from work so once that happened we headed to see my son. On the way we stopped and got him some acetaminophen in case his throat hurt and some cough syrup for at night. We took him to fill his prescriptions at a different pharmacy then the one he originally went to which saved us some money. I would have to say that really bothers me that some pharmacies charge more, especially when it's for people on disability. Due to my previous job where part of my duties was to be the administrator for the companies insurance, I was/am aware of why at some pharmacies you have to pay more. It's because they are charging more for their services or medications then the insurance company or in this case disability, thinks the service or medication is worth. So luckily the one pharmacy was already closed so we went to another one, one that didn't charge more for their services then disability was willing to pay.

My son wanted to go for pizza afterwards to which I agreed if he cleaned up first. He was wearing the same cloths from when I saw him on Tuesday and they didn't smell too good. With no resistance he changed cloths and cleaned himself up. I had also brought him a toothbrush, toothpaste, deodorant, Q-tips and nail clippers, although I haven't been able to get him to use the nail clippers yet. He goes through phases where he likes to have long nails. It seems to go hand in hand with his phases of instability and I only remind him that if he is going to keep then long then he should try to keep them clean. We also got him a new fanny pack since his was taken and I wanted him to have a safe place to keep his ID and other items. We then took him for pizza which he seemed to enjoy. I had to pick off the hot peppers since we let him pick the toppings.

I was impressed during the visit to see staff at the shelter checking for drugs etc when certain people where coming in. One boy even had to remove his shoes! All my son's belongings are in a locked cabinet that only staff can access. Not sure how but he also got another cell phone and this time kept the paperwork although I didn't take the time to read it. His left over pizza was put in a locked fridge with his name on it. We had to hand in his prescriptions, even his puffer that he was prescribed. All prescription medications have to be monitored and he signs every time he has access to and takes his medications. After watching my son take his first set of antibiotics and use his puffer, my husband and I said our good-byes. This time my son actually hugged me back! and told me he loved me too!

Saturday my husband and I went to see his family as his sister passed away over a month ago but due to circumstances everyone couldn't get together until now. It was nice to see everyone.

Yesterday we went to see my son again. He seemed genuinely happy to see us. Got him to change his shirt as again he was in the same one. Took him his track pants as the nights are a little colder now. He can do laundry there but without monitoring and reminding he doesn't follow through so I guess he did start a load when he first got there but the cloths went missing. He hasn't looked for them so they are probably there somewhere since no one else is wearing them. He can't be bothered to look for them as according to him he can buy a whole new wardrobe for $400 so why worry about a set of cloths. I guess this $400 is part of the full check disability is going to pay him... I have been bringing home his dirty cloths. Also took him some vitamin waters, beef jerky and more cigarettes. He wanted to go for a car ride so we drove to Tim Horton's, got a coffee and went to a park to drink it.

Even though he is physically doing better, his thinking is still a little off. I was asking him about how the food is at the shelter and he says that it is actually pretty good although he still doesn't feel like eating much. He is still in the frame of mind that he is doing his body good by forcing it to survive on less. I tried to explain that his body is like a car. It needs oil, fluids and gas to run properly and if he really wants to show his body respect then giving it the proper nourishment is the best way to do that. I do believe that he is eating as I see no indication of weight lose and even though he is somewhat delusional in his thinking he is doing better.

Paranoia, delusional thinking and general confusion becomes obvious at certain times. The shelter has tried to get him to sign a release for PACT however it seems a little paranoia may be causing this resistance along with his normal defiance. He seemed less resistant to the idea when I brought it up to him a couple of times. He is starting to get low on his Clozapine so I'm hoping that I can get him to open up about PACT so that they can interact with the shelter and make arrangements to have this brought to him as well as receive information about his blood work for next week. The shelter or my son is going to need a requisition and I can't provide it, PACT does. Also it would make things so much easier in trying to find him a bed somewhere else if everyone could talk to each other and get things moving faster. I really wish that he could see all that everyone is trying to do for him. I know that his case worker called the shelter again today but they couldn't talk to her. I'm not sure how long they can continue to offer their services if he is not open to it. I'm not sure I even want to think about the problems that could arise from him not having a psychiatrist to prescribe his medications or who is going to pay for his Clozapine since PACT took care of that. He was lucky to have a lot of people advocating and pushing his referrals through so that he didn't have the usual wait time it normally takes to get in to see a psychiatrist. One problem at a time right!

He did ask me yesterday what was going on with his Grandmother and Father, that something didn't feel right or was off. At first I wasn't sure who he was referring to as we usually refer to his grandmother as Nana. He wondered about his Dad not calling him and I let him know that his Dad had asked for his cell number but his cell had gotten stolen right after that and my son seemed confused by my reference to the stolen cell, like he didn't know or remember that it had been stolen. I'm not sure what he thinks is off with his Nana and he couldn't explain it but I told him that she has been going through her own stuff and I don't think it's anything that he needs to worry about. It could be his own paranoia acting up as well so it's hard to tell.

I did make sure he took his antibiotics before leaving yesterday. Let him know that I might not make it back until Wednesday. I also got the name and address of the pharmacy that filled his antibiotics as I'm going to have to figure out something for when he needs to refill his Lithium. Either transfer the prescription from the pharmacy here to the one close to him or have this pharmacy get the disability information as we had to give the pharmacy the original disability drug card and they keep it. Hopefully I'm worrying over nothing and I don't run into problems of not being able to do help with this since he's an adult and should be doing it himself. He did hug me good-bye and told me that he loved me too.

