Conundrum, riddle or puzzle... Yes that is my son at the moment.
He didn't sleep much the night before last so I wasn't sure if he was going to be able to get up when his psychiatrist showed up yesterday morning. We spoke for a bit before I got my son up. I gave him a quick overview, advised him how to get a more accurate response regarding voices/entities and discussed my concerns about upping the Invega and what our options were.
Then I got my son up. He seemed to respond better with the psychiatrist then with the new nurse and was more alert. My son has known this psychiatrist for awhile now and seems to like him so that probably helped. As I advised his psychiatrist asked him about the entities (rather then do you have voices?) and my son's response was more honest and he replied that yes they are there and that he has voices.
It was agreed that we would try adding Latuda instead of upping his Invega because upping his Invega could have the opposite affect to what we are looking for and it could actually drag him down. We didn't mention losing his libido but I'm guessing the psychiatrist was also taking this into account and that's what he meant my dragging him down. I told the psychiatrist that my son seems to do best on lower doses of two medications and since this is what we are going to try then we seem to be on the same page. We discussed weight gain and I let him know that the only time I have seen this due to medications is on 450 mg of Clozapine. Other then that my son's weight doesn't fluctuate that much. For me this is another reason to keep him on lower doses, if possible, as weight gain could become a reason to be non-compliant and we don't need to give him reasons for that. ;)
The only question my son seemed to have is if the Latuda would help with stress. Yes it will. Some information on Latuda here: Lurasidone/Latuda. I know that I have heard of good results with it and that it can also act like an antidepressant while it is still an antipsychotic which is a good match for my son. I have never seen antidepressants help him. As with his Invega it is an atypical or next generation medication and is what they call cleaner so has less side affects. I'm very hopeful of this combination as being on two medications that are considered cleaner and keeping to lower doses should work out well.
I was expecting that my son would go back to bed after the psychiatrist left. He didn't and in fact seemed to have an ok day. The voices are there but they didn't seem as bad. Yesterday was my hubby's birthday so I thought I would 'try' to bake him a chocolate cake which of course I didn't have. I asked my son to walk to the corner store with me. He asked if he could get two things. It ended up being five things... They didn't have a chocolate cake mix.
When we got back he went up to his room with his treats and got on his computer! Happily listening to the sounds of his computer gaming, I looked through my cupboards and came up with the idea of a vanilla, strawberry and whipped cream cake to make for my hubby along with some double chocolate chip cookies. The cake was a hit! Surprisingly since my baking skills are not so great and as is usual for me I wasn't following a recipe.
While I was in the kitchen I noticed that my son was snacking on things like he usually does when stable. And he was cleaning up after himself! I know! I didn't say anything. Randomly talked to him, joined him outside for cigarettes and gave him a cookie when they were done. Once when he walked by me I commented that he really needed a shower or at least a change of cloths and off he went and put on clean cloths! Minus socks ;)
Hubby came home and was pleasantly happy about dinner. He was really hungry and expecting that it would be something like fish and rice as he knows this type of diet can help my son. However it was his birthday dinner so it was steak, corn on the cob and baked potatoes. My son really enjoys steak and corn on the cob as well so he ate good too. Win win!
After dinner I asked my son if he wanted tea. First he said no then he said yes. I made us all tea, put out all of our vitamins as I usually do and put on our TV shows. Reminded my son that the vitamins were there once then left them alone. A little while later I went to pick them up and put them away and just commented: I guess you don't want these? First he said no then said wait I will take these (picked up the multivitamins), I will take this too (picked up the B50), I guess I will take the fish ones too... So he took them all! It was after 8 so I went and got his Invega which he took then and there.
We all went out for a cigarette and when we came back in I asked him if he felt like taking his Melatonin tonight. He said sure... So I got him two and put them in his room. He was on his computer when hubby and I went to bed. He was eating a candy... I know that may sound like something small however after a week of seeing him in such a negative symptom swing it was a welcome sight and I went up to him and hugged him tight, telling him I loved him. Stumbled over my words as I said something like: It's good to see looking better... or acting better.. or... I paused and finished with: It's good to have you back. He just smiled at me, hugged me back and told me he loved me too.
I think it was around 11:30 that I woke up and checked on him. He was in bed but awake. I asked him if he had taken his Melatonin and he had forgotten so he took them! As far as I know he slept through the night until 9:30 this morning.
PACT called around 9 to see if he wanted to go on there outing today which is I think a trail walk. I woke him up to ask him and he said no. Thirty minutes later when he got up, I brought it up again asking if he was sure. He said he woke up in a bad mood so no. I said ok but it's a trail walk so in nature which you like. He replied with yah I might like that. Call them back and tell them I want to go. I called and left a message stating that if they still had a spot left that he wanted to go so hopefully they will call back. It's supposed to be a pretty nice day out.
So ya... I'm slightly bemused at the change since we haven't added the Latuda yet. He's adjusting to no Olanzapine? I have no idea. I'm just glad to see him functioning a bit better. I know that some would recommend interacting with him more, to pull him out of his head when he isn't doing well but I tend to give him his space to a certain degree. When the voices are bad then I'm just another voice talking to him and I think that can stress him even further. I know I wouldn't appreciate it if I had a room full of people talking at me and someone else decided to chime in ;) I know that doing even minor physical or 'real life' things takes a lot of energy and I don't need to be an extra stimulant for him if I can help it. Just like yesterday... When he is ready and able then I'm there.
I should get going. He asked again about camping last night so I should look into booking something in the relatively near future. I also need to follow up again with disability as the pharmacy supplying his medications still hasn't received his drug cards for March and April.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Wednesday, April 29, 2015
Monday, April 27, 2015
Jinxed! A new nurse.
Logically I know that my last blog post highlighting the good didn't actually jinx things. Still it feels like schizophrenia is somewhere saying: na-na, na-na, boo-boo... I'm better then you. I got your son... (again)
By Tuesday morning the negative symptoms were obvious. His case worker dropped by with something for my son to sign so she could help straighten out the disability thing. She commented on how 'flat' he was. One word answers. No expression.
I guess it took a week for the Olanzapine to come completely out of his system.
For a couple of days I was managing to get some vitamins in him although it was hit or miss on which ones. One day he took his multi-vitamins. The next day the B50. Another day the omega-3 because he thinks the multi-vitamin is giving him energy. Now he is not taking any of them.
He has been eating dinners as I have been trying to make things that I know he likes and is healthy to keep him eating. He is not eating outside of that.
His sleeping is all over the place, when he does sleep. He won't take his Melatonin for some reason. This kind-of sucks because the Melatonin we take has 5-HTP and L-Theanin which can help him.
Friday I actually left him home alone for the most of the day. After being up all night and the previous two days he had finally gone to sleep. It was a busy day for hubby and I. Hubby had two doctors appointments and each of them were over an hour. We had car parts to get. Also Friday was the last day of my hubby's interlock condition on his license! If you don't know what this is then it's a device that is put in your car to make sure there is no drinking and driving. He is finally free of it! So we had to go to the license place and we had to go have the device removed from the car which was another hour long appointment. I must say that although a long and tiring day, it was good to be out of the house doing 'normal' stuff. My son's case worker stopped by to check on him since I wasn't home.
Hubby walked away from the doctor's appointments with a ton of medications ;) He has been coughing up some green/black stuff and green is usually a sign of infection so he got antibiotics for that. He also got something for his back. While I'm all for chiropractor first... He was still not getting much relief and these seem to be helping his back to relax. Which should help his next adjustment go even better.
My son was up when we returned, playing online. This was the last time he played online that I'm aware of. I was worried that he might not be ok if he woke up and I wasn't here but he seemed ok. Said he didn't call because his phone was dead but that he was charging it. He did answer the door to his case worker.
Saturday we took him with us to help out my hubby's son with an errand.
Yesterday he decided not to go grocery shopping with us. This doesn't happen very often. He really likes to go but I'm guessing even doing that is becoming too much for him at this point. Yesterday was also his Dad's birthday. I brought it up once but I didn't bring it up again because I know he can't process it right now.
Tuesday his case worker told me that he has a new nurse coming on board. His case worker has been seeing him almost every week however I do believe this is supposed to be a nurse making the weekly house calls. His from awhile ago is on maternity leave. So his new nurse dropped by today. He seemed nice and my son seemed to be ok with him.
I actually took myself to the basement for a cigarette while he was here to give them a chance to talk as I know I have a tendency to interrupt... I think I did pretty good and only interrupted a couple of times ;) It was easy to tell that participating in the conversation was a struggle for my son. I'm surprised he managed to ignore the voices as well as he did. His nurse commented that his answers where pretty short and one worded... Yes that's all he is capable of right now. Actually this was the most he has spoken in days. It can take several times asking just to get an answer on what type of tea he wants after dinner. Not that he drinks it but I keep hoping that he will and take the supplements I keep putting out.
I walked out with the nurse and filled in some of the blanks and corrected some things. Like I told him, I don't know if it's my son being delusional or if he just knows what to say. He doesn't give accurate information on questions about sleeping, eating or activities. He told his nurse that he went to bed at 11 last night. I think this is because he has been told that it's a good bed time. He went to bed at 2 when I got up and had him go. He was wide awake at 5 when I got up. He didn't sleep. Same with eating. He says he has been eating good. Dinner only for most of the week now. He says he has been playing his games. He hasn't since Friday. He says that he has no voices. I told his nurse we call them entities. They started becoming obvious last Monday.
His smoking is up and down. His fingers are brown, I noticed last night. He may go awhile without but then will smoke sometimes three in a row. That seems to be lessening today. So while smoking a lot is not a good sign, smoking less is an even worse sign. When he is smoking a lot he is stressed. When he isn't smoking much than he has gone further into his head. He has actually been smoking the cigarettes that he didn't want (we couldn't return them, we tried) and not even complaining about them which isn't like him.
After several days of me nicely hinting, my hubby actually managed to suggest and get him into a bath on Thursday. I think he has been in the same clothes ever since. Will have to try and get him in clean clothes today after he wakes up. I'm pretty sure he is sleeping now. He had a short snooze yesterday but other then that has been awake since possibly Friday around noon. It's hard to tell sometimes. He will go to bed when I prompt him but that doesn't mean he is sleeping.
