A phrase I tend to use a lot is the proof is in the pudding... Basically it means talk is cheap. Make the pudding (do the action) then we will see if one is really capable of doing what they say they can do. Once the pudding is made... there is your proof.
This morning I found 3 empty bottles of alcohol in my son's backpack. Here in Canada we call them mickeys. 375ml bottles. 2 fireball whiskey and 1 captain morgan's rum.
I know that at least one of them if not two of them are new. Yesterday he went for a ride... To the liquor store obviously and drank at least a mickey last night.
I've noticed for a couple of weeks now that my son seems a bit off. Nothing major but it's there and I couldn't put my finger on what it was causing it. In the back of my head I was beginning to question if his medications were starting to stop working. Now I know why... He's binge drinking again.
My son has an addictive personality. He can't just have one... Once triggered he seems to go through phases of needing to drink. I'm usually prepared for it after his birthday or special occasions like Christmas.
I'm starting to have trouble sleeping again. Waking up every 1-2 hours. This morning it kinda clicked in my head. Before when my son lived with me this would be my sleep pattern. As any parent out there with mentally ill children know... There is no letting our guards down completely.
I'm grateful that he is still taking his medications. That's why I don't sleep... It's constantly waking up to check on him and try to 'nicely' remind/tell him to take his medications without of course triggering his defiance. Without his medications and with the drinking he is doing he can be a step away from a relapse. Sadly that is all that it takes.
He has been spending long periods again just lying there... On his back, arms crossed over his chest. I really don't like seeing it. It's how someone looks in a coffin. He's what I call in his own head space. Not a good spot for him to be in for any length of time.
Usually he is waking us up all night, in and out smoking. How much he smokes tends to go down as well when he isn't doing well. He hasn't been smoking as much at night as he usually does. He's not even smoking weed like he normally does now that I think about it.... When he's not using his main crutch (marijuana), that's a red flag.
Of all the things that my son goes through with his diagnoses, I would have to say that addiction is what I dislike the most. I think I hate alcohol. I only have to look around me and remember my own past to remind myself why I don't want it in my life, ever again.
I'm out of practice I guess... Not that there is anything I can do to change what is happening except pray that God take away his need for alcohol. Geesh... Everyone's need for it!
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2020. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Showing posts with label Alcohol. Show all posts
Showing posts with label Alcohol. Show all posts
Thursday, March 12, 2020
Tuesday, February 19, 2019
Relationships, Church, Recovery and live goes on.
I will start with my son... He is good. Still smoking too much marijuana and drinking too much. Not to sure what it will take to change that. We pick him up from his Nanna's on Sunday after church and after he is done work and he spends the night. He works 2 days a week and is taking his medications. I am grateful for the mental health system as he is still under it and therefor medication compliant which as far as I can see what is keeping him stable.
Hubby and I go to church every Sunday. Slowly I am taking on some of the responsibility of church media. I am rediscovering my relationship with God. In all honesty it may be the only relationship that is making much sense to me right now and helping me to deal with the ones that aren't making any sense.
Hubby and I seem up and down on a daily basis. More down then up... I don't know what is happening with him and there is a part of me that doesn't want to figure it out anymore.
As I try to learn some scripture and how to walk in life following his teachings... I'm trying to learn how to take myself, or my emotions, out of the picture as it's usually our emotions that confuse things. His are all over the place and normally negative. So as I try to keep myself in a place of calm I find myself having to pull away. Not a good thing I guess when it's your marriage however it's that or we are both negative and I no longer want to be a part of living life in such a way.
Part of rediscovering my relationship with God is learning to have faith and trust in his ability to take care of things. I, of course, am have trouble with that as I'm a bit of a control freak when it comes to having control over the things I'm expected to be responsible for. However therein also lies the answer. I am not responsible for.... anything except my own-self and reactions.
Then there is my relationship with my daughter, her hubby and their son. I think my daughter and I are both experiencing adjustment issues and even at times regret. Or maybe it's just me... It's hard to tell as there is so much I can't say to her. That's not true... I can however her reactions are generally pretty strong. I struggle with understanding that as it seems that others can say so much more to her with less reaction yet I've been the one that has always been the most understanding and non-judgmental. Perhaps that in itself is the problem. I really don't know anymore.
So I find myself yet again trying to take myself out of the equation. Well how do I do that when we are all sharing the same home. It's tough. There is so much that I see that I am so disappointed to see. Trust me I don't expect to see them being the perfect parents as none of us are and as grandparents we generally get the opportunity to try to do better then we did as parents. However there are still minimum expectations that one should have of being sober parents and I don't see them.
Which brings me to recovery. I am now 4 months clean from drugs. That has been the easiest if you can believe that. My cravings are usually dependent on what is happening around me emotionally. Which is also why I find myself pulling away from a lot. I know that I have probably disappointed my daughter in that I have not been attending recovery meetings with her. I thought that it would be something that I would need however it's not as addiction is the least of my concerns. Also I have been through it all before and regardless of using or not, most of the steps are how I've tried to live my life for a long time. It's just not something that I feel that I need right now.
Recovery for me is so much more then just not using. It's changing the way you think, act and react. It's taking responsibility for your own actions and choices.
One day I made a comment to my hubby regarding how many cigarettes I was smoking. I told him that as long as he put them in front of me, I would smoke them. I did the same thing with cocaine. For months I blamed my addiction on him. I couldn't get clean because he was bringing it home... He stopped bringing it home once I took responsibility for my own actions and made the choice to no longer have it in my life, period.
As to what I see here... My own opinion of course. I see people living an addicts life, sober. Meaning not much is changing with respect to taking responsibility for one's actions and trying to be better. How do I tell my daughter and hubby, nicely, that it's like they are in competition on who can be the worst... That because one does wrong it doesn't mean the other does wrong too. In the end it's my grandson that is losing and honestly it is driving me nuts.
I have seriously questioned my decision to be here in the last 3 months. I have come to terms with that and I am glad that I came. It's just the day to day dealings that I do struggle with. I moved her not to room and board and share a whole house but to rent a separate basement suite. That hasn't worked out so well so far. My kitchen is the laundry room. So basically I have a barely functioning kitchen and so far little has been done to correct that.
I do however have new floors in my living room. The house has fleas and we have been trying really hard to get rid of them as my own cat has herself chewed raw. Treating the cats is not enough when they are still in the home so we have been ripping up all the old carpets. Hubby took out the ones in our living room and his room. Yes we still have our own room ;). My daughter's hubby then laid some hardwood floor in my living room. On this I would say hubby and I were both impressed. He is really good at what he does and did a really good job. They have now started ripping up the carpets upstairs as well.
I babysit my grandson... My daughter started work a couple of months ago which I'm very proud of her. While taking care of him is a joy that I am so grateful to have in my life it is also hard at times. Most of the time I don't even know day to day if I'm babysitting. While I want them to be able to rely on me to be there I also don't want to be taken for granted and just assume that whenever they need, I'm there, with no warning.
I'm off for now. Time to make a fresh coffee...
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2019. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Hubby and I go to church every Sunday. Slowly I am taking on some of the responsibility of church media. I am rediscovering my relationship with God. In all honesty it may be the only relationship that is making much sense to me right now and helping me to deal with the ones that aren't making any sense.
Hubby and I seem up and down on a daily basis. More down then up... I don't know what is happening with him and there is a part of me that doesn't want to figure it out anymore.
As I try to learn some scripture and how to walk in life following his teachings... I'm trying to learn how to take myself, or my emotions, out of the picture as it's usually our emotions that confuse things. His are all over the place and normally negative. So as I try to keep myself in a place of calm I find myself having to pull away. Not a good thing I guess when it's your marriage however it's that or we are both negative and I no longer want to be a part of living life in such a way.
Part of rediscovering my relationship with God is learning to have faith and trust in his ability to take care of things. I, of course, am have trouble with that as I'm a bit of a control freak when it comes to having control over the things I'm expected to be responsible for. However therein also lies the answer. I am not responsible for.... anything except my own-self and reactions.
Then there is my relationship with my daughter, her hubby and their son. I think my daughter and I are both experiencing adjustment issues and even at times regret. Or maybe it's just me... It's hard to tell as there is so much I can't say to her. That's not true... I can however her reactions are generally pretty strong. I struggle with understanding that as it seems that others can say so much more to her with less reaction yet I've been the one that has always been the most understanding and non-judgmental. Perhaps that in itself is the problem. I really don't know anymore.
So I find myself yet again trying to take myself out of the equation. Well how do I do that when we are all sharing the same home. It's tough. There is so much that I see that I am so disappointed to see. Trust me I don't expect to see them being the perfect parents as none of us are and as grandparents we generally get the opportunity to try to do better then we did as parents. However there are still minimum expectations that one should have of being sober parents and I don't see them.
Which brings me to recovery. I am now 4 months clean from drugs. That has been the easiest if you can believe that. My cravings are usually dependent on what is happening around me emotionally. Which is also why I find myself pulling away from a lot. I know that I have probably disappointed my daughter in that I have not been attending recovery meetings with her. I thought that it would be something that I would need however it's not as addiction is the least of my concerns. Also I have been through it all before and regardless of using or not, most of the steps are how I've tried to live my life for a long time. It's just not something that I feel that I need right now.
Recovery for me is so much more then just not using. It's changing the way you think, act and react. It's taking responsibility for your own actions and choices.
One day I made a comment to my hubby regarding how many cigarettes I was smoking. I told him that as long as he put them in front of me, I would smoke them. I did the same thing with cocaine. For months I blamed my addiction on him. I couldn't get clean because he was bringing it home... He stopped bringing it home once I took responsibility for my own actions and made the choice to no longer have it in my life, period.
As to what I see here... My own opinion of course. I see people living an addicts life, sober. Meaning not much is changing with respect to taking responsibility for one's actions and trying to be better. How do I tell my daughter and hubby, nicely, that it's like they are in competition on who can be the worst... That because one does wrong it doesn't mean the other does wrong too. In the end it's my grandson that is losing and honestly it is driving me nuts.
I have seriously questioned my decision to be here in the last 3 months. I have come to terms with that and I am glad that I came. It's just the day to day dealings that I do struggle with. I moved her not to room and board and share a whole house but to rent a separate basement suite. That hasn't worked out so well so far. My kitchen is the laundry room. So basically I have a barely functioning kitchen and so far little has been done to correct that.
I do however have new floors in my living room. The house has fleas and we have been trying really hard to get rid of them as my own cat has herself chewed raw. Treating the cats is not enough when they are still in the home so we have been ripping up all the old carpets. Hubby took out the ones in our living room and his room. Yes we still have our own room ;). My daughter's hubby then laid some hardwood floor in my living room. On this I would say hubby and I were both impressed. He is really good at what he does and did a really good job. They have now started ripping up the carpets upstairs as well.
I babysit my grandson... My daughter started work a couple of months ago which I'm very proud of her. While taking care of him is a joy that I am so grateful to have in my life it is also hard at times. Most of the time I don't even know day to day if I'm babysitting. While I want them to be able to rely on me to be there I also don't want to be taken for granted and just assume that whenever they need, I'm there, with no warning.
I'm off for now. Time to make a fresh coffee...
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2019. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Tuesday, January 31, 2017
Who needs toddlers when....
you have three, one of them a frisky not yet a year old, cats?
Just sitting her listening to Frosty run around, bugging the other two cats while he has one of his frisky moments as I call them. Where nothing is safe and nowhere is out of reach!
I know I haven't been around. Sorry about that... Yesterday I popped onto blogger and noticed the number of times my pages have been viewed. They are all over 400 views! Wow.
I have about an hour in between work shifts so thought I would stop in and say hi. *waves*
I hope that everyone is doing ok, or at least surviving.
Sometimes I feel a bit guilty for not coming here often however for right now my life is not about schizophrenia or mental illness and honestly I'm loving it. I'm sure there will come a time when I'm yet again living and breathing schizophrenia and therefore pouring my soul out here but for right now life is good.
If you are reading, I'm sure you are wondering how my son is doing. Not bad actually. He calls fairly regularly and sometimes when he doesn't want anything. ;)
Financially I'm not helping him much. I try to send him cigarettes every couple of weeks as I know he doesn't have much spending money. He's in a long term treatment facility. He has his own room and a fair amount of freedom providing he follows the rules. If he gets drug tested and it comes back positive then he loses some privileges. His medications are being administered to him. As far as I know he is still on Clozapine and Lithium.
As part of some of the programs or services they provide there, he participates in doing things that pay him a small fee. He goes out on outings like snow boarding.
Recently he started a medication that is supposed to help with alcohol cravings. I haven't looked up which medication. The last time I talked to him I asked him why he was doing it because not wanting to drink doesn't sound like my son to me. He agreed that he didn't want to stop drinking but his doctor wanted him to try it so he is. My theory is that he is hoping that it will get him transferred out of there faster if he does what they want. Either way if it helps... Regardless of his motivation it shows that he is able to look at long term goals and what is needed to achieve them.
I can't wait for tomorrow...
My daughter and grandson have been away since before Christmas! We will be picking them up at the airport tomorrow morning. Can't wait to hold that baby in my arms! My daughter too. ;)
Hubby and I are doing great. As much as we are looking forward to tomorrow morning, we have very much enjoyed our one on one time.
Going to go warm up my coffee and head back to work. I'll try not to be such a stranger...
Love
BarbieBF
Mom
Grandma
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Just sitting her listening to Frosty run around, bugging the other two cats while he has one of his frisky moments as I call them. Where nothing is safe and nowhere is out of reach!
I know I haven't been around. Sorry about that... Yesterday I popped onto blogger and noticed the number of times my pages have been viewed. They are all over 400 views! Wow.
I have about an hour in between work shifts so thought I would stop in and say hi. *waves*
I hope that everyone is doing ok, or at least surviving.
Sometimes I feel a bit guilty for not coming here often however for right now my life is not about schizophrenia or mental illness and honestly I'm loving it. I'm sure there will come a time when I'm yet again living and breathing schizophrenia and therefore pouring my soul out here but for right now life is good.
If you are reading, I'm sure you are wondering how my son is doing. Not bad actually. He calls fairly regularly and sometimes when he doesn't want anything. ;)
Financially I'm not helping him much. I try to send him cigarettes every couple of weeks as I know he doesn't have much spending money. He's in a long term treatment facility. He has his own room and a fair amount of freedom providing he follows the rules. If he gets drug tested and it comes back positive then he loses some privileges. His medications are being administered to him. As far as I know he is still on Clozapine and Lithium.
As part of some of the programs or services they provide there, he participates in doing things that pay him a small fee. He goes out on outings like snow boarding.
Recently he started a medication that is supposed to help with alcohol cravings. I haven't looked up which medication. The last time I talked to him I asked him why he was doing it because not wanting to drink doesn't sound like my son to me. He agreed that he didn't want to stop drinking but his doctor wanted him to try it so he is. My theory is that he is hoping that it will get him transferred out of there faster if he does what they want. Either way if it helps... Regardless of his motivation it shows that he is able to look at long term goals and what is needed to achieve them.
I can't wait for tomorrow...
My daughter and grandson have been away since before Christmas! We will be picking them up at the airport tomorrow morning. Can't wait to hold that baby in my arms! My daughter too. ;)
Hubby and I are doing great. As much as we are looking forward to tomorrow morning, we have very much enjoyed our one on one time.
Going to go warm up my coffee and head back to work. I'll try not to be such a stranger...
Love
BarbieBF
Mom
Grandma
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Wednesday, February 17, 2016
Embracing what is.
It's been awhile... Sorry about that.
I remember when I was younger someone telling me they wanted to grow old gracefully. I didn't understand that then however I think I get it now. Except I prefer to think of it as embracing what is and what is to come. We are going to age no matter what. It's how we choose to deal with those changes that I guess would be the graceful part.
Granted I'm not that old yet. I'm only 43 and I don't look 43. When I'm out with my children we usually get asked if we are siblings. Kind-of cool right? Perhaps. However I'm coming into another stage of my life and I want to embrace it. I am embracing it. Are you ready?
I'm going to be a grandma! I'm so excited about this. My daughter is going to have a baby!
