Friday, August 29, 2014

Things went South... or North?

I swear this disease or disorder, whatever you want to call it, has a way of flipping things so that you don't know if up is down or left is right or North is South. Confusing right? Sorry I'm being my usual whimsical self.

After my blog post yesterday I happily went in and turned on the shower, thinking I can do this. Boy was I wrong. I ended up interrupting my son's 'private time' if you get my meaning and made him mad. So even though I backed off and walked away it was already too late. His anger took over and in the length of time it took me to walk down the hall, he started punching the wall and I could hear the rage taking over, he was just getting warmed up. Without even thinking I instinctively picked up the phone and called 911. I can't say I'm particularly proud of myself for doing this but I have been here before with my son and it quickly escalates into him threatening me with physical harm. Because I'm mom he thinks that it is ok. The last time my husband was home. This time I was alone and afraid of my son. Not a nice feeling. The 911 operator stayed on the phone with my son until officers arrived which is a good thing because he was telling her how angry he was and that he didn't think he could control it. She got to listen to a tirade of accusations against me. That I was stealing his disability check, controlling my husband to the point that he is afraid to stand up to me and should leave me, that I'm always yelling and that I punch things too... You would have to know me but I have never punched anything, period. I hate violence. He also accused me of discrimination because I told 911 that he has schizophrenia. It was so they would send mental health workers.

They arrived. Not that they were much help. I swear they should really have to learn the systems that they talk about before they talk about them. One of my son's biggest concerns through all this was his money that I was stealing. No matter how many times I explain it to him or even show him his disability stubs he just can't get his mind around it. No one else seems to get it either. So here is his stub for August.


He doesn't pay rent. He is board and lodging which means I cover all of his living expenses. The stub clearly shows that the check dated Aug 29 is for the period Aug 1-31 NOT for September. I have no idea why disability pays board and lodgings this way but they do. As for how much is supposed to come to me for board and lodgings. This is directly from the disability website: http://www.communitylivingontario.ca/

In situations where the individual’s shelter needs and basic needs are met by the same person or persons (for example, where they live with family members or someone else who provides both room and board) the ODSP income support is currently set at a combined amount of $706 per month for a single person.

Personal Needs Allowance (sometimes referred to as a “comfort allowance”) of $119 per month.

I'm not stealing his money because it's not his money. Somehow he gets $126 instead of $119. Perhaps a travel allowance for medical purposes.

I ended up having to give my son back his disability check even though he had already signed it and given it to me and I had already emailed him a transfer of $132. I must say the police officer was extremely helpful in agreeing with my son that that his check was for September (even though I showed him the stub!) and that if he hadn't accepted the email transfer then technically I hadn't given him his money. He was also very helpful in pointing out that even though my son's check was dated for the next day that he could deposit it in a bank machine. Then stated that he didn't want to get in the middle of it... Sorry to late, thanx for the help! So off my son goes with an $832 check! A check according to him last night I have! To bad for me I guess that I was going to put this towards rent...

Of course he downplayed not eating and sleeping. Said that he had taken his medications when he hadn't. He really does have a gift. Maybe he should be in sales? :) They left stating there was nothing that they could do. My son was happy of course because he had gotten what he wanted. His check and support from the officers that I was in the wrong. Part of me really wants to send a letter to the Police letting them know they really should have a clue before they say things that feed into someone's delusions. He came back from his walk that the officer's advised him to do to cool off, quit relaxed. Went to his room, all laid back, smoking, without a care in the world.

I waited until my husband got home from work then started calling shelters. Some numbers that PACT had given me to call. Guess what? Some of them won't tell me if they even have a bed available because it has to be son making the call. The one's that would tell me had no beds. Call back at 9:30 when we do our bed checks. So as usual I found my own resources. Found a shelter that of course wouldn't disclose to me if they have a bed so I put my son on the phone. It's one I had looked up before and deals with youth ages 16-21. They provide meals, school, employment and addiction counselling. Have a public health nurse and support staff. My son got off the phone and said he needed a ride. Waiting for him to get ready was fun as he took forever. At one point I went in to see what he was doing. Looking through his lighters and knickknacks deciding which ones to take. Finally he was ready then asked for his pocket knife back. I don't think I had it in me to argue this with him so went and got the case I had put all of his knives in, gave it to him and asked him to keep them all in there for now. Off we went to the shelter, with the windows rolled down! Found the place and dropped him off. Watched him go in. I managed to breathe through it but man was it hard.

Hubby and I went to get something to eat. I missed a call from the shelter so called them back. It was my son wanting me to come pick up his knives as he can't have them there. I had thought about telling him that this might be a problem when he asked for them but it's not like he would have believed me anyways. He needs to learn for himself that the world has expectations, rules and boundaries. So we drove the 20 minutes back to the shelter to find my son sitting outside waiting. He wanted me to take him to a thrift store so that he could sell his knives! He thinks he can get $300 for knives that all together cost less then $150. I said no, told him to give me the knives and I would put them away where they would be safe, that I didn't drive all the way back there for this. He handed them over and we left, again. I'm still not sure how I managed to not fall apart through all this but I did.

Once we got home I waited as long as I could then called the shelter to see if they would tell me if he was even there or not. Privacy laws you know. Picturing him wondering around a city he didn't know was killing me. I'm still surprised at this but they were going to call me because my son had actually signed a release giving them permission to talk to me! I think I'm still picking my jaw up off the floor! At first he was resistant but then he ate, calmed down and agreed. He ate! I don't even know if I can explain the relief that this phone call gave me. We went over his medications that he had taken with him. Of course he didn't take his Invega. At first there was some concern as his Trazodone bottle was empty and I knew that there should be about 21 of them. I found them dumped out on his dresser. I have no idea what he was thinking when he did this. He told them that he has anxiety, ADHD, OCD and schizophrenia so as is normal for my son, I gave them a heads up that he has a tendency to seek benzos for his anxiety. I was assured that they keep all medications locked up and controlled. So I filled them in on what has been happening for the past couple of weeks. They could tell that something was up but how delayed he was in talking to them. Since he is in a shelter for the first time there are services available to him that they will help him with. I gave them all of his treatment teams information and numbers. I let them know that he has his disability check on him. This is when I found out that according to him I have it. So I explained what happened.

So as hard as all this is I think that South may be North or down may be up. Meaning that he may be able to get the help that he needs where he is now. That what seems like a bad situation may in fact be the best thing for him. He can't blame mom for being controlling when where he is will put even more restrictions on him then I did. They won't let him stay up all night and sleep all day. He won't have control over his medications like he did here. There will be no punching walls just because someone made him mad and he certainly won't have as much privacy there as he did here. Him masturbating won't be a priority for them and it shouldn't be. He will have to learn some self-control. And if things start to go South again then they can get him the help that he needs as they are a part of the system instead of me fighting the system.

My son really does amaze me at times. I tried to check his computer this morning as he tends to write out his thoughts and beliefs in documents on his computer. Yes I want to know what's going on his head. He made sure before he left to disconnect everything from the laptop and log himself out. Of course I don't know the password ;) He is obviously thinking good enough to do this and far from psychotic enough to not do it.

So even though my heart is broken, shredded really, I do believe that I am making the right decision. It certainly helps that so far I have received nothing but support from his treatment team and assurances that as hard as it is I'm making the right decisions. This reality check has been a long time overdue.

Mom
BarbieBF

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