The Proof is in the Pudding (bottle)

A phrase I tend to use a lot is the proof is in the pudding... Basically it means talk is cheap. Make the pudding (do the action) then we will see if one is really capable of doing what they say they can do. Once the pudding is made... there is your proof.

This morning I found 3 empty bottles of alcohol in my son's backpack. Here in Canada we call them mickeys. 375ml bottles. 2 fireball whiskey and 1 captain morgan's rum.

I know that at least one of them if not two of  them are new. Yesterday he went for a ride... To the liquor store obviously and drank at least a mickey last night.

I've noticed for a couple of weeks now that my son seems a bit off. Nothing major but it's there and I couldn't put my finger on what it was causing it. In the back of my head I was beginning to question if his medications were starting to stop working. Now I know why... He's binge drinking again.

My son has an addictive personality. He can't just have one... Once triggered he seems to go through phases of needing to drink. I'm usually prepared for it after his birthday or special occasions like Christmas.

I'm starting to have trouble sleeping again. Waking up every 1-2 hours. This morning it kinda clicked in my head. Before when my son lived with me this would be my sleep pattern. As any parent out there with mentally ill children know... There is no letting our guards down completely.

I'm grateful that he is still taking his medications. That's why I don't sleep... It's constantly waking up to check on him and try to 'nicely' remind/tell him to take his medications without of course triggering his defiance. Without his medications and with the drinking he is doing he can be a step away from a relapse. Sadly that is all that it takes.

He has been spending long periods again just lying there... On his back, arms crossed over his chest. I really don't like seeing it. It's how someone looks in a coffin. He's what I call in his own head space. Not a good spot for him to be in for any length of time.

Usually he is waking us up all night, in and out smoking. How much he smokes tends to go down as well when he isn't doing well. He hasn't been smoking as much at night as he usually does. He's not even smoking weed like he normally does now that I think about it.... When he's not using his main crutch (marijuana), that's a red flag.

Of all the things that my son goes through with his diagnoses, I would have to say that addiction is what I dislike the most. I think I hate alcohol. I only have to look around me and remember my own past to remind myself why I don't want it in my life, ever again.

I'm out of practice I guess... Not that there is anything I can do to change what is happening except pray that God take away his need for alcohol. Geesh... Everyone's need for it!

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2020. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Embracing what is.

It's been awhile... Sorry about that.

I remember when I was younger someone telling me they wanted to grow old gracefully. I didn't understand that then however I think I get it now. Except I prefer to think of it as embracing what is and what is to come. We are going to age no matter what. It's how we choose to deal with those changes that I guess would be the graceful part.

Granted I'm not that old yet. I'm only 43 and I don't look 43. When I'm out with my children we usually get asked if we are siblings. Kind-of cool right? Perhaps. However I'm coming into another stage of my life and I want to embrace it. I am embracing it. Are you ready?

I'm going to be a grandma! I'm so excited about this. My daughter is going to have a baby!

I know I haven't been around much lately. Here or on my Facebook page or anywhere else for that matter. Life has been pretty full lately. Work is going good and keeping me busy during the days. Winter is here. My daughter is here! She came home to have her baby and to do her schooling. She has orientation on Friday and starts classes next week. I think she is about 8 weeks along and dealing with some nausea.

Some have reservations about her being here. About her having a baby so young. I just shake my head and wonder if they have all blocked out where we were when we had our babies. I remember where me and my kids dad where when my first was born. Living with my mother. Certainly not any older or more mature. Concerns about me mothering her too much. Haha! I plan to! There are times when a girl needs her mom and this is one of them. There are times when a girl needs to be mothered and accepted with no reservations and this is one of them. Soon enough she will have to take on the responsibility of being a mother herself. For now I will more then gladly take on the responsibility of being her mother, of putting her first, because it's been a long time since anyone did that for her. For her, not just because of the baby. Her world has been turned upside down. I will do my best to turn it upside right. :)

So taking prenatal vitamins and B6 for nausea is now part of our daily dinnertime routine. We are waiting on the referral to the baby doctor for her first appointment. Boy or girl? There is always a debate on that one. I only know that I started dreaming about a little girl that reminded me of my daughter sometime last year... Either way I can't wait!

Hubby has been embracing this as well. He is looking forward to going through it all with her. Due to the weather he hasn't been working a lot lately so when he is home he takes her with him when he is out scooting around from place to place.

As you may remember from one of my earlier posts, I have been trying to grow my hair out and go natural. So yes grey. The other day I got a hair cut, short. Took off all the old blond so now it's just my natural blend. My daughter doesn't particularly like it but hubby and I love it. I like the grey. I also got a new pair of glasses as my eyesight took a bit of a dive. I got progressive bifocals. Bifocals without the line.

As for my son. Not a lot has changed. He is still in the hospital waiting to go into the treatment center whenever they have a bed available. He calls me once or twice a month to ask for money. I don't know a lot about his treatment as he still hasn't signed a release for me and for the most part no one else including himself seems that aware of what meds he is on or doses etc. His grandmother did manage to find out for me recently that the long acting injection he is on is Haldol. It seems they have taken him off the Olanzapine and lowered his Lithium. He isn't fairing so well from what I have been told. Audio, visual and tactile hallucinations. Personally I think he is using marijuana however I seem to be the only one willing to acknowledge that. He is drinking alcohol of course whenever he gets the chance.

I'm off... Have some things to do before I start work.

Mom/Grandma
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

What Does Society Teach? A Budget and Peppermint Oil.

The last couple of days I have been literally aching from head to toe as I have been hit with a cold. I haven't been working either as I have been doing my best to keep any talking to a bare minimum. Talking equals coughing. I have however discovered a wonderful cure to sinus congestion in peppermint oil. Knock on wood :). For the first time in my life-time of colds I have not had to deal with a runny nose or sinus congestion for longer then 5-10 minutes. As soon as it starts I put a dab on my finger and rub it in all around my nose and sinuses.

Dealing with my sore throat has not been so easy however I have been trying to be as pro-active as I can be. Lots of tea with honey, lemon and turmeric. Advil for my low grade fever and body aches. I was hoping to get back to work today however I'm having my doubts that will happen.

I may have to make a decision soon about work. I haven't been paid in over a month. Hubby and I were discussing a budget the other day so I took the time to write out how much we owe and how much our minimum monthly expenses are. We owe $43000. Our monthly expenses run around $5000. Add in extras like car maintenance, chiro or even us going out for dinner...

I don't even mind so much that I haven't been paid in a bit as I knew going in that this could happen. Still I can't let my boss get too far in dept with me either. It's dealing with some of the frustrations that make it not worth it. I'm trying to weigh the pros and cons of what I'm getting to what I could be getting. Yes I'm working from home and it's pretty cool to be doing that. I wanted to be able to continue to provide a certain level of care to my home and husband. Most importantly making good healthy dinners and spending our evenings together.

The last schedule change that my boss wanted... He wants me to work somewhere in the neighborhood of 9 am - 10:30 am, 11:30 am - 2 pm then 4 pm - 7:30 pm Mon-Thurs. Umm not! Plus it's a 6 days a week job. For the most part I don't mind as my husband usually works 6 days a week. Still I have dedicated most of my live to a job before and I'm not doing it again.

The pros... I get to work from home. What I've started to call my morning shift ;) I sometimes do in my PJ's. I can bake bread in between making calls. No one is micromanaging me.

The cons... I can work outside the home for less days with a more secure payment schedule.

I'm refusing to work past 6:30 pm. The other day I logged in and booked an appointment that had been confirmed through email. Through a pounding headache, tear filled stinging eyes with my body aching; I was trying to be responsible and keep an eye on my email... I booked an appointment without cc'ing someone that needs to be cc'd. Will I made a critical error... Why yes I did. I worked when I shouldn't have been working. I haven't logged in since. Things like this may be easier to take when your actually getting paid and not having to deal with the BS of someone not giving you the tools or knowledge to do your job properly.

Yes I know: The grass isn't greener on the other side... I think I take back most of the bitching I did about my old job. Every company has it's BS.

My son:

I found out on Friday that he was taking a bus to British Columbia on Sunday. Ontario to British Columbia is a 3 day bus ride.

2 weeks ago I had attended a group through the Schizophrenia Society and spoke to some of the others about how to go about getting my son admitted to hospital through court order. As usual it was a frustrating experience as everyone kept telling me that the hospital etc should have been telling me what to do. Well they weren't even with me asking for guidance. That included the PACT team. So even though I figured I had a bit of a fight ahead of me I still wanted to look into it.

