Bye bye Latuda

I was really hoping or had high hopes for the Latuda as I have heard of good results with it. However the small positives that I have seen are in no way outweighing the negatives. Honestly I'm not sure that the small positives I have seen are even as a result of the Latuda. The only positives I have been seeing is my son sometimes picking up after himself and making himself things to eat which most likely can be attributed to years of me trying to install this habit in him.

My hubby took my son out with him to clean the car on Saturday and they came back with these for Mother's Day:

My son came downstairs where I was doing laundry and gave them to me saying: I thought these would do you. Meaning he picked them out and thought I would like them. He was right!

As I mentioned on Friday he went to the liquor store. I don't think he drank everything on Friday although I can't say when he finished it. One day earlier in the week he threw out the empty bottles. This time he  managed to hide them so that they weren't obvious.

After I cut the Latuda from 80 mg to 40 mg it was still several days before he actually took it and kept it down. He has been vomiting off and on. I wasn't sure if it was the Latuda causing this or not but I'm pretty sure that it is. Although part of it could also be how much he is smoking.

On Monday his new nurse visited. He seems nice... Sometimes my husband will comment that we need someone with more experience. I tend to agree ;) I don't know if it's that I'm so involved in researching medications or watching for signs, however I find that most of his treatment team just don't seem to get it. Maybe I think that I know more then I do. I know what I'm seeing and I know what my gut is telling me and I'm listening.

First I got the run down on cutting pills in half... Hmm... Ok way beyond that. I did my research first. I think I may have gotten chastised for cutting the dose as "How is the doctor going to know if the medication is working as prescribed?" The dose as prescribed was landing my son in an hallucinating state that could have had him suicidal if I hadn't intervened. So thanks for the input but my son is my priority not the doctor.

My son was looking at his nurse, not listening to him, and smiling to the point of almost laughing. His nurse was glad to see him happy... I found that a bit ludicrous, no pun intended. He's not 'happy', he's experiencing symptoms. My son continues to deny voices and hallucinations if asked outright if he is experiencing them. It's obvious that he is. Something I have difficulty pinpointing is the difference between intrusive thoughts and voices. Personally I think that are pretty close to each other with voices perhaps being one step above intrusive thoughts. Intrusive thoughts implies that they are intruding or not wanted however if one is welcoming them then one wouldn't consider them intrusive. Still they are not, for lack of a better description, our own thoughts. So I asked about the difference. His nurse explained to me the difference between thoughts and voices. I guess he missed the word 'intrusive'.

Monday and Tuesday he managed to keep down the 40 mg doses of Latuda. Yesterday (Wednesday) he vomited twice. Once all over the bathroom. That was fun to clean up ;). Since Friday he has started with hand movements, like he is flicking something. It has been progressively getting worse. Now he is doing it almost all the time about once every minute or less. If I hold the hand that is doing it, he starts with the other hand. He says that it isn't bothering him however it IS bothering me because I know it shouldn't be happening. The last 2-3 days he has become very needy in wanting me to cuddle with him. Wanting to sit almost on me on the sofa. Wanting me to file his nails and rub and scratch his back. I'm doing my best to accommodate this change and spend more time with him. Last night he wanted to sleep in my bed. Sadly this is something I'm not comfortable with however I did hold him for awhile in his bed.

Yesterday morning I talked to his case worker. She has been with us since, I think, July of last year. Possibly before that. One thing that I truly appreciate about her is that she listens to me. She doesn't cut me off mid-sentence when I'm telling her about what I'm seeing (his new nurse does as have others). In fact she has commented what a good thing it is that my son has me. She doesn't question the decisions that I make when it comes to medications. Like I said, she listens. So she knows that I make the decisions that I do with some knowledge of what I'm doing. At least that is how I'm reading it ;). I feel reasonably confident that what I tell her gets relayed to the psychiatrist with the appropriate emphasis on the concerning things that I see. With all the others... not so much. Even if she doesn't agree with what I'm doing she doesn't chastise me for it, instead brings it to the attention of his psychiatrist.

Yesterday his case worker and I agreed that my son is regressing. That what I'm seeing is not right for my son. I could tell that his hallucinating is getting worse again. He is lost. Goes the cupboard and doesn't seem to know what he is there for. I could tell by how he is walking that he is mentally lost. Some of his behavior has been almost child-like. After he vomited yesterday evening I told my hubby that Dr. Barb is saying no more Latuda. ;) I've tried to give it a chance however enough is enough.

This morning I called PACT and left a voice message as I know they are having their team meeting today with the psychiatrist and I wanted them to be aware of what I was doing. Last night I gave my son 10 mg of Olanzapine. He seems quite willing to go back on it. Yup, conundrum that he is! He was put on the Latuda because he decided to come off the Olanzapine. *sigh* I gave it to him around 8:30 last night. Put him to bed shortly after, spending time with him cuddling. Found out that there was a war going on his head... When I checked on him around 10, he was sleeping and snoring! As if that was a sound I ever thought I would be happy to hear and I was! I don't think he has had a sound sleep for over two weeks now.

I haven't been in the backyard for the past couple of days as it's been a bit chilly. I went out there this morning as when I looked out there I saw a pile of cigarette butts on the patio table. There is an ashtray on the other side of the table. I guess it was too far away and my son has been butting out his cigarettes on the table. There was butts everywhere. Some of them I could tell hadn't even been put out but went out on there own. It's a good thing there is no smoking in most of the house or there is a distinct possibility we could have been dealing with a house fire. I cleaned them up.

His nurse called me back after receiving my message this morning. I sat there silently fuming as he chastised me for making medication decisions without the psychiatrists ok. Finally I got blunt with him and told him that I'm going to do what I think is best for my son. I know what he has been prescribed and why. Keeping him on medications that are not working and making him worse, regardless of the doctor's orders is not going to happen. He kept cutting me off when I tried to explain what I have been seeing. Basically we ended the call with me saying that my son's psychiatrist should have enough understanding of me by now to know that I'm going to do what I think is best. If history is any indication he has yet to go against any of my decisions and I seriously doubt that he will this time either. The goal is to keep my son out of the hospital not put him there.

I think I need to do some research on medications. I think we need one that only affects dopamine and not serotonin as well, as most of them do. For me the only question right now is what dose of Olanzapine. Previously he was taking 20 mg a day which is supposed to be maximum dose and I would rather not go back to that if we don't have to.

Today he seems a bit better. The hand thing is still going strong. I'm guessing that will take time to go away however if I don't see an improvement in it within the next day or so I will be addressing it further.