I know I haven't been around much lately. Here or on my Facebook page or anywhere else for that matter. Life has been pretty full lately. Work is going good and keeping me busy during the days. Winter is here. My daughter is here! She came home to have her baby and to do her schooling. She has orientation on Friday and starts classes next week. I think she is about 8 weeks along and dealing with some nausea.
Some have reservations about her being here. About her having a baby so young. I just shake my head and wonder if they have all blocked out where we were when we had our babies. I remember where me and my kids dad where when my first was born. Living with my mother. Certainly not any older or more mature. Concerns about me mothering her too much. Haha! I plan to! There are times when a girl needs her mom and this is one of them. There are times when a girl needs to be mothered and accepted with no reservations and this is one of them. Soon enough she will have to take on the responsibility of being a mother herself. For now I will more then gladly take on the responsibility of being her mother, of putting her first, because it's been a long time since anyone did that for her. For her, not just because of the baby. Her world has been turned upside down. I will do my best to turn it upside right. :)
So taking prenatal vitamins and B6 for nausea is now part of our daily dinnertime routine. We are waiting on the referral to the baby doctor for her first appointment. Boy or girl? There is always a debate on that one. I only know that I started dreaming about a little girl that reminded me of my daughter sometime last year... Either way I can't wait!
Hubby has been embracing this as well. He is looking forward to going through it all with her. Due to the weather he hasn't been working a lot lately so when he is home he takes her with him when he is out scooting around from place to place.
As you may remember from one of my earlier posts, I have been trying to grow my hair out and go natural. So yes grey. The other day I got a hair cut, short. Took off all the old blond so now it's just my natural blend. My daughter doesn't particularly like it but hubby and I love it. I like the grey. I also got a new pair of glasses as my eyesight took a bit of a dive. I got progressive bifocals. Bifocals without the line.
As for my son. Not a lot has changed. He is still in the hospital waiting to go into the treatment center whenever they have a bed available. He calls me once or twice a month to ask for money. I don't know a lot about his treatment as he still hasn't signed a release for me and for the most part no one else including himself seems that aware of what meds he is on or doses etc. His grandmother did manage to find out for me recently that the long acting injection he is on is Haldol. It seems they have taken him off the Olanzapine and lowered his Lithium. He isn't fairing so well from what I have been told. Audio, visual and tactile hallucinations. Personally I think he is using marijuana however I seem to be the only one willing to acknowledge that. He is drinking alcohol of course whenever he gets the chance.
I'm off... Have some things to do before I start work.
Mom/Grandma
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I remember when I was younger someone telling me they wanted to grow old gracefully. I didn't understand that then however I think I get it now. Except I prefer to think of it as embracing what is and what is to come. We are going to age no matter what. It's how we choose to deal with those changes that I guess would be the graceful part.
Granted I'm not that old yet. I'm only 43 and I don't look 43. When I'm out with my children we usually get asked if we are siblings. Kind-of cool right? Perhaps. However I'm coming into another stage of my life and I want to embrace it. I am embracing it. Are you ready?
I'm going to be a grandma! I'm so excited about this. My daughter is going to have a baby!
I know I haven't been around much lately. Here or on my Facebook page or anywhere else for that matter. Life has been pretty full lately. Work is going good and keeping me busy during the days. Winter is here. My daughter is here! She came home to have her baby and to do her schooling. She has orientation on Friday and starts classes next week. I think she is about 8 weeks along and dealing with some nausea.
Some have reservations about her being here. About her having a baby so young. I just shake my head and wonder if they have all blocked out where we were when we had our babies. I remember where me and my kids dad where when my first was born. Living with my mother. Certainly not any older or more mature. Concerns about me mothering her too much. Haha! I plan to! There are times when a girl needs her mom and this is one of them. There are times when a girl needs to be mothered and accepted with no reservations and this is one of them. Soon enough she will have to take on the responsibility of being a mother herself. For now I will more then gladly take on the responsibility of being her mother, of putting her first, because it's been a long time since anyone did that for her. For her, not just because of the baby. Her world has been turned upside down. I will do my best to turn it upside right. :)
So taking prenatal vitamins and B6 for nausea is now part of our daily dinnertime routine. We are waiting on the referral to the baby doctor for her first appointment. Boy or girl? There is always a debate on that one. I only know that I started dreaming about a little girl that reminded me of my daughter sometime last year... Either way I can't wait!
Hubby has been embracing this as well. He is looking forward to going through it all with her. Due to the weather he hasn't been working a lot lately so when he is home he takes her with him when he is out scooting around from place to place.
As you may remember from one of my earlier posts, I have been trying to grow my hair out and go natural. So yes grey. The other day I got a hair cut, short. Took off all the old blond so now it's just my natural blend. My daughter doesn't particularly like it but hubby and I love it. I like the grey. I also got a new pair of glasses as my eyesight took a bit of a dive. I got progressive bifocals. Bifocals without the line.
As for my son. Not a lot has changed. He is still in the hospital waiting to go into the treatment center whenever they have a bed available. He calls me once or twice a month to ask for money. I don't know a lot about his treatment as he still hasn't signed a release for me and for the most part no one else including himself seems that aware of what meds he is on or doses etc. His grandmother did manage to find out for me recently that the long acting injection he is on is Haldol. It seems they have taken him off the Olanzapine and lowered his Lithium. He isn't fairing so well from what I have been told. Audio, visual and tactile hallucinations. Personally I think he is using marijuana however I seem to be the only one willing to acknowledge that. He is drinking alcohol of course whenever he gets the chance.
I'm off... Have some things to do before I start work.
Mom/Grandma
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Thursday, October 22, 2015
What Does Society Teach? A Budget and Peppermint Oil.
The last couple of days I have been literally aching from head to toe as I have been hit with a cold. I haven't been working either as I have been doing my best to keep any talking to a bare minimum. Talking equals coughing. I have however discovered a wonderful cure to sinus congestion in peppermint oil. Knock on wood :). For the first time in my life-time of colds I have not had to deal with a runny nose or sinus congestion for longer then 5-10 minutes. As soon as it starts I put a dab on my finger and rub it in all around my nose and sinuses.
Dealing with my sore throat has not been so easy however I have been trying to be as pro-active as I can be. Lots of tea with honey, lemon and turmeric. Advil for my low grade fever and body aches. I was hoping to get back to work today however I'm having my doubts that will happen.
I may have to make a decision soon about work. I haven't been paid in over a month. Hubby and I were discussing a budget the other day so I took the time to write out how much we owe and how much our minimum monthly expenses are. We owe $43000. Our monthly expenses run around $5000. Add in extras like car maintenance, chiro or even us going out for dinner...
I don't even mind so much that I haven't been paid in a bit as I knew going in that this could happen. Still I can't let my boss get too far in dept with me either. It's dealing with some of the frustrations that make it not worth it. I'm trying to weigh the pros and cons of what I'm getting to what I could be getting. Yes I'm working from home and it's pretty cool to be doing that. I wanted to be able to continue to provide a certain level of care to my home and husband. Most importantly making good healthy dinners and spending our evenings together.
The last schedule change that my boss wanted... He wants me to work somewhere in the neighborhood of 9 am - 10:30 am, 11:30 am - 2 pm then 4 pm - 7:30 pm Mon-Thurs. Umm not! Plus it's a 6 days a week job. For the most part I don't mind as my husband usually works 6 days a week. Still I have dedicated most of my live to a job before and I'm not doing it again.
The pros... I get to work from home. What I've started to call my morning shift ;) I sometimes do in my PJ's. I can bake bread in between making calls. No one is micromanaging me.
The cons... I can work outside the home for less days with a more secure payment schedule.
I'm refusing to work past 6:30 pm. The other day I logged in and booked an appointment that had been confirmed through email. Through a pounding headache, tear filled stinging eyes with my body aching; I was trying to be responsible and keep an eye on my email... I booked an appointment without cc'ing someone that needs to be cc'd. Will I made a critical error... Why yes I did. I worked when I shouldn't have been working. I haven't logged in since. Things like this may be easier to take when your actually getting paid and not having to deal with the BS of someone not giving you the tools or knowledge to do your job properly.
Yes I know: The grass isn't greener on the other side... I think I take back most of the bitching I did about my old job. Every company has it's BS.
My son:
I found out on Friday that he was taking a bus to British Columbia on Sunday. Ontario to British Columbia is a 3 day bus ride.
2 weeks ago I had attended a group through the Schizophrenia Society and spoke to some of the others about how to go about getting my son admitted to hospital through court order. As usual it was a frustrating experience as everyone kept telling me that the hospital etc should have been telling me what to do. Well they weren't even with me asking for guidance. That included the PACT team. So even though I figured I had a bit of a fight ahead of me I still wanted to look into it.
I had been under the impression that my son was taking some medications as his nurse had told me that according to a worker at the shelter he was taking some. I knew that he wasn't taking care of his personal hygiene as I was helping with that when I saw him. I would get him to change his cloths and I would use wipes to clean his pits and face. Once I even took in Q-tips and had him clean his ears. Of course I had to do all this in the car since "Clients were not allowed to receive visitors".
Friday my son says to me: By the way I need to come and get my stuff because I'm going to Nanna's tomorrow. Both my husband and myself worked Friday and Saturday. Saturday I packed up what stuff he had here and took it to him. He asked if he could come home for the night and I agreed. I went into the shelter to collect his stuff and he had taken most of his cloths and electronics with him. There was nothing to collect and he was even wearing someone else's cloths and shoes.
I had thought that maybe my son and I could spend the evening together watching TV. It was after 9 by the time we got home. The first thing I had him do was put on some of his own cloths to find out that the shower he was supposed to have taken several days before wasn't obviously a good shower. He still smelled really bad. His hair and nails had been cut by his nurse from PACT. How he missed how bad my son smelled, I don't know.
I knew that my son's addiction had progressed from alcohol and marijuana to possibly cocaine and morphine. At one point I had brought one of his leather jackets home to try and clean and deodorize it but I had to throw it out. In the lining I found a baggy of white stuff. He thought he was buying cocaine. I think he got aspirin and bath salts. He did on one occasion tell me of a really nice guy that introduced him to morphine, he even had clean needles.
So many times I have fought the urge to bring him home. Canadian Thanksgiving I almost did. That morning I was going to... Then I thought it all through. To what end? I have no control over his money and therefor his ability to drink and use. When he drinks he becomes completely unmanageable in the home and puts everyone at physical risk. It would be 2 weeks of withdrawal, attitude and hopefully him just starting to get even on medications again before he got in another $600 from disability. And around it goes again. That's providing I could even keep him in the home that long.
Within 15 minutes of me bringing him home on Saturday he had spilled milk and juice all of the floor. By 10 he was outside in the back yard punching the walls. According to him he was doing art. I'm not sure either one of my neighbors that have young children were appreciating his form of art.
The fun part was when I decided to go through his backpack. The smell alone was enough to make me want to be sick. A couple of bottles of alcohol. One was almost full. My son not drink his alcohol! He was out of it to not remember that he had it. In the end I ended up tossing it and my husband went and got him a new one the next morning.
What else did I find? Lots of new needles in sterilized packaging along with Stericups... Sterilized cups for cooking your drugs in. Now don't get me wrong. I'm all for teaching addicts to be mindful of the transmission of diseases while they are shooting up. But seriously! Here's a new needle and cooking pot, don't forget to use an alcohol wipe first before you shot up with hands that are brown from nicotine and a months worth of build up body odor surrounding you. Come on! Really! I think they need to expand on these items to include a self-care manual with a toothbrush, toothpaste and at least some hand sanitizer and body wipes.
I didn't get to spend the evening with my son watching TV. I did get to spend until about 3 am with his voices. I have never seen them so bad. It was a constant dialogue between him and them. All you could hear was him whispering/talking to them under his breathe along with sporadic outbursts of laughter. Once I walked into the kitchen to him cocking and shooting a pretend gun.
He did take his medications when I gave them to him and finally they shut his voices up at around 3. Oh yes the medications I had been told he was taking. I picked up a months worth of unopened medications packages dating back to Sept 15.
I had been complacent again. After the last time his grandmother had said she wasn't taking him I thought I had some breathing room. I figured it was just a matter of time before he was admitted to hospital again. With that admission I was going to push for a reevaluation of his diagnoses since the PACT team was refusing my request. I would have also tried pushing for some sort of temporary decision making capabilities until I could further figure out how to get power of attorney through the mental health courts.
Sometimes I shake my head at myself because I really should know better. Everything was just too quiet. Whenever I asked my son if he was talking to his grandmother he would say not a lot. The PACT team stopped calling me. My son stopped asking to come home... Really that should have been enough for me to know. Hindsight is 20/20.
What bothers me the most is that I wasn't deemed worthy enough of so much as a phone call to say: Hey, I'm making arrangements for your son... I don't care what one wants to think of me personally. You can think I'm scum of the earth if you want to however the fact remains that I'm the one that carried him for 9 months and gave birth to him. The alone deserves a minimum amount of respect and consideration.
I wasn't deemed worthy enough of a phone call to say he made it there either. He did by the way.
I'm not sure how I feel about him being there. As I have been going through my own journey of letting go of things that I can't change, I know that I can't change or fix his addiction and therefor his mental health. I wasn't willing any longer to turn my home and world into circus to accommodate him. His grandmother is. Would I rather him be with her then where he was? Yes.
I don't think that it's going to have a good ending however I accept that this is what they both want.
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Dealing with my sore throat has not been so easy however I have been trying to be as pro-active as I can be. Lots of tea with honey, lemon and turmeric. Advil for my low grade fever and body aches. I was hoping to get back to work today however I'm having my doubts that will happen.
I may have to make a decision soon about work. I haven't been paid in over a month. Hubby and I were discussing a budget the other day so I took the time to write out how much we owe and how much our minimum monthly expenses are. We owe $43000. Our monthly expenses run around $5000. Add in extras like car maintenance, chiro or even us going out for dinner...
I don't even mind so much that I haven't been paid in a bit as I knew going in that this could happen. Still I can't let my boss get too far in dept with me either. It's dealing with some of the frustrations that make it not worth it. I'm trying to weigh the pros and cons of what I'm getting to what I could be getting. Yes I'm working from home and it's pretty cool to be doing that. I wanted to be able to continue to provide a certain level of care to my home and husband. Most importantly making good healthy dinners and spending our evenings together.
The last schedule change that my boss wanted... He wants me to work somewhere in the neighborhood of 9 am - 10:30 am, 11:30 am - 2 pm then 4 pm - 7:30 pm Mon-Thurs. Umm not! Plus it's a 6 days a week job. For the most part I don't mind as my husband usually works 6 days a week. Still I have dedicated most of my live to a job before and I'm not doing it again.
The pros... I get to work from home. What I've started to call my morning shift ;) I sometimes do in my PJ's. I can bake bread in between making calls. No one is micromanaging me.
The cons... I can work outside the home for less days with a more secure payment schedule.
I'm refusing to work past 6:30 pm. The other day I logged in and booked an appointment that had been confirmed through email. Through a pounding headache, tear filled stinging eyes with my body aching; I was trying to be responsible and keep an eye on my email... I booked an appointment without cc'ing someone that needs to be cc'd. Will I made a critical error... Why yes I did. I worked when I shouldn't have been working. I haven't logged in since. Things like this may be easier to take when your actually getting paid and not having to deal with the BS of someone not giving you the tools or knowledge to do your job properly.
Yes I know: The grass isn't greener on the other side... I think I take back most of the bitching I did about my old job. Every company has it's BS.
My son:
I found out on Friday that he was taking a bus to British Columbia on Sunday. Ontario to British Columbia is a 3 day bus ride.
2 weeks ago I had attended a group through the Schizophrenia Society and spoke to some of the others about how to go about getting my son admitted to hospital through court order. As usual it was a frustrating experience as everyone kept telling me that the hospital etc should have been telling me what to do. Well they weren't even with me asking for guidance. That included the PACT team. So even though I figured I had a bit of a fight ahead of me I still wanted to look into it.