I had been under the impression that my son was taking some medications as his nurse had told me that according to a worker at the shelter he was taking some. I knew that he wasn't taking care of his personal hygiene as I was helping with that when I saw him. I would get him to change his cloths and I would use wipes to clean his pits and face. Once I even took in Q-tips and had him clean his ears. Of course I had to do all this in the car since "Clients were not allowed to receive visitors".

Friday my son says to me: By the way I need to come and get my stuff because I'm going to Nanna's tomorrow. Both my husband and myself worked Friday and Saturday. Saturday I packed up what stuff he had here and took it to him. He asked if he could come home for the night and I agreed. I went into the shelter to collect his stuff and he had taken most of his cloths and electronics with him. There was nothing to collect and he was even wearing someone else's cloths and shoes.

I had thought that maybe my son and I could spend the evening together watching TV. It was after 9 by the time we got home. The first thing I had him do was put on some of his own cloths to find out that the shower he was supposed to have taken several days before wasn't obviously a good shower. He still smelled really bad. His hair and nails had been cut by his nurse from PACT. How he missed how bad my son smelled, I don't know.

I knew that my son's addiction had progressed from alcohol and marijuana to possibly cocaine and morphine. At one point I had brought one of his leather jackets home to try and clean and deodorize it but I had to throw it out. In the lining I found a baggy of white stuff. He thought he was buying cocaine. I think he got aspirin and bath salts. He did on one occasion tell me of a really nice guy that introduced him to morphine, he even had clean needles.

So many times I have fought the urge to bring him home. Canadian Thanksgiving I almost did. That morning I was going to... Then I thought it all through. To what end? I have no control over his money and therefor his ability to drink and use. When he drinks he becomes completely unmanageable in the home and puts everyone at physical risk. It would be 2 weeks of withdrawal, attitude and hopefully him just starting to get even on medications again before he got in another $600 from disability. And around it goes again. That's providing I could even keep him in the home that long.

Within 15 minutes of me bringing him home on Saturday he had spilled milk and juice all of the floor. By 10 he was outside in the back yard punching the walls. According to him he was doing art. I'm not sure either one of my neighbors that have young children were appreciating his form of art.

The fun part was when I decided to go through his backpack. The smell alone was enough to make me want to be sick. A couple of bottles of alcohol. One was almost full. My son not drink his alcohol! He was out of it to not remember that he had it. In the end I ended up tossing it and my husband went and got him a new one the next morning.

What else did I find? Lots of new needles in sterilized packaging along with Stericups... Sterilized cups for cooking your drugs in. Now don't get me wrong. I'm all for teaching addicts to be mindful of the transmission of diseases while they are shooting up. But seriously! Here's a new needle and cooking pot, don't forget to use an alcohol wipe first before you shot up with hands that are brown from nicotine and a months worth of build up body odor surrounding you. Come on! Really! I think they need to expand on these items to include a self-care manual with a toothbrush, toothpaste and at least some hand sanitizer and body wipes.

I didn't get to spend the evening with my son watching TV. I did get to spend until about 3 am with his voices. I have never seen them so bad. It was a constant dialogue between him and them. All you could hear was him whispering/talking to them under his breathe along with sporadic outbursts of laughter. Once I walked into the kitchen to him cocking and shooting a pretend gun.

He did take his medications when I gave them to him and finally they shut his voices up at around 3. Oh yes the medications I had been told he was taking. I picked up a months worth of unopened medications packages dating back to Sept 15.

I had been complacent again. After the last time his grandmother had said she wasn't taking him I thought I had some breathing room. I figured it was just a matter of time before he was admitted to hospital again. With that admission I was going to push for a reevaluation of his diagnoses since the PACT team was refusing my request. I would have also tried pushing for some sort of temporary decision making capabilities until I could further figure out how to get power of attorney through the mental health courts.

Sometimes I shake my head at myself because I really should know better. Everything was just too quiet. Whenever I asked my son if he was talking to his grandmother he would say not a lot. The PACT team stopped calling me. My son stopped asking to come home... Really that should have been enough for me to know. Hindsight is 20/20.

What bothers me the most is that I wasn't deemed worthy enough of so much as a phone call to say: Hey, I'm making arrangements for your son... I don't care what one wants to think of me personally. You can think I'm scum of the earth if you want to however the fact remains that I'm the one that carried him for 9 months and gave birth to him. The alone deserves a minimum amount of respect and consideration.

I wasn't deemed worthy enough of a phone call to say he made it there either. He did by the way.

I'm not sure how I feel about him being there. As I have been going through my own journey of letting go of things that I can't change, I know that I can't change or fix his addiction and therefor his mental health. I wasn't willing any longer to turn my home and world into circus to accommodate him. His grandmother is. Would I rather him be with her then where he was? Yes.

I don't think that it's going to have a good ending however I accept that this is what they both want.

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

A BS Interpreter needed. #9

I think I need one. A Bullshit Interpreter. Someone who can translate for me some of the BS...

What can I say. Sometimes dealing with 'professionals' can really get my dander up (piss me off).

Sunday Michael was involuntarily admitted to hospital. This would be his 9th involuntary admittance. It's the best place for him right now. I have seen him a couple of times. He is doing ok actually however he is actively hallucinating if you know the signs. Yesterday I got him into some clean cloths and had him put on some deodorant. I looked at the paper by his bed and he is on his second form until the 25th. He doesn't understand the reason: Serious bodily harm to oneself. As best I could I explained that when he isn't thinking clearly he is physically at risk of hurting himself. He said the problem was the sun, that is was damaging him...

Turns out I was right about the marijuana. He did admit to having some plus I found the pipe in his backpack. On Tuesday when we saw him, I asked him if I could have his backpack for a minute. He asked why and I said I wanted to snoop through it. Really I wanted it to clean out all the garbage but I thought it was cute when he handed it over. Whether he realizes it or not I take that as I sign that he does when it comes right down to it, trust me. It was over half full of garbage, a days worth of missed medications and of course his pipe. All went in the garbage.

I let him know that depending on what happens that I want to get power of attorney. He said that he would rather I didn't do that. I would rather not do it either however he keeps doing things that puts himself in these situations.

One nurse commented that she was shocked at the change in my son when he was around me. I guess he was pretty out of it before I visited. Yes my son can pull it together when he needs to. I think he wanted me to see how well he was doing so that I could get him smoking privileges. He did get them the next day.

When my son was first admitted and his nurse called me, he spoke of a family meeting. I hadn't heard anything about one since that so I brought it up to his nurse last night. So far his nurses have been really nice. She told me to call in the morning so that I could get the doctor as that's when they do their rounds. If anyone has had to call a hospital for a loved one I'm sure you have heard some of these. If you call in the morning it's: We are in the middle of shift change, call back in an hour. You call back in an hour and it's various responses that pretty much end with: Call back tonight. You call at night and it's: Call in the morning when the doctor is here.

So this morning I thought ok let's wait until after 8 and shift change... I call and ask if the doctor has seen my son yet that I would like to talk to him. Her reply was: It's only 8:30. Yes I was told to call in the morning, what time does the doctor normally get there to do his rounds? Before 10 and that I should call back in a couple of hours.

Hello BS Interpreter. I really need your help here...

I did request that a note be left for his doctor to call me. She said she would 'put it on the board'.

I could also use a BS Interpreter for when I get quoted privacy laws. Have you ever asked anyone who is quoting them if they have ever read them? I have and the answer was no. Guess what? I have read them. One person at the shelter quoted them at me, with my son right beside me, telling me that she couldn't tell me if he was there or not. This topic deserves it's own post and eventually I will get around to writing a good one that I'm probably going to submit to the local newspapers.

I will say this though: To anyone who is going to quote me privacy laws. Please read them first because I have and all you appear to be doing to me is protecting your own right to do less work or even use a little common sense.

I hope everyone has an awesome weekend! I'm off to get my day started.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Why yes, I'm ecstatic!

Sarcasm!

Forewarned this post may be a bit if a rant.

I saw my son yesterday. He's a mess. He has obviously been in the same cloths for a long time. He hasn't showered or even washed that I can tell. He hasn't been taking his medications. I'm pretty sure he has been smoking marijuana.

Hubby and I picked him up to take him and get cigarettes. First we had to go to the bank so that I could transfer him his $314 that I owed him from disability. The whole time we were with him he was clenching his fist with all of his strength. I knew when I saw this that he wasn't taking his medications. At one point hubby said he asked my son why he was doing this and my son replied that he was trying to make his body work right. His brain isn't working right so his body isn't going to. He ended up giving me his bank card so that I could buy the smokes for him because he couldn't 'catch his breath' to get out of the car and do it himself.

I told my son that once we got back to the shelter I was going to go in with him so he could get his medications and put on some clean cloths. He said ok. As soon as we walked in to the shelter... Hello ODD. His defiance came out of nowhere. He didn't want his medications. One of the staff said they have been talking to him about showering etc however he 'bolts' or leaves the shelter.