We had our follow up appointment with ADAPT on Monday. It's at the mall which is like a 10 minute walk. My son will not be continuing with them. Voluntary and all that crap and he doesn't think that drinking 400 ml of 40% alcohol is a problem. So there you have it. I'm going to continue with them. I need the support and help learning to better cope with being the parent of an addict with mental illness. I have already booked an appointment for next month and registered with some sessions on the 25th and 26th. They also offer support and funding for quitting smoking so I'm going to get hubby and I registered so that hopefully they can provide us with free patches!

I did start the process of registering with a company for work from home opportunities. Been meaning to finish that for the past couple of days.

I wrote a piece for a book that I'm going to be participating in. It's currently pinned to the top of my Facebook page if any of my readers who are parents or caregivers are interested in telling their story and helping to support the non-profit that is putting it together. You can find my Facebook link on the side of this blog or by clicking above.

May 17-23 is Schizophrenia Awareness Week. I had grand intentions of creating a whole lot of literature and informational pieces to highlight on my Facebook page and the event that I created. I still have today and tomorrow...

PS: He has been continuing to take his Invega!

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Is there something wrong with....? Misophonia.

In my last blog post I spoke about my concern that my son may not be on the right or right dose of medications. I didn't speak about his vaporizer. I know that when he chews snuff or chewing tobacco that this seems to trigger his symptoms somewhat. Nicotine stimulates dopamine which as we know can cause/contribute to psychosis. The E-liquid that my son is currently smoking is non-nicotine. Does that mean that it isn't stimulating the pleasure/reward (dopamine) parts of his brain? I think that it is.

Saturday he used his vaporizer a lot. So this may be what is contributing to my son's current hiccup in experiencing voices and/or symptoms. The amount of medications that he is on may or may not be enough depending on what he is doing to counteract what the medications are trying to do. Still I have to remind myself that it has only been three months since he 'broke his brain' in a manner of speaking. It takes time to heal and as I said to his Nana: He is limping. :)

He still has voices... Not to hard to tell that he is 'listening' as he responds to either his voices or thoughts by laughing out loud and sometimes he is way to content to just lie there with a big smile on his face. They are entertaining ;)

The last couple of nights he has started to slip a bit and is staying up late again and therefor sleeping in. This morning I refused to go in and turn off his cell phone alarm that is set for 10 AM. He finally got up and turned it off at 10:45...

A little add in about myself... I think I may have Misophonia. Also known as Selective Sound Sensitivity Syndrome. Basically hatred of sound(s). Thankfully I don' t have it to the extend of outside heavy machinery bothering me... Not usually anyways. However the irrational anger at certain types of noises that I consider to be unnecessary like wheezing, chewing and other mouth noises including grunting and groaning to name a few. I can honestly say they make me want to.... So yah! I actually brought it up to my hubby's doctor yesterday if he had heard of it. Yes he has. Treatment can be CBT or cognitive behavioral therapy. I do use this to a certain degree as so far I have not physically lashed out at my hubby (and sometimes my son), even though there are times I want to hurt them, because I love them and know they aren't doing it on purpose. There have been several times sitting between them when I felt like losing it. Hubby grunting, groaning and crumpling things and my son wheezing... Fun times!

So back to the alarm going off for 45 minutes... Yes it was driving me crazy. He got up and came out and went back to sleep on the sofa. We all know how much I'm against that... however I didn't say anything even with his snoring! 1:20 PM I tell him he needs to get up and do something... anything. His response was: Is there something wrong with me just lying here? And do what?

Right or wrong has nothing to do with it. He is slowly getting his nights and days messed up again and spending that much time just lying there in his own 'head space' is not good for him. As for doing what... I don't care what. Play a game, watch his tablet, do laundry, tidy his room... I told him I was going out for a cigarette and I wanted him up by the time I came back. He was heading out for a smoke when I came back in!

He was playing a game for bit. Star Wars... Which he can play for free! Remind me of this the next time he asks me to pay for it so he can have better items. Now his room is quiet.

He did do the dishes on Wednesday. He commented that we should be doing them every day. I do... Shows how much he pays attention. I don't have a dishwasher and only one sink so letting dishes pile up for days is not an option. It was actually a nice feeling. Him doing the dishes, me making a loaf of bread and us just being together doing 'normal' stuff.

Yesterday he came with hubby and I for hubby's doctors appointment. It was a good opportunity to get him in clean track pants and have him do some basic hygiene. We went to Burger King (fast food restaurant) for dinner. I don't mind missing cooking sometimes...

I have a new disorder to learn a bit about! Aspergers. I think hubby is... and his doctor thinks I may be right. There are things that ADHD just doesn't cover and a lot of the Aspergers traits seems to be what I'm seeing. I assured hubby that I wasn't looking to have him on another medication. I wanted his doctor to give us some good resources or reading material like his other two books. He will in the future. For right  now we are keeping things as they are with his two medications as decreasing the Ciprelax hasn't been easy on him. I assured his doctor, despite hubby's complaints, that he was doing awesome! I have been impressed! I guess I need to tell hubby that. Hubby and doctor where happy to hear it. ;)

I almost forget to mention disability. In case you follow me on Twitter and saw my murphy's law comment. That letter I previously mentioned that his case worker had received from his old disability office... had incorrect dates/facts on it. It stated that his file was opened January 2013 and closed December 2014. No mention of the dates in between where it had been closed and re-opened. So yes they are looking into processing his file HOWEVER the payments that he received out here from August to September 2014 are now considered an over-payment as he was according to this letter receiving income assistance out there and you can't 'double dip'. Peachy isn't it?

I of course called BC disability... Sat on hold for well over 20 minutes and no surprise got disconnected like I always do. Called his case worker at PACT and left her a message stating the issue.

Just waiting to confirm if we can book the moving truck and if we can then we are moving on the 21st! Yes!

Mom
BarbieBF

© BarbieBF and Schizophrenia - Mom's Journey, 2014 - 2015. All rights reserved. Unauthorized use and/or duplication of this material without express and written permission from this blogs author and/or owner is strictly prohibited. Links to blog posts and/or pages as a whole (in there entirety) may be used provided that full and clear credit is given to BarbieBF and Schizophrenia - Mom's Journey with appropriate and specific direction to the original content.

Who wants to be depressed?

How do you rationally talk to someone who is being irrational? I guess you don't...

If I could get inside my son's head for 5 minutes and try to figure out what he is thinking or what is motivating his behavior... I have some ideas based on what I know of my son so far.

2 nights ago he got it into his head that it was unfair of me to expect him to sit on the small sofa or love-seat so that hubby and I could have the big sofa. He has rights you know? Yes so do we. Hubby and I did vacate the living room and spent some time in our bedroom partially due to this and partially due to the fact that the power had gone out so we just went to our room. When the power came back on and we were able to get the movie we were watching back on, it was several times asking very nicely, please can you move to the other sofa? According to my son the love-seat is uncomfortable. To clarify the love-seat and the big sofa are the same set and in fact the big sofa is harder and more worn out then the love-seat. He finally agreed to move but wanted to rearrange the living room furniture because of it. I said no and that when he has his own place and his own furniture he can decide where he wants it and who sets were. He won't be inviting me to his place. Honestly I found this somewhat humorous so my tone was light when I responded and told him to remember that when he is calling me with: Mom I have no money. Mom I can't pay my bills or Mom I'm hungry... Off he went to call his Nana...