His nurse set up an appointment with his psychiatrist for tomorrow morning. That's an appointment that has been long overdue. We certainly need to do discuss his medications and how to proceed. I know I have been hesitant about upping his Invega due to possible lose of his libido however that doesn't seem to be happening right now anyways and honestly it's not something we need happening right now as when he is like this he can have no sense of keeping it private.
ADAPT called me this morning. She apologized for taking so long to get back to me. I let her know that my son seems to relapses so we set up a tentative follow up appointment in two weeks. She also gave me some information on the next family event that deals with concurrent disorders, mental illness and addiction, and who to contact to register. I have actually met the lady that I am to contact. We meet through the early intervention program my son was in before PACT. I have also talked to her at an event I attended through the Schizophrenia Society of Ontario.
I'm off. Gucci is demanding some petting time and the homemade beef jerky I made is calling my name...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
By Tuesday morning the negative symptoms were obvious. His case worker dropped by with something for my son to sign so she could help straighten out the disability thing. She commented on how 'flat' he was. One word answers. No expression.
I guess it took a week for the Olanzapine to come completely out of his system.
For a couple of days I was managing to get some vitamins in him although it was hit or miss on which ones. One day he took his multi-vitamins. The next day the B50. Another day the omega-3 because he thinks the multi-vitamin is giving him energy. Now he is not taking any of them.
He has been eating dinners as I have been trying to make things that I know he likes and is healthy to keep him eating. He is not eating outside of that.
His sleeping is all over the place, when he does sleep. He won't take his Melatonin for some reason. This kind-of sucks because the Melatonin we take has 5-HTP and L-Theanin which can help him.
Friday I actually left him home alone for the most of the day. After being up all night and the previous two days he had finally gone to sleep. It was a busy day for hubby and I. Hubby had two doctors appointments and each of them were over an hour. We had car parts to get. Also Friday was the last day of my hubby's interlock condition on his license! If you don't know what this is then it's a device that is put in your car to make sure there is no drinking and driving. He is finally free of it! So we had to go to the license place and we had to go have the device removed from the car which was another hour long appointment. I must say that although a long and tiring day, it was good to be out of the house doing 'normal' stuff. My son's case worker stopped by to check on him since I wasn't home.
Hubby walked away from the doctor's appointments with a ton of medications ;) He has been coughing up some green/black stuff and green is usually a sign of infection so he got antibiotics for that. He also got something for his back. While I'm all for chiropractor first... He was still not getting much relief and these seem to be helping his back to relax. Which should help his next adjustment go even better.
My son was up when we returned, playing online. This was the last time he played online that I'm aware of. I was worried that he might not be ok if he woke up and I wasn't here but he seemed ok. Said he didn't call because his phone was dead but that he was charging it. He did answer the door to his case worker.
Saturday we took him with us to help out my hubby's son with an errand.
Yesterday he decided not to go grocery shopping with us. This doesn't happen very often. He really likes to go but I'm guessing even doing that is becoming too much for him at this point. Yesterday was also his Dad's birthday. I brought it up once but I didn't bring it up again because I know he can't process it right now.
Tuesday his case worker told me that he has a new nurse coming on board. His case worker has been seeing him almost every week however I do believe this is supposed to be a nurse making the weekly house calls. His from awhile ago is on maternity leave. So his new nurse dropped by today. He seemed nice and my son seemed to be ok with him.
I actually took myself to the basement for a cigarette while he was here to give them a chance to talk as I know I have a tendency to interrupt... I think I did pretty good and only interrupted a couple of times ;) It was easy to tell that participating in the conversation was a struggle for my son. I'm surprised he managed to ignore the voices as well as he did. His nurse commented that his answers where pretty short and one worded... Yes that's all he is capable of right now. Actually this was the most he has spoken in days. It can take several times asking just to get an answer on what type of tea he wants after dinner. Not that he drinks it but I keep hoping that he will and take the supplements I keep putting out.
I walked out with the nurse and filled in some of the blanks and corrected some things. Like I told him, I don't know if it's my son being delusional or if he just knows what to say. He doesn't give accurate information on questions about sleeping, eating or activities. He told his nurse that he went to bed at 11 last night. I think this is because he has been told that it's a good bed time. He went to bed at 2 when I got up and had him go. He was wide awake at 5 when I got up. He didn't sleep. Same with eating. He says he has been eating good. Dinner only for most of the week now. He says he has been playing his games. He hasn't since Friday. He says that he has no voices. I told his nurse we call them entities. They started becoming obvious last Monday.
His smoking is up and down. His fingers are brown, I noticed last night. He may go awhile without but then will smoke sometimes three in a row. That seems to be lessening today. So while smoking a lot is not a good sign, smoking less is an even worse sign. When he is smoking a lot he is stressed. When he isn't smoking much than he has gone further into his head. He has actually been smoking the cigarettes that he didn't want (we couldn't return them, we tried) and not even complaining about them which isn't like him.
After several days of me nicely hinting, my hubby actually managed to suggest and get him into a bath on Thursday. I think he has been in the same clothes ever since. Will have to try and get him in clean clothes today after he wakes up. I'm pretty sure he is sleeping now. He had a short snooze yesterday but other then that has been awake since possibly Friday around noon. It's hard to tell sometimes. He will go to bed when I prompt him but that doesn't mean he is sleeping.
His nurse set up an appointment with his psychiatrist for tomorrow morning. That's an appointment that has been long overdue. We certainly need to do discuss his medications and how to proceed. I know I have been hesitant about upping his Invega due to possible lose of his libido however that doesn't seem to be happening right now anyways and honestly it's not something we need happening right now as when he is like this he can have no sense of keeping it private.
ADAPT called me this morning. She apologized for taking so long to get back to me. I let her know that my son seems to relapses so we set up a tentative follow up appointment in two weeks. She also gave me some information on the next family event that deals with concurrent disorders, mental illness and addiction, and who to contact to register. I have actually met the lady that I am to contact. We meet through the early intervention program my son was in before PACT. I have also talked to her at an event I attended through the Schizophrenia Society of Ontario.
I'm off. Gucci is demanding some petting time and the homemade beef jerky I made is calling my name...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Wednesday, April 22, 2015
The Official Blog For Mental Health Project
“I pledge my commitment to the Blog for Mental Health 2015 Project. I will blog about mental health topics not only for myself, but for others. By displaying this badge, I show my pride, dedication, and acceptance for mental health. I use this to promote mental health education in the struggle to erase stigma.”
The Official Blog for Mental Health Project
I started blogging about my journey as a caregiver to my son who was diagnosed with paranoid schizophrenia as a way to deal with my own emotions. I still do it for this reason however I also want to share my story with others so that they know they are not alone. Caring for someone with a mental illness can be hard. It can be isolating and it can be overwhelming at the best of times.
So much research to do on medications and treatment options. Let's not forget diet, behavior issues and how to be a better parent... Because we don't already feel enough guild as we watch our loved ones suffer and feel hopeless to stop the symptoms of a disease that doesn't allow our loved ones to see how much we love them.
I want to share mine and my son's story and help others to share theirs.
https://twitter.com/BarbieBFlove
https://www.facebook.com/schizophreniamomsjourney
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
The Official Blog for Mental Health Project
I started blogging about my journey as a caregiver to my son who was diagnosed with paranoid schizophrenia as a way to deal with my own emotions. I still do it for this reason however I also want to share my story with others so that they know they are not alone. Caring for someone with a mental illness can be hard. It can be isolating and it can be overwhelming at the best of times.
So much research to do on medications and treatment options. Let's not forget diet, behavior issues and how to be a better parent... Because we don't already feel enough guild as we watch our loved ones suffer and feel hopeless to stop the symptoms of a disease that doesn't allow our loved ones to see how much we love them.
I want to share mine and my son's story and help others to share theirs.
https://twitter.com/BarbieBFlove
https://www.facebook.com/schizophreniamomsjourney
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Monday, April 20, 2015
Saint Dymphna, Saint Michael, a job? and being healthy.
About three weeks ago I learned about Saint Dymphna. She is the patron saint of the nervous, emotionally disturbed, mentally ill and those who suffer neurological disorders. She is also the patron saint of victims of incest.
Her story can be found here: Wikipedia - Saint Dymphna
My prayer to her:
I decided that I wanted a pendent for my necklace of her so my husband made it my birthday present. Saturday morning we went to a store that carries them. In the beginning I was thinking about getting three of them. One for me, my son and my daughter. Yesterday I had mine engraved with the initials of both of my children.
While at the store discussing Saints the clerk mentioned Saint Michael who is an Archangel. I knew that he was an Archangel however I know little of him beyond that. He is the patron saint of chivalry and warriors. The sick and the suffering also consider him to be their patron. The serpent that he is slaying in depictions of him represents evil. He is seen as one who protects against evil.
His story can be found here: Wikipedia - Saint Michael (Archangel)
My son's name is Michael... It just made sense so I got my son Saint Michael he does need help fighting his demons or evil entities. When I saw the detail of Michael's sword as it slayed the serpent... My son's hallucinations involve him creating armor to protect himself and he enjoys playing online games that involve armor etc. When we got home I took it to him and put it on him explaining who Saint Michael was. I also got him a medallion he can carry around that says: My son. You may have outgrown my lap but you will never outgrow my heart. I couldn't find one similar for my daughter. :(
I blogged a bit ago about my son wanting stuffed animals or stuffies as he calls them :). For awhile he wasn't paying much attention to them however recently he is back to cuddling with them. I know because I helped to arrange them last night before I did what has become our night time activity of me scratching and rubbing his back and head.
I know that sometimes my writing here can sound fairly negative. It's because this is my place to vent my thoughts and feelings and sort them out. Getting them out here means that they won't be directed at my son. Perhaps my hubby at times ;) but not my son. I can't recall the last time that I even raised my voice to him. Certainly not since we moved or since I've been on the Venlafaxine, so a couple of months. My husband says that he has seen a change in my son with how he is with me since I went to British Columbia to get him and that my son loves me more then I give him credit for. He may be right. I do know it's different now. My son spends more time sitting on the same sofa as us when we are watching TV. He spends more time having tea and watching TV with us. In fact if I don't think to ask my son to join us then my husband does because he doesn't want my son spending to much time in his room alone.