Hubby and I have been talking about what to do. So far we haven't come up with any solid answers. I try not to get pissy with him when he asks me what I'm going to do. But seriously, if I had the answers I would be doing it. I don't have them... I don't know what to do.

I know how much I wanted to grab my son's stuff and bring him home.

Here's the catch. I'm a recovered addict. If I want to stay a recovered addict then one thing that I need to be able to do is think things through to the end. One of the problems with being an addict is that the mind only wants to see the good parts of using. Not the negative consequences and as long as one can keep blocking out those memories then one can keep pretending that using is ok.

I forget the exact wording of what was said during an ADAPT meeting but something along the lines of: An addict will not change until the pain of using is worse then the pain of not using.

I can bring him home. He has over $300 in his bank account. He is unstable and defiant. He believes he should be able to smoke and drink in his room. It doesn't take a genius to figure out where that scenario is most likely going.

I had already said to my husband that I need to bring him home if I can put some things in place. Before I left I tried to talk to my son. I wasn't expecting it to be an in-depth conversation considering his mental state. I got worse then I was expecting. I went to crouch/sit beside him and he got mad and told me to stand up and talk to him. I don't know why he gets like this with me. I mean the not wanting me to talk to him on his level. It just goes against everything that I have read on how to talk to someone experiencing psychosis. Especially since he gets so defiant with me being the main disciplinary. Yet he still gets mad, doesn't want me on his level and wants me to take the authoritative stance. The only thing I can reason is that somewhere in his head is a recognition that he actually needs someone to take on the role of authority for him. But then his ODD gets in the way...

I asked him if he remembered talking to his Nana about not going out there. Yes. I told him that I want to take him home however I can't if he has control over his money to buy alcohol because alcohol is killing him. I want power of attorney. He refused.

A couple of days ago I received a message from his grandmother stating that she had told him no to him coming there and she hoped that made everyone happy. Needless to say I didn't respond. The sarcastic side of me wanted to answer with: Why yes, I'm ecstatic. Thank you! I figured not answering was the better option.

My daughter calls to find out if I got the message and to include the side-note that obviously Nana didn't really mean it and that she would step in and take him if she felt it was necessary.

As far as I know that plans are/were to have my son go directly into a shelter out there. So switching one shelter for another? Then I guess work on getting him into his own place since this is what he wants. Well it's what he says he wants. He knows full well that once he gets there he can say no to any form of assisted living and that if he does that then he will end up with Nana. The ideal situation for him. He doesn't have to care about anyone except himself. He doesn't have to try to be sober and stable. To be blunt, he doesn't have to try period. He will get his pat on the head while someone else cleans up after him and protects him from himself.

The rant. Can you see my son living on his own?! He can't even keep himself stable when he is living somewhere that is feeding him and providing him with basic amenities. Yet that is what him and his grandmother seem to be concocting between the two of them. Unless he is telling her that he will go into a group home out there. If that is the case and it is being believed I can only shake my head some more.

My son, in my opinion, needs several basic things. Mainly he needs long-term treatment for addiction. By long-term I'm thinking 3-6 months to start. He needs help from non-family, so he can't use and manipulate them, to help him become stable, stay stable and learn to mature and grow up. Until he gets these things. Everything else is just prolonging everyone's suffering, including and especially his own.

My son isn't stupid by no means. When I had the police take him, one of them went with him to his room to collect his things. My son was very drunk. Not as drunk as I thought. He made sure to disconnect, unplug and turn off the laptop so that I couldn't have access to it. Before leaving he wanted my phone to call his Nana. I know some may think: Well yes she is the one he knows will support him. Hmm. The one that will support him or enable him. There is a big difference.

Honestly he has support coming out his.... ;) Agencies and people just waiting for him to give the go ahead and they will be right there. PACT has peer support, group support and vocational (job) support. ADAPT has addiction support. Applications have been started for housing. He has an open file at the YMCA for free schooling at his own pace. My son is 21 and says no thank you...

He also has me and my husband. Apparently I expect too much. Expecting Michael to follow basic rules that a 5 year old can follow, clean up after himself, treat me with respect, not be violent, try to be medication compliant and engage is addiction services is apparently too  much for him. How do you respond to that? Seriously if he is that bad off then he really should be in the hospital with 24/7 care not traipsing on a plane across the country!

Where we are at now is not new. He has been here before. He has played the system, played and manipulated emotions until he got what he wanted. Freedom from responsibility, stability or sobriety.

Do you think he doesn't know that if he doesn't participate in recovery plans here that in time he will get what he wants? Of course he does. Like I said he isn't stupid.

Something I had too look at and acknowledge was/is that his masturbation episodes are tied into his alcohol use and not his schizophrenia so yes it is more behavioral. I didn't know until I found out about him calling dial-a-bottle that he was during the time of his masturbating frequently and in public, drinking almost a bottle of alcohol a day. I also found out that one of the ladies at the shelter caught him doing this in public and had to talk to him about it. I didn't tell her that I knew that he had purchased a bottle of alcohol since being there. Just like I didn't tell them that I'm pretty sure he probably has marijuana on him. Maybe that is why he bolts when expected to shower and change cloths? He keeps his jacket on and close to him when he is hiding stuff.

There is also the distinct possibility that if he gets himself kicked out of there then in steps his safety net. I may not be actively stopping this from happening however I'm certainly not going to help it happen.

Of all the blogs that I read. Jagged Little Edges is without a doubt one of my favorites. Lorelie doesn't hold any punches on what addiction is and the truth of it's ugliness is spelled out in black and white. Lorelie's last blog post: Loving An Addict Means Saying No.

A lot of Lorelie's posts are also highlighted on: Addiction Campuses

I know there are a lot of families who struggle with concurrent disorders of addiction and mental illness. I only speak for what I see with my son. He doesn't use to self-medicate symptoms. He uses/drinks to feed/satisfy his addictions. It's doing this that triggers his schizophrenia and causes the rebound affect. Also my son doesn't want to medication his symptoms. He very much enjoys his psychosis when he is in it. Probably another reason why he didn't want to take his medications yesterday. Why mess with his high? I have been around addiction enough to recognize that mind-set. I have been there. Don't eat too much before doing this drug or you will lessen the high...

I did tell the lady at the shelter that my son was psychotic and needed his medications so hopefully they were a little more attentive last night about 'reminding him' to take them. It's not a part of their duties and they get busy. Not sure I buy that. The other shelter had less staff and they did more. They followed up on medications. They searched more for drugs etc. being brought in. I know because I watched them do it. Too bad it was in such a horrible neighborhood. I have yet to see this shelter search anyone including my son. The lady asked what the signs were of my son's psychosis. To me it's obvious but I'm mom and have looked at his face for signs for years now. I asked if she knew what high looks like? What extreme exhaustion looks like? Combine them and you have my son's current face. Again I left out that he was most likely high... Really in the end it was the psychosis I'm trying to nip in the butt before something negative happens and high or not high he would still look pretty much the same from psychosis.

My appointment with ADAPT last week got rescheduled to the 18th of August. Today is a civic holiday here in Ontario, Canada so I'm not working! Hubby is :(. My work schedule has changed. Now I'm 12-6:30 Mon-Fri and I think 10:30-2 on Sunday. So 6 days a week and more hours. I may see if I can switch from Sunday to Saturday as Sunday is the one day I can pretty much count on hubby not working. The hours are being split between me and another lady. I got paid! I needed it to help cover rent due to what I had to give to Michael. I got my hair cut yesterday. Pretty short. I guess it's a bob? shorter at the back and long around the face. It feels good. I haven't had a cigarette in 6 weeks! I'm not sure how long it's been for hubby. I think 3 weeks. My homemade protein bars were a hit. We both like them. Have to make more today. I may even get back on my stepper today and do some exercise.

The above things make me happy. Certainly not the situation that my son is in or the fact that I have to fight so hard to try and get him the treatment that he needs.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

You've lost your muchness.

One of my favorite movies is Alice in Wonderland.



The above quote came to mind last night when I was lying in bed listening to my son on the phone with his Nana doing his usual venting/lying.

On Friday when his case worker dropped off his medications; no change... She wasn't there for the team meeting so she doesn't know what was said other then his nurse told her that he would talk to me about the fact that there was no change. I let her know what was happening and she said she would try to find out what was going on.

That afternoon I spent a long time with my son rubbing his back and talking to him. I had decided to order pizza for dinner and he wanted me to get larges so that he could have left-overs. I agreed. About 20 minutes later I walk into his room to ask him what he wanted on one of the pizzas and he was smoking... He told me that I needed to prove to him why he wasn't allowed to smoke in his room since he pays for it. *sigh* Yes he pays for the privilege of using it. Just like I pay rent for the privilege of using this townhouse. It's still not my townhouse. Again I remind him that his cigarettes need to stay downstairs.