I had been under the impression that my son was taking some medications as his nurse had told me that according to a worker at the shelter he was taking some. I knew that he wasn't taking care of his personal hygiene as I was helping with that when I saw him. I would get him to change his cloths and I would use wipes to clean his pits and face. Once I even took in Q-tips and had him clean his ears. Of course I had to do all this in the car since "Clients were not allowed to receive visitors".
Friday my son says to me: By the way I need to come and get my stuff because I'm going to Nanna's tomorrow. Both my husband and myself worked Friday and Saturday. Saturday I packed up what stuff he had here and took it to him. He asked if he could come home for the night and I agreed. I went into the shelter to collect his stuff and he had taken most of his cloths and electronics with him. There was nothing to collect and he was even wearing someone else's cloths and shoes.
I had thought that maybe my son and I could spend the evening together watching TV. It was after 9 by the time we got home. The first thing I had him do was put on some of his own cloths to find out that the shower he was supposed to have taken several days before wasn't obviously a good shower. He still smelled really bad. His hair and nails had been cut by his nurse from PACT. How he missed how bad my son smelled, I don't know.
I knew that my son's addiction had progressed from alcohol and marijuana to possibly cocaine and morphine. At one point I had brought one of his leather jackets home to try and clean and deodorize it but I had to throw it out. In the lining I found a baggy of white stuff. He thought he was buying cocaine. I think he got aspirin and bath salts. He did on one occasion tell me of a really nice guy that introduced him to morphine, he even had clean needles.
So many times I have fought the urge to bring him home. Canadian Thanksgiving I almost did. That morning I was going to... Then I thought it all through. To what end? I have no control over his money and therefor his ability to drink and use. When he drinks he becomes completely unmanageable in the home and puts everyone at physical risk. It would be 2 weeks of withdrawal, attitude and hopefully him just starting to get even on medications again before he got in another $600 from disability. And around it goes again. That's providing I could even keep him in the home that long.
Within 15 minutes of me bringing him home on Saturday he had spilled milk and juice all of the floor. By 10 he was outside in the back yard punching the walls. According to him he was doing art. I'm not sure either one of my neighbors that have young children were appreciating his form of art.
The fun part was when I decided to go through his backpack. The smell alone was enough to make me want to be sick. A couple of bottles of alcohol. One was almost full. My son not drink his alcohol! He was out of it to not remember that he had it. In the end I ended up tossing it and my husband went and got him a new one the next morning.
What else did I find? Lots of new needles in sterilized packaging along with Stericups... Sterilized cups for cooking your drugs in. Now don't get me wrong. I'm all for teaching addicts to be mindful of the transmission of diseases while they are shooting up. But seriously! Here's a new needle and cooking pot, don't forget to use an alcohol wipe first before you shot up with hands that are brown from nicotine and a months worth of build up body odor surrounding you. Come on! Really! I think they need to expand on these items to include a self-care manual with a toothbrush, toothpaste and at least some hand sanitizer and body wipes.
I didn't get to spend the evening with my son watching TV. I did get to spend until about 3 am with his voices. I have never seen them so bad. It was a constant dialogue between him and them. All you could hear was him whispering/talking to them under his breathe along with sporadic outbursts of laughter. Once I walked into the kitchen to him cocking and shooting a pretend gun.
He did take his medications when I gave them to him and finally they shut his voices up at around 3. Oh yes the medications I had been told he was taking. I picked up a months worth of unopened medications packages dating back to Sept 15.
I had been complacent again. After the last time his grandmother had said she wasn't taking him I thought I had some breathing room. I figured it was just a matter of time before he was admitted to hospital again. With that admission I was going to push for a reevaluation of his diagnoses since the PACT team was refusing my request. I would have also tried pushing for some sort of temporary decision making capabilities until I could further figure out how to get power of attorney through the mental health courts.
Sometimes I shake my head at myself because I really should know better. Everything was just too quiet. Whenever I asked my son if he was talking to his grandmother he would say not a lot. The PACT team stopped calling me. My son stopped asking to come home... Really that should have been enough for me to know. Hindsight is 20/20.
What bothers me the most is that I wasn't deemed worthy enough of so much as a phone call to say: Hey, I'm making arrangements for your son... I don't care what one wants to think of me personally. You can think I'm scum of the earth if you want to however the fact remains that I'm the one that carried him for 9 months and gave birth to him. The alone deserves a minimum amount of respect and consideration.
I wasn't deemed worthy enough of a phone call to say he made it there either. He did by the way.
I'm not sure how I feel about him being there. As I have been going through my own journey of letting go of things that I can't change, I know that I can't change or fix his addiction and therefor his mental health. I wasn't willing any longer to turn my home and world into circus to accommodate him. His grandmother is. Would I rather him be with her then where he was? Yes.
I don't think that it's going to have a good ending however I accept that this is what they both want.
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Monday, August 3, 2015
Why yes, I'm ecstatic!
Sarcasm!
Forewarned this post may be a bit if a rant.
I saw my son yesterday. He's a mess. He has obviously been in the same cloths for a long time. He hasn't showered or even washed that I can tell. He hasn't been taking his medications. I'm pretty sure he has been smoking marijuana.
Hubby and I picked him up to take him and get cigarettes. First we had to go to the bank so that I could transfer him his $314 that I owed him from disability. The whole time we were with him he was clenching his fist with all of his strength. I knew when I saw this that he wasn't taking his medications. At one point hubby said he asked my son why he was doing this and my son replied that he was trying to make his body work right. His brain isn't working right so his body isn't going to. He ended up giving me his bank card so that I could buy the smokes for him because he couldn't 'catch his breath' to get out of the car and do it himself.
I told my son that once we got back to the shelter I was going to go in with him so he could get his medications and put on some clean cloths. He said ok. As soon as we walked in to the shelter... Hello ODD. His defiance came out of nowhere. He didn't want his medications. One of the staff said they have been talking to him about showering etc however he 'bolts' or leaves the shelter.
Hubby and I have been talking about what to do. So far we haven't come up with any solid answers. I try not to get pissy with him when he asks me what I'm going to do. But seriously, if I had the answers I would be doing it. I don't have them... I don't know what to do.
I know how much I wanted to grab my son's stuff and bring him home.
Here's the catch. I'm a recovered addict. If I want to stay a recovered addict then one thing that I need to be able to do is think things through to the end. One of the problems with being an addict is that the mind only wants to see the good parts of using. Not the negative consequences and as long as one can keep blocking out those memories then one can keep pretending that using is ok.
I forget the exact wording of what was said during an ADAPT meeting but something along the lines of: An addict will not change until the pain of using is worse then the pain of not using.
I can bring him home. He has over $300 in his bank account. He is unstable and defiant. He believes he should be able to smoke and drink in his room. It doesn't take a genius to figure out where that scenario is most likely going.
I had already said to my husband that I need to bring him home if I can put some things in place. Before I left I tried to talk to my son. I wasn't expecting it to be an in-depth conversation considering his mental state. I got worse then I was expecting. I went to crouch/sit beside him and he got mad and told me to stand up and talk to him. I don't know why he gets like this with me. I mean the not wanting me to talk to him on his level. It just goes against everything that I have read on how to talk to someone experiencing psychosis. Especially since he gets so defiant with me being the main disciplinary. Yet he still gets mad, doesn't want me on his level and wants me to take the authoritative stance. The only thing I can reason is that somewhere in his head is a recognition that he actually needs someone to take on the role of authority for him. But then his ODD gets in the way...
I asked him if he remembered talking to his Nana about not going out there. Yes. I told him that I want to take him home however I can't if he has control over his money to buy alcohol because alcohol is killing him. I want power of attorney. He refused.
A couple of days ago I received a message from his grandmother stating that she had told him no to him coming there and she hoped that made everyone happy. Needless to say I didn't respond. The sarcastic side of me wanted to answer with: Why yes, I'm ecstatic. Thank you! I figured not answering was the better option.
My daughter calls to find out if I got the message and to include the side-note that obviously Nana didn't really mean it and that she would step in and take him if she felt it was necessary.
As far as I know that plans are/were to have my son go directly into a shelter out there. So switching one shelter for another? Then I guess work on getting him into his own place since this is what he wants. Well it's what he says he wants. He knows full well that once he gets there he can say no to any form of assisted living and that if he does that then he will end up with Nana. The ideal situation for him. He doesn't have to care about anyone except himself. He doesn't have to try to be sober and stable. To be blunt, he doesn't have to try period. He will get his pat on the head while someone else cleans up after him and protects him from himself.
The rant. Can you see my son living on his own?! He can't even keep himself stable when he is living somewhere that is feeding him and providing him with basic amenities. Yet that is what him and his grandmother seem to be concocting between the two of them. Unless he is telling her that he will go into a group home out there. If that is the case and it is being believed I can only shake my head some more.
My son, in my opinion, needs several basic things. Mainly he needs long-term treatment for addiction. By long-term I'm thinking 3-6 months to start. He needs help from non-family, so he can't use and manipulate them, to help him become stable, stay stable and learn to mature and grow up. Until he gets these things. Everything else is just prolonging everyone's suffering, including and especially his own.
My son isn't stupid by no means. When I had the police take him, one of them went with him to his room to collect his things. My son was very drunk. Not as drunk as I thought. He made sure to disconnect, unplug and turn off the laptop so that I couldn't have access to it. Before leaving he wanted my phone to call his Nana. I know some may think: Well yes she is the one he knows will support him. Hmm. The one that will support him or enable him. There is a big difference.
Honestly he has support coming out his.... ;) Agencies and people just waiting for him to give the go ahead and they will be right there. PACT has peer support, group support and vocational (job) support. ADAPT has addiction support. Applications have been started for housing. He has an open file at the YMCA for free schooling at his own pace. My son is 21 and says no thank you...
He also has me and my husband. Apparently I expect too much. Expecting Michael to follow basic rules that a 5 year old can follow, clean up after himself, treat me with respect, not be violent, try to be medication compliant and engage is addiction services is apparently too much for him. How do you respond to that? Seriously if he is that bad off then he really should be in the hospital with 24/7 care not traipsing on a plane across the country!
Where we are at now is not new. He has been here before. He has played the system, played and manipulated emotions until he got what he wanted. Freedom from responsibility, stability or sobriety.
Do you think he doesn't know that if he doesn't participate in recovery plans here that in time he will get what he wants? Of course he does. Like I said he isn't stupid.
Something I had too look at and acknowledge was/is that his masturbation episodes are tied into his alcohol use and not his schizophrenia so yes it is more behavioral. I didn't know until I found out about him calling dial-a-bottle that he was during the time of his masturbating frequently and in public, drinking almost a bottle of alcohol a day. I also found out that one of the ladies at the shelter caught him doing this in public and had to talk to him about it. I didn't tell her that I knew that he had purchased a bottle of alcohol since being there. Just like I didn't tell them that I'm pretty sure he probably has marijuana on him. Maybe that is why he bolts when expected to shower and change cloths? He keeps his jacket on and close to him when he is hiding stuff.
There is also the distinct possibility that if he gets himself kicked out of there then in steps his safety net. I may not be actively stopping this from happening however I'm certainly not going to help it happen.
Of all the blogs that I read. Jagged Little Edges is without a doubt one of my favorites. Lorelie doesn't hold any punches on what addiction is and the truth of it's ugliness is spelled out in black and white. Lorelie's last blog post: Loving An Addict Means Saying No.
A lot of Lorelie's posts are also highlighted on: Addiction Campuses
I know there are a lot of families who struggle with concurrent disorders of addiction and mental illness. I only speak for what I see with my son. He doesn't use to self-medicate symptoms. He uses/drinks to feed/satisfy his addictions. It's doing this that triggers his schizophrenia and causes the rebound affect. Also my son doesn't want to medication his symptoms. He very much enjoys his psychosis when he is in it. Probably another reason why he didn't want to take his medications yesterday. Why mess with his high? I have been around addiction enough to recognize that mind-set. I have been there. Don't eat too much before doing this drug or you will lessen the high...
I did tell the lady at the shelter that my son was psychotic and needed his medications so hopefully they were a little more attentive last night about 'reminding him' to take them. It's not a part of their duties and they get busy. Not sure I buy that. The other shelter had less staff and they did more. They followed up on medications. They searched more for drugs etc. being brought in. I know because I watched them do it. Too bad it was in such a horrible neighborhood. I have yet to see this shelter search anyone including my son. The lady asked what the signs were of my son's psychosis. To me it's obvious but I'm mom and have looked at his face for signs for years now. I asked if she knew what high looks like? What extreme exhaustion looks like? Combine them and you have my son's current face. Again I left out that he was most likely high... Really in the end it was the psychosis I'm trying to nip in the butt before something negative happens and high or not high he would still look pretty much the same from psychosis.
My appointment with ADAPT last week got rescheduled to the 18th of August. Today is a civic holiday here in Ontario, Canada so I'm not working! Hubby is :(. My work schedule has changed. Now I'm 12-6:30 Mon-Fri and I think 10:30-2 on Sunday. So 6 days a week and more hours. I may see if I can switch from Sunday to Saturday as Sunday is the one day I can pretty much count on hubby not working. The hours are being split between me and another lady. I got paid! I needed it to help cover rent due to what I had to give to Michael. I got my hair cut yesterday. Pretty short. I guess it's a bob? shorter at the back and long around the face. It feels good. I haven't had a cigarette in 6 weeks! I'm not sure how long it's been for hubby. I think 3 weeks. My homemade protein bars were a hit. We both like them. Have to make more today. I may even get back on my stepper today and do some exercise.
The above things make me happy. Certainly not the situation that my son is in or the fact that I have to fight so hard to try and get him the treatment that he needs.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Forewarned this post may be a bit if a rant.
I saw my son yesterday. He's a mess. He has obviously been in the same cloths for a long time. He hasn't showered or even washed that I can tell. He hasn't been taking his medications. I'm pretty sure he has been smoking marijuana.
Hubby and I picked him up to take him and get cigarettes. First we had to go to the bank so that I could transfer him his $314 that I owed him from disability. The whole time we were with him he was clenching his fist with all of his strength. I knew when I saw this that he wasn't taking his medications. At one point hubby said he asked my son why he was doing this and my son replied that he was trying to make his body work right. His brain isn't working right so his body isn't going to. He ended up giving me his bank card so that I could buy the smokes for him because he couldn't 'catch his breath' to get out of the car and do it himself.
I told my son that once we got back to the shelter I was going to go in with him so he could get his medications and put on some clean cloths. He said ok. As soon as we walked in to the shelter... Hello ODD. His defiance came out of nowhere. He didn't want his medications. One of the staff said they have been talking to him about showering etc however he 'bolts' or leaves the shelter.
Hubby and I have been talking about what to do. So far we haven't come up with any solid answers. I try not to get pissy with him when he asks me what I'm going to do. But seriously, if I had the answers I would be doing it. I don't have them... I don't know what to do.
I know how much I wanted to grab my son's stuff and bring him home.
Here's the catch. I'm a recovered addict. If I want to stay a recovered addict then one thing that I need to be able to do is think things through to the end. One of the problems with being an addict is that the mind only wants to see the good parts of using. Not the negative consequences and as long as one can keep blocking out those memories then one can keep pretending that using is ok.
I forget the exact wording of what was said during an ADAPT meeting but something along the lines of: An addict will not change until the pain of using is worse then the pain of not using.
I can bring him home. He has over $300 in his bank account. He is unstable and defiant. He believes he should be able to smoke and drink in his room. It doesn't take a genius to figure out where that scenario is most likely going.
I had already said to my husband that I need to bring him home if I can put some things in place. Before I left I tried to talk to my son. I wasn't expecting it to be an in-depth conversation considering his mental state. I got worse then I was expecting. I went to crouch/sit beside him and he got mad and told me to stand up and talk to him. I don't know why he gets like this with me. I mean the not wanting me to talk to him on his level. It just goes against everything that I have read on how to talk to someone experiencing psychosis. Especially since he gets so defiant with me being the main disciplinary. Yet he still gets mad, doesn't want me on his level and wants me to take the authoritative stance. The only thing I can reason is that somewhere in his head is a recognition that he actually needs someone to take on the role of authority for him. But then his ODD gets in the way...