Later that night, around 12, he was taking a part one of my bookshelves, taking my mouse-pad for my computer and just overall making a racket in his room since his floor is a mess and he can't walk in there without walking on stuff. All this so he could play on his laptop in bed. I think he is playing World of Warcraft again which is good however I will get back to that...

Yesterday, I thought, was a pretty good day. He spend the day in the living room with hubby and I watching movies and going for smokes with us. Once we asked him to walk to the store with us however he didn't see the point in going since I said I wasn't going to spend any money... Hubby had won some free Lotto tickets.

Last night when I saw that he had gone to bed and not taking his pills, I took the dish into him. I'm not taking the Lithium... I tried to talk him into taking half of it as stopping it like that may cause him to get too depressed or even suicidal considering he is not ok right now. He said that he wants to be depressed. I tried... but like I said: How do you rationally talk to someone who is being irrational? He told me to take them. Well I don't have a chemical imbalance of too much dopamine in my brain so I don't need them. He is not a robot... No and these pills would not work on a robot because robots don't have dopamine but he does because he is human. Since I have such a problem with this then I should fix it... That's what I'm trying to do. I told him that what he is saying isn't logical. I have never heard anyone say that they wanted to be depressed. How is he going to take care of himself when he is living in the shared townhouse living that he wants if he is too depressed to take care of himself. That's another thing... He needs a shower. I could smell him from 3-4 feet away. He says that is ok that there is nothing wrong with the smell of BO (body odor). I gave up and went to bed.

Now, today, he is refusing his Olanzapine as well. He has been taking one when he gets up for the past 2 days since I know that he needs it due to the Invega wearing off and it has been helping. Now today... It's a PRN (as needed) and he doesn't need it. I said to him: Can you please explain to me what is going on in your head because I don't understand why you want to be sick? Why do I care so much? Because I love you and I give a crap about your mental health. Oh well, I'm not taking it.

I'm wondering if his wanting to be depressed could have anything to do with him playing World of Warcraft again. His subscription will be running out soon. When I bought the upgrade as an early Christmas present and paid for the monthly subscription it was under two conditions. One he not spend the little money he had on alcohol and two that he was to pay me back for the monthly subscription the following day. Well he didn't pay me back and the money did go on alcohol. He is aware that I cancelled the subscription from charging my credit card again this month. Only time will tell but if I here: Mom I'm depressed so I need you to buy... I'm not saying my son doesn't think that he has experienced depression however I'm pretty sure he has no idea what long-term depression really feels like. Not being euphorically or intensely happy is not depressed. Not being hyper is not depressed. Being bored is not depressed.

My daughter called this morning... Mom I need money... Mom doesn't have any money... I think it's long past time for this to start being a reality for someone other then me and my hubby. The motor is gone in our car, again... I won't rant about this as really in the end it's for me to start putting my foot down and saying no. I'm not mad at my daughter... My love is free but it's time to start looking elsewhere for money.

I need a shower and hubby is home so I'm off...

Mom
BarbieBF

I sound burnt out? Paranoia?

My son playing the Wii u was short lived... about 15 minutes or so. Then he was throwing air punches. I asked him what he was doing and he said dancing. I replied that I have been dancing for over 30 years and that was not dancing, it looked like sparring to me. He agreed. I told him that I wasn't comfortable with him doing this within 5 feet of me so he went to his room. Shortly after he was lifting my husbands weights and I was somewhat shocked by what was coming out of his mouth. Something about inbred ignorants... I think I talked him through that stating that the circumstances of someone's birth shouldn't be held against them and that technically he was born a bastard... He should be sympathetic... Unfortunately the people we were talking about was obviously visual hallucinations.

Shortly after that his nurse called me back. His psychiatrist wants him to stay on Invega injection, he is not willing to give it every 3 weeks instead of 4 however he is upping the dose from 75 to 100 on his next dose. They will be discussing his case on Tuesday! So in the meantime we are supposed to be supplementing the fact that his Invega is NOT working enough with the Olanzapine. Honestly the whole conversation just pissed me off! I let her know that PACT is causing me to lose faith in them which apparently is fine as I don't have to trust them right just let his psychiatrist do his job. This partially in response to my questions/concerns about his serotonin being messed with too much. I seem to be the only one even looking at this and to date no one has been able to discuss or help me with my research into neurotransmitters. Have faith! Not likely. I let his nurse know what was happening and my feelings that we are seriously failing my son here. How can we expect him to keep insight or stay stable when we are not giving him what he needs. All I got in response was her agreeing with my concerns but not addressing them. Humoring me is not going to help my son. I asked on the schizophrenia.com forum if Olanzapine can cause aggression and it doesn't appear so unless in the context of withdrawal. I also fount out that the PRN dose that my son has been prescribed is actually the maximum dose for that medication. Not really reassuring. His nurse assured me that in her experience it doesn't cause aggression. It was more reassuring to hear it on the forum as these are the people taking and experiencing the affects of these medications.

About half way through this conversation I was told that I sound like I'm getting burnt out. I think I sounded mad and fed up. Honestly if they want me to trust them with my son and not be his psychiatrist then perhaps they need to show me that they can do the job. Sorry I know that I'm sounding harsh however I don't see any of them here, day to day, talking my son through delusional thinking or even helping him to understand what he is going through and experiencing. Telling me to not be his psychiatrist when he is mentally ill would be like telling any parent to not be cook, maid, teacher, therapist... You get my point. It goes with the territory. What am I supposed to say when he starts talking to me about entities? Call your psychiatrist. Talk to your treatment team about what they call voices and/or hallucinations. Ask them about dopamine and serotonin. I'm pretty sure he would believe me more at this point as very few on his treatment team have shown much practical understanding of what he is going through.

Basically I was left with the option to give or not give Olanzapine. To use my own judgement. I did give him one since the consensus on the forum was that it should knock out aggression and is giving in the ER setting for that reason. He said at first that it seemed to be helping but then later said that he felt depressed (hello serotonin blocker!) and today told me that it made him feel sick and he doesn't want me offering it anymore. I did end up giving him an supplement called 5-HTP which helps the body to produce serotonin and he said that he felt better after taking it. He wanted me to leave the bottle out... I said no that to much of it may cause mania. I let him know that the psychiatrist had left him on the Lithium in BC as he was worried about a mood component so he may be schizoaffective. My son asked what that was. It's schizophrenia with a mood component like depression. My son immediately said: Then I'm schizoaffective :) I also reminding him that he had missed his Trazodone the night before which might be further contributing to his low mood since it's supposed to increase serotonin. Honestly how am I supposed to not worry about or talk about dopamine and serotonin when the medications he is taking are having an affect on these neurotransmitters?! Wouldn't it be like not talking about the side affects of any medications and having blinders on to not try to understand? Would a doctor tell someone who is taking chemo to not worry about or talk about the fact that it is also killing the good cells and they may lose their hair or get sick? He did take his Trazodone last night and was sleeping at 12:30 and slept until 10:30.