What happened next I won't say as even though I blog I still don't think disclosing what he was doing is appropriate. I will just say that it was gross and he was doing it for about 15 minutes in the living room. Numerous times I asked him to stop. I asked him to take it to his room. I asked him to wash his hands. He refused to do any of it. Laughed at me when I got mad.

Yes I took away his cigarettes. I ask so little from him and give so much. I went upstairs. A little while later he comes up stating that he had washed his hands, can he have his smokes back, that he was only scratching his penis. He didn't say it so nicely to me. Also as far as I can tell he certainly hadn't washed his hands. I told him no, that he knows full well what he was doing. He punched my bedroom door twice, called me a bitch and told me to fuck off. Thankfully he walked away after that as I wasn't sure for a minute if I was going to have to call 911, which I didn't want to do.

Friday night I asked hubby to sleep in my/our bed so that I could take a sleeping pill. He agreed but then went to his own bed. *sigh* Wasn't much I could so since I had already taken it. If my son was up to no good that night then I wouldn't know.

Yesterday was pretty quiet. Once my son asked me to explain what he did wrong... Honestly he knows and was doing his normal manipulation of details to suite himself. I said I wasn't going to discuss it and reminded him that he had punched my door twice etc. He said that I deserved it. He can try to pretend/play like none of that happened with his Nana but he knows full well what he did and the difference between how he talks to me about it and how he talks to her about it is a dead give away that he knows and remembers exactly what he did. Telling her the truth wouldn't get him the same sympathy... meaning money as that is what he is looking for.

On a side not to all this. I still included him on ordering the pizza and he got to pick the makings of one large. He also got onion rings. As for the cigarettes. He is still not without nicotine. He has his vaporizer that his aunt got him for his birthday with 3 bottles of e-liquid and one of them contains nicotine. Upstairs sometimes overwhelming smells of him using it along with this incense kick that he has been on lately. The incense I'm pretty sure started to cover up the smell of cigarette smoke.

Last night when I heard him on the phone... I think a part of me broke. I just felt like crying. I just don't know what else to do. Sure I can give in to him smoking in his room. To what end? Do I next give in to him masturbating and other things in the living room? I give into that then it will be drinking... It will never stop until he is smoking, drinking & using in his room, being a complete slob, off his meds and psychotic.

Either way it's not a life I'm willing to live or have in my home.

I still haven't gotten over my withdrawal from schizophrenia related sites that started in May. I try. I log into the forum almost every morning and check for moderator related flags but the thought of reading and catching up... My Facebook page is suffering. I have not been participating or giving much support in any of the Facebook groups that I'm in. I try to read the posts but reading about more parents and caregivers going through their hell just makes me feel sick. I'm trying so hard to keep myself positive and distance myself from the negative that I can't read too much from others to even give them support.

The other day I responded to a tweet by Coach Amy White of the blog Far From Paradise. She asked what being a caregiver has taught us. My response: It's taught me that I'm stronger then I thought I was and weaker then I though I was.

If you had asked me in 2012 if I had it in me to deal with all that we have been through since, I'm sure I would have looked completely shocked and if I had known what was to come... Maybe I wouldn't have stayed at home and brought him home. But then again, he's my son and I love him and even if I didn't think I had it in me I'm sure I would have done exactly what I did. Knowing what I know now... Yes I would do it all again. So yes I found more strength than I knew that I had.

I have also found weakness. Times like now and the past couple of weeks where I just can't seem to find the fight anymore. I'm sure it's buried deep down somewhere as I always seem to find it.

Imagine where I would be without my antidepressant? ;) I'm tired. Mentally tired. I'm at a lose.

Yes I've lost my muchness... I'm off. Back to my Facebook games where I don't have to think of mental illness. Where the flowers are beautiful and things are made from magic.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Excuse me while this snob cleans your room.

The last couple of days and certainly last night and this morning are not going to good. After my last blog post Michael did start taking his Olanzapine again so only missed the one night. The week ended and the weekend was quiet.

Monday when his nurse arrived I brought up that my son had agreed to try upping his Invega from 6 mg to 9 mg as we had discussed it and he agreed. Or so I thought... We had not discussed upping the Invega to replace him coming off the Olanzapine however that seems to be what his intentions were. His nurse said that he would discuss it with his treatment team.

Michael had also brought up to me wanting to try using vitamins. I cautioned him that this can work for some however not everyone and that for the people it do work for, they take lots of supplements sometimes several times a day. Also he needs to be on them for at least several months for the levels to build up in his system before even thinking about reducing medications to see if it will work. For one day he took all the supplements I gave him. The next day refused the Omega 3, a really important one if this is going to work, and nothing since that.

As of Tuesday things have been going down hill again.

I have no idea what prompted it however he didn't take his Invega or Olanzapine on Tuesday night and was up all night. I can't tell you exactly what he was up to other then some odd stuff.

In the middle of the night, one of the times that I got up to check on him, he was totally naked and acting guilty. I didn't really register this until I was back in bed. I reminded him about his pills and left it at that.

Wednesday morning he was lying on the sofa covered up with his blanket. I won't go into detail other then based on the sounds I was hearing and how he was lying... I'm pretty sure he was masturbating. Several times I 'interrupted' him and finally told him if he was going to keep doing it that he needed to go to his room. Off he went.

Later that morning I went into his room to clean as it was getting ridiculous in there. Even though I hadn't caught him again it was obvious he was smoking in there as there was more and more ashes and tobacco all over where he was putting them out on lord knows what since he had no ashtray. The first things I noticed was that he had sometime during the night grabbed the hammer and the knife sharpener. No I don't know why and he wouldn't tell me. I moved a box to clean and behind it was cigarette butts and his Olanzapine. So that is where he was stashing what he didn't want me to find.

I took the hammer, knife sharpener and Olanzapine downstairs and calmly asked him what he was doing with the hammer and knife sharpener. Like I said, he wouldn't tell. Just said the he thought he might need them for something. Then I asked him if we were back to him hiding his pills from me. His response was to tell me to stop being such a snob and that I had no right to yell at him or give him attitude for not taking his Olanzapine. One, I wasn't yelling and two, the point was that he hid them from me not that he didn't take them and three, he was still smoking in his room and lying to me about it.

I went back up to continue cleaning and vacuuming his room. Under his table I found his Invega. He says he didn't take them because he didn't sleep. They are no longer sedating for him so that is not logical. They do however slow his mind down so that he can sleep. Anyways this logic made sense to him :). I asked him for his cigarettes as they need to stay downstairs since I can't trust him. He handed them over then out of the blue told me dinner the night before was disgusting (it wasn't). No worries I won't be making dinner tonight... I got told to fuck off.

I let him know that he just lost his cigarettes (hubby bought them). A little while later I noticed that he was going outside and leaving the yard. Red flag. I went upstairs and checked and sure enough he had gone into my closet and grabbed a pack of smokes. I asked for them back... got called a bitch so I disconnected the internet.

We didn't talk much the rest of the day ;). Somewhat later he asked me what was for dinner. Before you think that he was psychotic or whatnot and didn't remember what had happened, he did. He was very much aware of what he said to me and it wasn't said spur of the moment. It was said on purpose. I told him whatever he made for himself. Hubby and I went out... He made himself noodles.

After we returned my son asked to talk. Stating it wasn't his fault that it was because he didn't take his pills and was up all night. If he took his pills that night could he have his cigarettes back. It wasn't my fault that he didn't take his pills either and I don't deserve to be talked to like that. I told him I wasn't going to negotiate with him about taking his pills. He needs to take them because he needs to take them and no he wasn't getting his cigarettes back that day.

He took his pills :), went to sleep early and as far as I know slept through the night. Yesterday morning I gave him a pack of cigarettes. We had a short conversation about what happened and he acknowledged that I didn't yell at him and that he guesses he needs to take his pills for now. My first thoughts were: Yeah, some insight. No... He was just saying what he thought I needed to hear.

At dinner time he asked for the internet back. I agreed however let him know that moving forward he was going to be losing it for longer for swearing at me so forewarned.

Last night he asked me to rub his back. He started talking about his Olanzapine being poison so he wouldn't take it. Took the Invega. Delusional talk about forcing his body to sweat was building up muscle and made up words stating that he had learned in chemistry in school. I did chemistry for three years and I don't recall that word. Well I went to school in Newfoundland and that place is... hmm I forget the word he used but not a nice one. For starters I also went to high school in Ontario and Newfoundland however surprising it may seem (Canadians will understand the reference) had a much harder curriculum. I told him that I thought he was being delusional, that he wasn't making sense to me and went to bed.