I asked him if he remembered talking to his Nana about not going out there. Yes. I told him that I want to take him home however I can't if he has control over his money to buy alcohol because alcohol is killing him. I want power of attorney. He refused.
A couple of days ago I received a message from his grandmother stating that she had told him no to him coming there and she hoped that made everyone happy. Needless to say I didn't respond. The sarcastic side of me wanted to answer with: Why yes, I'm ecstatic. Thank you! I figured not answering was the better option.
My daughter calls to find out if I got the message and to include the side-note that obviously Nana didn't really mean it and that she would step in and take him if she felt it was necessary.
As far as I know that plans are/were to have my son go directly into a shelter out there. So switching one shelter for another? Then I guess work on getting him into his own place since this is what he wants. Well it's what he says he wants. He knows full well that once he gets there he can say no to any form of assisted living and that if he does that then he will end up with Nana. The ideal situation for him. He doesn't have to care about anyone except himself. He doesn't have to try to be sober and stable. To be blunt, he doesn't have to try period. He will get his pat on the head while someone else cleans up after him and protects him from himself.
The rant. Can you see my son living on his own?! He can't even keep himself stable when he is living somewhere that is feeding him and providing him with basic amenities. Yet that is what him and his grandmother seem to be concocting between the two of them. Unless he is telling her that he will go into a group home out there. If that is the case and it is being believed I can only shake my head some more.
My son, in my opinion, needs several basic things. Mainly he needs long-term treatment for addiction. By long-term I'm thinking 3-6 months to start. He needs help from non-family, so he can't use and manipulate them, to help him become stable, stay stable and learn to mature and grow up. Until he gets these things. Everything else is just prolonging everyone's suffering, including and especially his own.
My son isn't stupid by no means. When I had the police take him, one of them went with him to his room to collect his things. My son was very drunk. Not as drunk as I thought. He made sure to disconnect, unplug and turn off the laptop so that I couldn't have access to it. Before leaving he wanted my phone to call his Nana. I know some may think: Well yes she is the one he knows will support him. Hmm. The one that will support him or enable him. There is a big difference.
Honestly he has support coming out his.... ;) Agencies and people just waiting for him to give the go ahead and they will be right there. PACT has peer support, group support and vocational (job) support. ADAPT has addiction support. Applications have been started for housing. He has an open file at the YMCA for free schooling at his own pace. My son is 21 and says no thank you...
He also has me and my husband. Apparently I expect too much. Expecting Michael to follow basic rules that a 5 year old can follow, clean up after himself, treat me with respect, not be violent, try to be medication compliant and engage is addiction services is apparently too much for him. How do you respond to that? Seriously if he is that bad off then he really should be in the hospital with 24/7 care not traipsing on a plane across the country!
Where we are at now is not new. He has been here before. He has played the system, played and manipulated emotions until he got what he wanted. Freedom from responsibility, stability or sobriety.
Do you think he doesn't know that if he doesn't participate in recovery plans here that in time he will get what he wants? Of course he does. Like I said he isn't stupid.
Something I had too look at and acknowledge was/is that his masturbation episodes are tied into his alcohol use and not his schizophrenia so yes it is more behavioral. I didn't know until I found out about him calling dial-a-bottle that he was during the time of his masturbating frequently and in public, drinking almost a bottle of alcohol a day. I also found out that one of the ladies at the shelter caught him doing this in public and had to talk to him about it. I didn't tell her that I knew that he had purchased a bottle of alcohol since being there. Just like I didn't tell them that I'm pretty sure he probably has marijuana on him. Maybe that is why he bolts when expected to shower and change cloths? He keeps his jacket on and close to him when he is hiding stuff.
There is also the distinct possibility that if he gets himself kicked out of there then in steps his safety net. I may not be actively stopping this from happening however I'm certainly not going to help it happen.
Of all the blogs that I read. Jagged Little Edges is without a doubt one of my favorites. Lorelie doesn't hold any punches on what addiction is and the truth of it's ugliness is spelled out in black and white. Lorelie's last blog post: Loving An Addict Means Saying No.
A lot of Lorelie's posts are also highlighted on: Addiction Campuses
I know there are a lot of families who struggle with concurrent disorders of addiction and mental illness. I only speak for what I see with my son. He doesn't use to self-medicate symptoms. He uses/drinks to feed/satisfy his addictions. It's doing this that triggers his schizophrenia and causes the rebound affect. Also my son doesn't want to medication his symptoms. He very much enjoys his psychosis when he is in it. Probably another reason why he didn't want to take his medications yesterday. Why mess with his high? I have been around addiction enough to recognize that mind-set. I have been there. Don't eat too much before doing this drug or you will lessen the high...
I did tell the lady at the shelter that my son was psychotic and needed his medications so hopefully they were a little more attentive last night about 'reminding him' to take them. It's not a part of their duties and they get busy. Not sure I buy that. The other shelter had less staff and they did more. They followed up on medications. They searched more for drugs etc. being brought in. I know because I watched them do it. Too bad it was in such a horrible neighborhood. I have yet to see this shelter search anyone including my son. The lady asked what the signs were of my son's psychosis. To me it's obvious but I'm mom and have looked at his face for signs for years now. I asked if she knew what high looks like? What extreme exhaustion looks like? Combine them and you have my son's current face. Again I left out that he was most likely high... Really in the end it was the psychosis I'm trying to nip in the butt before something negative happens and high or not high he would still look pretty much the same from psychosis.
My appointment with ADAPT last week got rescheduled to the 18th of August. Today is a civic holiday here in Ontario, Canada so I'm not working! Hubby is :(. My work schedule has changed. Now I'm 12-6:30 Mon-Fri and I think 10:30-2 on Sunday. So 6 days a week and more hours. I may see if I can switch from Sunday to Saturday as Sunday is the one day I can pretty much count on hubby not working. The hours are being split between me and another lady. I got paid! I needed it to help cover rent due to what I had to give to Michael. I got my hair cut yesterday. Pretty short. I guess it's a bob? shorter at the back and long around the face. It feels good. I haven't had a cigarette in 6 weeks! I'm not sure how long it's been for hubby. I think 3 weeks. My homemade protein bars were a hit. We both like them. Have to make more today. I may even get back on my stepper today and do some exercise.
The above things make me happy. Certainly not the situation that my son is in or the fact that I have to fight so hard to try and get him the treatment that he needs.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Monday, July 20, 2015
Third time's a charm?
As you know I quit smoking when I started using the nicotine patch a month ago. This is the third time I'm quitting smoking with the patch. I did succeed the other two times and was quit for 6 and 8 months each time. Quitting doesn't seem to be my issue. Now staying quit on the other hand ;).
This time... Just wow this hasn't been fun. The patches come in stages depending on how much you smoke. I already knew from past experience that starting with step 1 (21 mg patch) was too much nicotine for me. I also know to take the patch off before bed regardless of what the instructions say. I have always wondered what they are thinking. No one smokes in their sleep (unless you sleep walk) so why have nicotine coursing through your system when trying to quit and while sleeping. I wonder how many people don't even complete the program due to how bad the bad dreams are...
I start with step 2 (14 mg patch) and generally do each step a little longer since I cut out the first step. Step 2 is for less then 10 cigarettes a day. Nothing seems to take into consideration whether the person smokes lights, ultra-lights or in my case super-slims. Really skinny cigarettes.
By the end of last week even I was starting to get concerned. I came pretty close to heading to the hospital's emergency department over the weekend. Hubby came pretty close to taking me. There have been changes to several different things so I wasn't sure what was causing what or if it was all just bad timing of everything together.
I didn't get my Venlafaxine prescription renewed. Yes I know, not very smart of me. I did try however my doctor needs to see me first since I upped it from 37.5 to 75 mg. I'm still not sure if I want to get it renewed or not. I only wanted them for some short-term help until I was able to get started in counselling and hopefully get myself re-centered again. Sadly it seems that I may not be able to make it through a weekend without them though.
I got my menstrual cycle 2 weeks early. Yup fun! I'm already struggling to get enough iron so that I'm not anemic. Throw an extra period in there and I was expecting to feel light-headed. Also I had stopped taking one of my tinctures that I use to keep my menopausal symptoms in check and my cycles regular.
I haven't had a cigarette since June 20.
I think I was handling things not bad. Still by Friday I was getting concerned. I was so light-headed and nauseous. After years of cycle issues I'm used to being light-headed during my menstrual cycles. This however was over the top. Just sitting while I was working was hard as I was constantly on the verge of fainting. I wanted to vomit. I was cold sweats. I had started getting cold sweats at night too which I figured was the beginning of hot flashes again...
Thinking what I was experiencing was mostly cycle related and/or iron, then I doubled up on my iron supplement. Needless to say that didn't help since it wasn't the issue. Then there is the side affects of taking too much iron ;). I think that is evening itself out today though.
Holy cravings... Not for cigarettes. Salt and sugar. Banana splits, waffles, ice cream, whipped cream, syrup, potato chips and oh my gosh thirsty. I was experiencing an over-dose of nicotine. As a smoker and recovered addict I know what it feels like to smoke too much. This was... I don't ever want to experience that again.
This will be the 3rd day of no patch. Yesterday morning I put one on for about 45 minutes. The day before I had one on for maybe a couple of hours. I had to take them off. Within 20 minutes of putting them on I was dizzy, nauseous and my heart rate was going through the roof. It felt like I was running while sitting still. It was like I was on a serious high without the good parts. Breathing was a chore at times.
On a side note. Perhaps the experience can give me a little more insight into what my son can sometimes experience.
That's when I started putting it together. When I realized that I haven't physically craved a cigarette for a while now. I had gone days without wanting a Lozenge. There was so much nicotine in my system that even the habit itself wasn't making itself known.
I spoke to the pharmacist and he said it was a good thing that I was ready for step 3 (7 mg patch) so quickly. At least that was reassuring, I guess. Feeling like I needed to be in the ER wasn't.
Today I can feel it. I want a cigarette. I'm afraid to put on a patch though. I will see how I react to a lozenge first. I'm still light-headed. No where near where I was though. Thank goodness. I wake up feeling ok since I have gone all night with no nicotine and my system can start flushing it out. Caffeine... I'm noticing that drinking coffee is not helping as it's another stimulant that is triggering the nicotine affect.
All the physical stuff... It was the emotional or should I say IS the emotional that I'm struggling to get under control. Since I have never come off of antidepressants before and certainly not with all this other crap going on, I have no experience to compare it to. Yesterday I was to the point of, I don't know what. Hubby was 'helping' me with cleaning the floors. The way that ADHD, over-worried hubbies can help. By making everything worse :). I couldn't handle it. I couldn't handle his ADHD thinking. I couldn't handle his attitude or inability to cope with me not being able to handle him. I hit him with a pillow. Trust me I wanted to do more... I wanted/needed him to stop. Just stop.
I'm a hormonal mess it seems. I have been on the verge of tears since yesterday morning. Now I think this is due to coming off the Venlafaxine. Not only do I want to cry at the sappy parts in movies, I want to cry at the thought of the sappy parts that I know are coming. Haha! Parts that I don't normally find sappy...
I'm back on my tinctures for menopause. I think my bleeding is finally stopping. Sorry guys... But honestly. Why can't our bodies just make a decision. Off or on. I don't even care which but 'spotting' is a complete joke.
Before I forget. A shout-out to my followers who have shown me support. I can't say how much I appreciate it. I don't have high expectations when it comes to family or anyone's ability to care... I will just leave that there. I blog and share because it helps me and hopefully helps others to not feel alone. So when I end up not feeling alone because of my followers responses and support. Yup, I'm a hormonal mess! Thank you and I see you! (We watched Avatar last night)
I missed my son's call yesterday. Because of work I sometimes put my phone on vibrate. I have a new work number now but the people I have previously contacted have my personal number. So I didn't know that he had called until last night.
I did see him on Friday. Hubby and I dropped him off a carton of smokes that he was supposed to call me and learn how to transfer me the money for them. Yes I know... I really wasn't expecting that to happen. I butted heads with privacy laws again. We can't tell you if he is here... We can't help you because we love to quote privacy laws instead of using common sense... Honestly I found myself insisting that there is a release that can be signed and that I'm pretty sure privacy laws haven't changed in the past 6 months. I had to insist because for whatever reason they didn't want to be bothered to reach over and grab a piece of paper that apparently didn't exist until I insisted. Then magically it appeared and my son was able to sign a release that let them acknowledge that he existed there when I called or showed up to drop off things he requested.
Sorry... It's just such a bullshit system and it doesn't help anyone. They certainly weren't helping my son. So who were they helping? Good question!
My son had called wanting smokes and some other items. Honestly I think he just wanted to come home and see if the alcohol was still here. He wanted some cloths. I checked his room and he took the cloths that he likes to wear. He already had tons of socks and underwear. His favorite shirts. Shorts and several pairs of pants. I did take him his favorite hoodie and some other things like chargers and his ipod etc.
Since the shelter pulled their privacy crap we couldn't even wait on the shelter's property to see if my son was going to come out for a smoke. They wouldn't take the items we brought. So we sat in the car for like 45 minutes, on the street. Then we drove to the closest mini-mart since I knew my son was buying cigarettes. I guess he saw us at some point so just as I figured was going to happen. He called me as we were getting back on the highway heading home. We turned around... I went inside with him to make sure the release was signed.
I asked him if he was taking his pills and he said yes. I asked him what he was doing. Just sitting outside smoking. So I clarified that I meant in the future. What are his plans. Well he doesn't want to have a place on his own out here in Ontario. He doesn't want to have a place on his own anywhere. The difference is that here with me being an addict/alcoholic isn't easy. In British Columbia it will be easy as who is going to try and stop him from throwing his life away? He knows that talk about him getting his own place out there is just that, talk. He has no intentions of doing it. He can't see past his addiction right now. And I seem to be the only one who thinks he is capable of doing that.
According to him he plans on buying a ticket with his disability payment. $98 isn't going to buy him a plane ticket. I'm certainly not helping him throw his life away. I told him again that he needs to go into rehab. He needs to be in a long-term treatment facility to help him. At least here that option is a distinct possibility and could happen rather quickly if he would take that step.
It's all second guessing on my part since I haven't heard from anyone on what their plans or intentions are.
I won't say how I know however I do know that he went to the liquor store on Friday for a bottle. I'm guessing he hasn't gotten caught or drank it all to make sure he didn't get caught. Alcohol... harmless right? Let him have it, right? *shakes head*
For now it's one day a time.
I do plan on making a doctor's appointment for myself and getting some blood work done. I want to make sure that the weight I have lost isn't as bad as everyone else seems to think it is. They may be right. I noticed on the weekend that I felt my ribs. I don't think I have been this thin since I was addicted so I should follow up and make sure it's nothing serious. I have been trying hard I guess to not acknowledge that there could be something wrong. The thought of me not being capable of taking care of things... It's a scary thought.
I'm off to play my Facebook games before work. I hope everyone had a good weekend and *finger's crossed* and a good week.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, July 17, 2015
Ashes! Ashes! We all fall down.
I don't have a lot of time before I start work however I felt like doing a quick blog post.
I think I have referenced the above nursery rhyme before. Sadly it's one of those cycles that we/I seem to keep getting caught in. I keep saying that I don't want to play this game anymore. It seems the only way I can make that happen is to quite literally remove myself or as I did on Wednesday, remove my son.
He did end up going to the liquor store and got 4 bottles of alcohol. A nice variety: vodka, southern comfort, fireball whiskey and sour puss liquor. I had no idea. I began to get an idea however when I asked him to clean up his mess in the kitchen and got threatened with being hit and he tossed his candy all over the kitchen counter and floor. A little while later I looked into the back yard and he was lying there with an almost empty bottle of sour suss beside him. That got tossed right away. He didn't seem concerned about it. Why would he be? He had 3 more bottles to go.
I sat at my desk and asked myself if I was prepared and willing to do what I wanted to do next. Yes. I called the police. Like I explained to the lady on the phone, I really didn't feel like I had many, if any, options left. At the rate he was going there was a big chance I would be calling the police soon if not that day anyways and the outcome probably wouldn't have been very pretty.