 Maybe I should consider having him go back on the Clozapine/Clozaril as that only messes with his dopamine (if his psychiatrist will even agree now). As much as I'm not liking or he is not liking the Olanzapine it does seem to be helping to calm his voices/entities. It's just doing it with negative side affects and because of that he doesn't want to take it. *fingers crossed* that we get through until Tuesday or Monday if I need to harass the PACT Team :P

On a side note I know that technically the diagnoses is not the important part but treating symptoms is. Still if someone is schizoaffective instead of schizophrenia then certain medications can carry a higher risk of triggering mania as far as I know. Same with not acknowledging my son's ADHD symptoms. Attributing everything to schizophrenia is not going to help my son be on the right medications.

Paranoia... I can't say that I'm seeing a lot of warning signs however I am seeing some indications that it is there. Yesterday he asked me if he could have a weapon for when he goes outside to protect himself. I reminded him that the weapons he is looking for are considered to be illegal and that I don't think that he needs protection here were we live. I hate the fact that I'm constantly telling him that what he is experiencing is a symptom of schizophrenia however that is what I did, letting him know that paranoia can make him feel like he is not safe or that he needs protection.

On a lighter note. We went grocery shopping last night as my son asked to go rather then waiting until today as he has been asking most of the week for treats and I've been putting him until shopping day. I was on the phone with my daughter so I wasn't paying to much attention at the check out... We get home and my son is taking items out of the grocery bags that I had no idea he had picked up. Haha! He probably added $20-30 to the grocery bill... Hubby said he had noticed him doing it but didn't say thing :)

I'm off to continue to ignore or nicely reply with no to my son's fairly constant requests for marijuana...

Mom
BarbieBF

Contract, housing applications & symptoms

My son's case worker was here yesterday. Several things about that meeting are bothering me. As I stated in my last post I had spent some time looking up, printing and filling out housing applications for my son as he wanted me to do. When his case worker arrived and we started going over the applications she asked me if he was officially diagnosed with ADHD as I noted it as a secondary diagnoses along with addiction. Official? I don't know. Obvious? Yes. Why try him on Adderall, an ADHD medication, if one didn't believe that he had it? I guess if the medication worked then his psychiatrist could say: Yes he has ADHD. It triggered psychosis instead. Hmmm... So all the people diagnosed with schizophrenia who's medications are NOT working are not schizophrenic? It's diagnosed by symptoms not the success rate of medications. Wouldn't the same mindset apply to ADHD? Apparently not. Watch my son's leg go a mile a minute and tell me he is not ADHD... Another item was self-harm. Yes my son has superficially self-harmed in 2011. Apparently it's not schizophrenics but people with personality disorders that self-harm. Ahem... Please read some forums. It may not be common but it does happen. I have personal experience with someone who self-harmed. I didn't know about it, at all, and I saw this person daily. Like someone who self-harms is going to do it in obvious spots that show or tell someone that they are doing it? No, it's done in hidden places like inner thighs, under the arm and even on the torso and they certainly don't voluntarily show it to their treatment team as the shame is too great. When it's done in more obvious places then it's long sleeved shirts and no shorts in the middle of the summer or lots and lots of bracelets that cover up the wrists. Unless looking for the signs is someone going to spot this seeing someone once a week or once a month for 10-30 minutes? If not aware it's even possible will someone even think to look for the signs?

Honestly I sometimes feel so mad at professionals who have their blinders on and refuse to see or do the appropriate research into the conditions they are treating and medications they are prescribing. I don't blame my son's treatment team (maybe I do) however I think they need to be more responsible. My son was prescribed Adderall despite the warnings regarding previous psychosis and addiction. Sometimes they will only prescribe small amounts at a time due to addiction. Does anyone know the mindset of an addict? Unfortunately I do. Some will abuse the medication for a week then go the three weeks without, because they know that in three weeks they can have that high again. They have something to look forward to. Really what are weekend warriors? They are users that work all week just to let lose and use on the weekend. The week of suffering and withdrawal is worth it knowing that the weekend is coming. When I discuss drug seeking characteristics with respect to Neurontin/Gabapentin then it's no, that medication doesn't do that. Again read the forums, there are lots of them, with statements like: Taking Gaba and smoking a joint will get you super high...  It amplifies the affect of the alcohol or drug. Honestly forget what the manufacturer says... They aren't the ones abusing it (hopefully ;)). Gaba has the same addiction risk as Aspirin... Right, because no one has ever gotten addicted to Aspirin! (sarcasm) I was actually reading an article the other day on a new concurrent disorder treatment facility in a neighboring district, that treats mental illness and addiction concurrently or at the same time. They had to get rid of un-monitored hand sanitizer because alcoholics were drinking it. Cough syrup! I learned in a recovery class how common it is for alcoholics to relapse because they got sick and drank cough syrup which triggered them. Apparently some forms of NyQuil is 25% alcohol! That's alcohol. What about drug addiction? We are prescribing medications that are triggering drug seeking behavior, because the manufacturer doesn't say it can do this, and dealing with the consequences. Consequences however that professionals, in my not so humble opinion, are ignoring or lack the knowledge or insight to see. Another article I read yesterday was discussing the fact that even though the risk for prescribing benzodiazepines increases with age that seniors are STILL being prescribed them at a higher rate. Sad isn't it?