Several time between 9 and 3:30 I checked on him and kept reminding him to take his Olanzapine. By 3:30 he started asking for cigarettes and banging on walls. His bedroom wall is also my husband's bedroom wall (remember he has his own room for sleeping) and it was waking me up in my room. Once I gave him a cigarette then told him no because he will be out of cigarettes by noon if I gave him a pack them. 3:30 he stating he was going to make coffee...

Hubby was nice this morning and fed Gucci (our cat) so she wasn't doing her usual head-butting. I got to sleep in until 6 (if you can call being constantly woken up, sleeping in) when Michael came in and got me up asking for his cigarettes. I gave him a pack. As I'm walking down the stairs I'm noticing finger prints and smudges all over the walls. Same in his room even though I had washed the smudges off on Wednesday. Now two of his bedroom walls are full of them again. He says it's from him punching the walls and skin coming off. I did find his empty Olanzapine wrapper so I'm guessing he did finally take it sometime between 3:30 and 6.

As I was walking down the stairs he said that he wanted to talk to me about something. I'm pretty sure it's about either money or most likely marijuana as yesterday he told me that he hasn't been happy for over a year now so he should be able to smoke some now can we discuss it. No we cannot. No amount of sympathy gaining/manipulation is going to make me agree to marijuana. Anyways I just told him this morning that whatever it is he wants to talk about is going to have to wait because I just got up and I would like some coffee.

A little later he sits in the living room. He knows that his bothers me. He puts his feet on the coffee table, usually with shoes on (like this morning) and bounces his legs/feet. So the coffee table is making a racket, the floor is vibrating and I haven't even finished my first cup of coffee. After several times telling him to stop it he finally went to his room. Of course he is up there making a racket that he says he isn't.

I guess it's a combination of his ADHD and schizophrenia that when he gets a bit unstable he becomes very loud physically. He doesn't walk, he stomps. He doesn't sit, he drops/plunks onto furniture. He isn't gentle with anything that he touches or uses.

I guess that good thing I can try to take away from this is having a better idea of where his stability is at (or not at). If missing one dose of medications is going to have this affect than it's good to know. Although there is something else that I have been pondering and didn't mention. I guess it was two weekends ago when hubby and my son got their hair cut. Well while at the barber we ran into his 'friend' from across the hall at the old apartment. Hubby and I tried to keep an eye on them talking just in case there was an exchange of any type (marijuana). We didn't see anything and I have been trying not to over think it however he has been starting to slip since shortly after that. Combine this with some of the guilty behavior that I have been seeing like hiding his hands under the blanket when I walk into his room when he isn't smoking cigarettes, him stating yesterday that he must have been going through withdrawal or something... has me wondering. He has been keeping his hoodies on and it's not hot in here which used to be a red flag for him having stuff on him. I have checked them when I can and haven't found anything however that doesn't mean anything. Throw in Michael now asking me about letting him smoke it when that hasn't been brought up in a long time... Oh well.

*fingers crossed* that when/if his case worker from PACT drops off his medications today that his Invega has been upped. I'm not counting on it but it would be nice. Oh yeah... He missed group on Wednesday which sucks as it was strawberry picking.

On a good note, I might have a job! Talked to a lady yesterday and went over what the position is. Basically inside sales, from home. Something a little new to me although I do have some knowledgeable of the concept, requirements and expectations since I did work for a recruiting firm for over 9 years.

I did quit smoking on Sunday. So far, so good. Wednesday was a bit of a test ;). The patches are really helping so I'm rarely getting cravings. When I do then I also have lozenges which I'm using about 3 times a day. Like now :).

My goal today. Getting my son in the shower. It's been weeks and it's been a bit since I washed him. Also the last shower he did have, didn't help much. The big question: How to accomplish this?

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

I'm seemingly not living very well. The 4 C's and Acceptance

'I'm seemingly not living very well.' Is what my son said to me yesterday when I pointed out for the umpteenth time that the patio table was not an ashtray. No he is not functioning very well at the moment.

The fact that he recognizes that he isn't living/functioning very well, I think is a good thing.

I don't know if it's that I'm perhaps a bit fed up with schizophrenia or if it's that I have been going through a phase of acceptance. Both I guess. On one hand I don't seem to have the motivation to be blogging, tweeting etc about mental illness. I think I just needed a bit of a break from it on social media and honestly I'm staring it in the face 24/7 at the moment and that's enough for me right now.

To a certain extend I have always accepted schizophrenia however I'm not sure I accepted how little control I have over it. On Monday and Tuesday evening my hubby and I attended a group through ADAPT for caregiver's of concurrent disorders (addiction and mental illness). Yes I pointed out that according to the DSM that addiction is now considered to be a mental illness ;).

For the first time I am seeking help in dealing with or coping with what our family is going through. It feels good. The 3 C's came up with a twist and I really liked it. The 4 C's: I didn't Cause it, I can't Control it, I can't Cure it but I can learn to Cope. I have always accepted that I didn't cause it and even that I don't have very much control over it however I have still been trying to control it to the best of ability. That ever present hope that if I do enough then my son will go into remission and start to build a life for himself.

I still have that hope however I can't build his life for him. I can't cure his schizophrenia. I can't...

It's been just over 2 weeks since I took him off the Latuda and started the Olanzapine. It's felt like a long 2 weeks. I have to keep reminding myself that it's only been 2 weeks. If someone broke a limb no one would expect recovery in just 2 weeks. You are looking at months at least. Even with the common cold it can take up to 3 months for the cough to completely go away. Yet here I am thinking: It's been 2 weeks, why hasn't the medication fixed this yet? *face palm* I really do know better. It's just hard to watch and wait.

Something that has been on my mind lately is something I read in an article about asylums or better yet how we need long term facilities. We do. I remember reading that people going through crisis had a place to go and just be or adjust, taking all the time they needed. I wonder if my son needs time to just be and adjust. Time to learn and recognize his own schizophrenia.

Over the past couple of weeks I have been noticing things. When I ask my son if he is hallucinating I don't get the auto-response of no. Now it's I think so. He is learning to recognize that what he sees, I don't. One day I noticed that he was very clammy/sweaty and asked if he was having an episode and he answered with I think so.

So I'm thinking: If I jump in and up his medications is this the right thing? On the surface the answer may seem like a yes. I'm not so sure. Maybe he needs to be in a place where he is stable enough to be aware of what schizophrenia is doing to him so that he can learn or see what it is also keeping him from doing. Living!

He seemed to be slowly improving until Wednesday when he went to the library with part of a group through PACT. He came back a bit more symptomatic and that night didn't sleep well. Yesterday he was off again and I even caught him masturbating in the living room. Can't say I was impressed with that ;). I let him know that I didn't like it and asked him to not do that in the living room. He agreed...

I think the stress of going to the library was too much for him right now. For a bit I actually wondered if he smoked marijuana with someone however I didn't see the other signs and he wasn't relaxed at all so I'm ruling that out. When I told him that he needed to get ready to go he said he didn't want to.  I reminded him that he had told his case worker and nurse that he would go. I got him clean cloths and got his backpack ready for him. I didn't tell him that he had to go or that he could stay home. I let him know that if he found it too much that he could come home and that I think he should at least try that getting out may be good for him.

What struck me during the above conversation was like a flashback to when they are small and don't want to go to school. That's another twist that schizophrenia has thrown at us. He has been childlike for lack of a better word. Even my hubby has commented that sometimes when he answers me it's like he is a kid. Him not wanting to go to group was like a child not wanting to go to school. He went because even though I didn't tell him he had to, I didn't tell him couldn't and like a child he was in a way doing what he was told.

My main goal this last couple of weeks has just been to keep him on a good schedule for bed and spending time with him. I have been massaging and scratching his back whenever he asks which is 3-7 times a day. Sometimes at 6 in the morning... oi. It would be nice if it was after I had my coffee but oh well. When he asks, off I go. Every night I spend time with him, just cuddling/holding him. I was a little uncomfortable with this in the beginning however I have lightened up about it. When I first started massaging his back I could visibly see and feel him relax as I was doing it. I think it's been a good experience for both of us. It seems to be bringing us closer together. Hubby has been vacated to the smaller sofa while my son and I occupy the big one, while we watch our TV shows after dinner. Sometimes he puts his head in my lap. Yesterday I even got him to take 2 omega-3! The day before 2 multi-vitamins. I smiled when he walked away because I don't think he even realized what had happened. He stopped beside me while I was getting hubby and I our supplements, I handed him the multi-vitamins and he took them. :) Same with the omega-3. I offered him 2 and first he said no so I asked him to take just one and he decided to take both of them!

