Sunday, July 12, 2015

A right of passage

Thought I would give a quick update...

Not a lot has changed over the past week. Getting more comfortable with the job and fitting myself into the schedule my boss wants me on. In my opinion the hours are... Well they are broken up throughout the day. Monday to Friday he wants 11:30 - 1, 4:30 - 6 then 8-10. Friday's 11:30 - 2 and Saturday's 9-1. The 8-10 shift is a no go for me. I'm not giving up what little time hubby and I have together during the week and once I get my son back on a sensible sleep schedule than 8 is our bedtime ;). There is also fact that I'm pretty sure calling after 9 PM is legally not a go. I don't get calling at 9 AM on a Saturday and not at 9 AM during the week when it's expected that people be up. Aside from that I'm booking appointments and have submitted my first invoice. So hopefully I will be seeing some money soon!

On July 6 my son's nurse was here for his weekly visit. Like I told his psychiatrist who was here the following day, I think I held it together pretty good. When I told his nurse about his excessive, not in private, out in public masturbating... His response was that since my son didn't have a girlfriend that masturbating was a right of passage and that him doing it out on the front veranda was behavioral. *pats self on back* for not losing it ;).

They drop of his medications every Friday in a blister pack (medications are in pop-out boxes for each day). Which I think is ridiculous and have told them several times it's not necessary but the PACT team insists on it. I guess they like it because when they visit they can see if patients/clients are taking their medications. Since my son doesn't get himself his meds, I do it, it's pointless. A waste of the pharmacists time and resources (and I think costs the government more money) and means every week someone has to come here on Friday instead of just giving me a months supply in a bottle. Anyways... Because I'm apparently not using the blister pack properly (haha) which means not starting the new pack on Friday when they bring it and instead using up the remainder of the previous blister pack, then his nurse couldn't understand what days medications he had missed. For clarification the blister packs have 7 days. Monday to Sunday. So I start a new one on Monday. Confusing right? His nurse thought so. So when I showed him that my son had missed taking his meds on Tuesday and Thursday, he decided that my son had missed 2 days in a row. Sometimes there is just no point in carrying on a conversation...

He did however set up an appointment for Michael's psychiatrist to come here the next day. I filled him. Let him know that even though I appreciate how his nurse is with Michael and that in that regard he is doing very good, that he doesn't take my concerns seriously or listen to me very well. His psychiatrist makes decisions based on the feedback from the other team members and when that feedback isn't relayed properly then I tend to get a bit upset. It's certainly not the first time I have dealt with this. His first nurse with PACT was bad for that too. She blamed almost everything on behavior. I asked his psychiatrist what to do when this happens. Call in and make an appointment with him.

We discussed medication options and decided to add back the Lithium. *shakes head* I have off and on been suggesting this since he was in the shelter in February. I asked for clarification on who I am thinking about my son's behaviors and if I was completely off track. It's a bit of both I guess. On one hand yes some things are behavioral and I can acknowledge that. Punching and kicking my door, behavioral. Insisting on smoking in his room, behavioral. Not knowing that it is inappropriate to masturbate in front of your mother or out in public because one can't see past the urge to do it, not so much. His psychiatrist agreed that this behavior is not normal even for him and he isn't doing it just to piss me off. The problem though is that upping medications will not necessarily correct this. Upping his Invega could cause the opposite affect of what we are looking for and make his negative symptoms worse. I can understand that. Adding the Lithium back should increase the effectiveness of his Invega and hopefully help with his negative symptoms. I think Lithium tends to act like an antidepressant with Michael whereas actual antidepressants do him no good. Why would they? In the bigger picture he is not depressed. He is experiencing negative symptoms which is different.

The Lithium was dropped off on Wednesday. Of course he missed his medications on Thursday due to alcohol. If anyone thinks that alcohol is harmless... Come see what I see. It's far from harmless for my son. It's keeping him unstable and robbing him of a future. Hopefully we have a 3 week break from it and I can work on getting him started on some sort of stability.

He has his days and nights mixed up again. I'm reminding him several times throughout the night to take his pills however he isn't taking them until morning and then sleeping. If it happens again tonight I think I may just let him miss them and try to start fresh tomorrow night.

As for the smoking in his room. It's a constant battle. Thursday night I found his whiskey bottle in his room. His psychiatrist agreed with me that Michael most likely has ODD (oppositional defiant disorder) and sadly trying to discipline around and keep the appropriate boundaries is even more important due to the ODD. You let one slip and they all go. The mess he is making of his bedroom floor :(. They are shellacked and he throws his cigarettes on them when I walk into his room so I won't see it. Oh yes... According to him he is accidentally smoking in his room. Haha. Because you accidentally close your bedroom door, light an incense to cover up the smell and find something to use for an ashtray. Sometimes that is his garbage can with liquids thrown in it. I have removed his garbage can. He doesn't use it for actual garbage anyways. I have tapped a note to the top of the stairs that says 'no smoking, leave your smokes downstairs' and another one to his bedroom door. At least he can't pretend like he doesn't know the rule :).

The last day or so it's cigarettes... I have warned him and warned him that I'm quit and I'm not supplying him with cigarettes. He knew this when hubby took him to get cigarettes. He got 2 cartons which he now doesn't like. Where we go you can actually smoke in the store and you can try every kind of cigarette that they have to see if you like them. He tried them. I'm guessing he was more concerned with getting the cheaper ones so that he had money for alcohol. His choice. I also gave him the cigarettes that we had gotten for him from before which was another 4 packs. Yesterday he wanted me to buy him a couple of packs with the extra money he is giving me. He isn't giving me any money. Disability is sending me MY portion of his payments. I didn't respond to this comment at all. Then it was can he have a pack of hubby's. Hubby doesn't keep his cigarettes in the home anymore and he wasn't home yesterday. Kinda sad that we can't even keep our own things in our own home. Hubby is also quitting. We just got him patches too. So Michael I'm afraid is going to be shit out'a luck in the smoking department. The kicker though is that he does have cigarettes. He just doesn't like them.

So today is my day off! Yeah! I have to finish the laundry I started yesterday evening. I really need to clean the floors as Michael has spelt pretty much everything, everywhere. I need to wash his blankets too. Still haven't gotten him in the shower :(. He did have a bath on Monday night however that had more do with him liking being in the bathtub when he is drunk. God I hate alcohol!

I guess that wasn't a quick update after all. :)


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