They attended. One of them was periodically an idiot in my opinion. When I told him that there was open alcohol stashed on the grounds he didn't seem that interested in doing anything about it. Or should I say motivated to actually walk his ass anywhere to find it. There was kids around playing. I let him know that if a kid got into it then it was on his head. I still don't get how it's not his job to enforce the law of no open alcohol in public or drinking in public. But hey...
My son at this point was quit intoxicated which was very clear by his face and speech. After I removed the sour puss, I'm guessing he went for the vodka since I still haven't found that bottle. He insisted on lying to me and the police when asked about the alcohol. By the way, I have the liquor store receipt from that morning which I found stashed behind his TV stand.
I stood there, looking at the officers, managing to hold my cool and my emotions, while they asked me what it is that I wanted them to do. Did I want him removed from the home. Since he wasn't at that moment being violent... Gotta love the system! Can't prevent violence only get involved once it happens. Call them back if he does get violent with me.
Of course my son is saying there is no more alcohol which was a lie. He is saying he is done drinking for now. I'm standing there... Thinking to myself I have done what I can do. I have asked anyone that I could think of to ask for advise on what I was supposed to do and handle this type of situation. It was up to me if I wanted to call in the police. Well I took that step and I stood behind it. I asked them to remove him from the home.
They did. I do believe he got charged a fine of some sort for being intoxicated in public then he was released to the shelter once he was sober enough I guess for them to accept him.
Now it's Friday and I have heard from him a couple of times. Asking for a ride to get smokes since he didn't want to spend all of his money on expensive cigarettes. Asking for money for a plane ticket back out to British Columbia. And of course there is the fact that I will owe him money at the end of the month when I receive the room and board portion of his disability payment.
Money, money, money...
I haven't heard from anyone else which tells me a lot. Having been through this as many times as I have been, the quieter it is and the less I'm hearing from people, pretty much tells me what I need to know.
My daughter called me on Wednesday asking what happened. I love her dearly but she can be pretty transparent. She has this way of asking... It's not her asking. I try really hard not to react because none of this is on her. Still it's hard when she wants to get in the middle when she has no idea what is going on or what I have been dealing with. She asked if I was prepared for him going back out there and commented that she guessed she was going to have to get another job. Isn't it awesome that an 19 year old is going to try to financially help take on the responsibility of 2 adults that are older then her.
My only response is for them to do whatever they feel is necessary. Please don't call me for money. I just sent her money because she said she didn't have money for personal hygiene products and cigarettes until pay day. It looks like I have some more boundary setting ahead of me.
Yesterday I had a shower that I actually enjoyed. I didn't even realize until I was in the shower that it's been months since I had a shower and relaxed in it. Always having my guard up, my listening ears on and making sure my purse or anything else of consequence was hopefully in a safe place.
I cleaned up the back yard. I have been avoiding it because my son has been treating it like a garbage can and I was constantly picking up garbage and cleaning up spit etc.
I have been going to bed and leaving my purse in the living room.
There is a part of me that is honestly reveling in the freedom of being able to enjoy and relax in my own home. I can breathe. Hubby and I can spend time in the living room together. We have been going to bed right after dinner lately because it was easier. I can work without worrying about paying attention to what my son was doing or having to stop to clean up his vomit or making sure he wasn't masturbating again out front. What can I say... Yes it feels good.
The mom in me however is make no mistake about it, heart-broken.
I just don't want to fall down anymore.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I think I have referenced the above nursery rhyme before. Sadly it's one of those cycles that we/I seem to keep getting caught in. I keep saying that I don't want to play this game anymore. It seems the only way I can make that happen is to quite literally remove myself or as I did on Wednesday, remove my son.
He did end up going to the liquor store and got 4 bottles of alcohol. A nice variety: vodka, southern comfort, fireball whiskey and sour puss liquor. I had no idea. I began to get an idea however when I asked him to clean up his mess in the kitchen and got threatened with being hit and he tossed his candy all over the kitchen counter and floor. A little while later I looked into the back yard and he was lying there with an almost empty bottle of sour suss beside him. That got tossed right away. He didn't seem concerned about it. Why would he be? He had 3 more bottles to go.
I sat at my desk and asked myself if I was prepared and willing to do what I wanted to do next. Yes. I called the police. Like I explained to the lady on the phone, I really didn't feel like I had many, if any, options left. At the rate he was going there was a big chance I would be calling the police soon if not that day anyways and the outcome probably wouldn't have been very pretty.
They attended. One of them was periodically an idiot in my opinion. When I told him that there was open alcohol stashed on the grounds he didn't seem that interested in doing anything about it. Or should I say motivated to actually walk his ass anywhere to find it. There was kids around playing. I let him know that if a kid got into it then it was on his head. I still don't get how it's not his job to enforce the law of no open alcohol in public or drinking in public. But hey...
My son at this point was quit intoxicated which was very clear by his face and speech. After I removed the sour puss, I'm guessing he went for the vodka since I still haven't found that bottle. He insisted on lying to me and the police when asked about the alcohol. By the way, I have the liquor store receipt from that morning which I found stashed behind his TV stand.
I stood there, looking at the officers, managing to hold my cool and my emotions, while they asked me what it is that I wanted them to do. Did I want him removed from the home. Since he wasn't at that moment being violent... Gotta love the system! Can't prevent violence only get involved once it happens. Call them back if he does get violent with me.
Of course my son is saying there is no more alcohol which was a lie. He is saying he is done drinking for now. I'm standing there... Thinking to myself I have done what I can do. I have asked anyone that I could think of to ask for advise on what I was supposed to do and handle this type of situation. It was up to me if I wanted to call in the police. Well I took that step and I stood behind it. I asked them to remove him from the home.
They did. I do believe he got charged a fine of some sort for being intoxicated in public then he was released to the shelter once he was sober enough I guess for them to accept him.
Now it's Friday and I have heard from him a couple of times. Asking for a ride to get smokes since he didn't want to spend all of his money on expensive cigarettes. Asking for money for a plane ticket back out to British Columbia. And of course there is the fact that I will owe him money at the end of the month when I receive the room and board portion of his disability payment.
Money, money, money...
I haven't heard from anyone else which tells me a lot. Having been through this as many times as I have been, the quieter it is and the less I'm hearing from people, pretty much tells me what I need to know.
My daughter called me on Wednesday asking what happened. I love her dearly but she can be pretty transparent. She has this way of asking... It's not her asking. I try really hard not to react because none of this is on her. Still it's hard when she wants to get in the middle when she has no idea what is going on or what I have been dealing with. She asked if I was prepared for him going back out there and commented that she guessed she was going to have to get another job. Isn't it awesome that an 19 year old is going to try to financially help take on the responsibility of 2 adults that are older then her.
My only response is for them to do whatever they feel is necessary. Please don't call me for money. I just sent her money because she said she didn't have money for personal hygiene products and cigarettes until pay day. It looks like I have some more boundary setting ahead of me.
Yesterday I had a shower that I actually enjoyed. I didn't even realize until I was in the shower that it's been months since I had a shower and relaxed in it. Always having my guard up, my listening ears on and making sure my purse or anything else of consequence was hopefully in a safe place.
I cleaned up the back yard. I have been avoiding it because my son has been treating it like a garbage can and I was constantly picking up garbage and cleaning up spit etc.
I have been going to bed and leaving my purse in the living room.
There is a part of me that is honestly reveling in the freedom of being able to enjoy and relax in my own home. I can breathe. Hubby and I can spend time in the living room together. We have been going to bed right after dinner lately because it was easier. I can work without worrying about paying attention to what my son was doing or having to stop to clean up his vomit or making sure he wasn't masturbating again out front. What can I say... Yes it feels good.
The mom in me however is make no mistake about it, heart-broken.
I just don't want to fall down anymore.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Wednesday, July 15, 2015
I'm alright.
Two blog posts in one week. Don't you feel lucky? ;)
I was talking to my son's case worker at PACT this morning and she asked me if I was alright then commented that I sound stronger then I ever have. Yes I am alright. As matter of fact I'm good for the first time in a long time.
I had my counselling session yesterday with ADAPT. We discussed my job and how I'm handling and balancing everything with my not smoking, my son, my hubby etc. I'm adjusting and settling into a good routine.
My son is a different story. He isn't adjusting. He isn't anything except digging himself deeper into alcohol and therefor schizophrenia.
I found out Monday morning that he had called dial-a-bottle to deliver his alcohol. He did this last Thursday. So he was drinking alcohol in his room, hiding it from me, knowing that I had no clue because he hadn't gone anywhere on his bike. He got 3 bottles, which was gone by Monday morning. He also tried to call them early Monday morning.
He no longer has cell phone service. It's his phone but the service I was paying for. He came to me asking for it back that he wanted to call his Nana. I offered him my phone that he can use that whenever he wants. Did he want my phone to call her? His answer was no. Of course not. He really didn't want it for that reason. He wanted it back to call dial-a-bottle.
I'm not sure why he hasn't gone to the liquor store on his bike yet. He has had money since Monday. He received a direct deposit from the government for around $300. He also discovered money from them on Thursday that he didn't tell me about since it was used for alcohol that he was hiding from me. I'm questioning if the liquor store has refused to serve him. He says no.
I tried talking to him this morning about him going to an addiction treatment center. He doesn't have a problem and it's not impacting his life... The only problem is my problem. My problem is with all my house rules being broken and not being shown any respect.
I called his case worker to find out where his applications for housing are at.
As time goes by and reach new steps in acceptance than I'm more and more reaching a point where I have to acknowledge that I can't help someone who doesn't want to help themselves. The more I give the more I'm cushioning him from the consequences of his own actions.
However I guess what it really boils down to is where I'm at. I'm in counselling for myself. I have quit smoking. I am now working. Hubby just quit smoking too. He also started a new medication to help with some side affects from his other medications. We are trying to build a life. A good life. A healthy life.
I know my boundaries and I know what is good for me and what isn't. I keep letting them slip and get pushed aside because he is my son and I love him. As I act from a place of love, he acts from a place of addiction. Of self-centered I want and I should be able to have because I want...
Okay...
I'm ready for the next step. I'm ready to accept the consequences of the choices I want to make for my life because I want a better life and I deserve a better life. If my son wants the life that he is choosing then all I can say at this point is ok. Go and get it.
I thought I had more time to write this blog however someone regarding work called and now I have to start work in 10 minutes.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I was talking to my son's case worker at PACT this morning and she asked me if I was alright then commented that I sound stronger then I ever have. Yes I am alright. As matter of fact I'm good for the first time in a long time.
I had my counselling session yesterday with ADAPT. We discussed my job and how I'm handling and balancing everything with my not smoking, my son, my hubby etc. I'm adjusting and settling into a good routine.
My son is a different story. He isn't adjusting. He isn't anything except digging himself deeper into alcohol and therefor schizophrenia.
I found out Monday morning that he had called dial-a-bottle to deliver his alcohol. He did this last Thursday. So he was drinking alcohol in his room, hiding it from me, knowing that I had no clue because he hadn't gone anywhere on his bike. He got 3 bottles, which was gone by Monday morning. He also tried to call them early Monday morning.
He no longer has cell phone service. It's his phone but the service I was paying for. He came to me asking for it back that he wanted to call his Nana. I offered him my phone that he can use that whenever he wants. Did he want my phone to call her? His answer was no. Of course not. He really didn't want it for that reason. He wanted it back to call dial-a-bottle.
I'm not sure why he hasn't gone to the liquor store on his bike yet. He has had money since Monday. He received a direct deposit from the government for around $300. He also discovered money from them on Thursday that he didn't tell me about since it was used for alcohol that he was hiding from me. I'm questioning if the liquor store has refused to serve him. He says no.
I tried talking to him this morning about him going to an addiction treatment center. He doesn't have a problem and it's not impacting his life... The only problem is my problem. My problem is with all my house rules being broken and not being shown any respect.
I called his case worker to find out where his applications for housing are at.
As time goes by and reach new steps in acceptance than I'm more and more reaching a point where I have to acknowledge that I can't help someone who doesn't want to help themselves. The more I give the more I'm cushioning him from the consequences of his own actions.
However I guess what it really boils down to is where I'm at. I'm in counselling for myself. I have quit smoking. I am now working. Hubby just quit smoking too. He also started a new medication to help with some side affects from his other medications. We are trying to build a life. A good life. A healthy life.
I know my boundaries and I know what is good for me and what isn't. I keep letting them slip and get pushed aside because he is my son and I love him. As I act from a place of love, he acts from a place of addiction. Of self-centered I want and I should be able to have because I want...
Okay...
I'm ready for the next step. I'm ready to accept the consequences of the choices I want to make for my life because I want a better life and I deserve a better life. If my son wants the life that he is choosing then all I can say at this point is ok. Go and get it.
I thought I had more time to write this blog however someone regarding work called and now I have to start work in 10 minutes.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Sunday, July 12, 2015
A right of passage
Thought I would give a quick update...
Not a lot has changed over the past week. Getting more comfortable with the job and fitting myself into the schedule my boss wants me on. In my opinion the hours are... Well they are broken up throughout the day. Monday to Friday he wants 11:30 - 1, 4:30 - 6 then 8-10. Friday's 11:30 - 2 and Saturday's 9-1. The 8-10 shift is a no go for me. I'm not giving up what little time hubby and I have together during the week and once I get my son back on a sensible sleep schedule than 8 is our bedtime ;). There is also fact that I'm pretty sure calling after 9 PM is legally not a go. I don't get calling at 9 AM on a Saturday and not at 9 AM during the week when it's expected that people be up. Aside from that I'm booking appointments and have submitted my first invoice. So hopefully I will be seeing some money soon!
On July 6 my son's nurse was here for his weekly visit. Like I told his psychiatrist who was here the following day, I think I held it together pretty good. When I told his nurse about his excessive, not in private, out in public masturbating... His response was that since my son didn't have a girlfriend that masturbating was a right of passage and that him doing it out on the front veranda was behavioral. *pats self on back* for not losing it ;).
They drop of his medications every Friday in a blister pack (medications are in pop-out boxes for each day). Which I think is ridiculous and have told them several times it's not necessary but the PACT team insists on it. I guess they like it because when they visit they can see if patients/clients are taking their medications. Since my son doesn't get himself his meds, I do it, it's pointless. A waste of the pharmacists time and resources (and I think costs the government more money) and means every week someone has to come here on Friday instead of just giving me a months supply in a bottle. Anyways... Because I'm apparently not using the blister pack properly (haha) which means not starting the new pack on Friday when they bring it and instead using up the remainder of the previous blister pack, then his nurse couldn't understand what days medications he had missed. For clarification the blister packs have 7 days. Monday to Sunday. So I start a new one on Monday. Confusing right? His nurse thought so. So when I showed him that my son had missed taking his meds on Tuesday and Thursday, he decided that my son had missed 2 days in a row. Sometimes there is just no point in carrying on a conversation...
He did however set up an appointment for Michael's psychiatrist to come here the next day. I filled him. Let him know that even though I appreciate how his nurse is with Michael and that in that regard he is doing very good, that he doesn't take my concerns seriously or listen to me very well. His psychiatrist makes decisions based on the feedback from the other team members and when that feedback isn't relayed properly then I tend to get a bit upset. It's certainly not the first time I have dealt with this. His first nurse with PACT was bad for that too. She blamed almost everything on behavior. I asked his psychiatrist what to do when this happens. Call in and make an appointment with him.
We discussed medication options and decided to add back the Lithium. *shakes head* I have off and on been suggesting this since he was in the shelter in February. I asked for clarification on who I am thinking about my son's behaviors and if I was completely off track. It's a bit of both I guess. On one hand yes some things are behavioral and I can acknowledge that. Punching and kicking my door, behavioral. Insisting on smoking in his room, behavioral. Not knowing that it is inappropriate to masturbate in front of your mother or out in public because one can't see past the urge to do it, not so much. His psychiatrist agreed that this behavior is not normal even for him and he isn't doing it just to piss me off. The problem though is that upping medications will not necessarily correct this. Upping his Invega could cause the opposite affect of what we are looking for and make his negative symptoms worse. I can understand that. Adding the Lithium back should increase the effectiveness of his Invega and hopefully help with his negative symptoms. I think Lithium tends to act like an antidepressant with Michael whereas actual antidepressants do him no good. Why would they? In the bigger picture he is not depressed. He is experiencing negative symptoms which is different.