Despite our issues at times, I never need to wonder why I love my husband. I know that he finds all this frustrating at times, as I do, because we have seen how good my son can be. I don't mean good in behavior but good as in stable, clean and basically schizophrenia symptom free. It's hard to accept that as good as my son is doing right now and all things considered he is doing good, that this is the best we can expect because... Honestly why should we when we know that it can be so much better.
It's sad because instances like February and the shelter happen and they are no one's fault. It's when addiction, schizophrenia and oppositional defiance disorder (ODD) take over. If we could keep these things at bay for just a little while... Imagine what we could accomplish!
Yesterday my hubby asked me if my son was ok because he got up and didn't say anything. My hubby has problems reading social ques and people'e emotions. I really do think he has some asperger traits ;). No it's our routine... I may be up early but I don't like to talk. I want to wake up with my coffee, doing my social media. My son seems to be the same way. He gets up, we say good morning, he goes for a cigarette, grabs his energy drink and back up to his room sometimes to play his games, watch TV or 'think' depending on where his stability is at. As the day goes on we interact more.
Yes he is drinking energy drinks again. We have an agreement that if he keeps it to one a day and isn't drinking them at night, preferably in the morning than we buy him some when grocery shopping. So far he is doing this.
Remember the stones my hubby brought home for the back yard? Yesterday my husband asked for my son's help in placing them. Of course this meant my husband doing it but my son interacting with us while he did it. Then we were to go to the mall so I could get my pendant engraved.
Out of the blue my son asked about applying for a job at the corner store stating that if he had a job and some extra money his life would be perfect. Are you shocked? ;) I suggested the pet store that is just around the corner as I was thinking about applying there for some extra income. I had my son clip his nails and clean up a bit and we went over. They don't have applications so we have to do up a resume. They usually hire for summer hours.
Now I'm not sure what is motivating this however my son has been eating healthier. I have blogged about my own eating habits and what I eat for lunch. My son has also started eating the same things for snacks. Several times he would look at my lunch and take a cracker with brie cheese or a snap pea. Last week he started making his own plate of it including almonds!
Off and on he is now taking NAC (N-Acetyl Cysteine) in the mornings. He isn't giving me grief about taking his multi-vitamins or Omega 3. It's not everyday and sometimes he forgets but when he does he is now taking two of each! Yesterday I even got him to take a B50 complex. I'm trying not to make a big deal of it as if I did he would probably stop ;) It's part of me and my husband's routine to take our supplements after dinner with our tea while we watch TV so I'm just including my son in that routine without any fanfare and for now anyways I think it is helping.
When I brought up the B50 my son asked what does it do. Does is have the sun vitamin? No that's vitamin D, I think. We take it to be healthier. My son stated he didn't want to be healthier because he doesn't want to have more energy during the day. Some old thinking/issues rearing their little head that I refer to as his ODD. I replied: Do you see me jumping around with lots of energy? It will just make you healthier not more energetic. He took it. Although he forgot to take his Omega 3. Oh well. You win some, you lose some. ;)
Tomorrow it will be one week since my son stopped taking his Olanzapine. He is still being compliant with 6 mg of Invega as he says he doesn't mind this one. So he is only on one medication. Honestly I was expecting that we would be in a pretty bad spot by now. While voices have emerged or what my son is referring to as thoughts... Everything else seems to be holding steady. His appetite is good. Fairly good actually as he is usually asking me now what time my hubby is getting home from work so that we can have supper/dinner. In fact he usually asks me earlier in the day what we are having for dinner and will sometimes ask if we can have a different side dish. Whenever it's rice he asks me to make extra for him. I'm glad my cooking skills are improving ;) So far he is still on a good sleep schedule. He goes to bed when hubby and I do which is anywhere between 8 and 9. He was up at 9 this morning and rarely goes past 10:30. He is sometimes up earlier in the night for a cigarette and something to eat but goes right back to bed. There has been no sleeping on the sofa!
One night it was cute because hubby wasn't working the next day, so we stayed up later watching TV. I think it was around 10, which is really late for us, my son asks: Isn't it bedtime? He was tired and wanted to go to bed but I guess he was waiting for us to go too. Our routines may be hard to implement and his ODD may flair up here and there but they are really helping him.
Whether it's diet or Saint Michael or routine and boundaries... I don't know but I'm glad, knock on wood, that we have managed at least for now to keep my son from going to far in the wrong direction. I know that the end of the month is coming and yes we will probably be dealing with a 'hiccup' and alcohol but every day that we are not is an accomplishment and a step in the right direction.
Today it is raining so hubby came home early from work. They went to go exchange cigarettes. My son has decided he wants to roll them. My hubby wasn't happy with his last carton either. Oi... They worked it out last night. Since what they are returning is what hubby and I paid for then my son doesn't get back the money and instead my hubby will us it to buy my son his tobacco and rolling papers.
When they get back we are going to take my son to get his blood work done for the family doctor and his physical.
His caseworker from PACT was just here to drop off his meds and a copy of another letter she sent to British Columbia disability. I guess because my son hasn't been attending their Wednesday outings he is at risk for losing his spot with this. I can understand that as they have a lot of clients and ones who want to participate. Will have to put more energy into this and hopefully he will attend this Wednesday's outing.
I'm off to do some dishes, get dressed and wait for my boys to come back.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Her story can be found here: Wikipedia - Saint Dymphna
My prayer to her:
I decided that I wanted a pendent for my necklace of her so my husband made it my birthday present. Saturday morning we went to a store that carries them. In the beginning I was thinking about getting three of them. One for me, my son and my daughter. Yesterday I had mine engraved with the initials of both of my children.
While at the store discussing Saints the clerk mentioned Saint Michael who is an Archangel. I knew that he was an Archangel however I know little of him beyond that. He is the patron saint of chivalry and warriors. The sick and the suffering also consider him to be their patron. The serpent that he is slaying in depictions of him represents evil. He is seen as one who protects against evil.
His story can be found here: Wikipedia - Saint Michael (Archangel)
My son's name is Michael... It just made sense so I got my son Saint Michael he does need help fighting his demons or evil entities. When I saw the detail of Michael's sword as it slayed the serpent... My son's hallucinations involve him creating armor to protect himself and he enjoys playing online games that involve armor etc. When we got home I took it to him and put it on him explaining who Saint Michael was. I also got him a medallion he can carry around that says: My son. You may have outgrown my lap but you will never outgrow my heart. I couldn't find one similar for my daughter. :(
I blogged a bit ago about my son wanting stuffed animals or stuffies as he calls them :). For awhile he wasn't paying much attention to them however recently he is back to cuddling with them. I know because I helped to arrange them last night before I did what has become our night time activity of me scratching and rubbing his back and head.
I know that sometimes my writing here can sound fairly negative. It's because this is my place to vent my thoughts and feelings and sort them out. Getting them out here means that they won't be directed at my son. Perhaps my hubby at times ;) but not my son. I can't recall the last time that I even raised my voice to him. Certainly not since we moved or since I've been on the Venlafaxine, so a couple of months. My husband says that he has seen a change in my son with how he is with me since I went to British Columbia to get him and that my son loves me more then I give him credit for. He may be right. I do know it's different now. My son spends more time sitting on the same sofa as us when we are watching TV. He spends more time having tea and watching TV with us. In fact if I don't think to ask my son to join us then my husband does because he doesn't want my son spending to much time in his room alone.
Despite our issues at times, I never need to wonder why I love my husband. I know that he finds all this frustrating at times, as I do, because we have seen how good my son can be. I don't mean good in behavior but good as in stable, clean and basically schizophrenia symptom free. It's hard to accept that as good as my son is doing right now and all things considered he is doing good, that this is the best we can expect because... Honestly why should we when we know that it can be so much better.
It's sad because instances like February and the shelter happen and they are no one's fault. It's when addiction, schizophrenia and oppositional defiance disorder (ODD) take over. If we could keep these things at bay for just a little while... Imagine what we could accomplish!
Yesterday my hubby asked me if my son was ok because he got up and didn't say anything. My hubby has problems reading social ques and people'e emotions. I really do think he has some asperger traits ;). No it's our routine... I may be up early but I don't like to talk. I want to wake up with my coffee, doing my social media. My son seems to be the same way. He gets up, we say good morning, he goes for a cigarette, grabs his energy drink and back up to his room sometimes to play his games, watch TV or 'think' depending on where his stability is at. As the day goes on we interact more.
Yes he is drinking energy drinks again. We have an agreement that if he keeps it to one a day and isn't drinking them at night, preferably in the morning than we buy him some when grocery shopping. So far he is doing this.
Remember the stones my hubby brought home for the back yard? Yesterday my husband asked for my son's help in placing them. Of course this meant my husband doing it but my son interacting with us while he did it. Then we were to go to the mall so I could get my pendant engraved.
Out of the blue my son asked about applying for a job at the corner store stating that if he had a job and some extra money his life would be perfect. Are you shocked? ;) I suggested the pet store that is just around the corner as I was thinking about applying there for some extra income. I had my son clip his nails and clean up a bit and we went over. They don't have applications so we have to do up a resume. They usually hire for summer hours.
Now I'm not sure what is motivating this however my son has been eating healthier. I have blogged about my own eating habits and what I eat for lunch. My son has also started eating the same things for snacks. Several times he would look at my lunch and take a cracker with brie cheese or a snap pea. Last week he started making his own plate of it including almonds!
Off and on he is now taking NAC (N-Acetyl Cysteine) in the mornings. He isn't giving me grief about taking his multi-vitamins or Omega 3. It's not everyday and sometimes he forgets but when he does he is now taking two of each! Yesterday I even got him to take a B50 complex. I'm trying not to make a big deal of it as if I did he would probably stop ;) It's part of me and my husband's routine to take our supplements after dinner with our tea while we watch TV so I'm just including my son in that routine without any fanfare and for now anyways I think it is helping.