They want to keep him on the Invega injection which I understand but it's not working. That's another rant ;) I did just call PACT and left a message stating that it looks like the Invega may be wearing off again and it hasn't even been two weeks. He has been doing a lot of just lying around, doing nothing. Never a good sign with my son. I'm also noticing that him laughing, for no apparent reason, seems to be getting more frequent again. I want to be pro-active instead of waiting another week, when he sees his case worker again, and preferable before the weekend. Catch 22 on this one is that we still don't have his disability or drug card straightened out and considering how much the Invega shot is, the oral form is probably just as expensive. *sigh*

Back to his case workers visit that certainly didn't go according to plan. He ended up having attitude about signing the housing applications which started because he didn't think that the level of support that he needs from these agencies is high but should be low. Tried to explain this meant that he would get more help but no... He doesn't want more help. He refused to sign the group home application as he wants his own room. The group home gives him his own room. He doesn't want someone monitoring his medications, a memory of us discussing group homes in August I guess, so it's to late and he is already in defiant mode. When I pointed this out he tells me not to use that word anymore. He gets mad and tries to put of walls to what I'm saying since he can't defend against it any other way. He decides not to sign anything, that he will do it on his own by contacting the government on his own. We explained that these forms (not the group home one but the other two) are him contacting the government asking for assistance for low income housing. He finally relented and signed one of the forms that is applying for housing where 3-7 people share a townhouse. Still refused to sign the other application through another agency for the same type of housing. He can certainly be a conundrum as he is putting up roadblocks to getting what he says he wants. His case worker also tried to talk to him about that fact that he needs to show that he is capable of living on his own before PACT will put him into a living environment that he can't handle. Forms are being filled out that quit frankly state that he is not even capable of taking care of his hygiene without assistance not alone do grocery shopping, cook or clean. A group home is a stepping stone in this goal of his to be independent. Honestly what am I saying... He doesn't want to be independent, he wants no rules and the freedom to get high and drunk whenever he wants.

Since this visit didn't go to well I decided to do something else. I did up a Room & Board Contract between my son and I (and hubby). I think I covered anything that I could think of that has been or could be an issue between us regarding expectations. It outlines what his room and board payments cover and what he is responsible for. Respect, Privacy, Noise, Cooking, Cleaning, Drugs & Alcohol among other things have been spelled out in the contract. One day a week he has to cook dinner, do the dishes and help clean the bathroom (toilet). I let him pick which day he wanted to do these things. He picked Monday for cooking a meal, Wednesday or Thursday for doing the dishes and Friday for cleaning the toilet. He wanted to pick an 'or day' for cleaning the toilet and I said no, it's a 3 minute job. We both signed it and I gave him his own copy. Today he is supposed to clean the toilet... I didn't stipulate by what time... my bad. Haha! Sometimes I get lucky... I asked him what time and he picked 3... then picked 4... I asked why the change? He is going to be thinking about it until then anyways so 4 would be the latest that he could think about it. I'm pretty sure this is an ADHD type of thinking as it's like over-thinking yet without the action because his thoughts and nervous system are not on the same level of stimulation. I said that I didn't get it, why spend hours thinking about something when he could just get up and do it and then it is done and over with... I didn't faint... He said ok I'll do it now. I told him what to do and he did it! Score one for mom! I'm curious to see how many of these things he will do before he starts asking to be paid for doing chores. I did put stipulations in the contract stating that room & board doesn't cover candies, goodies, energy drinks etc unless previously approved. Not because I won't ever get him any but because if I let him he makes it a daily thing and he does need to start learning limits. Once he does take that step out into the real world there will be limits, expectation and rules that he will have to learn to manage and deal with. Poor kid has been getting a lot of no's lately however I can't do it all.

Maybe I will go into my rant/concerns about Invega considering the conversation I just had with my son. I asked him what is happening with his schizophrenia or thoughts considering what I have been seeing for the past two days. He says he doesn't have the want to do things like play his games. He doesn't have the want because his schizophrenia is getting in the way of him doing the things in this reality that bring him enjoyment. He told me that he has an entity standing in front of him and he wants to be able to tell me about him. We ended up discussing words like sacrament and sacrilege that I had to look up the definition for and explain to him that he is misusing words or making up meanings for them which is his schizophrenia. He shouldn't be sacrementing or killing entities. He shouldn't be dealing with them at all if he can't understand that they are not real and a manifestation of his brain producing too much dopamine. He wants to smoke marijuana and get high. I can understand that since his symptoms are acting up and getting high will ease them and give him a break from his voices or audio/visual hallucinations. If he is seeing entities than he is experiencing visual hallucinations. He seems surprisingly accepting of my explanations at the moment that it is his schizophrenia, not real and that we may need to up his antipsychotics to get rid of them before they start to irritate him. Preferable today before it gets bad enough that he may need to be admitted again. If he is admitted again then chances are he will be inpatient for at least 3 weeks which we don't want happening. It's different to have this type of conversation with my son and to have him be open and not deny that what he is experiencing could be schizophrenia. Hopefully we can get this under control before he loses this insight to symptoms. I have left another message with PACT stating this conversation and that regardless of drug benefits, I will pay for a weeks supply of medications, today, as they are needed. On a side note he did drink vodka last night :( Yah, I know. The vodka that he told me he was throwing out early last week... I guess not. I really should have gone looking for it but I have looked before and couldn't find it. I think he only had one or two shots then threw it out. This time I found the bottle in the garbage so I know he did. Side affect to this... He missed taking his Lithium and Trazodone last night and was resistant to going to bed in his own bed. I think he is learning or finding out that vodka is not helping him but making things worse, at least I hope he is. How many times he will have to test that theory? I don't want to know the answer to that. He did take his Lithium when he got up this morning so we are good for getting his medications into him. My concerns with the Invega shot... I like the Invega. He is not getting enough of it which will translate into break through symptoms which will further non-compliance as once insight goes it is gone and takes a lot of work to get it back. Having break through symptoms that can be avoided will only make keeping his dopamine under control all the more difficult.

I think talking about it may have helped my son, for now anyways, as he is now playing the Wii u!

Mom
BarbieBF

Pretty good weekend

The weekend went pretty good. Friday was a good day. My son wanted McDonald's for dinner and wanted to go grocery shopping so he had a shower. Even brushed his teeth without me saying anything. I was brushing mine and he came into the bathroom with me and did his. I'm glad that some of my previous expectations have not gotten forgotten. Going out in public with me requires minimal personal hygiene when he is capable.

He did go see his friend on Friday... He had no idea that his friend was across the hall until someone started yelling his name from outside as no one was answering the buzzer. I guess the concept of no one being available or awake didn't mean anything. So my son heard and of course quickly went to investigate. Thankfully he only visited for about 10-15 minutes before coming back home.

Slowly my son has been getting back into using the laptop. It was good to see him actually playing some games on it although he doesn't seem to be able to keep it up for long periods. The downside to this of course was the inevitable (unavoidable) requests for me to purchase gaming subscriptions for him. My answer was no as I had warned him when he decided to spend the last of his money on alcohol that my answer would be no. This resulted in a phone call to his Nana for money and of course some attitude regarding how much money I was going to be taking from his disability payments. I told him that disability is not paying him for entertainment purposes then reminded myself that I don't intend to be a part of these types of conversations if I can help it, so went outside for a smoke so that I wouldn't be a part of it.

I did end up paying for his Trazodone as he needs it for sleep and I know that it can also help with some of his restlessness during the day. Thankfully it is one of the cheaper ones and only cost me $13.24 and so far he has been taking it without any complaints. He did miss his Lithium one day and the following day stated that he felt depressed so I reminded him that he had missed his Lithium and this may be the cause.