So today I'm doing my usual phone calls of checking on him, making sure everyone is aware of what they need to be aware of and now I will try to get a hold of his case worker and keep my fingers crossed that he finally agrees to sign the release.

Not adding up...

I did see my son on Tuesday. I arrived while he was on the phone, I was told that he was talking to his Grandmother. I'm not sure what I was expecting to find but physically he actually looked like he is doing okay. He has showered and he has been sleeping and eating as the shelter does provide meals. He has been taking his Clozapine and Lithium. My son's eyes seem to tell his story better then anything else and he looked more stable then the last time I saw him.

I have tried to piece together what happened on Monday however very little of it is making any sense to anyone. Before my son called me to tell me that he had been mugged, I was unaware that this happened. To my knowledge he had tried to buy $500 worth of drugs and they didn't return with the drugs so he went to the police. Somewhere in there he took them for Chinese food... I really don't know how that detail fits in. My son called me after I blogged on Tuesday to tell me that he had been mugged and only had $11 left in his bank account. I tried to ask him what happened. He said that he 'got lured in' yet when I asked him how they lured him in he couldn't tell me just that they did. I'm guessing that he willingly went with them as he was trying to purchase marijuana and cocaine. The cocaine according to him is because he wanted to try it. I guess I wasn't sympathetic enough as I told him I wouldn't be giving him any money so he got mad and hung up on me.

My husband came home early due to rain so we had an early dinner then headed to the shelter. I thought my son would like to have his search-a-word book and a notebook and some pens as well as some cigarettes. He didn't want the books. I gave him one pack of cigarettes and gave the shelter another 3 packs and asked them to only give him one pack a day. Since he was able to go to the bank, get a new bank card and find out how much money he had that meant that he had his ID still which I know that he kept in his fanny pack that got stolen. He says that he asked for his ID back and one of the muggers was nice enough to give it back. I don't disbelieve this however it's hard to imagine. The staff have been having problems communicating with my son as it takes him awhile to understand and respond so it's hard to believe that he was thinking clearly enough during a mugging to ask for his ID but it is possible. He also apparently voluntarily (without them asking for it) gave them his pin number for his bank card. He says that he got hit in the neck. There are no bruises, red marks, nothing to indicate that he had been hit. I did look. He got away and ran to a pay phone and called the police. I'm not sure how no one knew to tell me that it was a mugging when I first found out about it.

My son told me he got robbed of $700. That he was trying to buy marijuana and cocaine although he hadn't planned on spending all of his money on drugs since he wanted to purchase some luxury items. I quietly stated: I barely had money for rent yet you want to buy luxury items? He laughed it off. He thinks that disability is going to reimburse him and he seems to also think that they are going to continue to hand him money for board and lodgings when he isn't paying for it. I didn't bother going any further into that conversation. We did ask him what he planned on doing with that much drugs since he can't take it into the shelter, they do searches. He had a spot picked out, outside, to hide it. Nice to know he is planning ahead for something :)

The shelter asked if I could help with getting his cell phone disconnected since it was taken too and we don't need whoever has it running up a bill in his name. We took him to the mall where he got it. He said that he got it through Rogers but he actually got it through Koodo. The couldn't help him at the mall stating that he needed to call them. So we went back to the shelter to get his paperwork for the phone. He had thrown it out so at this point he didn't know who the provider was, the account number and probably doesn't even know the number. The following morning I called Koodo and was able to confirm the account but couldn't do anything since I'm not on the account and didn't have the pin that he would have created when setting up the account. I called the shelter with the number for Koodo customer support, his cell phone number and explained that he could suspend the service, no charge, with the information from his ID if they could help him do this. I just tried calling the number and got a message that this number is not equipped to receive incoming calls so hopefully they got him to suspend the account. Considering the fact that my hubby and I are currently stuck not being able to move due to his bad credit report. One of them being an unpaid cell phone with the same service provider... I do know that it can have an impact on my son's future if it's not taken care of.

I haven't heard from his case worker from PACT since Tuesday although at this point I don't know how much help she can be as my son is refusing to sign a release for the shelter to talk to her. He doesn't want anything to do with PACT even though it's their psychiatrist that is prescribing him his medications and it's PACT that has arranged for his Clozapine to be paid for by the manufacturer because disability still hasn't agreed to cover it. It's also PACT that picks it up for him and delivers it to him now. I will have to confirm with the shelter but he should have enough for another couple of weeks and he should be ok with his Lithium as well. My hands are somewhat tied with Ready4Life as he refused to sign a release giving them permission to talk to me. So I don't know what is happening with his applications for the two group homes. When his case worker calls me I'm going to try to find out if we can get him moved from that shelter into one in a better neighborhood. The one we wanted didn't have a bed last week but maybe that has changed. Depending on how defiant he wants to be he is making it hard for anyone to assist him.

He seemed ok when we left him on Tuesday. Didn't seem concerned about anything. I hugged him good-bye. I might as well have been hugging a board. No emotion what so ever...

Mom
BarbieBF