My son has been off his Invega for a week now and has had about 15 hours of sleep in the past 50 hours. Hasn't eaten a proper meal since probably Wednesday or Thursday of last week. Saturday we spent 6 hours in emergency. He was sent home with a prescription for Seroquel/Quetiapine. After waiting the 6 hours in emergency for my son I got informed by the treating psychiatrist that my son didn't want them talking to me. I said that is fine but I know you can listen. Filled in some details and stated he is looking for benzos. I belief he was trying to get Ativan/Lorazepam. His reason for coming off the Invega. It makes him too alert during the day, like he needs to get up and do something like go to the gym and he doesn't want to feel like that while he is living here. So the Invega was working and doing what it is supposed to do, in my opinion. He took the Seroquel twice, got some much needed sleep, and is now saying he doesn't need it that it is a PRN. He even refuses to acknowledge that it is an anti-psychotic. Or me telling him that it is, is what is making him not take it as on Saturday he stated that he really liked how it was making him feel.
I love my son but I think I need to get out of the picture a little bit, or a lot. As long as he can continue to blame me for everything then he will never be able to see that it's schizophrenia that is causing him to feel and act like this. I did tell the nurse at the hospital that if things got any easier for him at home that I would be wiping his butt for him. And it's still not good enough for him. He wants me to be nicer. I don't even know what that means anymore. Not tell him that he needs anti-psychotics? Not expect him to clean up after himself? Not point out that things that he is saying just don't make sense? I can't see him not having another break if things keep going the way that they are. He does need his anti-psychotics and he does need more structure. Structure that I obviously can't provide as he won't accept it coming from me. His ODD is in full gear. According to him he is an adult and his treatment is none of my business.
He was up all night again last night. When I got up at 4 he stated that he had insomnia and couldn't sleep even though he had taken his pills. I checked and he hadn't taken them, they were still in his dish. All that was in there was his Lithium and Clozapine. No Invega or Seroquel. He took them but then I heard him in the bathroom coughing/gagging so I'm hoping he didn't spit them back up. I insisted that he go to his room even if he wasn't going to go to sleep. He had the living room to himself from 9 last night to 4 this morning. Now it was my turn. When I suggested he take a Trazodone for sleep he stated that that medication makes him want to cry. This is the first that I have heard this and to my knowledge it never did this. I think he is very confused.
I called his case worker this morning and she came by around 10 PM. She had some information on the shelters in the area as when I called her I told her that he needs to go. I had told him on Saturday that he can't stay here if he is not going to take his medications as prescribed or with the attitude that I not be a part of his treatment. The meeting didn't go to good. He was having a lot of trouble following what she was saying. He basically asked her to leave stating the he was too tired to talk to anyone.
So here I am at 12:44 PM and I don't know how to proceed. I don't know how to help him accept what he needs to accept. Me being his mother is getting in the way of him accepting responsibility for his own life and choices. He is relying on me as mom in every way that a child would yet insisting that he's an adult. I know that it is his schizophrenia and ODD that is causing this however I can't see this changing unless his current circumstances change. Without me as a scapegoat perhaps he will be able to look at things differently. Or not. However I think it's time to find out just how sick or capable he really is. More importantly he needs to find this out for himself. Between PACT and Ready4Life he has so much support available to him.
Hopefully I will hear back from his case worker today. I know that the two shelters she called were full this morning. The shelters are not like drop in community centers or soup kitchens. They are staffed with onsite personnel that oversee his medications, have structured meal times and people available to him for support including mental health.
Mom
BarbieBF
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