The Lithium was dropped off on Wednesday. Of course he missed his medications on Thursday due to alcohol. If anyone thinks that alcohol is harmless... Come see what I see. It's far from harmless for my son. It's keeping him unstable and robbing him of a future. Hopefully we have a 3 week break from it and I can work on getting him started on some sort of stability.
He has his days and nights mixed up again. I'm reminding him several times throughout the night to take his pills however he isn't taking them until morning and then sleeping. If it happens again tonight I think I may just let him miss them and try to start fresh tomorrow night.
As for the smoking in his room. It's a constant battle. Thursday night I found his whiskey bottle in his room. His psychiatrist agreed with me that Michael most likely has ODD (oppositional defiant disorder) and sadly trying to discipline around and keep the appropriate boundaries is even more important due to the ODD. You let one slip and they all go. The mess he is making of his bedroom floor :(. They are shellacked and he throws his cigarettes on them when I walk into his room so I won't see it. Oh yes... According to him he is accidentally smoking in his room. Haha. Because you accidentally close your bedroom door, light an incense to cover up the smell and find something to use for an ashtray. Sometimes that is his garbage can with liquids thrown in it. I have removed his garbage can. He doesn't use it for actual garbage anyways. I have tapped a note to the top of the stairs that says 'no smoking, leave your smokes downstairs' and another one to his bedroom door. At least he can't pretend like he doesn't know the rule :).
The last day or so it's cigarettes... I have warned him and warned him that I'm quit and I'm not supplying him with cigarettes. He knew this when hubby took him to get cigarettes. He got 2 cartons which he now doesn't like. Where we go you can actually smoke in the store and you can try every kind of cigarette that they have to see if you like them. He tried them. I'm guessing he was more concerned with getting the cheaper ones so that he had money for alcohol. His choice. I also gave him the cigarettes that we had gotten for him from before which was another 4 packs. Yesterday he wanted me to buy him a couple of packs with the extra money he is giving me. He isn't giving me any money. Disability is sending me MY portion of his payments. I didn't respond to this comment at all. Then it was can he have a pack of hubby's. Hubby doesn't keep his cigarettes in the home anymore and he wasn't home yesterday. Kinda sad that we can't even keep our own things in our own home. Hubby is also quitting. We just got him patches too. So Michael I'm afraid is going to be shit out'a luck in the smoking department. The kicker though is that he does have cigarettes. He just doesn't like them.
So today is my day off! Yeah! I have to finish the laundry I started yesterday evening. I really need to clean the floors as Michael has spelt pretty much everything, everywhere. I need to wash his blankets too. Still haven't gotten him in the shower :(. He did have a bath on Monday night however that had more do with him liking being in the bathtub when he is drunk. God I hate alcohol!
I guess that wasn't a quick update after all. :)
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Not a lot has changed over the past week. Getting more comfortable with the job and fitting myself into the schedule my boss wants me on. In my opinion the hours are... Well they are broken up throughout the day. Monday to Friday he wants 11:30 - 1, 4:30 - 6 then 8-10. Friday's 11:30 - 2 and Saturday's 9-1. The 8-10 shift is a no go for me. I'm not giving up what little time hubby and I have together during the week and once I get my son back on a sensible sleep schedule than 8 is our bedtime ;). There is also fact that I'm pretty sure calling after 9 PM is legally not a go. I don't get calling at 9 AM on a Saturday and not at 9 AM during the week when it's expected that people be up. Aside from that I'm booking appointments and have submitted my first invoice. So hopefully I will be seeing some money soon!
On July 6 my son's nurse was here for his weekly visit. Like I told his psychiatrist who was here the following day, I think I held it together pretty good. When I told his nurse about his excessive, not in private, out in public masturbating... His response was that since my son didn't have a girlfriend that masturbating was a right of passage and that him doing it out on the front veranda was behavioral. *pats self on back* for not losing it ;).
They drop of his medications every Friday in a blister pack (medications are in pop-out boxes for each day). Which I think is ridiculous and have told them several times it's not necessary but the PACT team insists on it. I guess they like it because when they visit they can see if patients/clients are taking their medications. Since my son doesn't get himself his meds, I do it, it's pointless. A waste of the pharmacists time and resources (and I think costs the government more money) and means every week someone has to come here on Friday instead of just giving me a months supply in a bottle. Anyways... Because I'm apparently not using the blister pack properly (haha) which means not starting the new pack on Friday when they bring it and instead using up the remainder of the previous blister pack, then his nurse couldn't understand what days medications he had missed. For clarification the blister packs have 7 days. Monday to Sunday. So I start a new one on Monday. Confusing right? His nurse thought so. So when I showed him that my son had missed taking his meds on Tuesday and Thursday, he decided that my son had missed 2 days in a row. Sometimes there is just no point in carrying on a conversation...
He did however set up an appointment for Michael's psychiatrist to come here the next day. I filled him. Let him know that even though I appreciate how his nurse is with Michael and that in that regard he is doing very good, that he doesn't take my concerns seriously or listen to me very well. His psychiatrist makes decisions based on the feedback from the other team members and when that feedback isn't relayed properly then I tend to get a bit upset. It's certainly not the first time I have dealt with this. His first nurse with PACT was bad for that too. She blamed almost everything on behavior. I asked his psychiatrist what to do when this happens. Call in and make an appointment with him.
We discussed medication options and decided to add back the Lithium. *shakes head* I have off and on been suggesting this since he was in the shelter in February. I asked for clarification on who I am thinking about my son's behaviors and if I was completely off track. It's a bit of both I guess. On one hand yes some things are behavioral and I can acknowledge that. Punching and kicking my door, behavioral. Insisting on smoking in his room, behavioral. Not knowing that it is inappropriate to masturbate in front of your mother or out in public because one can't see past the urge to do it, not so much. His psychiatrist agreed that this behavior is not normal even for him and he isn't doing it just to piss me off. The problem though is that upping medications will not necessarily correct this. Upping his Invega could cause the opposite affect of what we are looking for and make his negative symptoms worse. I can understand that. Adding the Lithium back should increase the effectiveness of his Invega and hopefully help with his negative symptoms. I think Lithium tends to act like an antidepressant with Michael whereas actual antidepressants do him no good. Why would they? In the bigger picture he is not depressed. He is experiencing negative symptoms which is different.
The Lithium was dropped off on Wednesday. Of course he missed his medications on Thursday due to alcohol. If anyone thinks that alcohol is harmless... Come see what I see. It's far from harmless for my son. It's keeping him unstable and robbing him of a future. Hopefully we have a 3 week break from it and I can work on getting him started on some sort of stability.
He has his days and nights mixed up again. I'm reminding him several times throughout the night to take his pills however he isn't taking them until morning and then sleeping. If it happens again tonight I think I may just let him miss them and try to start fresh tomorrow night.
As for the smoking in his room. It's a constant battle. Thursday night I found his whiskey bottle in his room. His psychiatrist agreed with me that Michael most likely has ODD (oppositional defiant disorder) and sadly trying to discipline around and keep the appropriate boundaries is even more important due to the ODD. You let one slip and they all go. The mess he is making of his bedroom floor :(. They are shellacked and he throws his cigarettes on them when I walk into his room so I won't see it. Oh yes... According to him he is accidentally smoking in his room. Haha. Because you accidentally close your bedroom door, light an incense to cover up the smell and find something to use for an ashtray. Sometimes that is his garbage can with liquids thrown in it. I have removed his garbage can. He doesn't use it for actual garbage anyways. I have tapped a note to the top of the stairs that says 'no smoking, leave your smokes downstairs' and another one to his bedroom door. At least he can't pretend like he doesn't know the rule :).
The last day or so it's cigarettes... I have warned him and warned him that I'm quit and I'm not supplying him with cigarettes. He knew this when hubby took him to get cigarettes. He got 2 cartons which he now doesn't like. Where we go you can actually smoke in the store and you can try every kind of cigarette that they have to see if you like them. He tried them. I'm guessing he was more concerned with getting the cheaper ones so that he had money for alcohol. His choice. I also gave him the cigarettes that we had gotten for him from before which was another 4 packs. Yesterday he wanted me to buy him a couple of packs with the extra money he is giving me. He isn't giving me any money. Disability is sending me MY portion of his payments. I didn't respond to this comment at all. Then it was can he have a pack of hubby's. Hubby doesn't keep his cigarettes in the home anymore and he wasn't home yesterday. Kinda sad that we can't even keep our own things in our own home. Hubby is also quitting. We just got him patches too. So Michael I'm afraid is going to be shit out'a luck in the smoking department. The kicker though is that he does have cigarettes. He just doesn't like them.
So today is my day off! Yeah! I have to finish the laundry I started yesterday evening. I really need to clean the floors as Michael has spelt pretty much everything, everywhere. I need to wash his blankets too. Still haven't gotten him in the shower :(. He did have a bath on Monday night however that had more do with him liking being in the bathtub when he is drunk. God I hate alcohol!
I guess that wasn't a quick update after all. :)
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Sunday, July 5, 2015
I have a job! I think... They are back!
It feels like forever since I last blogged and it's only been a week. What a week. I think for the first time in years I can say that I'm glad it's Sunday! So unless you're my daughter, my husband or an emergency, chances are I will not be answering my phone today.
Hubby has been teasing me because I'm usually the one commenting that we go to bed too early and since Wednesday I have been asking him to come to bed anytime after 7. My insomnia certainly hasn't been an issue lately. ;) I've been exhausted. A good exhausted though.
I was put in touch with someone regarding a work from home opportunity. On June 29 I received a call asking if I was available for training that night. Yes! The job itself is fairly easy. It's pre-screening callers to see if they qualify. I had heard the term inside sales before however I wasn't sure exactly what it meant. Now I know. Well at least from this company's perspective. There have been a couple of bumpy spots as I try to learn the system and what is expected of me. Still not completely sure of what is expected of me time wise but that's ok. I still have tons of questions that haven't been answered. Hopefully in time the answers will come. As I learn more about how it works the more confident I feel doing the work. The reason I say I think I have a job is because it hasn't really been confirmed. I guess we could call this my probationary period.
For the past week I have been mentally all in, trying to learn the ropes. I think I'm getting the hang of it pretty good. I know that I can be a little slow getting started. Ask my old bosses! ;) However once I have something, you can usually count on me to carry through and go the extra mile. Tell me what you need and I will do my best to accommodate. If you don't tell me... Well I will give you what I think you need and hope for the best. Which is what I'm currently doing.
So yes bed looks and feels really good now! It feels good to go to bed tired. A good tired. Not like when I go to bed exhausted from butting heads, with no end in sight, with schizophrenia, addiction and all it entails. That exhaustion is grueling and wearing on the soul.
I'm afraid I have nothing good to report on my son. His Invega still has not been upped. His case worker dropped off his weekly medication pack on Friday stating that his nurse has not been in so nothing has been done. Awesome!
Tuesday he got his disability money. Of course that meant a trip to the liquor store for vodka. Hubby did take him to buy cigarettes first. He got 2 cartons. One of them is almost gone. He has missed taking his medications twice. Once he argued with me that he had taken them, that I had given him his medications twice that night. Wednesday he wouldn't take them because of the alcohol he had drank. Saying it would make him sick. I don't know if he still has alcohol left. He bought two bottles and so far I have only seen one bottle in the garbage. He hasn't been out to his 'secret spot' that I'm aware of for the past two days. I don't know if it's because he has forgotten or just doesn't want to. Or the ever present possibility that he has snuck it into his room.
I did give him back the internet however I let him know that it's dependent on me finding out that he is smoking in his room or not. I think he is a little bit however not like he was. I know this because I'm hearing him come in and out all hours of the night.
Yesterday he stressed me out. I was working and he was sitting out front. Our front porch is part of one of the court yards where all the kids play and hang out. I happened to look out... Thank goodness he was wrapped in a blanket but what he was doing was obvious. I quickly went out and stopped or interrupted him and told him to get inside. Of course his answer was no that he was done now. Thankfully there was no kids out there when I went out. I'm really hoping that there wasn't before hand. :( Yes I freaked a little bit. But only a little bit. I let him know that that was not acceptable and that there are children playing and if a parent or child sees him doing that that they can call the police for doing indecent acts in public. I sincerely hope that no one else saw. Mental illness or not I don't think that having schizophrenia excuses that type of behavior and honestly I think his drinking is contributing to this behavior more then psychosis.
Speaking of that. Lately that is another thing that he has been trying to do. Blame schizophrenia. I have schizophrenia so it's not my fault that I'm smoking in my room. It's schizophrenia's fault that I kicked your bedroom door. Take me for a ride as it would really help my psychosis... Even he couldn't keep a straight face for long when I responded with: Good one.
It seems he kicked my bedroom door when I thought he punched it the second time. No memory lapses here. He remembers, just feels justified in doing it. Gucci our poor cat is now freaked out by him. She totally freaked when he did this. I have never seen her act like that. She hid behind the sofa for most of the night that night. Now even if she is relaxing on my bed with me and she hears him on the steps, she tenses and is ready to flee. She won't eat if he is around. I have noticed that she isn't sleeping with me the same. A couple of times I have found her sleeping on my chair downstairs which is new. Perhaps she feels trapped upstairs when he is up there.
The fruit flies are back! Yippee! I haven't been in my son's room much over the past week. After I cleaned it the last time I have pretty much avoided it. I know he is making a mess in there and honestly I just couldn't have cared a less. It seems pointless sometimes to even try and keep it neat or clean. I should have clued in after the last time. But no... I have been noticing them coming back and shaking my head as to why no matter how much I'm keeping the kitchen clean they are still there and in the living room. Last night Michael asked me to scratch his back so I went into his room and moved his garbage can. Yup you guessed it. Fruit flies.
I guess I have some caregiver chores to do today. Hubby had to work today so I'm just enjoying my quiet morning and my Facebook games. Once my son gets up I will 'try' to get him to help me clean his room. Even if that only means him holding the garbage bag ;). I still haven't gotten him in the shower so today is shower day for both of us since I need one too. I noticed my armpits... hmmm yeah. They never smell. I guess I have been stressing while learning this job more then I thought.
Time for a fresh cup of coffee. Oh yeah. I'm still quit smoking! There was a couple of iffy moments over the past week where I really wanted one but I didn't. I think this job is helping some. It's not part of my routine to smoke while doing it which seems to be helping. Hours will pass where I don't even think about it. When the urge hits I do have nicotine lozenges.
I hope everyone here in Canada enjoyed their July 1st, Canada Day celebrations and that our neighbors to the south in the US enjoyed their July 4th, Independence Day celebrations.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Hubby has been teasing me because I'm usually the one commenting that we go to bed too early and since Wednesday I have been asking him to come to bed anytime after 7. My insomnia certainly hasn't been an issue lately. ;) I've been exhausted. A good exhausted though.
I was put in touch with someone regarding a work from home opportunity. On June 29 I received a call asking if I was available for training that night. Yes! The job itself is fairly easy. It's pre-screening callers to see if they qualify. I had heard the term inside sales before however I wasn't sure exactly what it meant. Now I know. Well at least from this company's perspective. There have been a couple of bumpy spots as I try to learn the system and what is expected of me. Still not completely sure of what is expected of me time wise but that's ok. I still have tons of questions that haven't been answered. Hopefully in time the answers will come. As I learn more about how it works the more confident I feel doing the work. The reason I say I think I have a job is because it hasn't really been confirmed. I guess we could call this my probationary period.
For the past week I have been mentally all in, trying to learn the ropes. I think I'm getting the hang of it pretty good. I know that I can be a little slow getting started. Ask my old bosses! ;) However once I have something, you can usually count on me to carry through and go the extra mile. Tell me what you need and I will do my best to accommodate. If you don't tell me... Well I will give you what I think you need and hope for the best. Which is what I'm currently doing.