He has been up and down over the weekend. Some periods he seems ok and other times the psychosis is showing itself. Yesterday, Monday, was an off day as the voices were back and he spent a fair amount of the day seemingly wondering aimlessly around the apartment. Not getting enough sleep may have contributed to this as my husband was home from work so we took advantage of this to take an early trip to the disability office to find out what was happening with his file. Of course his worker was off! His file is still on hold which means a drug benefit card can't be issued. We did write a note where my son consented to me having access to talk to his worker and also letting disability know to release the room and board portion of his payments to me as I reminded my son that he had given his word that he would do this. I also had them take a copy of his disability payment from British Columbia and the receptionist noted that his last payment was for December which will probably affect his file and may affect his ability to get drug benefits as well. I was already aware this would probably happen and this is why I wanted them to have a copy of his last payment. I would rather deal with it now then have my son face any type of fraud charges later for not disclosing this information. We will have to contact British Columbia today to get his file out there closed. I let the receptionist know that I had held off doing this in case I could use his medical coverage from out there, here and she said no it doesn't work that way. *fingers crossed* I hear something back from his worker today.

After the disability office we took a drive as my husband needed to get something on the car looked at then we got Tim Horton's and brought my son back home while my husband and I finished Christmas shopping for my daughter. I also got my son a new pair of track pants since he only had the one pair and a new scarf and toque (hat) set. We also got him some Jamaican patties, pizza pockets and stuff to make breakfast sandwiches since going to Tim Horton's and McDonald's will not be regular occurrences like before. I had my son pick from the presents that I got for his sister, the ones that he would like to be from him and got the parcels sent out to my daughter.

Like I said yesterday was an off day. Voices or entities were obvious and he laughed at/with them a fair amount. They were discussing soul sanctums... Trying to understand what is so funny about these conversations is not easy as to me as I don't get what is so funny about soul sanctums. Still I guess if being in psychosis is anything like being high (both are too much dopamine) and having been high myself, yes things like this can appear to be funny at the time. I asked if the voices felt that were he is now is safe as a sanctum is a safe place and he said: yes.. no.. yes I think so. I told him to tell them thank you if they felt that our home was a safe place as I want him to feel safe here.

He's been taking a multi-vitamin everyday, knock on wood! It seems every time I blog about my son doing something that is good and healthy, something happens or he happens to interfere with that so hopefully I didn't jinx it! ;) The Omega 3's he is resisting, saying that they make him feel sick.

I have been trying to get him into bed at reasonable hours however I'm not having to much luck with that. It depends on when I wake up in the night. Sometimes it's 3, sometimes it's 5. One night he ended up sleeping on the small sofa as my hubby was sleeping on the big one as his sleep apnea and restless leg were driving us both nuts! Last night I managed to wake up and get him to bed by 2:30. It's now 12:37 pm and he is still sleeping. I asked him if the extra comforter on his bed has helped and he said yes.

The mess that I ended up cleaning up at 2:30 this morning so that my husband would have room on the counter to make his lunch didn't make me happy. Will have to find some way to approach this as really my husband shouldn't have to clean up the kitchen at 5 in the morning to make his lunch.

I have some cleaning to do...

Mom
BarbieBF

Will you be my elder?

This is what my son asked me when he eventually got up after 4 pm. I sat with him on sofa for a bit so that we could talk some things through. I started the conversation with the fact that I know he got defiant about me bringing up the hospital however I want us to be able to have open discussions about it and schizophrenia. I let him know that he was doing much better the day before and I'm worried that the alcohol he drank may be making him worse again. He can't see it as he feels great which seems to be his answer when anyone asks him how he is doing. I'm great! He had questions about the Xbox, how it was put together, what it was and what invisible things were inside it. I let him know that he didn't question these things before that he knew what an Xbox was. He wanted to know how I could assist him with the spiritual entities. I didn't answer this one as I don't have an answer. Hopefully the Invega and time will lessen their impact on him.

I let him know my theory on why he is finding his bed or the sofa uncomfortable and that if we were to go away somewhere that he would still fill uncomfortable because it is coming from inside him because of schizophrenia. He acknowledged that he does feel uncomfortable inside. I said yes that's because there is probably too much dopamine in his brain right now. I talked to him about trying to make his bed more comfortable and cuddly by adding a comforter to sleep on. He liked that idea and I did this last night when I had him go to bed at 3.

He asked about working and I told him I don't think he is ready for that right now as when you work your employee needs to be able to count on you and I don't think he is ready for that. He agreed that he is too tired. We discussed how PACT can help him with this when he is ready. Currently picking up after himself is something that needs to start happening and he agreed that it is something that he should be doing.

I asked him how he felt about schizophrenia now. He said that he is confused about it which I think is a good thing. Sometimes we need to be confused to tear down old walls on what we think we know.

Yesterday I went looking in our apartment building for his whisky bottle since I haven't seen it. I couldn't find it. I asked him about it yesterday and he said that it was hidden with his wine... He wants to become a wine junkie. I suggested being a health junkie may be better for him ;) He said he was going for a walk last night to drink... I just told him to take his ID in case he gets picked up by the police since drinking in public is illegal. He probably didn't even leave the building... Speaking off, I need to sweep the buildings stairway of ashes as he has been sitting there to smoke sometimes since we don't smoke inside anymore.

I have delved a bit deeper into my understanding of word salad. Maybe word salad is not the most appropriate phrase for what I see happening with my son as his words do have meaning and connection with each other whereas word salad seems to imply sentences where words do not go together at all. So I learned something new today!

He seems to be improving although I'm very concerned about his cognition. He asked for assistance putting on his toque last night as he didn't seem to know how. He did make a pot of coffee though! He is putting on clean shirts every day. He did have a bath Wednesday morning however I will need to get him in the shower at some point as he is not getting clean and he needs to wash his hair. I know my husband wants to get a hair cut this weekend so maybe *fingers crossed* I can motivate him to go with and have a shower first.

His friend from across the hall just knocked on the door. He doesn't live there anymore however he must be visiting his dad. I told him no marijuana as it will land my son back in the hospital. His friend doesn't look good either. I asked him if he was ok and he said ya, tired and not eating... I would guess too much partying as happens across the hall. I'm so glad that I have given up that lifestyle. The further I am from it the more pathetic it appears to me. The inability to put family above addiction. It's entirely too sad because there is a choice with this mental illness called addiction. I guess I can't preach though since I have been there. I'm just so thankful that I am not there anymore! Thankfully my son was still sleeping and *fingers crossed* that he leaves to go home before my son becomes aware of his presence.

I did manage to get an Omega 3 into him last night by joking that I was his elder and that it's part of his 'healthy life' note...