It's been a lot of going behind him and putting stuff away. Making sure things are turned off or reminding him that he has things turned on, like the deep fryer ;). I have been pointing all these things out to him however I have been doing it with a very loving tone. No judgments or being mad. Just letting him know that he isn't doing them. I think that is why he was able to say or see that he isn't living (functioning) very well. He knows that he hasn't been able to do these minor things.

I haven't been taking him out much. Realistically I think that even grocery shopping would take more energy then he has right now. I haven't told him that he can't come with us however I have stated that being clean needs to happen for him to come. Since he doesn't have it in him to really do this then he decides not to come. No worries he still gets his fair share of treats and usually McDonald's that we pick up for him on the way back.

With the hygiene thing... Again I have been pointing it out and again with a loving tone. Last weekend we got him new track-pants as he lost some weight and although the same size, they fit him better due to the style. That night I let him know he needed to get clean and put on clean cloths. He asked if he could not shower. I let him know that he didn't have to but I was going to clean him. He replied: You're going to clean me, ok let's do this... I washed his pits, neck, face and hands and had him put on all clean cloths. He even asked me to get him clean underwear. ;)

Slowly he seems to be becoming more aware of things like his own body odor. Baby steps right?

I'm in the middle of making flat bread as hubbies family is having a get together tomorrow. Not sure what to do about my son. Yesterday he was asking about the date and checking his bank account. Addiction... While he wants to come tomorrow, as soon as he realizes or remembers the date again... Take him with us when he will have triggered symptoms again or leave him home alone with no one making sure he isn't burning the house down ;)

I almost forgot. I finally booked camping! Next Saturday so that should hopefully give him something to look forward to.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Bye bye Latuda

I was really hoping or had high hopes for the Latuda as I have heard of good results with it. However the small positives that I have seen are in no way outweighing the negatives. Honestly I'm not sure that the small positives I have seen are even as a result of the Latuda. The only positives I have been seeing is my son sometimes picking up after himself and making himself things to eat which most likely can be attributed to years of me trying to install this habit in him.

My hubby took my son out with him to clean the car on Saturday and they came back with these for Mother's Day:

My son came downstairs where I was doing laundry and gave them to me saying: I thought these would do you. Meaning he picked them out and thought I would like them. He was right!

As I mentioned on Friday he went to the liquor store. I don't think he drank everything on Friday although I can't say when he finished it. One day earlier in the week he threw out the empty bottles. This time he  managed to hide them so that they weren't obvious.

After I cut the Latuda from 80 mg to 40 mg it was still several days before he actually took it and kept it down. He has been vomiting off and on. I wasn't sure if it was the Latuda causing this or not but I'm pretty sure that it is. Although part of it could also be how much he is smoking.

On Monday his new nurse visited. He seems nice... Sometimes my husband will comment that we need someone with more experience. I tend to agree ;) I don't know if it's that I'm so involved in researching medications or watching for signs, however I find that most of his treatment team just don't seem to get it. Maybe I think that I know more then I do. I know what I'm seeing and I know what my gut is telling me and I'm listening.

First I got the run down on cutting pills in half... Hmm... Ok way beyond that. I did my research first. I think I may have gotten chastised for cutting the dose as "How is the doctor going to know if the medication is working as prescribed?" The dose as prescribed was landing my son in an hallucinating state that could have had him suicidal if I hadn't intervened. So thanks for the input but my son is my priority not the doctor.

My son was looking at his nurse, not listening to him, and smiling to the point of almost laughing. His nurse was glad to see him happy... I found that a bit ludicrous, no pun intended. He's not 'happy', he's experiencing symptoms. My son continues to deny voices and hallucinations if asked outright if he is experiencing them. It's obvious that he is. Something I have difficulty pinpointing is the difference between intrusive thoughts and voices. Personally I think that are pretty close to each other with voices perhaps being one step above intrusive thoughts. Intrusive thoughts implies that they are intruding or not wanted however if one is welcoming them then one wouldn't consider them intrusive. Still they are not, for lack of a better description, our own thoughts. So I asked about the difference. His nurse explained to me the difference between thoughts and voices. I guess he missed the word 'intrusive'.

Monday and Tuesday he managed to keep down the 40 mg doses of Latuda. Yesterday (Wednesday) he vomited twice. Once all over the bathroom. That was fun to clean up ;). Since Friday he has started with hand movements, like he is flicking something. It has been progressively getting worse. Now he is doing it almost all the time about once every minute or less. If I hold the hand that is doing it, he starts with the other hand. He says that it isn't bothering him however it IS bothering me because I know it shouldn't be happening. The last 2-3 days he has become very needy in wanting me to cuddle with him. Wanting to sit almost on me on the sofa. Wanting me to file his nails and rub and scratch his back. I'm doing my best to accommodate this change and spend more time with him. Last night he wanted to sleep in my bed. Sadly this is something I'm not comfortable with however I did hold him for awhile in his bed.

Yesterday morning I talked to his case worker. She has been with us since, I think, July of last year. Possibly before that. One thing that I truly appreciate about her is that she listens to me. She doesn't cut me off mid-sentence when I'm telling her about what I'm seeing (his new nurse does as have others). In fact she has commented what a good thing it is that my son has me. She doesn't question the decisions that I make when it comes to medications. Like I said, she listens. So she knows that I make the decisions that I do with some knowledge of what I'm doing. At least that is how I'm reading it ;). I feel reasonably confident that what I tell her gets relayed to the psychiatrist with the appropriate emphasis on the concerning things that I see. With all the others... not so much. Even if she doesn't agree with what I'm doing she doesn't chastise me for it, instead brings it to the attention of his psychiatrist.

Yesterday his case worker and I agreed that my son is regressing. That what I'm seeing is not right for my son. I could tell that his hallucinating is getting worse again. He is lost. Goes the cupboard and doesn't seem to know what he is there for. I could tell by how he is walking that he is mentally lost. Some of his behavior has been almost child-like. After he vomited yesterday evening I told my hubby that Dr. Barb is saying no more Latuda. ;) I've tried to give it a chance however enough is enough.

This morning I called PACT and left a voice message as I know they are having their team meeting today with the psychiatrist and I wanted them to be aware of what I was doing. Last night I gave my son 10 mg of Olanzapine. He seems quite willing to go back on it. Yup, conundrum that he is! He was put on the Latuda because he decided to come off the Olanzapine. *sigh* I gave it to him around 8:30 last night. Put him to bed shortly after, spending time with him cuddling. Found out that there was a war going on his head... When I checked on him around 10, he was sleeping and snoring! As if that was a sound I ever thought I would be happy to hear and I was! I don't think he has had a sound sleep for over two weeks now.

I haven't been in the backyard for the past couple of days as it's been a bit chilly. I went out there this morning as when I looked out there I saw a pile of cigarette butts on the patio table. There is an ashtray on the other side of the table. I guess it was too far away and my son has been butting out his cigarettes on the table. There was butts everywhere. Some of them I could tell hadn't even been put out but went out on there own. It's a good thing there is no smoking in most of the house or there is a distinct possibility we could have been dealing with a house fire. I cleaned them up.

His nurse called me back after receiving my message this morning. I sat there silently fuming as he chastised me for making medication decisions without the psychiatrists ok. Finally I got blunt with him and told him that I'm going to do what I think is best for my son. I know what he has been prescribed and why. Keeping him on medications that are not working and making him worse, regardless of the doctor's orders is not going to happen. He kept cutting me off when I tried to explain what I have been seeing. Basically we ended the call with me saying that my son's psychiatrist should have enough understanding of me by now to know that I'm going to do what I think is best. If history is any indication he has yet to go against any of my decisions and I seriously doubt that he will this time either. The goal is to keep my son out of the hospital not put him there.

I think I need to do some research on medications. I think we need one that only affects dopamine and not serotonin as well, as most of them do. For me the only question right now is what dose of Olanzapine. Previously he was taking 20 mg a day which is supposed to be maximum dose and I would rather not go back to that if we don't have to.

Today he seems a bit better. The hand thing is still going strong. I'm guessing that will take time to go away however if I don't see an improvement in it within the next day or so I will be addressing it further.

We had our follow up appointment with ADAPT on Monday. It's at the mall which is like a 10 minute walk. My son will not be continuing with them. Voluntary and all that crap and he doesn't think that drinking 400 ml of 40% alcohol is a problem. So there you have it. I'm going to continue with them. I need the support and help learning to better cope with being the parent of an addict with mental illness. I have already booked an appointment for next month and registered with some sessions on the 25th and 26th. They also offer support and funding for quitting smoking so I'm going to get hubby and I registered so that hopefully they can provide us with free patches!

I did start the process of registering with a company for work from home opportunities. Been meaning to finish that for the past couple of days.