When I brought up the B50 my son asked what does it do. Does is have the sun vitamin? No that's vitamin D, I think. We take it to be healthier. My son stated he didn't want to be healthier because he doesn't want to have more energy during the day. Some old thinking/issues rearing their little head that I refer to as his ODD. I replied: Do you see me jumping around with lots of energy? It will just make you healthier not more energetic. He took it. Although he forgot to take his Omega 3. Oh well. You win some, you lose some. ;)
Tomorrow it will be one week since my son stopped taking his Olanzapine. He is still being compliant with 6 mg of Invega as he says he doesn't mind this one. So he is only on one medication. Honestly I was expecting that we would be in a pretty bad spot by now. While voices have emerged or what my son is referring to as thoughts... Everything else seems to be holding steady. His appetite is good. Fairly good actually as he is usually asking me now what time my hubby is getting home from work so that we can have supper/dinner. In fact he usually asks me earlier in the day what we are having for dinner and will sometimes ask if we can have a different side dish. Whenever it's rice he asks me to make extra for him. I'm glad my cooking skills are improving ;) So far he is still on a good sleep schedule. He goes to bed when hubby and I do which is anywhere between 8 and 9. He was up at 9 this morning and rarely goes past 10:30. He is sometimes up earlier in the night for a cigarette and something to eat but goes right back to bed. There has been no sleeping on the sofa!
One night it was cute because hubby wasn't working the next day, so we stayed up later watching TV. I think it was around 10, which is really late for us, my son asks: Isn't it bedtime? He was tired and wanted to go to bed but I guess he was waiting for us to go too. Our routines may be hard to implement and his ODD may flair up here and there but they are really helping him.
Whether it's diet or Saint Michael or routine and boundaries... I don't know but I'm glad, knock on wood, that we have managed at least for now to keep my son from going to far in the wrong direction. I know that the end of the month is coming and yes we will probably be dealing with a 'hiccup' and alcohol but every day that we are not is an accomplishment and a step in the right direction.
Today it is raining so hubby came home early from work. They went to go exchange cigarettes. My son has decided he wants to roll them. My hubby wasn't happy with his last carton either. Oi... They worked it out last night. Since what they are returning is what hubby and I paid for then my son doesn't get back the money and instead my hubby will us it to buy my son his tobacco and rolling papers.
When they get back we are going to take my son to get his blood work done for the family doctor and his physical.
His caseworker from PACT was just here to drop off his meds and a copy of another letter she sent to British Columbia disability. I guess because my son hasn't been attending their Wednesday outings he is at risk for losing his spot with this. I can understand that as they have a lot of clients and ones who want to participate. Will have to put more energy into this and hopefully he will attend this Wednesday's outing.
I'm off to do some dishes, get dressed and wait for my boys to come back.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Friday, April 17, 2015
I never thought the day would come...
when I would actually be somewhat thankful that my son wasn't taking one of his medications. What a contradicting feeling that is as it's not, in my opinion, for a good reason.
Early yesterday my son asked if we could go to where we buy cigarettes and exchange the ones he has as they are too strong. He has been smoking this kind for at least two weeks. Too strong cigarettes and my son are not something you can put in the same sentence, normally. The stronger the better and he is always searching for a stronger kind that gives him that 'hit' that he so enjoys. My son currently has over three cartons of cigarettes which include three different kinds. Apparently one is now too strong, one is too weak and the other... he just isn't smoking them. The ones that are too strong are the more expensive ones. I'm pretty sure the intent here was that if he exchanged them for a cheaper kind then he would have money for alcohol. I said no to going.
Awhile later he seemed ok with the idea of adjusting how he is smoking these cigarettes so that they aren't as harsh. (!) This was followed up with the statement: Nana is sending my $30. Does she know that this money is going to go on alcohol? Yes, she said not to go overboard with it and I won't. Right, because buying 1-3 mickeys (375 ml bottles) of alcohol and drinking one in less then two hours isn't going overboard... He can get a mickey for $10, so $30 would get him three plus one of the tiny bottles of whatever it is that he also gets. All of these are 40% alcohol.
For the past two days I have been watching/listening as the voices are coming back and he is laughing out loud and being distracted by them. He is of course denying it. I didn't say anything else about it to my son... I posted this on my Facebook page:
Looks like my son will be drinking tonight. Recently stopped his Olanzapine cold turkey and is laughing at voices, so let's add some alcohol why don't we. I don't know who is worse
My daughter calls me to tell me that she spoke to Nana and she isn't sending the money that she didn't know he was off his Olanzapine.
Really?
I wrote this on April 13:
Today for the first time in a very long time I had trouble getting him to take his medication. He doesn't want to take his Olanzapine any more.
I know she read this blog post because we talked about it when we spoke the following day.
I wrote this on April 14:
As of Tuesday he is refusing to take any Olanzapine.
Maybe this one hadn't been read yet...
My daughter called me when hubby and I were at our chiropractor. Can you say subluxated? Usually I'm easier to adjust. My chiropractor asked what I've been doing? My son's grandmother is trying to give me a heart attack but other then that.... ;)
My son was waiting for us in the car since he usually comes with us for the car ride. I heard him on his cell saying something like: Wouldn't you be angry if you were being forced to take pills...
So I went to bed with the thought of what a conundrum. IF he was taking his Olanzapine then he would have been sent the $30? I'm not naive. I obviously know that when he gets money at the end of the month that he will spend some of it on alcohol. I was thankful that it was two weeks away so that we would have a better idea of how he was going to react coming off the Olanzapine cold turkey. I do live in reality (my reality anyways ;)) and I know I can't stop it but to enable him and help him...
April 13:
Nana's intentions may be good and I know are coming from a place of love... When my son pulls on her heartstrings with how much he needs to drink or get high because he is so unhappy, stressed, anxious and there is nothing for him in this world... Will she have the willpower to say no? Will she be able to put aside how much she loves him and how much her heart is breaking for him to make the right decisions? Will she be able keep her home drug and alcohol free even if that means him 'going to the streets' to get it?
I guess IF I had any doubts as to the answers to above... She can barely say no when they are pretty much on the opposite sides of the country. Can you imagine face to face?
My hubby says to me that I need to do something to stop this. Like what? A restraining order of zero contact crossed my mind... Yes I'm aware that's an overreaction. ;)
My son also called Ontario Works yesterday about getting his own place. He is not happy about the amount of money he is getting. Because of the letter from British Columbia's disability stating that he was on disability out there even when he was living here in Ontario, they are considering his payments while here as an over-payment and deducting $40 from his portion. He is still getting $100 and the only thing he needs to pay for is his cigarettes which he can get for $17 a carton. I even helped pay for his last ones and bought him a carton. Plus he got $60 from the government recently. I have informed his case worker at PACT so she can follow up and try to fix it, again. His motivation for getting his own place... More money and the ability to drink and/or abuse drugs.
I get that someone might read this and think: It's just alcohol. It's not just alcohol. It's like a member of AA not wanting to be associated with a drug addict because 'I don't use drugs!'. Addiction is addiction. It's been a battle to get my son from being a chronic marijuana smoker. How long before he is again? If he wanted money for heroine or cocaine would that be ok? I would hope that that line wouldn't be crossed however I don't see much of a difference in helping him drink or helping him get cocaine when drinking/using triggers his schizophrenia. Maybe it's just me.. It just seems so obvious to me at this point...
Enough of the negative... Out of the blue my son hugged me last night! One of those rare, you can actually feel, type of hugs. I held him for a moment and asked what that was for. He feels lonely and wants a girlfriend that he can cuddle with. Yes I know... Tear at your heartstrings...
He is not going to find that in the bottom of a bottle be it alcohol or benzos. We discussed him getting out with PACT's group on Wednesday as he declined going to the last one. It was bowling. Also when they called we were in the middle of a pretty in-depth conversation about his schizophrenia and voices. I won't make this post much longer with all the details. I was curious to know if his voices have ever threatened me. He said that they have told him to kill me or they would kill him and he waited for them to kill him because he wasn't going to kill me. That when they do this he creates his own 'robots' to keep them away from him. A lot of words that would take me forever to write and interpret into language that others would understand.
I'm pretty thankful actually that I can understand as much as I do. We manage to talk out a lot of what he is experiencing and I'm able to interpret what he says into 'normal English' and sometimes give him the medical terms for what he is telling me.
Anyways I should go... It's after 12 and I have been up since 5:30 when the little one below was headbutting me to get up and feed her.
So far all I have done is the dishes. Hubby brought home some stones yesterday for the backyard and it's a nice day out. Also a couple of days ago I received my new Dyson vacuum that I ordered with my Aeroplan points that I haven't used it. So I'm off to face my day...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Early yesterday my son asked if we could go to where we buy cigarettes and exchange the ones he has as they are too strong. He has been smoking this kind for at least two weeks. Too strong cigarettes and my son are not something you can put in the same sentence, normally. The stronger the better and he is always searching for a stronger kind that gives him that 'hit' that he so enjoys. My son currently has over three cartons of cigarettes which include three different kinds. Apparently one is now too strong, one is too weak and the other... he just isn't smoking them. The ones that are too strong are the more expensive ones. I'm pretty sure the intent here was that if he exchanged them for a cheaper kind then he would have money for alcohol. I said no to going.
Awhile later he seemed ok with the idea of adjusting how he is smoking these cigarettes so that they aren't as harsh. (!) This was followed up with the statement: Nana is sending my $30. Does she know that this money is going to go on alcohol? Yes, she said not to go overboard with it and I won't. Right, because buying 1-3 mickeys (375 ml bottles) of alcohol and drinking one in less then two hours isn't going overboard... He can get a mickey for $10, so $30 would get him three plus one of the tiny bottles of whatever it is that he also gets. All of these are 40% alcohol.
For the past two days I have been watching/listening as the voices are coming back and he is laughing out loud and being distracted by them. He is of course denying it. I didn't say anything else about it to my son... I posted this on my Facebook page:
Looks like my son will be drinking tonight. Recently stopped his Olanzapine cold turkey and is laughing at voices, so let's add some alcohol why don't we. I don't know who is worse
My daughter calls me to tell me that she spoke to Nana and she isn't sending the money that she didn't know he was off his Olanzapine.
Really?
I wrote this on April 13:
Today for the first time in a very long time I had trouble getting him to take his medication. He doesn't want to take his Olanzapine any more.
I know she read this blog post because we talked about it when we spoke the following day.
I wrote this on April 14:
As of Tuesday he is refusing to take any Olanzapine.
Maybe this one hadn't been read yet...
My daughter called me when hubby and I were at our chiropractor. Can you say subluxated? Usually I'm easier to adjust. My chiropractor asked what I've been doing? My son's grandmother is trying to give me a heart attack but other then that.... ;)
My son was waiting for us in the car since he usually comes with us for the car ride. I heard him on his cell saying something like: Wouldn't you be angry if you were being forced to take pills...