Still trying to get his drug benefits...

It's 1:41 pm and he just got up...

Mom
BarbieBF

Addiction and Psychosis

What came first? The chicken or the egg? I know this may seem like an odd question. Sometimes I don't think the answer to that question is very important as what matters in the end is that we have chickens laying eggs... (Sorry that was a lame attempt at being funny) Does it really matter which came first?

My son has addiction and psychosis or schizophrenia. Science cannot say for sure what causes schizophrenia BUT it does know that certain things make it worse. We know that a lot of people with mental illness also have addiction problems. For some it is a way of coping with symptoms. For other's like my son, I'm not so sure. Since his schizophrenia symptoms are usually under control when he is not using marijuana and stable then I don't see someone who is self-medicating his schizophrenia but someone who is feeding his addiction. I do know that marijuana triggered his first psychotic break and caused him to be catatonic (immobile, unresponsive or not moving) for somewhere between 24-36 hours. He has spoken himself of how high he was when this happened. Of being aware of what was happening around him but unable to respond. He couldn't because schizophrenia had a hold of his brain. It took over until there was no room for anything else. It did what schizophrenia or psychosis does and caused him to break with reality.

First I will speak about addiction. This was taken from The Alcoholics Anonymous book:

"Men and women drink essentially because they like the affect produced by alcohol. The sensation is so elusive that, while they admit it is injurious, they cannot after a time differentiate the true from the false. To them, the alcoholic life seems the only normal one. They are restless, irritable and discontented, unless they can again experience the sense of ease and comfort which comes at once by taking a few drinks - drinks which they see others taking with impunity. After they have succumbed to the desire again, as so many do, and the phenomenon of craving develops, they pass through the well-known stage of a spree, emerging remorseful, with a firm resolution not to drink again. This is repeated over and over, and unless the person can experience an entire psychic change there is very little hope of his recovery."

"At a certain point in the drinking of every alcoholic, he passes into a state where the most powerful desire to stop drinking is of absolutely no avail. The tragic situation has already arrived in practically every case long before it is suspected. The fact is that most alcoholics, for reasons yet obscure, have lost the power of choice in drink. Our so-called will power becomes practically nonexistent. We are unable, at certain times, to bring into our consciousness with sufficient force the memory of the suffering and humiliation of even a week or a month ago. We are without defense against the first drink."

Abstinence is a solution that recovering addicts have to make. Whether it's alcohol, marijuana or cocaine. Without first abstaining how can the person see past the addiction to experience the change required for recovery?

Now lets look at psychosis. A sever mental disorder in which thought and emotions are so impaired that contact is lost with external reality. It is a break with reality. The exact cause of schizophrenia is unknown however we do know that schizophrenia occurs with changes in brain chemistry, specifically dopamine. I have long believed that my son's brain produces too much dopamine.

Using marijuana causes the brain to release more dopamine. That is why it feels good to be high. Dopamine is also called the 'feel good' chemical because it is directly responsible for feelings of pleasure, motivation and reward. At the same time, abusing marijuana blunts the brain's ability to respond to dopamine. So even though the brain is producing more of it, the brain's ability to respond is blunted, dulled down or has less of an affect. The brain doesn't know what to do with all of this dopamine. Unfortunately schizophrenia, in my opinion, does.

What do you think happens when you flood a brain already producing too much dopamine with even more dopamine? Other then feeding the addiction we are now feeding schizophrenia too by triggering psychosis. Anti-psychotics that block dopamine can only do so much when outside sources continue to flood the brain with even more dopamine which contradict or go against what the medication is trying to do. If anything this combination is, in my opinion, even more damaging as by limiting the dopamine in the brain the medication is also limiting dopamine in other parts of the body which is why some develop movement disorders among other serious complications. More marijuana... more medications... more risks. Less marijuana... less medications... less risks. Self-medicating to feel better which triggers or worsens psychosis symptoms. More anti-psychotics that don't work as they should because of self-medicating. It's a vicious cycle. 10% commit suicide. When there is no light at the end of the tunnel just a cycle of unhealthy choices...

Back to my original question. Whether my son developed addiction or psychosis first is a mood point. He is now suffering from both. How can we help him to recovery, be stable and to have the future that he deserves? Certainly not by feeding his addiction and schizophrenia!

Mom

BarbieBF

I may have lost the battle but I haven't lost the war.

This is something that I'm having to remind myself. Thanx to an outpouring of support from parents who have been where I am and from people who are diagnosed and been where my son is and understand what I have been trying to accomplish... Their words of support and wisdom have helped me tremendously, perhaps more then I can truly express.

Since my son was diagnosed in 2011 and especially since he came to live with me in April of 2013, I have quit literally immersed myself into the world of schizophrenia. I have researched to the best of my ability the science behind what is happening in my son's brain. I have watched videos, so many videos. One by a Professor at Stanford University who sums up what I have researched in an easy to understand way. I have watched videos from The LEAP Institute about mental illness and anosognosia. 40-50% of people diagnosed with schizophrenia have anosognosia. Anosognosia looks like denial but is part of the disease itself. It does not allow the person to see that they are sick. I have researched medications and tried to understand dopamine antagonist and so many other terms that are almost beyond my comprehension BUT I understand enough to know what my son's brain needs. Not what schizophrenia and addiction wants. His thoughts, feelings, actions and reactions are being controlled by things that he cannot see or understand. That's where I come in! To advocate not for what my son thinks he wants BUT for what he needs.

Everyday I'm communicating with stable and recovering diagnosed who have been where my son is. Who's family members have advocated as I am trying to do to give them what is best for them. Now that they are stable and recovering they can see that boundaries and yes even a little tough love has helped to give them their lives back. Family members who out of love said enough is enough. We are not the problem and it's time! Time to take responsibility not only for their lives but for managing a disease that needs to be managed.

I have tried to talk to psychiatrist about the science of schizophrenia and guess what? They don't seem to have much knowledge. It's not their job to know about enlarged ventricles or pre-frontal cortex, less grey/white matter or miss-firing neurotransmitters. No amount of unconditional love can fix these. Overloading him on the wrong medications can't fix this. It's their job to prescribe medications based on what drug companies say they are supposed to do. They also prescribe based on what the patient tells them. Patients like my son who knows how to manipulate the system to give him what he wants. My son would still be over medicated and on the wrong medications if it wasn't for me researching and advocating for what is best for him. Getting him off of benzodiazepines, anything that ends in 'pam' was the first and best then I could have done for him. I know that the medications that he needs are the ones that help to regulate dopamine in his brain and he doesn't need to be over-medicated with them. I know that he can't handle ADHD stimulants, they trigger psychosis. Why because they are amphetamines. Might as well give him crystal meth/speed. That doesn't mean that he doesn't need help with ADHD symptoms because he does. I wonder who will advocate the right medications for this? I wonder who will advocate the right doses of the right medications? Instead of listening to a psychiatrist that in my opinion dropped the ball where my son is concerned a long time ago. A psychiatrist, that now that I have more experience and knowledge, didn't do my son any good. I don't blame him. He is human after-all. My son's current, soon to be no more, psychiatrist. Is a good psychiatrist, in my opinion. He worked with my son. He listened to me and my son. Most importantly he tried to give my son what he needed not what my son thought he needed. A very big distinction. He understood me when I talked about neurotransmitters...