So yes bed looks and feels really good now! It feels good to go to bed tired. A good tired. Not like when I go to bed exhausted from butting heads, with no end in sight, with schizophrenia, addiction and all it entails. That exhaustion is grueling and wearing on the soul.
I'm afraid I have nothing good to report on my son. His Invega still has not been upped. His case worker dropped off his weekly medication pack on Friday stating that his nurse has not been in so nothing has been done. Awesome!
Tuesday he got his disability money. Of course that meant a trip to the liquor store for vodka. Hubby did take him to buy cigarettes first. He got 2 cartons. One of them is almost gone. He has missed taking his medications twice. Once he argued with me that he had taken them, that I had given him his medications twice that night. Wednesday he wouldn't take them because of the alcohol he had drank. Saying it would make him sick. I don't know if he still has alcohol left. He bought two bottles and so far I have only seen one bottle in the garbage. He hasn't been out to his 'secret spot' that I'm aware of for the past two days. I don't know if it's because he has forgotten or just doesn't want to. Or the ever present possibility that he has snuck it into his room.
I did give him back the internet however I let him know that it's dependent on me finding out that he is smoking in his room or not. I think he is a little bit however not like he was. I know this because I'm hearing him come in and out all hours of the night.
Yesterday he stressed me out. I was working and he was sitting out front. Our front porch is part of one of the court yards where all the kids play and hang out. I happened to look out... Thank goodness he was wrapped in a blanket but what he was doing was obvious. I quickly went out and stopped or interrupted him and told him to get inside. Of course his answer was no that he was done now. Thankfully there was no kids out there when I went out. I'm really hoping that there wasn't before hand. :( Yes I freaked a little bit. But only a little bit. I let him know that that was not acceptable and that there are children playing and if a parent or child sees him doing that that they can call the police for doing indecent acts in public. I sincerely hope that no one else saw. Mental illness or not I don't think that having schizophrenia excuses that type of behavior and honestly I think his drinking is contributing to this behavior more then psychosis.
Speaking of that. Lately that is another thing that he has been trying to do. Blame schizophrenia. I have schizophrenia so it's not my fault that I'm smoking in my room. It's schizophrenia's fault that I kicked your bedroom door. Take me for a ride as it would really help my psychosis... Even he couldn't keep a straight face for long when I responded with: Good one.
It seems he kicked my bedroom door when I thought he punched it the second time. No memory lapses here. He remembers, just feels justified in doing it. Gucci our poor cat is now freaked out by him. She totally freaked when he did this. I have never seen her act like that. She hid behind the sofa for most of the night that night. Now even if she is relaxing on my bed with me and she hears him on the steps, she tenses and is ready to flee. She won't eat if he is around. I have noticed that she isn't sleeping with me the same. A couple of times I have found her sleeping on my chair downstairs which is new. Perhaps she feels trapped upstairs when he is up there.
The fruit flies are back! Yippee! I haven't been in my son's room much over the past week. After I cleaned it the last time I have pretty much avoided it. I know he is making a mess in there and honestly I just couldn't have cared a less. It seems pointless sometimes to even try and keep it neat or clean. I should have clued in after the last time. But no... I have been noticing them coming back and shaking my head as to why no matter how much I'm keeping the kitchen clean they are still there and in the living room. Last night Michael asked me to scratch his back so I went into his room and moved his garbage can. Yup you guessed it. Fruit flies.
I guess I have some caregiver chores to do today. Hubby had to work today so I'm just enjoying my quiet morning and my Facebook games. Once my son gets up I will 'try' to get him to help me clean his room. Even if that only means him holding the garbage bag ;). I still haven't gotten him in the shower so today is shower day for both of us since I need one too. I noticed my armpits... hmmm yeah. They never smell. I guess I have been stressing while learning this job more then I thought.
Time for a fresh cup of coffee. Oh yeah. I'm still quit smoking! There was a couple of iffy moments over the past week where I really wanted one but I didn't. I think this job is helping some. It's not part of my routine to smoke while doing it which seems to be helping. Hours will pass where I don't even think about it. When the urge hits I do have nicotine lozenges.
I hope everyone here in Canada enjoyed their July 1st, Canada Day celebrations and that our neighbors to the south in the US enjoyed their July 4th, Independence Day celebrations.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, June 12, 2015
A little bit manic? ADAPT, Camping & Rules
To anyone that follows my blog regularly, my apologies for not writing...
I seem to still be struggling a bit with getting back into my grove and my social media with respect to mental illness. I upped my Venlafaxine on Saturday to what my family doctor wants me taking as I was noticing that my thoughts were going back to that negative loop where everything and anything that I'm not impressed with was auto-repeat in my head ;). It takes a couple of days for it to build up and by Wednesday the sedation kicked in and I ended up napping and going to bed early. So hopefully I can get back on track.
Hubby's family get together went well. Very well actually. I ended up reminding/telling my son that he had money as we were taking him to get cigarettes. I asked him to hold off on buying alcohol until after the family get together as I didn't want him being symptomatic while there. He agreed to wait. I know that he found it a bit tiresome but he said that he had a good time.
He didn't buy alcohol until later Monday afternoon. My bad... but I told him that the liquor store wasn't open on Sundays. I didn't think that it was. Hubby told me afterwards that it was open.
I'm guessing it was the alcohol that triggered it; he went a bit manic on Tuesday. Out of nowhere he was putting on jeans, grooming his beard and looking for his dress shoes. We had an interesting conversation about his teeth that day. Some delusional thinking in that he believed he was 'born' when he first started having memories around 3 or 4 and that he has grown new teeth 4 times. His ODD started to act up a little bit. When I didn't engage he said to me: Come on lets talk about this... Translation, come on lets argue ;). Sorry no. I told him that I thought he was being delusional, that I gave birth to him so I know when he was born, if he had teeth or not and that I wasn't going to continue this conversation. I walked away.
He went to his PACT group the following Wednesday which was golf. He participated and had fun. His new nurse from PACT has taken him out of the house for the past two Mondays. I think he is also pushing at PACT that Michael be more involved with the outings so it doesn't look like I have to question if he is on the list for Wednesday's groups anymore. Now his rides are just showing up. I think Monday's outing to the YMCA is being looked at as well. Last Wednesday was supposed to be a trail hike but due to rain they ended up going to the mall instead.
Camping last weekend went well. He said that he had fun. It's hard to tell sometimes. He looks like he is not really paying much attention to where he is yet he must be. Hubby and I stayed up until around 10 and Michael stayed up after that watching the fire ;). His reason for wanting to go camping is the fire. The store at the campsite sells little packets that causes the flames to go different colors which is kinda cool. We got 2 of them this time. Roasted some marshmallows. Hubby and I froze our butts off that night. Not quit warm enough at night yet...
I have had 2 appointments with ADAPT now. I will be meeting with my counselor once a week until she can get through my history. Also because I'm now a client of ADAPT then I'm able to participate in another program they have called 'STOP' which is for quitting smoking. I meet with a gentleman for that Wednesday morning and he gave me a months supply of patches and some lozenges. Now I just have to set my quit date. Because of my own past history with addiction I'm a little bit of both. I'm there as a family member of an addict but I'm also a recovering addict so I should be able to attend some of the programs for that as well.
Every Friday (today) they have a get together for addiction clients where people can talk about addiction, mental illness and how to have a better life. My son keeps asking if he can come to group with hubby and I and of course the answer is no. I reminded him of a youth thing that happens on Wednesday nights however I can't go to that one so he says no. He seemed open to the idea of going to today's session so we will see depending on the weather as it's supposed to downpour. Also I think his motivation may be the food court at the mall where ADAPT is and I can't keep handing money out to these things. Every group he wants money for McDonald's...
Wednesday hubby noticed that Michael seemed a bit edgy or cranky. A week without alcohol and he was/is probably experiencing some withdrawal symptoms. Being aware of this I didn't say anything that would play into that scenario. You know the one that has the addict pushing for a fight or argument so that they have a reason to drink or use ;). I can't say that I want to go through this every time my son gets money. It may not seem like much, however it's a constant cycle of him feeding his addiction then going through withdrawal when he has to go without. Sadly it's him that is suffering with withdrawal...
Hubby and I had group again last night. It was a repeat of the same theme as the last one we attended which was concurrent disorders: addiction and mental illness. Hubby seems to be getting a lot out of these groups. It's helping him to see/hear from others, other then just me. The group last night was through the Schizophrenia Society of Ontario (SSO) and they meet once a month at that location. I was sort of aware however I will make a bigger effort in the future to attend these.
I did speak to the lady from SSO for a minute about advocacy and other things. These are the items that SSO is currently working on: Policy and Advocacy
Rules... It came to our attention on Wednesday night, I think, that my son has started smoking in his bedroom. I totally missed the red flag of my son being in his room all night. Here I was thinking: Yah he's sleeping through the night. *face palm* I'm usually more on top of it then that but I guess between upping my antidepressants and my want to not see the negatives... I totally missed it until hubby commented that upstairs smelled like cigarette smoke.
Yesterday he was smoking while I was upstairs so I smelled it. Of course he lied to me. I gave him several chances to tell me the truth and finally had to go find the 'ashtray' and take it out of his room and tell him to go outside. Once outside I brought it up and of course got the: I pay for my room... I didn't respond right away, waited a bit then said to him that I didn't want it to be that every time I bring up something that he is doing that he isn't supposed to be doing that I have to deal with his ODD. He asked what ODD was? Oppositional Defiant Disorder. He says: I'm not being defiant, ok maybe I am but that's because you won't listen. Listen to what? You want to do what you want regardless of the rules because you think you should be able to. Yes you pay for the room however that still doesn't give you the right to smoke in it. If he rented a whole apartment that was non-smoking than he still isn't allowed to smoke in it. The world has rules.
I let him know that moving forward there would be consequences to him not following this rule. Several hours later it's easy to know that he is STILL smoking in his room as he hasn't gone outside for a smoke. I let him know that I'm backing off on giving him attention until he can learn to follow this rule. This may sound harsh however if I let this boundary slip then every other rule or boundary will go out the window with it.
In last night's group there was discussion on the 'slippery slope' of addiction. Well there are slippery slopes with boundaries as well. My son loves to push them and whenever I don't try to keep them then he pushes them all. He will even tell me: Well this is a rule and you let me so I figure this rule doesn't apply either. Typical ODD behavior which is why boundary setting is so important. Regardless of all this I don't want my home full of cigarette smoke, certainly not upstairs when it contributes to my headaches and guess what? It's my home too.
So awesomely today I have totally triggered his ODD ;) by taking his cigarettes out of his room and putting them in the basement. Not an easy tightrope to walk. Enforcing the boundary without allowing this to turn into something ugly so keeping my tone neutral and not reacting to his attitude which as the moment seems to be staring me down...
I'm off to make a coffee and harass my daughter, if I can, as she hasn't been getting to work on time. All I can do is keep calling her phone...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I seem to still be struggling a bit with getting back into my grove and my social media with respect to mental illness. I upped my Venlafaxine on Saturday to what my family doctor wants me taking as I was noticing that my thoughts were going back to that negative loop where everything and anything that I'm not impressed with was auto-repeat in my head ;). It takes a couple of days for it to build up and by Wednesday the sedation kicked in and I ended up napping and going to bed early. So hopefully I can get back on track.
Hubby's family get together went well. Very well actually. I ended up reminding/telling my son that he had money as we were taking him to get cigarettes. I asked him to hold off on buying alcohol until after the family get together as I didn't want him being symptomatic while there. He agreed to wait. I know that he found it a bit tiresome but he said that he had a good time.
He didn't buy alcohol until later Monday afternoon. My bad... but I told him that the liquor store wasn't open on Sundays. I didn't think that it was. Hubby told me afterwards that it was open.
I'm guessing it was the alcohol that triggered it; he went a bit manic on Tuesday. Out of nowhere he was putting on jeans, grooming his beard and looking for his dress shoes. We had an interesting conversation about his teeth that day. Some delusional thinking in that he believed he was 'born' when he first started having memories around 3 or 4 and that he has grown new teeth 4 times. His ODD started to act up a little bit. When I didn't engage he said to me: Come on lets talk about this... Translation, come on lets argue ;). Sorry no. I told him that I thought he was being delusional, that I gave birth to him so I know when he was born, if he had teeth or not and that I wasn't going to continue this conversation. I walked away.
He went to his PACT group the following Wednesday which was golf. He participated and had fun. His new nurse from PACT has taken him out of the house for the past two Mondays. I think he is also pushing at PACT that Michael be more involved with the outings so it doesn't look like I have to question if he is on the list for Wednesday's groups anymore. Now his rides are just showing up. I think Monday's outing to the YMCA is being looked at as well. Last Wednesday was supposed to be a trail hike but due to rain they ended up going to the mall instead.
Camping last weekend went well. He said that he had fun. It's hard to tell sometimes. He looks like he is not really paying much attention to where he is yet he must be. Hubby and I stayed up until around 10 and Michael stayed up after that watching the fire ;). His reason for wanting to go camping is the fire. The store at the campsite sells little packets that causes the flames to go different colors which is kinda cool. We got 2 of them this time. Roasted some marshmallows. Hubby and I froze our butts off that night. Not quit warm enough at night yet...
I have had 2 appointments with ADAPT now. I will be meeting with my counselor once a week until she can get through my history. Also because I'm now a client of ADAPT then I'm able to participate in another program they have called 'STOP' which is for quitting smoking. I meet with a gentleman for that Wednesday morning and he gave me a months supply of patches and some lozenges. Now I just have to set my quit date. Because of my own past history with addiction I'm a little bit of both. I'm there as a family member of an addict but I'm also a recovering addict so I should be able to attend some of the programs for that as well.
Every Friday (today) they have a get together for addiction clients where people can talk about addiction, mental illness and how to have a better life. My son keeps asking if he can come to group with hubby and I and of course the answer is no. I reminded him of a youth thing that happens on Wednesday nights however I can't go to that one so he says no. He seemed open to the idea of going to today's session so we will see depending on the weather as it's supposed to downpour. Also I think his motivation may be the food court at the mall where ADAPT is and I can't keep handing money out to these things. Every group he wants money for McDonald's...
Wednesday hubby noticed that Michael seemed a bit edgy or cranky. A week without alcohol and he was/is probably experiencing some withdrawal symptoms. Being aware of this I didn't say anything that would play into that scenario. You know the one that has the addict pushing for a fight or argument so that they have a reason to drink or use ;). I can't say that I want to go through this every time my son gets money. It may not seem like much, however it's a constant cycle of him feeding his addiction then going through withdrawal when he has to go without. Sadly it's him that is suffering with withdrawal...
Hubby and I had group again last night. It was a repeat of the same theme as the last one we attended which was concurrent disorders: addiction and mental illness. Hubby seems to be getting a lot out of these groups. It's helping him to see/hear from others, other then just me. The group last night was through the Schizophrenia Society of Ontario (SSO) and they meet once a month at that location. I was sort of aware however I will make a bigger effort in the future to attend these.
I did speak to the lady from SSO for a minute about advocacy and other things. These are the items that SSO is currently working on: Policy and Advocacy
Rules... It came to our attention on Wednesday night, I think, that my son has started smoking in his bedroom. I totally missed the red flag of my son being in his room all night. Here I was thinking: Yah he's sleeping through the night. *face palm* I'm usually more on top of it then that but I guess between upping my antidepressants and my want to not see the negatives... I totally missed it until hubby commented that upstairs smelled like cigarette smoke.
Yesterday he was smoking while I was upstairs so I smelled it. Of course he lied to me. I gave him several chances to tell me the truth and finally had to go find the 'ashtray' and take it out of his room and tell him to go outside. Once outside I brought it up and of course got the: I pay for my room... I didn't respond right away, waited a bit then said to him that I didn't want it to be that every time I bring up something that he is doing that he isn't supposed to be doing that I have to deal with his ODD. He asked what ODD was? Oppositional Defiant Disorder. He says: I'm not being defiant, ok maybe I am but that's because you won't listen. Listen to what? You want to do what you want regardless of the rules because you think you should be able to. Yes you pay for the room however that still doesn't give you the right to smoke in it. If he rented a whole apartment that was non-smoking than he still isn't allowed to smoke in it. The world has rules.