So I went to bed with the thought of what a conundrum. IF he was taking his Olanzapine then he would have been sent the $30? I'm not naive. I obviously know that when he gets money at the end of the month that he will spend some of it on alcohol. I was thankful that it was two weeks away so that we would have a better idea of how he was going to react coming off the Olanzapine cold turkey. I do live in reality (my reality anyways ;)) and I know I can't stop it but to enable him and help him...
April 13:
Nana's intentions may be good and I know are coming from a place of love... When my son pulls on her heartstrings with how much he needs to drink or get high because he is so unhappy, stressed, anxious and there is nothing for him in this world... Will she have the willpower to say no? Will she be able to put aside how much she loves him and how much her heart is breaking for him to make the right decisions? Will she be able keep her home drug and alcohol free even if that means him 'going to the streets' to get it?
I guess IF I had any doubts as to the answers to above... She can barely say no when they are pretty much on the opposite sides of the country. Can you imagine face to face?
My hubby says to me that I need to do something to stop this. Like what? A restraining order of zero contact crossed my mind... Yes I'm aware that's an overreaction. ;)
My son also called Ontario Works yesterday about getting his own place. He is not happy about the amount of money he is getting. Because of the letter from British Columbia's disability stating that he was on disability out there even when he was living here in Ontario, they are considering his payments while here as an over-payment and deducting $40 from his portion. He is still getting $100 and the only thing he needs to pay for is his cigarettes which he can get for $17 a carton. I even helped pay for his last ones and bought him a carton. Plus he got $60 from the government recently. I have informed his case worker at PACT so she can follow up and try to fix it, again. His motivation for getting his own place... More money and the ability to drink and/or abuse drugs.
I get that someone might read this and think: It's just alcohol. It's not just alcohol. It's like a member of AA not wanting to be associated with a drug addict because 'I don't use drugs!'. Addiction is addiction. It's been a battle to get my son from being a chronic marijuana smoker. How long before he is again? If he wanted money for heroine or cocaine would that be ok? I would hope that that line wouldn't be crossed however I don't see much of a difference in helping him drink or helping him get cocaine when drinking/using triggers his schizophrenia. Maybe it's just me.. It just seems so obvious to me at this point...
Enough of the negative... Out of the blue my son hugged me last night! One of those rare, you can actually feel, type of hugs. I held him for a moment and asked what that was for. He feels lonely and wants a girlfriend that he can cuddle with. Yes I know... Tear at your heartstrings...
He is not going to find that in the bottom of a bottle be it alcohol or benzos. We discussed him getting out with PACT's group on Wednesday as he declined going to the last one. It was bowling. Also when they called we were in the middle of a pretty in-depth conversation about his schizophrenia and voices. I won't make this post much longer with all the details. I was curious to know if his voices have ever threatened me. He said that they have told him to kill me or they would kill him and he waited for them to kill him because he wasn't going to kill me. That when they do this he creates his own 'robots' to keep them away from him. A lot of words that would take me forever to write and interpret into language that others would understand.
I'm pretty thankful actually that I can understand as much as I do. We manage to talk out a lot of what he is experiencing and I'm able to interpret what he says into 'normal English' and sometimes give him the medical terms for what he is telling me.
Anyways I should go... It's after 12 and I have been up since 5:30 when the little one below was headbutting me to get up and feed her.
So far all I have done is the dishes. Hubby brought home some stones yesterday for the backyard and it's a nice day out. Also a couple of days ago I received my new Dyson vacuum that I ordered with my Aeroplan points that I haven't used it. So I'm off to face my day...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Wednesday, April 15, 2015
Learning to be thankful for...
my antidepressants...
Around 3 PM yesterday I thought to myself: I'm glad I'm on these ;)
Yesterday was my birthday...
I would have to say the highlight of my day was my daughter calling me. She's pretty awesome! I really wish that there was more that I could do when it comes to her and where she finds herself.
At one point yesterday I told my hubby that I wished I had a private jet. Honestly if I did have a private jet and wasn't on my antidepressants... The day probably wouldn't have ended well ;)
On Facebook I'm part of a sharing group that helps mental health pages grow. It's a great group. When I'm sharing items through this group I follow the rules as they are. I guess I'm not following the rules when I share outside of the group. In my way of thinking what I do outside of the group is my personal choice. I don't have to share the pages that are a part of this group, on my own, if I don't want to. I do because I want to show support. Should I have to follow the rules of the group on my personal time? Personally I don't think so however that doesn't seem to matter. The problem is arising not from articles or posts that these pages are putting up that are their own but from things they themselves are sharing from other pages. I can only relate based on my own page. If I put up an article from some other site or page then why would I want credit for it? I don't. It's not mine. With the last incident I happened to share something that lots of pages were sharing, I just happened to pick a page from the group to share from, thinking that I was helping them...
I get a message from the groups admin what I was doing wrong and that perhaps it was time we part ways... I was shocked. Really? Because I shared something on my own, outside of the group, and didn't say via: 'page' then I'm not following the rules. I responded and tried to post publicly in the group my answer... It was deleted. Makes me wonder how many others are experiencing the same type of censorship.
Also I'm being told that I don't have enough original content or pictures as admin has already liked all of my pictures. There are pages with a lot less then mine which is why I'm thinking they are going through the same ordeal. I can only guess as if they tried to post publicly in the group chances are it got deleted just like mine did.
My response included what I have been doing to participate and some insight into my life recently. I got told that it sounds like I need to take a break and perhaps spend some time on my blog. ;) Ok... It sometimes amazes me that when someone actually speaks up or out that the response is 'You need a break.' Like getting mad over a perceived injustice is not allowed...
Anyways I got over it to a certain degree. Made more pictures. Loaded my page with content from pages that I have managed to find on my own where I don't have to spend the extra time tagging a page that doesn't even own the content. Don't get me wrong I still love the group. It's theme and idea is awesome...
I'm still thinking it over and about how much time I have to invest... Maybe it is time I made my own path.
While I was on the phone with my daughter, Nana called me and left a message. We haven't spoken since my son was in the shelter last time. We probably shouldn't have spoken yesterday either ;)
The message stated that there seems to be some sort of misunderstanding and that my son was not going there. I played the message for my son because I'm beyond tired of this.
After reading my last blog post I guess it became evident that something wasn't right between what my son was saying and what seemed to be happening. These are duh moments for me because to me that's fairly obvious. It all gets more confusing because there are three people with three different viewpoints and opinions on the same situation. Of all that I wrote in my last post (or said), one sentence becomes the center of attention and sadly that sentence was even confused.
"I asked my son if financially his Nana and I were the same and I couldn't provide him with the things that I do, would he want to stay with me?"
I did not say or ask: Do you want to live with Nana... I could be wrong but I'm thinking that even anyone reading my blog would probably know me good enough at this point to realize that I would be hard pressed to let that happen...
While I understand that Nana is trying to give my son a safe place it doesn't change the fact that in handling things a certain way that it gives my son the opportunity and means to stay sick. I can try to see the viewpoint and to a certain degree I do... I also see what it is causing to happen.
Nana sees that my son is cycling again... Yes he is. The problem is that by hedging around the truth , I think, this is contributing to my son cycling. It's addiction that is causing this however it's like saying: Oh well, he fell off the wagon again... Yes if you hand him a bottle he will fall off the wagon.
Other things were said... I hung up when I was basically asked to justify why I even talked to him about it all in the first place due to my insecurities... At this point I thought: What's the point? I'm not insecure. Trying to talk to my son about our relationship and where I stand with him is my right as his mother.
A little while later my son comes to me and asks me why Nana wants him to pet a horse... Bets me. I told him the same thing I told her. If they want to have a relationship based on lies or half truths or delusional thinking or whatever you want to call it, that's between them.
Now I get to watch my son be even more confused because he is getting contradictory information. In his eyes his Nana is telling him that he can go there and based on what she said to me, I can totally see where he got that idea. If you knew my son even a little bit, not saying no is the same as saying yes. Now throw in the phone message which goes against all that. So now my son is telling me that he doesn't understand why Nana changed her mind. She didn't... She just didn't have the heart to tell him no...
So addiction is ruling the roost right now. My son can't get benzos prescribed here with me in Ontario. He can in British Columbia. As of Tuesday he is refusing to take any Olanzapine. Ask my son if having a psychotic break is worth it if it means getting relief from his addiction cravings? He doesn't see his breaks as a bad thing. He doesn't care about the long term affects because he doesn't see past what he is currently feeling. I saw the after affects of his last break and how at one point he didn't even know how to put on a hat...
I don't know... I just can't love him in a way that will enable this to happen again if it can be stopped. This is another area that Nana and I butt heads over other then the tough love/unconditional love. Labels. Yes I get that no one wants to be labeled. Let's remove the label schizophrenia... hmm that doesn't stop my son from having schizophrenia does it? We can turn our backs on labels however we can't turn our backs on reality. It doesn't care if we label it or pretend like it isn't there... It is what it is...
I sometimes wonder what my readers think of my blog... Most of the feedback I get is from Nana and sometimes my daughter who gets her information/ideas about my blog from Nana. So many times even what I blog about gets messed up and I keep thinking as I blog and read and re-read, this makes sense and shouldn't get misunderstood... And then it gets misunderstood. It is my writing or is it one person's interpretation?
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Around 3 PM yesterday I thought to myself: I'm glad I'm on these ;)
Yesterday was my birthday...
At one point yesterday I told my hubby that I wished I had a private jet. Honestly if I did have a private jet and wasn't on my antidepressants... The day probably wouldn't have ended well ;)
On Facebook I'm part of a sharing group that helps mental health pages grow. It's a great group. When I'm sharing items through this group I follow the rules as they are. I guess I'm not following the rules when I share outside of the group. In my way of thinking what I do outside of the group is my personal choice. I don't have to share the pages that are a part of this group, on my own, if I don't want to. I do because I want to show support. Should I have to follow the rules of the group on my personal time? Personally I don't think so however that doesn't seem to matter. The problem is arising not from articles or posts that these pages are putting up that are their own but from things they themselves are sharing from other pages. I can only relate based on my own page. If I put up an article from some other site or page then why would I want credit for it? I don't. It's not mine. With the last incident I happened to share something that lots of pages were sharing, I just happened to pick a page from the group to share from, thinking that I was helping them...