I really wish the people involved could step back for just a moment and try to see the bigger picture. If they could only see what I see. I do see my son. All of him! Not just the parts that I want to see. I don't love him any less for doing so. In fact I think it makes my love all the more significant. Steps were being put into place that would give my son the tools that he needs to be the man that I know that he can be. Support was in place that he has been turning his back on because he can't see past his own mentality. It was a bump in the road that was leading to a success that would help him to gain the independence that he craves in an environment that understood his needs. He can't see his own limitations. He doesn't know that he needs the support that I was trying to give him.

It's hard to come to terms with what is happening. It's hard to let go and not do everything in my power to stop this. I know people's hearts are in the right place. If only they could see that so is mine. I have not done anything lightly. I have not made any decision that was not geared towards my son's stability and future. I see past his temper tantrums and manipulations. If only I was given the chance to see it through. Just a little bit of trust that as his MOTHER, armed not only with my love for him but also with the knowledge and experience of so many in my and his situation, that given the chance I was providing me son with what he needed. Now I'm letting him walk into a world with little understanding of schizophrenia.

A couple of people's comments hit home for me. It was to hand this over to my higher power. My higher power is my mother, Donna, who is in heaven and I know how much she loved my son. When things are tough for me, it's her that I pray to for the strength that I need because I know if anyone has God's ear it is her. I know that she is in my son's heart too because he still remembers her and talks of her sometimes. So mom, or Donna as my son calls you... I give you my son. Please take care of him until he is back with me again.

Thank you to all the nameless people who have supported me and my decisions. Who have lived with this disease and despite current circumstance have told me what an awesome mom I am. I needed to hear it.

Mom
BarbieBF

Oops. Things not always as they appear...

Most of the time I think I have a pretty good grasp on what is happening but sometimes I have to acknowledge that I can be wrong. Yes I can do that ;) Yesterday my son asked me if I had seen his vaporizer as he thought someone had stolen it. I told him that I had it and why. He had a good explanation. During our last grocery shop I bought him a light wave speaker. He is using the charged vaporizer to power the speaker so that he can move it around with him. He pointed out that he can't use the vaporizer for weed as he would have to make it into liquid first. Yes I know but I couldn't rule out him doing this. So for now the use of the vaporizer has been explained.

My son is struggling right now and I'm not to sure how to help him. He told me yesterday that he has been asked to not attend the YMCA for schooling as he is not progressing. I will have to call or email them on Monday as I'm thinking there is a little more to it then that. I remember when he had his first appointment with them to sign up, being told that they have some who have been there for a long time as they can work at their own pace, so I'm not to sure I understand what is happening. Perhaps he is being nudged into applying himself more? He said that he can't do it so he will have to start looking for a job. If he can't apply himself to 6 hours a week schooling then chances are he can't apply himself to learn a job. He seems to think that working is easy and takes no mental effort. Delusion or immature thinking? Since he doesn't have much personal experience to draw from on this then I'm thinking lack of experience or immature thinking. We both agreed that he will have to learn for himself that it does take mental effort to do a job.

He said that he can't put into words the 'stress' that he is currently experiencing that maybe one day he could explain it to me so that I can understand. Personally I don't think that he even understands the stress that he is feeling as he doesn't want to or can't understand the negative impact of symptoms. It's times like this that I myself have to re-evaluate my opinion on whether or not my son has schizophrenia. I explained to him that there is more to schizophrenia then positive symptoms like hallucinations and voices. There is also negative symptoms which get in the way of people's ability to cope with normal life stresses. On the surface his life can not, in my opinion, get much easier. I pointed out that he was doing great up until the Adderall and nothing else has changed so it's his inability to cope that needs to be looked at. I took a leap and suggested that maybe we need to look at upping his anti-psychotics for a little bit until things can get under control again. He doesn't want to be on pills for the rest of his life. 'I would rather die...' My heart hurt when I told him that he may need to be on pills for the rest of his life if he does in fact have schizophrenia.

He seems to understand that he needs help however he wants to be prescribed benzodiazepines even though he knows that he will not have an easy time getting them. He also doesn't want anti-depressants. I know that he doesn't like being on the Clozapine and doesn't want to be on another anti-psychotic since in his eyes he doesn't need them. I don't know how to help him come to terms with this and I am afraid to push and cause his ODD to flare up. I don't know if it's his ADHD or schizophrenia symptoms but for the past couple of days he has been pretty jittery. Not really hyper like I have seen where he is punching his bed or hitting walls or jumping like a 5 year old but like a muted undertone of something not right. Maybe it's time to look into another medication. I know that he has been tried on a lot of them but they were during times of chronic high marijuana use and nothing seemed to help except the Clozapine. I have heard of some good results with Latuda. It's an atypical or new generation AP that seems to work on blocking or antagonizing dopamine D2 receptors. No I don't really understand exactly what this means except that it helps to limit the amount of dopamine my son's brain has to work with. Clozapine is also one. I look at these things as I believe my son's brain produces too much dopamine and especially after the Adderall certain types of medications will do him more harm then good.

Because of his legs going pretty non-stop I asked him last night if he wanted a Neurontin. The last time I gave him one he didn't take it so I'm never to sure if I should be giving it to him or not however I do know that despite his tendency to try and abuse it that it does help with his anxiety and it does seem to help keep his mood more stable. It works on the central nervous system. I'm hoping that he took the one that I gave him last night. He was up this morning when I got up just before 6 stating that he had been asleep for a couple of hours but woke up and was just having a smoke. He seemed too alert to have already been asleep. His pill dish was empty and he is sleeping sound now so I'm guessing he took them shortly before I got up. One of the benefits to my insomnia is that being up and down all night allowed me to keep a closer eye on him so that I could nicely nag him into taking his pills and going to bed. Maybe knowing that my daughter is around and can get me up if needed is allowing me to sleep better.

I almost feel like we are on a precipice or the edge of a cliff and I don't know if we are going to go over or manage to shuffle ourselves out of harms way. I don't know how to move us forward and away from this edge without causing harm yet I also feel that if we don't move forward then we will inevitably succumb to gravity and fall of the edge anyways. We can not stay teetering as we are. Perhaps I can but for my son it is not a good place.

Mom
BarbieBF