I wrote a piece for a book that I'm going to be participating in. It's currently pinned to the top of my Facebook page if any of my readers who are parents or caregivers are interested in telling their story and helping to support the non-profit that is putting it together. You can find my Facebook link on the side of this blog or by clicking above.

May 17-23 is Schizophrenia Awareness Week. I had grand intentions of creating a whole lot of literature and informational pieces to highlight on my Facebook page and the event that I created. I still have today and tomorrow...

PS: He has been continuing to take his Invega!

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

What a conundrum he is.

Conundrum, riddle or puzzle... Yes that is my son at the moment.

He didn't sleep much the night before last so I wasn't sure if he was going to be able to get up when his psychiatrist showed up yesterday morning. We spoke for a bit before I got my son up. I gave him a quick overview, advised him how to get a more accurate response regarding voices/entities and discussed my concerns about upping the Invega and what our options were.

Then I got my son up. He seemed to respond better with the psychiatrist then with the new nurse and was more alert. My son has known this psychiatrist for awhile now and seems to like him so that probably helped. As I advised his psychiatrist asked him about the entities (rather then do you have voices?) and my son's response was more honest and he replied that yes they are there and that he has voices.

It was agreed that we would try adding Latuda instead of upping his Invega because upping his Invega could have the opposite affect to what we are looking for and it could actually drag him down. We didn't mention losing his libido but I'm guessing the psychiatrist was also taking this into account and that's what he meant my dragging him down. I told the psychiatrist that my son seems to do best on lower doses of two medications and since this is what we are going to try then we seem to be on the same page. We discussed weight gain and I let him know that the only time I have seen this due to medications is on 450 mg of Clozapine. Other then that my son's weight doesn't fluctuate that much. For me this is another reason to keep him on lower doses, if possible, as weight gain could become a reason to be non-compliant and we don't need to give him reasons for that. ;)

The only question my son seemed to have is if the Latuda would help with stress. Yes it will. Some information on Latuda here: Lurasidone/Latuda. I know that I have heard of good results with it and that it can also act like an antidepressant while it is still an antipsychotic which is a good match for my son. I have never seen antidepressants help him. As with his Invega it is an atypical or next generation medication and is what they call cleaner so has less side affects. I'm very hopeful of this combination as being on two medications that are considered cleaner and keeping to lower doses should work out well.

I was expecting that my son would go back to bed after the psychiatrist left. He didn't and in fact seemed to have an ok day. The voices are there but they didn't seem as bad. Yesterday was my hubby's birthday so I thought I would 'try' to bake him a chocolate cake which of course I didn't have. I asked my son to walk to the corner store with me. He asked if he could get two things. It ended up being five things... They didn't have a chocolate cake mix.

When we got back he went up to his room with his treats and got on his computer! Happily listening to the sounds of his computer gaming, I looked through my cupboards and came up with the idea of a vanilla, strawberry and whipped cream cake to make for my hubby along with some double chocolate chip cookies. The cake was a hit! Surprisingly since my baking skills are not so great and as is usual for me I wasn't following a recipe.

While I was in the kitchen I noticed that my son was snacking on things like he usually does when stable. And he was cleaning up after himself! I know! I didn't say anything. Randomly talked to him, joined him outside for cigarettes and gave him a cookie when they were done. Once when he walked by me I commented that he really needed a shower or at least a change of cloths and off he went and put on clean cloths! Minus socks ;)

Hubby came home and was pleasantly happy about dinner. He was really hungry and expecting that it would be something like fish and rice as he knows this type of diet can help my son. However it was his birthday dinner so it was steak, corn on the cob and baked potatoes. My son really enjoys steak and corn on the cob as well so he ate good too. Win win!

After dinner I asked my son if he wanted tea. First he said no then he said yes. I made us all tea, put out all of our vitamins as I usually do and put on our TV shows. Reminded my son that the vitamins were there once then left them alone. A little while later I went to pick them up and put them away and just commented: I guess you don't want these? First he said no then said wait I will take these (picked up the multivitamins), I will take this too (picked up the B50), I guess I will take the fish ones too... So he took them all! It was after 8 so I went and got his Invega which he took then and there.

We all went out for a cigarette and when we came back in I asked him if he felt like taking his Melatonin tonight. He said sure... So I got him two and put them in his room. He was on his computer when hubby and I went to bed. He was eating a candy... I know that may sound like something small however after a week of seeing him in such a negative symptom swing it was a welcome sight and I went up to him and hugged him tight, telling him I loved him. Stumbled over my words as I said something like: It's good to see looking better... or acting better.. or... I paused and finished with: It's good to have you back. He just smiled at me, hugged me back and told me he loved me too.

I think it was around 11:30 that I woke up and checked on him. He was in bed but awake. I asked him if he had taken his Melatonin and he had forgotten so he took them! As far as I know he slept through the night until 9:30 this morning.

PACT called around 9 to see if he wanted to go on there outing today which is I think a trail walk. I woke him up to ask him and he said no. Thirty minutes later when he got up, I brought it up again asking if he was sure. He said he woke up in a bad mood so no. I said ok but it's a trail walk so in nature which you like. He replied with yah I might like that. Call them back and tell them I want to go. I called and left a message stating that if they still had a spot left that he wanted to go so hopefully they will call back. It's supposed to be a pretty nice day out.

So ya... I'm slightly bemused at the change since we haven't added the Latuda yet. He's adjusting to no Olanzapine? I have no idea. I'm just glad to see him functioning a bit better. I know that some would recommend interacting with him more, to pull him out of his head when he isn't doing well but I tend to give him his space to a certain degree. When the voices are bad then I'm just another voice talking to him and I think that can stress him even further. I know I wouldn't appreciate it if I had a room full of people talking at me and someone else decided to chime in ;) I know that doing even minor physical or 'real life' things takes a lot of energy and I don't need to be an extra stimulant for him if I can help it. Just like yesterday... When he is ready and able then I'm there.

I should get going. He asked again about camping last night so I should look into booking something in the relatively near future. I also need to follow up again with disability as the pharmacy supplying his medications still hasn't received his drug cards for March and April.

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Jinxed! A new nurse.

Logically I know that my last blog post highlighting the good didn't actually jinx things. Still it feels like schizophrenia is somewhere saying: na-na, na-na, boo-boo... I'm better then you. I got your son... (again)

By Tuesday morning the negative symptoms were obvious. His case worker dropped by with something for my son to sign so she could help straighten out the disability thing. She commented on how 'flat' he was. One word answers. No expression.

I guess it took a week for the Olanzapine to come completely out of his system.

For a couple of days I was managing to get some vitamins in him although it was hit or miss on which ones. One day he took his multi-vitamins. The next day the B50. Another day the omega-3 because he thinks the multi-vitamin is giving him energy. Now he is not taking any of them.

He has been eating dinners as I have been trying to make things that I know he likes and is healthy to keep him eating. He is not eating outside of that.

His sleeping is all over the place, when he does sleep. He won't take his Melatonin for some reason. This kind-of sucks because the Melatonin we take has 5-HTP and L-Theanin which can help him.

Friday I actually left him home alone for the most of the day. After being up all night and the previous two days he had finally gone to sleep. It was a busy day for hubby and I. Hubby had two doctors appointments and each of them were over an hour. We had car parts to get. Also Friday was the last day of my hubby's interlock condition on his license! If you don't know what this is then it's a device that is put in your car to make sure there is no drinking and driving. He is finally free of it! So we had to go to the license place and we had to go have the device removed from the car which was another hour long appointment. I must say that although a long and tiring day, it was good to be out of the house doing 'normal' stuff.  My son's case worker stopped by to check on him since I wasn't home.

Hubby walked away from the doctor's appointments with a ton of medications ;) He has been coughing up some green/black stuff and green is usually a sign of infection so he got antibiotics for that. He also got something for his back. While I'm all for chiropractor first... He was still not getting much relief and these seem to be helping his back to relax. Which should help his next adjustment go even better.

My son was up when we returned, playing online. This was the last time he played online that I'm aware of. I was worried that he might not be ok if he woke up and I wasn't here but he seemed ok. Said he didn't call because his phone was dead but that he was charging it. He did answer the door to his case worker.

Saturday we took him with us to help out my hubby's son with an errand.

Yesterday he decided not to go grocery shopping with us. This doesn't happen very often. He really likes to go but I'm guessing even doing that is becoming too much for him at this point. Yesterday was also his Dad's birthday. I brought it up once but I didn't bring it up again because I know he can't process it right now.

Tuesday his case worker told me that he has a new nurse coming on board. His case worker has been seeing him almost every week however I do believe this is supposed to be a nurse making the weekly house calls. His from awhile ago is on maternity leave. So his new nurse dropped by today. He seemed nice and my son seemed to be ok with him.