I get a message from the groups admin what I was doing wrong and that perhaps it was time we part ways... I was shocked. Really? Because I shared something on my own, outside of the group, and didn't say via: 'page' then I'm not following the rules. I responded and tried to post publicly in the group my answer... It was deleted. Makes me wonder how many others are experiencing the same type of censorship.
Also I'm being told that I don't have enough original content or pictures as admin has already liked all of my pictures. There are pages with a lot less then mine which is why I'm thinking they are going through the same ordeal. I can only guess as if they tried to post publicly in the group chances are it got deleted just like mine did.
My response included what I have been doing to participate and some insight into my life recently. I got told that it sounds like I need to take a break and perhaps spend some time on my blog. ;) Ok... It sometimes amazes me that when someone actually speaks up or out that the response is 'You need a break.' Like getting mad over a perceived injustice is not allowed...
Anyways I got over it to a certain degree. Made more pictures. Loaded my page with content from pages that I have managed to find on my own where I don't have to spend the extra time tagging a page that doesn't even own the content. Don't get me wrong I still love the group. It's theme and idea is awesome...
I'm still thinking it over and about how much time I have to invest... Maybe it is time I made my own path.
While I was on the phone with my daughter, Nana called me and left a message. We haven't spoken since my son was in the shelter last time. We probably shouldn't have spoken yesterday either ;)
The message stated that there seems to be some sort of misunderstanding and that my son was not going there. I played the message for my son because I'm beyond tired of this.
After reading my last blog post I guess it became evident that something wasn't right between what my son was saying and what seemed to be happening. These are duh moments for me because to me that's fairly obvious. It all gets more confusing because there are three people with three different viewpoints and opinions on the same situation. Of all that I wrote in my last post (or said), one sentence becomes the center of attention and sadly that sentence was even confused.
"I asked my son if financially his Nana and I were the same and I couldn't provide him with the things that I do, would he want to stay with me?"
I did not say or ask: Do you want to live with Nana... I could be wrong but I'm thinking that even anyone reading my blog would probably know me good enough at this point to realize that I would be hard pressed to let that happen...
While I understand that Nana is trying to give my son a safe place it doesn't change the fact that in handling things a certain way that it gives my son the opportunity and means to stay sick. I can try to see the viewpoint and to a certain degree I do... I also see what it is causing to happen.
Nana sees that my son is cycling again... Yes he is. The problem is that by hedging around the truth , I think, this is contributing to my son cycling. It's addiction that is causing this however it's like saying: Oh well, he fell off the wagon again... Yes if you hand him a bottle he will fall off the wagon.
Other things were said... I hung up when I was basically asked to justify why I even talked to him about it all in the first place due to my insecurities... At this point I thought: What's the point? I'm not insecure. Trying to talk to my son about our relationship and where I stand with him is my right as his mother.
A little while later my son comes to me and asks me why Nana wants him to pet a horse... Bets me. I told him the same thing I told her. If they want to have a relationship based on lies or half truths or delusional thinking or whatever you want to call it, that's between them.
Now I get to watch my son be even more confused because he is getting contradictory information. In his eyes his Nana is telling him that he can go there and based on what she said to me, I can totally see where he got that idea. If you knew my son even a little bit, not saying no is the same as saying yes. Now throw in the phone message which goes against all that. So now my son is telling me that he doesn't understand why Nana changed her mind. She didn't... She just didn't have the heart to tell him no...
So addiction is ruling the roost right now. My son can't get benzos prescribed here with me in Ontario. He can in British Columbia. As of Tuesday he is refusing to take any Olanzapine. Ask my son if having a psychotic break is worth it if it means getting relief from his addiction cravings? He doesn't see his breaks as a bad thing. He doesn't care about the long term affects because he doesn't see past what he is currently feeling. I saw the after affects of his last break and how at one point he didn't even know how to put on a hat...
I don't know... I just can't love him in a way that will enable this to happen again if it can be stopped. This is another area that Nana and I butt heads over other then the tough love/unconditional love. Labels. Yes I get that no one wants to be labeled. Let's remove the label schizophrenia... hmm that doesn't stop my son from having schizophrenia does it? We can turn our backs on labels however we can't turn our backs on reality. It doesn't care if we label it or pretend like it isn't there... It is what it is...
I sometimes wonder what my readers think of my blog... Most of the feedback I get is from Nana and sometimes my daughter who gets her information/ideas about my blog from Nana. So many times even what I blog about gets messed up and I keep thinking as I blog and read and re-read, this makes sense and shouldn't get misunderstood... And then it gets misunderstood. It is my writing or is it one person's interpretation?
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Monday, April 13, 2015
How do you stay so calm? Behind the Wall
This is what my husband asked me last night. "When I hear him talking like that my blood boils. All I can see is it all happening all over again." Yes me too...
I'm doing my best to learn to let go of things that I can't change or have no control over. My hubby: "Yes but I have seen you, when you put your mind to it, and you do have control and you are able to stop it." Yes but only for a little while... It's raining outside. I can stand under an umbrella but eventually I'm going to get wet. I'm just putting off the inevitable.
I recently purchased a book: Behind the Wall. Click on the book title and it will take you to it. I have barely started the first chapter and already I have felt a connection with the writers and the families they are writing about. In the preface something stood out for me:
"No parent, for example, ever wants to admit there are times when one secretly wishes her child to precede her in death. No one ever thinks that. But this is not an uncommon or unjustified thought for a parent to have while her child is suffering from a particularly devastating episode related to mental illness."
Widdifield, Mary; Widdifield MA, Elin (2015-03-02). Behind the Wall: The True Story of Mental Illness as Told by Parents (Kindle Locations 175-177). Langdon Street Press. Kindle Edition.
No I'm not secretly wishing my son was dead nor is he going through a bad episode right now. Still the ideal expressed in this quote is somewhere that I have been in the past and most likely where I will be in the future, again...
On Saturday while we were setting up the backyard and my thoughts were wondering as they usually do. I asked my son if financially his Nana and I were the same and I couldn't provide him with the things that I do, would he want to stay with me? Of course his first question was: Why are you broke? ;) Over $30000 in debt but that's not the point... I wasn't really expecting a black or white answer and told him that I was just curious as I don't want our relationship based on my ability to be a bank account to him. I purposely didn't say the word love as I don't think my son feels or reacts to things based on love. Not saying he doesn't feel it however it's secondary to his own needs or wants. Anyways he basically said that he is comfortable with me, Dad and Nana...
I use tinctures or herbs to treat my menopause and keep my hormones regulated. My son knows this. He has tried a tincture in the past for anxiety however abused it so I ended up getting rid of it. Just because they are herbs or natural it doesn't mean that they can be abused without harmful side affects.
Because he is struggling with anxiety most likely due to no alcohol now since Wednesday and he knows that he can't get any benzos prescribed, he is looking for another means to self-medicate. I have told him that I'm willing to work with him on things like this to help him with withdrawal and anxiety however he is not going to find the relief he is seeking through a supplement. He says that is not looking for benzo relief however I know better. So we tried a tincture... Yesterday he tells me that it isn't working and asked if we can try another one. Tinctures are not cheap. They range from $20-$50 CAD a bottle.
What do you think preceding me saying no to another tincture? Maybe it would be best if I lived with Nana. That was the agreement anyways that after 6 months I could do that...
It wasn't my agreement and still isn't. This is from when my son was in the shelter the last time and as best that I can tell the agreement was that after 6 months of my son being in a group home and participating in addiction recovery that his Nana would start saving money for him to go out there.
All fine and dandy... What does this mean for my son though? It means he doesn't have to put forth any effort into managing his own life or trying to get better because Nana is waiting in the wings and life with Nana is certainly a lot easier then life with me. I have rules. I have boundaries. He can't manipulate me the way he manipulates her.
My love for him is different. It can see past his feel sorry for me manipulations and half truths that schizophrenia and mostly addiction allows him to speak without so much as batting an eye... Getting what he thinks he deserves is his priority and what others go through to make this happen doesn't matter to him. He knows that Nana would give up anything to give him what he wants. He knows that she can't say no to him. Whether it's good for him or not doesn't fit into the equation. In his eyes that is what love is... Be his minion and put him on a pedestal and you have proven that you love him...
How can that compete with my version of love that says yes I love you but I love and respect myself too. Yes you are special. So are others special too. Yes you have wants and needs. So do others. Yes you have experienced pain. So have others. Yes you deserve a good life... You get my point. I can't compete and I'm not going to try. He can accept my love for what it is or not. A love that sees past right now to a future that could be so much more then burying himself in the fake euphoria that addiction gives him. I use the word euphoria because two nights ago this is what he told me he wanted and what he was looking for.
So the conversation started to get a little heated. He got mad or upset that he is not getting the money that he thinks he should get. Some time ago we signed a room and board contract stating that he would pay me $700 a month because I pay for everything including cloths etc. Disability knows about this contract. I came to this dollar amount by spending considerable time going over the disability website and how they break down their funding. Because he is room and board instead of rent and paying for his own groceries, utilities etc then his payments are $841 instead of 9 something. While living with his Nana they said that he was paying his portion of the rent plus utilities etc so he got a bit more then here. Because it was rent then he got his money at the end of the month for the following month. Here he is room and board which gets paid at the end of the month for that month. You would have to ask disability why they do it this way however he does now have clarification from disability that it works that way so at least we don't have to have that argument anymore.
It clearly states on the disability website that his personal spending amount or money not for basic needs is $119. Do the math. $841 - $119 = $722.
While he was in the shelter the last time I did tell him that I would consider looking at $600 a month instead of $700 IF he was to start buying things for himself like he was supposed to with that money. Not drugs, alcohol, games... Since March 21st we have spent over $200 on him in extras. Not counting McDonald's, Tim Horton's, Chinese food... or the cloths we have gotten him since he loses items while in the shelter system. We have paid for cigarettes for him. I didn't take any money from his disability payment for February and he got the full payment, so that he could buy items for his room.
Givers have to set limits because takers never do...
So no I'm not changing the $700 to $600. Can you guess what followed? The phone call to Nana.
If what you are doing is making an addict happy then chances are you are enabling instead of helping.