I let him know that moving forward there would be consequences to him not following this rule. Several hours later it's easy to know that he is STILL smoking in his room as he hasn't gone outside for a smoke. I let him know that I'm backing off on giving him attention until he can learn to follow this rule. This may sound harsh however if I let this boundary slip then every other rule or boundary will go out the window with it.
In last night's group there was discussion on the 'slippery slope' of addiction. Well there are slippery slopes with boundaries as well. My son loves to push them and whenever I don't try to keep them then he pushes them all. He will even tell me: Well this is a rule and you let me so I figure this rule doesn't apply either. Typical ODD behavior which is why boundary setting is so important. Regardless of all this I don't want my home full of cigarette smoke, certainly not upstairs when it contributes to my headaches and guess what? It's my home too.
So awesomely today I have totally triggered his ODD ;) by taking his cigarettes out of his room and putting them in the basement. Not an easy tightrope to walk. Enforcing the boundary without allowing this to turn into something ugly so keeping my tone neutral and not reacting to his attitude which as the moment seems to be staring me down...
I'm off to make a coffee and harass my daughter, if I can, as she hasn't been getting to work on time. All I can do is keep calling her phone...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Thursday, May 14, 2015
Bye bye Latuda
I was really hoping or had high hopes for the Latuda as I have heard of good results with it. However the small positives that I have seen are in no way outweighing the negatives. Honestly I'm not sure that the small positives I have seen are even as a result of the Latuda. The only positives I have been seeing is my son sometimes picking up after himself and making himself things to eat which most likely can be attributed to years of me trying to install this habit in him.
My hubby took my son out with him to clean the car on Saturday and they came back with these for Mother's Day:
My son came downstairs where I was doing laundry and gave them to me saying: I thought these would do you. Meaning he picked them out and thought I would like them. He was right!
As I mentioned on Friday he went to the liquor store. I don't think he drank everything on Friday although I can't say when he finished it. One day earlier in the week he threw out the empty bottles. This time he managed to hide them so that they weren't obvious.
After I cut the Latuda from 80 mg to 40 mg it was still several days before he actually took it and kept it down. He has been vomiting off and on. I wasn't sure if it was the Latuda causing this or not but I'm pretty sure that it is. Although part of it could also be how much he is smoking.
On Monday his new nurse visited. He seems nice... Sometimes my husband will comment that we need someone with more experience. I tend to agree ;) I don't know if it's that I'm so involved in researching medications or watching for signs, however I find that most of his treatment team just don't seem to get it. Maybe I think that I know more then I do. I know what I'm seeing and I know what my gut is telling me and I'm listening.
First I got the run down on cutting pills in half... Hmm... Ok way beyond that. I did my research first. I think I may have gotten chastised for cutting the dose as "How is the doctor going to know if the medication is working as prescribed?" The dose as prescribed was landing my son in an hallucinating state that could have had him suicidal if I hadn't intervened. So thanks for the input but my son is my priority not the doctor.
My son was looking at his nurse, not listening to him, and smiling to the point of almost laughing. His nurse was glad to see him happy... I found that a bit ludicrous, no pun intended. He's not 'happy', he's experiencing symptoms. My son continues to deny voices and hallucinations if asked outright if he is experiencing them. It's obvious that he is. Something I have difficulty pinpointing is the difference between intrusive thoughts and voices. Personally I think that are pretty close to each other with voices perhaps being one step above intrusive thoughts. Intrusive thoughts implies that they are intruding or not wanted however if one is welcoming them then one wouldn't consider them intrusive. Still they are not, for lack of a better description, our own thoughts. So I asked about the difference. His nurse explained to me the difference between thoughts and voices. I guess he missed the word 'intrusive'.
Monday and Tuesday he managed to keep down the 40 mg doses of Latuda. Yesterday (Wednesday) he vomited twice. Once all over the bathroom. That was fun to clean up ;). Since Friday he has started with hand movements, like he is flicking something. It has been progressively getting worse. Now he is doing it almost all the time about once every minute or less. If I hold the hand that is doing it, he starts with the other hand. He says that it isn't bothering him however it IS bothering me because I know it shouldn't be happening. The last 2-3 days he has become very needy in wanting me to cuddle with him. Wanting to sit almost on me on the sofa. Wanting me to file his nails and rub and scratch his back. I'm doing my best to accommodate this change and spend more time with him. Last night he wanted to sleep in my bed. Sadly this is something I'm not comfortable with however I did hold him for awhile in his bed.
Yesterday morning I talked to his case worker. She has been with us since, I think, July of last year. Possibly before that. One thing that I truly appreciate about her is that she listens to me. She doesn't cut me off mid-sentence when I'm telling her about what I'm seeing (his new nurse does as have others). In fact she has commented what a good thing it is that my son has me. She doesn't question the decisions that I make when it comes to medications. Like I said, she listens. So she knows that I make the decisions that I do with some knowledge of what I'm doing. At least that is how I'm reading it ;). I feel reasonably confident that what I tell her gets relayed to the psychiatrist with the appropriate emphasis on the concerning things that I see. With all the others... not so much. Even if she doesn't agree with what I'm doing she doesn't chastise me for it, instead brings it to the attention of his psychiatrist.
Yesterday his case worker and I agreed that my son is regressing. That what I'm seeing is not right for my son. I could tell that his hallucinating is getting worse again. He is lost. Goes the cupboard and doesn't seem to know what he is there for. I could tell by how he is walking that he is mentally lost. Some of his behavior has been almost child-like. After he vomited yesterday evening I told my hubby that Dr. Barb is saying no more Latuda. ;) I've tried to give it a chance however enough is enough.
This morning I called PACT and left a voice message as I know they are having their team meeting today with the psychiatrist and I wanted them to be aware of what I was doing. Last night I gave my son 10 mg of Olanzapine. He seems quite willing to go back on it. Yup, conundrum that he is! He was put on the Latuda because he decided to come off the Olanzapine. *sigh* I gave it to him around 8:30 last night. Put him to bed shortly after, spending time with him cuddling. Found out that there was a war going on his head... When I checked on him around 10, he was sleeping and snoring! As if that was a sound I ever thought I would be happy to hear and I was! I don't think he has had a sound sleep for over two weeks now.
I haven't been in the backyard for the past couple of days as it's been a bit chilly. I went out there this morning as when I looked out there I saw a pile of cigarette butts on the patio table. There is an ashtray on the other side of the table. I guess it was too far away and my son has been butting out his cigarettes on the table. There was butts everywhere. Some of them I could tell hadn't even been put out but went out on there own. It's a good thing there is no smoking in most of the house or there is a distinct possibility we could have been dealing with a house fire. I cleaned them up.
His nurse called me back after receiving my message this morning. I sat there silently fuming as he chastised me for making medication decisions without the psychiatrists ok. Finally I got blunt with him and told him that I'm going to do what I think is best for my son. I know what he has been prescribed and why. Keeping him on medications that are not working and making him worse, regardless of the doctor's orders is not going to happen. He kept cutting me off when I tried to explain what I have been seeing. Basically we ended the call with me saying that my son's psychiatrist should have enough understanding of me by now to know that I'm going to do what I think is best. If history is any indication he has yet to go against any of my decisions and I seriously doubt that he will this time either. The goal is to keep my son out of the hospital not put him there.
I think I need to do some research on medications. I think we need one that only affects dopamine and not serotonin as well, as most of them do. For me the only question right now is what dose of Olanzapine. Previously he was taking 20 mg a day which is supposed to be maximum dose and I would rather not go back to that if we don't have to.
Today he seems a bit better. The hand thing is still going strong. I'm guessing that will take time to go away however if I don't see an improvement in it within the next day or so I will be addressing it further.
We had our follow up appointment with ADAPT on Monday. It's at the mall which is like a 10 minute walk. My son will not be continuing with them. Voluntary and all that crap and he doesn't think that drinking 400 ml of 40% alcohol is a problem. So there you have it. I'm going to continue with them. I need the support and help learning to better cope with being the parent of an addict with mental illness. I have already booked an appointment for next month and registered with some sessions on the 25th and 26th. They also offer support and funding for quitting smoking so I'm going to get hubby and I registered so that hopefully they can provide us with free patches!
I did start the process of registering with a company for work from home opportunities. Been meaning to finish that for the past couple of days.
I wrote a piece for a book that I'm going to be participating in. It's currently pinned to the top of my Facebook page if any of my readers who are parents or caregivers are interested in telling their story and helping to support the non-profit that is putting it together. You can find my Facebook link on the side of this blog or by clicking above.
May 17-23 is Schizophrenia Awareness Week. I had grand intentions of creating a whole lot of literature and informational pieces to highlight on my Facebook page and the event that I created. I still have today and tomorrow...
PS: He has been continuing to take his Invega!
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
My hubby took my son out with him to clean the car on Saturday and they came back with these for Mother's Day:
My son came downstairs where I was doing laundry and gave them to me saying: I thought these would do you. Meaning he picked them out and thought I would like them. He was right!
As I mentioned on Friday he went to the liquor store. I don't think he drank everything on Friday although I can't say when he finished it. One day earlier in the week he threw out the empty bottles. This time he managed to hide them so that they weren't obvious.
After I cut the Latuda from 80 mg to 40 mg it was still several days before he actually took it and kept it down. He has been vomiting off and on. I wasn't sure if it was the Latuda causing this or not but I'm pretty sure that it is. Although part of it could also be how much he is smoking.
On Monday his new nurse visited. He seems nice... Sometimes my husband will comment that we need someone with more experience. I tend to agree ;) I don't know if it's that I'm so involved in researching medications or watching for signs, however I find that most of his treatment team just don't seem to get it. Maybe I think that I know more then I do. I know what I'm seeing and I know what my gut is telling me and I'm listening.
First I got the run down on cutting pills in half... Hmm... Ok way beyond that. I did my research first. I think I may have gotten chastised for cutting the dose as "How is the doctor going to know if the medication is working as prescribed?" The dose as prescribed was landing my son in an hallucinating state that could have had him suicidal if I hadn't intervened. So thanks for the input but my son is my priority not the doctor.
My son was looking at his nurse, not listening to him, and smiling to the point of almost laughing. His nurse was glad to see him happy... I found that a bit ludicrous, no pun intended. He's not 'happy', he's experiencing symptoms. My son continues to deny voices and hallucinations if asked outright if he is experiencing them. It's obvious that he is. Something I have difficulty pinpointing is the difference between intrusive thoughts and voices. Personally I think that are pretty close to each other with voices perhaps being one step above intrusive thoughts. Intrusive thoughts implies that they are intruding or not wanted however if one is welcoming them then one wouldn't consider them intrusive. Still they are not, for lack of a better description, our own thoughts. So I asked about the difference. His nurse explained to me the difference between thoughts and voices. I guess he missed the word 'intrusive'.
Monday and Tuesday he managed to keep down the 40 mg doses of Latuda. Yesterday (Wednesday) he vomited twice. Once all over the bathroom. That was fun to clean up ;). Since Friday he has started with hand movements, like he is flicking something. It has been progressively getting worse. Now he is doing it almost all the time about once every minute or less. If I hold the hand that is doing it, he starts with the other hand. He says that it isn't bothering him however it IS bothering me because I know it shouldn't be happening. The last 2-3 days he has become very needy in wanting me to cuddle with him. Wanting to sit almost on me on the sofa. Wanting me to file his nails and rub and scratch his back. I'm doing my best to accommodate this change and spend more time with him. Last night he wanted to sleep in my bed. Sadly this is something I'm not comfortable with however I did hold him for awhile in his bed.
Yesterday morning I talked to his case worker. She has been with us since, I think, July of last year. Possibly before that. One thing that I truly appreciate about her is that she listens to me. She doesn't cut me off mid-sentence when I'm telling her about what I'm seeing (his new nurse does as have others). In fact she has commented what a good thing it is that my son has me. She doesn't question the decisions that I make when it comes to medications. Like I said, she listens. So she knows that I make the decisions that I do with some knowledge of what I'm doing. At least that is how I'm reading it ;). I feel reasonably confident that what I tell her gets relayed to the psychiatrist with the appropriate emphasis on the concerning things that I see. With all the others... not so much. Even if she doesn't agree with what I'm doing she doesn't chastise me for it, instead brings it to the attention of his psychiatrist.
Yesterday his case worker and I agreed that my son is regressing. That what I'm seeing is not right for my son. I could tell that his hallucinating is getting worse again. He is lost. Goes the cupboard and doesn't seem to know what he is there for. I could tell by how he is walking that he is mentally lost. Some of his behavior has been almost child-like. After he vomited yesterday evening I told my hubby that Dr. Barb is saying no more Latuda. ;) I've tried to give it a chance however enough is enough.
This morning I called PACT and left a voice message as I know they are having their team meeting today with the psychiatrist and I wanted them to be aware of what I was doing. Last night I gave my son 10 mg of Olanzapine. He seems quite willing to go back on it. Yup, conundrum that he is! He was put on the Latuda because he decided to come off the Olanzapine. *sigh* I gave it to him around 8:30 last night. Put him to bed shortly after, spending time with him cuddling. Found out that there was a war going on his head... When I checked on him around 10, he was sleeping and snoring! As if that was a sound I ever thought I would be happy to hear and I was! I don't think he has had a sound sleep for over two weeks now.
I haven't been in the backyard for the past couple of days as it's been a bit chilly. I went out there this morning as when I looked out there I saw a pile of cigarette butts on the patio table. There is an ashtray on the other side of the table. I guess it was too far away and my son has been butting out his cigarettes on the table. There was butts everywhere. Some of them I could tell hadn't even been put out but went out on there own. It's a good thing there is no smoking in most of the house or there is a distinct possibility we could have been dealing with a house fire. I cleaned them up.
His nurse called me back after receiving my message this morning. I sat there silently fuming as he chastised me for making medication decisions without the psychiatrists ok. Finally I got blunt with him and told him that I'm going to do what I think is best for my son. I know what he has been prescribed and why. Keeping him on medications that are not working and making him worse, regardless of the doctor's orders is not going to happen. He kept cutting me off when I tried to explain what I have been seeing. Basically we ended the call with me saying that my son's psychiatrist should have enough understanding of me by now to know that I'm going to do what I think is best. If history is any indication he has yet to go against any of my decisions and I seriously doubt that he will this time either. The goal is to keep my son out of the hospital not put him there.
I think I need to do some research on medications. I think we need one that only affects dopamine and not serotonin as well, as most of them do. For me the only question right now is what dose of Olanzapine. Previously he was taking 20 mg a day which is supposed to be maximum dose and I would rather not go back to that if we don't have to.
Today he seems a bit better. The hand thing is still going strong. I'm guessing that will take time to go away however if I don't see an improvement in it within the next day or so I will be addressing it further.
We had our follow up appointment with ADAPT on Monday. It's at the mall which is like a 10 minute walk. My son will not be continuing with them. Voluntary and all that crap and he doesn't think that drinking 400 ml of 40% alcohol is a problem. So there you have it. I'm going to continue with them. I need the support and help learning to better cope with being the parent of an addict with mental illness. I have already booked an appointment for next month and registered with some sessions on the 25th and 26th. They also offer support and funding for quitting smoking so I'm going to get hubby and I registered so that hopefully they can provide us with free patches!
I did start the process of registering with a company for work from home opportunities. Been meaning to finish that for the past couple of days.
I wrote a piece for a book that I'm going to be participating in. It's currently pinned to the top of my Facebook page if any of my readers who are parents or caregivers are interested in telling their story and helping to support the non-profit that is putting it together. You can find my Facebook link on the side of this blog or by clicking above.
May 17-23 is Schizophrenia Awareness Week. I had grand intentions of creating a whole lot of literature and informational pieces to highlight on my Facebook page and the event that I created. I still have today and tomorrow...
PS: He has been continuing to take his Invega!
Mom
BarbieBF
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