I actually took myself to the basement for a cigarette while he was here to give them a chance to talk as I know I have a tendency to interrupt... I think I did pretty good and only interrupted a couple of times ;) It was easy to tell that participating in the conversation was a struggle for my son. I'm surprised he managed to ignore the voices as well as he did. His nurse commented that his answers where pretty short and one worded... Yes that's all he is capable of right now. Actually this was the most he has spoken in days. It can take several times asking just to get an answer on what type of tea he wants after dinner. Not that he drinks it but I keep hoping that he will and take the supplements I keep putting out.

I walked out with the nurse and filled in some of the blanks and corrected some things. Like I told him, I don't know if it's my son being delusional or if he just knows what to say. He doesn't give accurate information on questions about sleeping, eating or activities. He told his nurse that he went to bed at 11 last night. I think this is because he has been told that it's a good bed time. He went to bed at 2 when I got up and had him go. He was wide awake at 5 when I got up. He didn't sleep. Same with eating. He says he has been eating good. Dinner only for most of the week now. He says he has been playing his games. He hasn't since Friday. He says that he has no voices. I told his nurse we call them entities. They started becoming obvious last Monday.

His smoking is up and down. His fingers are brown, I noticed last night. He may go awhile without but then will smoke sometimes three in a row. That seems to be lessening today. So while smoking a lot is not a good sign, smoking less is an even worse sign. When he is smoking a lot he is stressed. When he isn't smoking much than he has gone further into his head. He has actually been smoking the cigarettes that he didn't want (we couldn't return them, we tried) and not even complaining about them which isn't like him.

After several days of me nicely hinting, my hubby actually managed to suggest and get him into a bath on Thursday. I think he has been in the same clothes ever since. Will have to try and get him in clean clothes today after he wakes up. I'm pretty sure he is sleeping now. He had a short snooze yesterday but other then that has been awake since possibly Friday around noon. It's hard to tell sometimes. He will go to bed when I prompt him but that doesn't mean he is sleeping.

His nurse set up an appointment with his psychiatrist for tomorrow morning. That's an appointment that has been long overdue. We certainly need to do discuss his medications and how to proceed. I know I have been hesitant about upping his Invega due to possible lose of his libido however that doesn't seem to be happening right now anyways and honestly it's not something we need happening right now as when he is like this he can have no sense of keeping it private.

ADAPT called me this morning. She apologized for taking so long to get back to me. I let her know that my son seems to relapses so we set up a tentative follow up appointment in two weeks. She also gave me some information on the next family event that deals with concurrent disorders, mental illness and addiction, and who to contact to register. I have actually met the lady that I am to contact. We meet through the early intervention program my son was in before PACT. I have also talked to her at an event I attended through the Schizophrenia Society of Ontario.

I'm off. Gucci is demanding some petting time and the homemade beef jerky I made is calling my name...

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

I never thought the day would come...

when I would actually be somewhat thankful that my son wasn't taking one of his medications. What a contradicting feeling that is as it's not, in my opinion, for a good reason.

Early yesterday my son asked if we could go to where we buy cigarettes and exchange the ones he has as they are too strong. He has been smoking this kind for at least two weeks. Too strong cigarettes and my son are not something you can put in the same sentence, normally. The stronger the better and he is always searching for a stronger kind that gives him that 'hit' that he so enjoys. My son currently has over three cartons of cigarettes which include three different kinds. Apparently one is now too strong, one is too weak and the other... he just isn't smoking them. The ones that are too strong are the more expensive ones. I'm pretty sure the intent here was that if he exchanged them for a cheaper kind then he would have money for alcohol. I said no to going.

Awhile later he seemed ok with the idea of adjusting how he is smoking these cigarettes so that they aren't as harsh. (!) This was followed up with the statement: Nana is sending my $30. Does she know that this money is going to go on alcohol? Yes, she said not to go overboard with it and I won't. Right, because buying 1-3 mickeys (375 ml bottles) of alcohol and drinking one in less then two hours isn't going overboard... He can get a mickey for $10, so $30 would get him three plus one of the tiny bottles of whatever it is that he also gets. All of these are 40% alcohol.

For the past two days I have been watching/listening as the voices are coming back and he is laughing out loud and being distracted by them. He is of course denying it. I didn't say anything else about it to my son... I posted this on my Facebook page:

Looks like my son will be drinking tonight. Recently stopped his Olanzapine cold turkey and is laughing at voices, so let's add some alcohol why don't we. I don't know who is worse

My daughter calls me to tell me that she spoke to Nana and she isn't sending the money that she didn't know he was off his Olanzapine.

Really?

I wrote this on April 13:

Today for the first time in a very long time I had trouble getting him to take his medication. He doesn't want to take his Olanzapine any more.

I know she read this blog post because we talked about it when we spoke the following day.

I wrote this on April 14:

As of Tuesday he is refusing to take any Olanzapine.

Maybe this one hadn't been read yet...

My daughter called me when hubby and I were at our chiropractor. Can you say subluxated? Usually I'm easier to adjust. My chiropractor asked what I've been doing? My son's grandmother is trying to give me a heart attack but other then that.... ;)

My son was waiting for us in the car since he usually comes with us for the car ride. I heard him on his cell saying something like: Wouldn't you be angry if you were being forced to take pills...

So I went to bed with the thought of what a conundrum. IF he was taking his Olanzapine then he would have been sent the $30? I'm not naive. I obviously know that when he gets money at the end of the month that he will spend some of it on alcohol. I was thankful that it was two weeks away so that we would have a better idea of how he was going to react coming off the Olanzapine cold turkey. I do live in reality (my reality anyways ;)) and I know I can't stop it but to enable him and help him...

April 13:

Nana's intentions may be good and I know are coming from a place of love... When my son pulls on her heartstrings with how much he needs to drink or get high because he is so unhappy, stressed, anxious and there is nothing for him in this world... Will she have the willpower to say no? Will she be able to put aside how much she loves him and how much her heart is breaking for him to make the right decisions? Will she be able keep her home drug and alcohol free even if that means him 'going to the streets' to get it?

I guess IF I had any doubts as to the answers to above... She can barely say no when they are pretty much on the opposite sides of the country. Can you imagine face to face?

My hubby says to me that I need to do something to stop this. Like what? A restraining order of zero contact crossed my mind... Yes I'm aware that's an overreaction. ;)

My son also called Ontario Works yesterday about getting his own place. He is not happy about the amount of money he is getting. Because of the letter from British Columbia's disability stating that he was on disability out there even when he was living here in Ontario, they are considering his payments while here as an over-payment and deducting $40 from his portion. He is still getting $100 and the only thing he needs to pay for is his cigarettes which he can get for $17 a carton. I even helped pay for his last ones and bought him a carton. Plus he got $60 from the government recently. I have informed his case worker at PACT so she can follow up and try to fix it, again. His motivation for getting his own place... More money and the ability to drink and/or abuse drugs.

I get that someone might read this and think: It's just alcohol. It's not just alcohol. It's like a member of AA not wanting to be associated with a drug addict because 'I don't use drugs!'. Addiction is addiction. It's been a battle to get my son from being a chronic marijuana smoker. How long before he is again? If he wanted money for heroine or cocaine would that be ok? I would hope that that line wouldn't be crossed however I don't see much of a difference in helping him drink or helping him get cocaine when drinking/using triggers his schizophrenia. Maybe it's just me.. It just seems so obvious to me at this point...

Enough of the negative... Out of the blue my son hugged me last night! One of those rare, you can actually feel, type of hugs. I held him for a moment and asked what that was for. He feels lonely and wants a girlfriend that he can cuddle with. Yes I know... Tear at your heartstrings...

He is not going to find that in the bottom of a bottle be it alcohol or benzos. We discussed him getting out with PACT's group on Wednesday as he declined going to the last one. It was bowling. Also when they called we were in the middle of a pretty in-depth conversation about his schizophrenia and voices. I won't make this post much longer with all the details. I was curious to know if his voices have ever threatened me. He said that they have told him to kill me or they would kill him and he waited for them to kill him because he wasn't going to kill me. That when they do this he creates his own 'robots' to keep them away from him. A lot of words that would take me forever to write and interpret into language that others would understand.

I'm pretty thankful actually that I can understand as much as I do. We manage to talk out a lot of what he is experiencing and I'm able to interpret what he says into 'normal English' and sometimes give him the medical terms for what he is telling me.

Anyways I should go... It's after 12 and I have been up since 5:30 when the little one below was headbutting me to get up and feed her.

So far all I have done is the dishes. Hubby brought home some stones yesterday for the backyard and it's a nice day out. Also a couple of days ago I received my new Dyson vacuum that I ordered with my Aeroplan points that I haven't used it. So I'm off to face my day...

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.