Then I'm being asked to talk to Nana and make arrangements. No I'm not talking to Nana and I will not so much as lift a baby finger to help with something that I am dead set against. Considering what has happened in the past, why would I help make that happen again?
My son's case worker from PACT just left...
The kicker is this... Thursday and Friday my son was asking me to help him get his GED (high-school equivalent) because he needs it to work with my husband in construction and he had decided he wanted to do that. Today we were supposed to be looking into either getting him back with the YMCA or into another school that does adult learning.
Nana's intentions may be good and I know are coming from a place of love... When my son pulls on her heartstrings with how much he needs to drink or get high because he is so unhappy, stressed, anxious and there is nothing for him in this world... Will she have the willpower to say no? Will she be able to put aside how much she loves him and how much her heart is breaking for him to make the right decisions? Will she be able keep her home drug and alcohol free even if that means him 'going to the streets' to get it?
My son just admitted to his worker that 30% (I say 60%) of the reason he wants to go live with Nana is because it's easier there and because she won't be able to say no to him...
Today for the first time in a very long time I had trouble getting him to take his medication. He doesn't want to take his Olanzapine any more. Why would he? He is already plotting to get the life that he wants which is addiction and psychosis. Both of those worlds are so much happier for him. It's the collateral damage and who he will take with him when the time comes that I am all to aware of. What if it's my daughter the next time or prey tell some innocent bystander...
Am I calm? Inside I am seething that no matter how hard I try to change the path that two dysfunctional families have set my children on... I feel like I'm losing the battle yet again. Is dysfunctional love better then no love? I don't think so. Without dysfunction one can find healthy love and a better life.
As long as this relationship is part of the picture and my son has the freedom to run away time and time again and hide in his schizophrenia and addiction... For my own life and sanity I have to learn to accept and let go. Maybe send another prayer to Donna, my mom in heaven, to once again watch over her first born grandson and if possible interfere so that I can give him the future he deserves.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
I'm doing my best to learn to let go of things that I can't change or have no control over. My hubby: "Yes but I have seen you, when you put your mind to it, and you do have control and you are able to stop it." Yes but only for a little while... It's raining outside. I can stand under an umbrella but eventually I'm going to get wet. I'm just putting off the inevitable.
I recently purchased a book: Behind the Wall. Click on the book title and it will take you to it. I have barely started the first chapter and already I have felt a connection with the writers and the families they are writing about. In the preface something stood out for me:
"No parent, for example, ever wants to admit there are times when one secretly wishes her child to precede her in death. No one ever thinks that. But this is not an uncommon or unjustified thought for a parent to have while her child is suffering from a particularly devastating episode related to mental illness."
Widdifield, Mary; Widdifield MA, Elin (2015-03-02). Behind the Wall: The True Story of Mental Illness as Told by Parents (Kindle Locations 175-177). Langdon Street Press. Kindle Edition.
No I'm not secretly wishing my son was dead nor is he going through a bad episode right now. Still the ideal expressed in this quote is somewhere that I have been in the past and most likely where I will be in the future, again...
On Saturday while we were setting up the backyard and my thoughts were wondering as they usually do. I asked my son if financially his Nana and I were the same and I couldn't provide him with the things that I do, would he want to stay with me? Of course his first question was: Why are you broke? ;) Over $30000 in debt but that's not the point... I wasn't really expecting a black or white answer and told him that I was just curious as I don't want our relationship based on my ability to be a bank account to him. I purposely didn't say the word love as I don't think my son feels or reacts to things based on love. Not saying he doesn't feel it however it's secondary to his own needs or wants. Anyways he basically said that he is comfortable with me, Dad and Nana...
I use tinctures or herbs to treat my menopause and keep my hormones regulated. My son knows this. He has tried a tincture in the past for anxiety however abused it so I ended up getting rid of it. Just because they are herbs or natural it doesn't mean that they can be abused without harmful side affects.
Because he is struggling with anxiety most likely due to no alcohol now since Wednesday and he knows that he can't get any benzos prescribed, he is looking for another means to self-medicate. I have told him that I'm willing to work with him on things like this to help him with withdrawal and anxiety however he is not going to find the relief he is seeking through a supplement. He says that is not looking for benzo relief however I know better. So we tried a tincture... Yesterday he tells me that it isn't working and asked if we can try another one. Tinctures are not cheap. They range from $20-$50 CAD a bottle.
What do you think preceding me saying no to another tincture? Maybe it would be best if I lived with Nana. That was the agreement anyways that after 6 months I could do that...
It wasn't my agreement and still isn't. This is from when my son was in the shelter the last time and as best that I can tell the agreement was that after 6 months of my son being in a group home and participating in addiction recovery that his Nana would start saving money for him to go out there.
All fine and dandy... What does this mean for my son though? It means he doesn't have to put forth any effort into managing his own life or trying to get better because Nana is waiting in the wings and life with Nana is certainly a lot easier then life with me. I have rules. I have boundaries. He can't manipulate me the way he manipulates her.
My love for him is different. It can see past his feel sorry for me manipulations and half truths that schizophrenia and mostly addiction allows him to speak without so much as batting an eye... Getting what he thinks he deserves is his priority and what others go through to make this happen doesn't matter to him. He knows that Nana would give up anything to give him what he wants. He knows that she can't say no to him. Whether it's good for him or not doesn't fit into the equation. In his eyes that is what love is... Be his minion and put him on a pedestal and you have proven that you love him...
How can that compete with my version of love that says yes I love you but I love and respect myself too. Yes you are special. So are others special too. Yes you have wants and needs. So do others. Yes you have experienced pain. So have others. Yes you deserve a good life... You get my point. I can't compete and I'm not going to try. He can accept my love for what it is or not. A love that sees past right now to a future that could be so much more then burying himself in the fake euphoria that addiction gives him. I use the word euphoria because two nights ago this is what he told me he wanted and what he was looking for.
So the conversation started to get a little heated. He got mad or upset that he is not getting the money that he thinks he should get. Some time ago we signed a room and board contract stating that he would pay me $700 a month because I pay for everything including cloths etc. Disability knows about this contract. I came to this dollar amount by spending considerable time going over the disability website and how they break down their funding. Because he is room and board instead of rent and paying for his own groceries, utilities etc then his payments are $841 instead of 9 something. While living with his Nana they said that he was paying his portion of the rent plus utilities etc so he got a bit more then here. Because it was rent then he got his money at the end of the month for the following month. Here he is room and board which gets paid at the end of the month for that month. You would have to ask disability why they do it this way however he does now have clarification from disability that it works that way so at least we don't have to have that argument anymore.
It clearly states on the disability website that his personal spending amount or money not for basic needs is $119. Do the math. $841 - $119 = $722.
While he was in the shelter the last time I did tell him that I would consider looking at $600 a month instead of $700 IF he was to start buying things for himself like he was supposed to with that money. Not drugs, alcohol, games... Since March 21st we have spent over $200 on him in extras. Not counting McDonald's, Tim Horton's, Chinese food... or the cloths we have gotten him since he loses items while in the shelter system. We have paid for cigarettes for him. I didn't take any money from his disability payment for February and he got the full payment, so that he could buy items for his room.
Givers have to set limits because takers never do...
So no I'm not changing the $700 to $600. Can you guess what followed? The phone call to Nana.
If what you are doing is making an addict happy then chances are you are enabling instead of helping.
Then I'm being asked to talk to Nana and make arrangements. No I'm not talking to Nana and I will not so much as lift a baby finger to help with something that I am dead set against. Considering what has happened in the past, why would I help make that happen again?
My son's case worker from PACT just left...
The kicker is this... Thursday and Friday my son was asking me to help him get his GED (high-school equivalent) because he needs it to work with my husband in construction and he had decided he wanted to do that. Today we were supposed to be looking into either getting him back with the YMCA or into another school that does adult learning.
Nana's intentions may be good and I know are coming from a place of love... When my son pulls on her heartstrings with how much he needs to drink or get high because he is so unhappy, stressed, anxious and there is nothing for him in this world... Will she have the willpower to say no? Will she be able to put aside how much she loves him and how much her heart is breaking for him to make the right decisions? Will she be able keep her home drug and alcohol free even if that means him 'going to the streets' to get it?
My son just admitted to his worker that 30% (I say 60%) of the reason he wants to go live with Nana is because it's easier there and because she won't be able to say no to him...
Today for the first time in a very long time I had trouble getting him to take his medication. He doesn't want to take his Olanzapine any more. Why would he? He is already plotting to get the life that he wants which is addiction and psychosis. Both of those worlds are so much happier for him. It's the collateral damage and who he will take with him when the time comes that I am all to aware of. What if it's my daughter the next time or prey tell some innocent bystander...
Am I calm? Inside I am seething that no matter how hard I try to change the path that two dysfunctional families have set my children on... I feel like I'm losing the battle yet again. Is dysfunctional love better then no love? I don't think so. Without dysfunction one can find healthy love and a better life.
As long as this relationship is part of the picture and my son has the freedom to run away time and time again and hide in his schizophrenia and addiction... For my own life and sanity I have to learn to accept and let go. Maybe send another prayer to Donna, my mom in heaven, to once again watch over her first born grandson and if possible interfere so that I can give him the future he deserves.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Saturday, April 11, 2015
You win some, you lose some.
Monday night and Tuesday was a little rough. Ok a lot rough ;) I did indeed come down with my son's stomach flu. Not nice! Finally starting to feel better.
That good news I mentioned in my last post... Not so good after all. I called up an old boss and he told me to Google employment scams... Sure enough this 'job' meets the requirements. So yah, I came pretty close to being scammed. Sucks too because I was so happy to have the opportunity to 'pull my own weight' and bring in some money. Oh well. Next time!
Knocking on wood didn't keep my son from alcohol for very long. Tuesday was a bottle of hard liquor and Wednesday was a bottle of wine. Yesterday morning he was asking me about the types of demons. Last night he was all negative about life. *sigh* How to help him see what is so obvious... Drinking makes him depressed, anxious and causes his mind to race. As well as triggers his schizophrenia symptoms and delusional thinking.
He has been a little moody? Not as agitated as I have seen him in the past but it's still there. I have been trying to keep an eye on any signs of his ODD acting up. So far there hasn't been much defiance. I don't know if that's him or me trying hard to know when to walk away or just stop talking. He has spent his disability money for the month so there have already been a couple of occasions where he wants to 'discuss' me giving him more money. I let him know that it's his actions that brought us to this point of disability handling his money as they are and that I am not going to protect him from the consequences. I remind him that we have already spent more then the amount he wants, on him. I have been keeping the receipts just in case he ever wants to argue this ;) If the conversation starts to take a turn for the worse and he starts to get angry then I'm doing my best to just not respond. Seems to working. For now anyways. Although it could be the knowledge that he can't run away from home with his whole check anymore that is stopping him from acting out as he has in the past about not getting his own way.
Thursday he had his appointment with ADAPT, addiction services. I was allowed to participate in the meeting. I gave the lady a short history of his alcohol consumption.
Mar 6: 2 bottles
Mar 10: 3 bottles
Mar 16: 2 bottles
Mar 27: 1 bottle
Mar 31: 1 bottle
Apr 7: 1 bottle
Apr 8: Wine
He also gets these little bottles of something else... So in the last month he has drunk over 4000 ml of hard liquor. Reluctantly he is agreeing to give ADAPT a chance so *fingers crossed* some good will come out of this. I'm really hoping that he will listen to someone else about what addiction is and can do to a person and hopefully they can help him...
I booked doctor appointments for me and my son on Thursday. I needed to get my antidepressants refilled and appease hubby that I'm doing ok. I did have to acknowledge yesterday when I had a bath that yeah I have lost weight. The stomach flu didn't help but I do need to put some weight back on. Anyways the doctor said I'm good. I had asked the PACT team to do blood work on my son to make sure his was healthy. I guess I didn't clarify that I wanted this for his family doctor as well to make sure he was healthy not just for organ functions regarding antipsychotic use, so the blood work they had done wasn't what I thought. So my son now has a new blood work requisition that he is agreeing to do 'For mom' he told the doctor ;) so we can check his vitamin etc levels. Once that is done then he will also get a physical done as I brought up my son's wheezing that he is still doing!
My son wants us to set up the backyard. I still don't think its that nice out today but I think I have put him off long enough and tomorrow is supposed to be really nice. So I'm off to the backyard with my son...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
That good news I mentioned in my last post... Not so good after all. I called up an old boss and he told me to Google employment scams... Sure enough this 'job' meets the requirements. So yah, I came pretty close to being scammed. Sucks too because I was so happy to have the opportunity to 'pull my own weight' and bring in some money. Oh well. Next time!
Knocking on wood didn't keep my son from alcohol for very long. Tuesday was a bottle of hard liquor and Wednesday was a bottle of wine. Yesterday morning he was asking me about the types of demons. Last night he was all negative about life. *sigh* How to help him see what is so obvious... Drinking makes him depressed, anxious and causes his mind to race. As well as triggers his schizophrenia symptoms and delusional thinking.
He has been a little moody? Not as agitated as I have seen him in the past but it's still there. I have been trying to keep an eye on any signs of his ODD acting up. So far there hasn't been much defiance. I don't know if that's him or me trying hard to know when to walk away or just stop talking. He has spent his disability money for the month so there have already been a couple of occasions where he wants to 'discuss' me giving him more money. I let him know that it's his actions that brought us to this point of disability handling his money as they are and that I am not going to protect him from the consequences. I remind him that we have already spent more then the amount he wants, on him. I have been keeping the receipts just in case he ever wants to argue this ;) If the conversation starts to take a turn for the worse and he starts to get angry then I'm doing my best to just not respond. Seems to working. For now anyways. Although it could be the knowledge that he can't run away from home with his whole check anymore that is stopping him from acting out as he has in the past about not getting his own way.
Thursday he had his appointment with ADAPT, addiction services. I was allowed to participate in the meeting. I gave the lady a short history of his alcohol consumption.
Mar 6: 2 bottles
Mar 10: 3 bottles
Mar 16: 2 bottles
Mar 27: 1 bottle
Mar 31: 1 bottle
Apr 7: 1 bottle
Apr 8: Wine
He also gets these little bottles of something else... So in the last month he has drunk over 4000 ml of hard liquor. Reluctantly he is agreeing to give ADAPT a chance so *fingers crossed* some good will come out of this. I'm really hoping that he will listen to someone else about what addiction is and can do to a person and hopefully they can help him...
I booked doctor appointments for me and my son on Thursday. I needed to get my antidepressants refilled and appease hubby that I'm doing ok. I did have to acknowledge yesterday when I had a bath that yeah I have lost weight. The stomach flu didn't help but I do need to put some weight back on. Anyways the doctor said I'm good. I had asked the PACT team to do blood work on my son to make sure his was healthy. I guess I didn't clarify that I wanted this for his family doctor as well to make sure he was healthy not just for organ functions regarding antipsychotic use, so the blood work they had done wasn't what I thought. So my son now has a new blood work requisition that he is agreeing to do 'For mom' he told the doctor ;) so we can check his vitamin etc levels. Once that is done then he will also get a physical done as I brought up my son's wheezing that he is still doing!
My son wants us to set up the backyard. I still don't think its that nice out today but I think I have put him off long enough and tomorrow is supposed to be really nice. So I'm off to the backyard with my son...
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Monday, April 6, 2015
'Normal' Sick
I hope everyone had a good Easter weekend. Ours was pretty quiet as my son has been sick with what appears to be a stomach flu for the past couple of days. The good part of this is he hasn't been drinking ;) Friday night he asked me about Benadryl as he recalled getting it while inpatient September 2013 and that it helped him with sleep and I guess withdrawal. Saturday I remembered that I had some from when my hubby had an allergic reaction so he I gave him some. It seemed to help with his withdrawal/cravings for alcohol however it didn't help with the stomach flu that he was about to have symptoms of. Saturday and Sunday he had a low grade fever, nausea and diarrhea.
Several times he spoke about going to the hospital because he 'felt like he was dying'. Yes being sick can feel like that ;) We kept an eye on his temperature and I made him toast, tea... I don't know if I can explain what it feels like to be able to parent a 'normal' sickness. Easy. Comforting. No second guessing myself. As long as the Tylenol was keeping his fever down and it didn't go over 100. As long as he was hydrated. Pepto for the nausea and diarrhea. Got this! Easy...
He is much better today and no fever since Saturday night. He got some extra attention. I spent a little more time rubbing his back which he has been asking me to do lately, as well as scratching his head ;) Saturday night we watched TV with his head in my lap. I have been somewhat bemused at myself that my son being sick has felt... I don't know what word to use. Good? Normal?
Saturday hubby and my son got their hair cut. My son needed it and I had been bringing it up for a bit. He looks so much better. Next we need to tackle his beard. He wants a long beard. That's fine if one keeps them clean...
So, knock on wood, my son hasn't drank since Tuesday. He was on his way out to the liquor store Saturday when I told him that hubby and I were going shopping for things for the backyard and if he was drinking he couldn't come. His choice. He decided to come and that is when we thought we would try the Benadryl to help with withdrawal and cravings. He ended up having to come home after the haircut and he didn't go back out like I thought he was going to.
Hubby and I did get a barbecue and a patio set. That took two trips to Walmart and my goodness the line ups... Easter weekend. I was thinking about getting a fire pit but we can't as they aren't allowed where we live.
Talked to my daughter for a bit. Poor girl... Life just keeps throwing her curve balls. She is another story that I will probably delve into one day. 'A bag of worms' I'm not willing to open yet ;)
I think I have good news... I'm trying to stay hopeful and not let negative thinking that 'It sounds to good to be true' get in the way. I have a job... It's work from home and the pay is pretty good. I'm waiting on the employment contract to hopefully make some things a little more clearer as some things are not making sense to me. Granted I have not worked this type of job before so I have no idea what is considered normal or appropriate. Part of it is collecting payments from customers which is fine however it seems they want me personally to collect then remit to the company. I don't know...
I got the go ahead to take my son completely off his Celexa so he has been off it since Wednesday. Considering everything he is doing good.
Sadly I'm beginning to feel like I just may be getting my son's stomach flu.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
Several times he spoke about going to the hospital because he 'felt like he was dying'. Yes being sick can feel like that ;) We kept an eye on his temperature and I made him toast, tea... I don't know if I can explain what it feels like to be able to parent a 'normal' sickness. Easy. Comforting. No second guessing myself. As long as the Tylenol was keeping his fever down and it didn't go over 100. As long as he was hydrated. Pepto for the nausea and diarrhea. Got this! Easy...
He is much better today and no fever since Saturday night. He got some extra attention. I spent a little more time rubbing his back which he has been asking me to do lately, as well as scratching his head ;) Saturday night we watched TV with his head in my lap. I have been somewhat bemused at myself that my son being sick has felt... I don't know what word to use. Good? Normal?
Saturday hubby and my son got their hair cut. My son needed it and I had been bringing it up for a bit. He looks so much better. Next we need to tackle his beard. He wants a long beard. That's fine if one keeps them clean...
So, knock on wood, my son hasn't drank since Tuesday. He was on his way out to the liquor store Saturday when I told him that hubby and I were going shopping for things for the backyard and if he was drinking he couldn't come. His choice. He decided to come and that is when we thought we would try the Benadryl to help with withdrawal and cravings. He ended up having to come home after the haircut and he didn't go back out like I thought he was going to.
Hubby and I did get a barbecue and a patio set. That took two trips to Walmart and my goodness the line ups... Easter weekend. I was thinking about getting a fire pit but we can't as they aren't allowed where we live.
Talked to my daughter for a bit. Poor girl... Life just keeps throwing her curve balls. She is another story that I will probably delve into one day. 'A bag of worms' I'm not willing to open yet ;)
I think I have good news... I'm trying to stay hopeful and not let negative thinking that 'It sounds to good to be true' get in the way. I have a job... It's work from home and the pay is pretty good. I'm waiting on the employment contract to hopefully make some things a little more clearer as some things are not making sense to me. Granted I have not worked this type of job before so I have no idea what is considered normal or appropriate. Part of it is collecting payments from customers which is fine however it seems they want me personally to collect then remit to the company. I don't know...
I got the go ahead to take my son completely off his Celexa so he has been off it since Wednesday. Considering everything he is doing good.
Sadly I'm beginning to feel like I just may be getting my son's stomach flu.
Mom
BarbieBF
© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.
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